Introduction to the breakout sessions & case studies presentations

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Transcript of Introduction to the breakout sessions & case studies presentations

Romania on the EUPATI way

Rozalina Lapadatu, Dublin, April 22, 2015

Patients representation

Patients are represented: In law debates regarding health system In hospitals ethical committees

Patients are not represented: Romanian Drug Agency ethical committees (medicines and clinical studies) HTA meetings

Other needs: National Clinical Trial Register National Registers for Chronic Diseases

National Liaison Teams first step to create EUPATI National Platform

1. EUPATI trainees: Violeta ASTRATINEI, Rozalina LAPADATU, Cosmina UNGUREANU

2. Academia representatives: Prof. Dr. Ruxandra IONESCU

3. Media partners: Marius GEANTA, Delia BUDURCA

4. Industry representatives: still need internal approvals

5. Healthcare professional bodies: in progress

EUPATI meeting, Barcelona April 2015

Our activity

Promoting EUPATI values within radio programs, conferences, meetings with local stakeholders

Presenting EUPATI Course during Melanoma Congress, Brussels,

24-26 April 2015

Project benefits in Romania

For patients and patients advocates: The importance of health education in having

an informed decision Understanding medical terminology and

participation in clinical trials Facilitating participations to ethic committees,

health documents revision , reimbursement process

For patients partners: Both way communication doctor - patient Patients- qualified partners in the decisions

regarding medication, clinical studies and health politics