Post on 06-Jul-2015
description
1.
informed consent “in a mobile world”
how cheap (cash-wise) it all is.
contracts and technology (not)
working together…
designed for systematic re-use of
personal data
689,000
can we use the same design methods to
assist informedness, rather than to obscure it?
interaction design prioritizes the user and
the experience
courtesy of: David Fore
first attempt at interaction design for
consent
let clinicians build interfaces that assist the
consent experience
2.
a free language for visual informed consent
- icons for key concepts in clinical study - all open source or public domain
“nouns and verbs”
from Sage Bionetworks IRB approved studies
“recombining and reusing your data”
“sentences” via animation
not just mobile - any place an interface
will assist
fully open source
Parkinsons Disease Mobile Study implementation
from 1800 to 100,000
3.
supporting methods and materials
“as filed” - available for copying and distribution (especially for use as precedent)
templates - available as open source documents for reuse and derivatives (for creating new clinical submissions to an IRB)
as filed: informed consent
template: informed consent
frequently asked questions
storyboard layouts
50
document-to-interface mapping examples
software workflows
web assets
4.
we’re a long way from “done” (if “done” exists)
understand the method.
more nouns, verbs, sentences, stories
- genomics - medical records - clinical labs
“chooser” to help generate templates
technical architecture for 3rd party app-based studies
informed consent post-Snowden
a. “just like now, but moreso”
b. the cartel.
c. an open, common network
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