Post on 02-Jul-2015
description
Marie Lynch Head of Healthcare Programmes
3 November 2014
Overview of IHF Dementia and Palliative Care Programmes
Context and Policy
2001 2008
2012
2013
2008
2012
End of life care needs of people with dementia
Care Transitions
Multidisciplinary team involvement
Pain & other
Symptoms
Communication Loss and bereavement
2013 - 2016
Three Outcomes
Palliative care for people with
dementia will be prioritised in all
care settings; and more
people will be supported to die
well at home
Better end of life care in
residential care settings for
older people with a focus on
people with dementia
Increased public awareness on
death and dying, with more
people including those with dementia,
engaging in early advance
planning
Practice tools, service models,
primary palliative care
Adaptation of Hospice Friendly Hospital
resources, development and education for
residential settings
Roll out and adaptation of Think Ahead
STRATEGIC ENGAGEMENT
4 Project Groups
Participation
Dissemination
REPRESENTATION: Nursing, Medicine, Palliative care,
Intellectual Disability, Patient Groups
Public meetings, consultations, grant funding, seminars, workshops, carers
Information leaflets, communiques, website,
contact database
STRATEGIC ENGAGEMENT
2013 2016
Palliative care for people with
dementia will be prioritised in all
care settings; and more
people will be supported to die
well at home
Planning for the future
Understanding late stage
Loss and Bereavement
Communication & advance care planning
Intellectual disabilities
Pain, Symptom , medication
Ethical decision making
Bereavement
RESOURCES FOR PEOPLE WITH DEMENTIA & THEIR FAMILIES, & STAFF
GUIDANCE DOCUMENTS
Palliative care for people with
dementia will be prioritised in all
care settings; and more people will be supported to die well at home
EOLC dementia pathway acute hospital
Good Neighbour scheme – advanced dementia
Communicating end of life and dementia residential care
Supporting palliative care needs when care transitions are necessary
5 REGIONAL SEMINARS
DEVELOPMENT GRANTS – GRANT CALL NOW OPEN FOR 2015
SUPPORTING HOME DEATHS FOR PEOPLE WITH DEMENTIA
Palliative care for people with
dementia will be prioritised in all
care settings; and more people will be supported to die well at home
3
8 12
14
25
50
63
0
10
20
30
40
50
60
70
2007 2008 2009 2010 2011 2012 2013
6 8
15 15
7
15
34
45
0
5
10
15
20
25
30
35
40
45
50
2010 2011 2012 2013
Male Female
Better end of life care in residential
care settings for older
people with a focus on
people with dementia
Need to support residential care centres meet end of life care needs of residents and
comply with regulations
Better end of life care in
residential care settings
for older people with a focus on
people with dementia
Onsite facilitation Individual tailoring for quality improvement
EOLC toolkit Education
End of life reviews Telephone support
End of life toolkit Online learning and
support Community links
EDUCATION AND TRAINING FOR HEALTHCARE STAFF
• End-of-Life Care Training Workshops
• Conferences and large-group presentations
• Supporting families 6 week module
Better end of life care in residential
care settings for older
people with a focus on
people with dementia
Increased public awareness on
death and dying, with more
people including those with dementia,
engaging in early advance
planning
EVALUATION
LEAP MODEL