Marie Lynch Head of Healthcare Programmes

3 November 2014

Overview of IHF Dementia and Palliative Care Programmes

Context and Policy

2001 2008

2012

2013

2008

2012

End of life care needs of people with dementia

Care Transitions

Multidisciplinary team involvement

Pain & other

Symptoms

Communication Loss and bereavement

2013 - 2016

Three Outcomes

Palliative care for people with

dementia will be prioritised in all

care settings; and more

people will be supported to die

well at home

Better end of life care in

residential care settings for

older people with a focus on

people with dementia

Increased public awareness on

death and dying, with more

people including those with dementia,

engaging in early advance

planning

Practice tools, service models,

primary palliative care

Adaptation of Hospice Friendly Hospital

resources, development and education for

residential settings

Roll out and adaptation of Think Ahead

STRATEGIC ENGAGEMENT

4 Project Groups

Participation

Dissemination

REPRESENTATION: Nursing, Medicine, Palliative care,

Intellectual Disability, Patient Groups

Public meetings, consultations, grant funding, seminars, workshops, carers

Information leaflets, communiques, website,

contact database

STRATEGIC ENGAGEMENT

2013 2016

Palliative care for people with

dementia will be prioritised in all

care settings; and more

people will be supported to die

well at home

Planning for the future

Understanding late stage

Loss and Bereavement

Communication & advance care planning

Intellectual disabilities

Pain, Symptom , medication

Ethical decision making

Bereavement

RESOURCES FOR PEOPLE WITH DEMENTIA & THEIR FAMILIES, & STAFF

GUIDANCE DOCUMENTS

Palliative care for people with

dementia will be prioritised in all

care settings; and more people will be supported to die well at home

EOLC dementia pathway acute hospital

Good Neighbour scheme – advanced dementia

Communicating end of life and dementia residential care

Supporting palliative care needs when care transitions are necessary

5 REGIONAL SEMINARS

DEVELOPMENT GRANTS – GRANT CALL NOW OPEN FOR 2015

SUPPORTING HOME DEATHS FOR PEOPLE WITH DEMENTIA

Palliative care for people with

dementia will be prioritised in all

care settings; and more people will be supported to die well at home

3

8 12

14

25

50

63

0

10

20

30

40

50

60

70

2007 2008 2009 2010 2011 2012 2013

6 8

15 15

7

15

34

45

0

5

10

15

20

25

30

35

40

45

50

2010 2011 2012 2013

Male Female

Better end of life care in residential

care settings for older

people with a focus on

people with dementia

Need to support residential care centres meet end of life care needs of residents and

comply with regulations

Better end of life care in

residential care settings

for older people with a focus on

people with dementia

Onsite facilitation Individual tailoring for quality improvement

EOLC toolkit Education

End of life reviews Telephone support

End of life toolkit Online learning and

support Community links

EDUCATION AND TRAINING FOR HEALTHCARE STAFF

• End-of-Life Care Training Workshops

• Conferences and large-group presentations

• Supporting families 6 week module

Better end of life care in residential

care settings for older

people with a focus on

people with dementia

Increased public awareness on

death and dying, with more

people including those with dementia,

engaging in early advance

planning

EVALUATION

LEAP MODEL