Post on 18-Dec-2015
GENNEREEU seminar: China IT week, 27th, April, 2004
Didier GUILLON & for the GENNERE WG Haijin YU
Didier GUILLON & for the GENNERE WG Haijin YU
GENNEREGeneric Epidemiological Network in
Nephrology & Rheumatology
GENNEREGeneric Epidemiological Network in
Nephrology & Rheumatology
GENNEREEU seminar: China IT week, 27th, April, 2004
• SIMS-REIN: French national epidemiological network in Nephrology (Leader: Dr. Paul Landais)
• GENNERE – Chinese needs
– Genericity• Medical: easy extension to other fields
• Software: reuse and adaptability
• Language: Chinese, English, French …
• SIMS-REIN: French national epidemiological network in Nephrology (Leader: Dr. Paul Landais)
• GENNERE – Chinese needs
– Genericity• Medical: easy extension to other fields
• Software: reuse and adaptability
• Language: Chinese, English, French …
GENNERE Project BackgroundGENNERE Project Background
GENNEREEU seminar: China IT week, 27th, April, 2004
• Thank to ASIA-ITC EU Commission
• 18 months (Feb, 2003 ~ Aug, 2004)
• Budget: 400,000 €
• Chinese Partner: Rui Jin Hospital, SSMU
• Domains: Nephrology, Rheumatology
• Today’s focus: Nephrology - ESRD
• Thank to ASIA-ITC EU Commission
• 18 months (Feb, 2003 ~ Aug, 2004)
• Budget: 400,000 €
• Chinese Partner: Rui Jin Hospital, SSMU
• Domains: Nephrology, Rheumatology
• Today’s focus: Nephrology - ESRD
ContextContext
GENNEREEU seminar: China IT week, 27th, April, 2004
GENNERE: a challenge of public healthGENNERE: a challenge of public health
ESRD — An evolving care demand during the last decadeESRD — An evolving care demand during the last decade
End StageRenal Disease
( ESRD )
End StageRenal Disease
( ESRD )Liver cirrhosisLiver cirrhosis
Diabetes mellitusDiabetes mellitus
Cardiac diseasesCardiac diseases
Cerebral vascular accidentCerebral vascular accident
GENNEREEU seminar: China IT week, 27th, April, 2004
More effective management in ESRDMore effective management in ESRD
• More accurate monitor system
– Describe the population concerned
• macroscopic adjustment
– More accurate evaluation of disease control
– Medical financial administration & budgeteering
• More accurate monitor system
– Describe the population concerned
• macroscopic adjustment
– More accurate evaluation of disease control
– Medical financial administration & budgeteering
GENNEREEU seminar: China IT week, 27th, April, 2004
World-wide demand of epidemiological research in ESRD
World-wide demand of epidemiological research in ESRD
USRDS
A continuous & routine workA continuous & routine work
Africa America Asia Europe Oceania
GENNEREEU seminar: China IT week, 27th, April, 2004
Increasing problems of ESRD in ChinaIncreasing problems of ESRD in China
• High incidence
• High cost
• High personal burden
• High incidence
• High cost
• High personal burden
Government administrators（ Public Health Bureau, Medical Insurance Bureau, etc. ）
Patient
Hospital
GENNEREEU seminar: China IT week, 27th, April, 2004
The first step of Chinese renal registry (Shanghai, 1999)
The first step of Chinese renal registry (Shanghai, 1999)
180240
34
34
0
50
100
150
200
250
300
1999年 2002年
HD PD
• Manual (Totally/partly)
• Disadvantages– Statistical bias
(overlapping of patients)– Data-delay– Non-dynamic
• Manual (Totally/partly)
• Disadvantages– Statistical bias
(overlapping of patients)– Data-delay– Non-dynamic
• Retrospective & cross-sectional study• Retrospective & cross-sectional study
Annual point prevalence(pmp) in Shanghai
(pmp)
33.3%
GENNEREEU seminar: China IT week, 27th, April, 2004
Conjugated needs
Medical & paramedical teams
Health administrators
Researchers
GENNEREGENNERE
Patients
GENNEREEU seminar: China IT week, 27th, April, 2004
A network of Information for GENNERE
A network of Information for GENNERE
• Record and transmit epidemiological features
• Information & medical knowledge concerning
– Care and quality
– Epidemiology and research
– Planning and management
– Training
• Record and transmit epidemiological features
• Information & medical knowledge concerning
– Care and quality
– Epidemiology and research
– Planning and management
– Training
GENNEREEU seminar: China IT week, 27th, April, 2004
Renal and Epidemiological Information Network
Renal and Epidemiological Information Network
• Unity of action: the patient
• Unity of location: the region
• Unity of exchange: a secured network
• Unity of action: the patient
• Unity of location: the region
• Unity of exchange: a secured network
GENNEREEU seminar: China IT week, 27th, April, 2004
Unity of action: the patientUnity of action: the patient
• Patient-oriented information
• Focused on channels of care
• A shared common minimal medical file
• A unique identifier for ESRD
• Patient-oriented information
• Focused on channels of care
• A shared common minimal medical file
• A unique identifier for ESRD
GENNEREEU seminar: China IT week, 27th, April, 2004
Unity of location: the regionUnity of location: the region
The most pertinent level for
– Exchanges of proximity
– Control of exhaustivity
– Quality control
– Network management
The most pertinent level for
– Exchanges of proximity
– Control of exhaustivity
– Quality control
– Network management
GENNEREEU seminar: China IT week, 27th, April, 2004
Unity of exchange: a secured information transfer
Unity of exchange: a secured information transfer
• https, 128 bits encoding
• Respect of confidentiality
• https, 128 bits encoding
• Respect of confidentiality
GENNEREEU seminar: China IT week, 27th, April, 2004
universaluniversalclientsclients
universaluniversalclientsclients
web dynamic serverweb dynamic server web dynamic serverweb dynamic server datadatadatadata
Event database
Identity database
Web Interface
JSP
Servlet
HTML
3-tier architecture3-tier architecture
GENNEREEU seminar: China IT week, 27th, April, 2004
Need for agreementsNeed for agreements
• Institutional support
• Agreements between partners
• User charter
• Information charter
• Strong synergy with public health units
• Institutional support
• Agreements between partners
• User charter
• Information charter
• Strong synergy with public health units
Medical technique supportMedical technique support
• Multiple language• Unique international code (ICD-10)
• Specialized classification (Paul LANDAIS)
• Multiple language• Unique international code (ICD-10)
• Specialized classification (Paul LANDAIS)
GENNEREEU seminar: China IT week, 27th, April, 2004
Results (1)Results (1)
Results (2)Results (2)
GENNEREEU seminar: China IT week, 27th, April, 2004
Results (3)Results (3)
• Features of GENNERE
– High efficiency• macroscopic economical control• local administration
– Real-time information
– Dynamic data
– Break the regional restriction of data
• Features of GENNERE
– High efficiency• macroscopic economical control• local administration
– Real-time information
– Dynamic data
– Break the regional restriction of data
GENNEREEU seminar: China IT week, 27th, April, 2004
Next step (2005~2006)Next step (2005~2006)
• Objective– Epidemiology
• Descriptive statistics of ESRD
• Aid to public health decision-making
• Visual and intuitive graphic interface
• How?– Data warehouse
– Integration of remote databases
• Objective– Epidemiology
• Descriptive statistics of ESRD
• Aid to public health decision-making
• Visual and intuitive graphic interface
• How?– Data warehouse
– Integration of remote databases
GENNEREEU seminar: China IT week, 27th, April, 2004
PerspectiveGeographic Information System
PerspectiveGeographic Information System
GENNEREEU seminar: China IT week, 27th, April, 2004
GENNERE partners GENNERE partners GENNERE partners GENNERE partners
Paris - NECKERParis - NECKER
Paul LANDAISMichel SIMONET
Didier GUILLON
Belgium - RAMITBelgium - RAMIT
Georges de MOOR
Nan CHEN
Wen ZHANG
Grenoble - AGDUCGrenoble - AGDUC
Michel FORET
Philippe GAUDIN
Grenoble – TIMC IMAGGrenoble – TIMC IMAG
Shanghai – RUI JINShanghai – RUI JIN
GENNEREEU seminar: China IT week, 27th, April, 2004
The end
GENNEREEU seminar: China IT week, 27th, April, 2004
Contact 联系方式Contact 联系方式• Michel SIMONET
Michel.Simonet@imag.fr
• Didier GUILLON
Didier.Guillon@agduc.com
• Haijin YU 俞海瑾 Kidney_rj@medmail.com.cn
• Michel SIMONET
Michel.Simonet@imag.fr
• Didier GUILLON
Didier.Guillon@agduc.com
• Haijin YU 俞海瑾 Kidney_rj@medmail.com.cn
Shanghai Grenoble