BIG DATA IN A SMALL COUNTRY FROM GENE MAPS TO APPS

-THE REGISTERS, COHORTS AND INTERACTIVE TOOLS

TOBIAS SONNE, ANDERS ERLANDSON & CARSTEN OBEL

THE FOODHOUSE, CHRISTIANSBORG, MARCH 16TH

QUESTION OF THE DAY: HOW DO WE GET THE BEST USE OF OUR

POTENTIAL?

BIG DATA FROM A DANISH PERSPECTIVE

•  PERSONAL  ID  •  BIOBANKS  •  REGISTERS  •  BIRTH  COHORTS  

•  A  LOT  ABOUT  RELATIONS    

GENETICS: RELATIONS MADE SIMPLE

GENETICS RELATIONS MADE SIMPLE

•  GWAS  SAMPLE  – SKIZOPHRENIA  (5.5K)  – AFFECTIVE  (20K)  – AUSTISM/ASD  (16K)  – ADHD  (18K)  – CONTROLS  (25K)    

ENVIRONMENT (X GENES) RELATIONS MADE

COMPLICATED •  PUBLIC  REGISTERS:  FIN,  SWE  AND  DK  (7,000  K)  

– SIBLINGS  •  BIRTH  COHORTS:  NORWAY  AND  DK  (200  K)  

– EPIGENETICS  •  MUNICIPALITY  INTERACTIVE  COHORTS  (?  K)  

–  INTERVENTIONS          

LEARNING FROM RELATIONS

RELATIONS THROUGH LIFE

GROWING UP IN DENMARK

THE BIG DANISH ISSUES

•  WHY  SHARE  YOUR  DATA?  •  COLLECTIVITY  

– THE  BEST  SUPPORT/TREATMENT  

•  AUTHONOMY  – NOT  TO  BE  STIGMATISED  

 •  WE  USE  DATA  FOR  THE  BENEFIT  OF  THE  USER  

– USER  INVOLVEMENT  

 

COLLECTIVE SHARING OF KNOWLEDGE

THE DANISH HEALTH AND WELLFARE SYSTEM

SOCIALE PLATFORMS

PRIVATE DRIVEN HEALTH SOLUTIONS

QUESTION OF THE DAY: HOW DO WE GET THE BEST USE OF OUR

POTENTIAL?

TIME FOR LUNCH AND MORE