Rare Disease Impact Report: Insights from patients and the medical community
Don’t Fail to Communicate – Identify Patient Perceptions of Communication Gaps with Physicians
Exploring Markets of Data for Personal Health Information
Rare-Disease-Brochure-1-Page-Version1
Rare_Diseases_Fact_Sheet
1 Behçet’s Syndrome community on RareConnect.org Marta Campabadal, EURORDIS RareConnect Community Coordinator #Behcets2014.
1 Shaping Social Opinions of Stem Cell Research in Taiwan Prof. Tsai, Duujian 2007, Asian Bioethics Conference, Bangkok, Thailand.
An Introduction to Genetic Alliance UK’s Work in Scotland Natalie Frankish – Development Officer for Scotland Event:Action Duchenne Scottish Conference.
Big data analytics in healthcare: promise and potential for rare disease
Genetic analysis in human disease
