The AACVPR Pulmonary and Cardiac Rehabilitation Registries
Gerene Bauldoff, PhD, RN, FAACVPR AACVPR Pulmonary Registry Comm
The Ohio State University
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Disclosures None
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Objectives Benefits of registry participation Current status
Data elements, interface and reporting features How to subscribe
and FAQs
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AACVPR Registry Committee Chris Garvey, Bonnie Sanderson,
Chairs Todd Brown, MD, Director Bonnie Anderson Gerene Bauldoff Pat
Barnes Eileen Collins DorAnne Donesky Joan Dugan Kent Eichenauer
Anne Gavic Steve Lichtman Mike McNamara Keri Ohren Connie
Paladenech Diana Rohloff Chris Schumann Charlotte Teneback Randy
Thomas Mark Vitcenda Stacy Wolf
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AACVPR Registry Sponsors
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Registry Developer
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Research tells us what we can do. Guidelines tell us what we
should do. Registries tell us what were actually doing.
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What is a registry? Naturalistic collection of data Designed to
fulfill a specific purpose Data derived from patients clinical
status or processes of care patient undergoes Specific and
consistent data definitions Uniform collection of data from patient
to patient
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Provide evidence to patients, physicians, administrators,
healthcare payers, and regulators that cardiac and pulmonary
rehabilitation produce improvements in patients health outcomes
beyond what can be expected or achieved through usual care.
Mission
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Why should we participate?
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Participation Benefits Strengthen the understanding and
awareness of the impact of CR and PR Supports AACVPR
recommendations of outcome tracking and quality improvement Linking
registry data with Program Certification application
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Participation Benefits Easy and convenient way of organizing
outcomes and utilization data Immediate feedback regarding
performance Demonstrates your commitment to improving patient care
Raises status of your services in healthcare system
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75yrs COPD 1650 ft 83.4 kg females
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Current Status: PR Registry June, 2013 launch 156 programs
actively participating Over 7,500 patient records entered to
date
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PR Registry Data Elements Demographics Admitting diagnoses and
comorbidities Anthropometric values, smoking status Pulmonary
function values Functional capacity (6MWD)
Dyspnea/Psychosocial/HRQoL assessments O 2 use, prescription,
system type Healthcare utilization/events/mortality Programmatic
outcomes
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Supported Assessment Tools Modified MRC UCSD SOBQ CES-D PHQ-9
PSRF Survey HADS GDS 15 and 30 CRQ St. George Respiratory
Questionnaire SF-36 Ferrans & Powers QLI Dartmouth COOP COPD
Assessment Test
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See the Data Elements document on the Registry web site for
more information about registry variables
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Coming in 2015 Get ready for a new and improved AACVPR
Pulmonary Rehabilitation Registry experience. Enhancements are
coming for the AACVPR Pulmonary Rehabilitation Registry: New
Performance Report displaying your programs patient outcomes in a
number of key areas compared to state and national benchmarks
Updates to data sets in the following areas: pulmonary function,
dyspnea, psychosocial outcomes, hospitalization and physical
activity Improved user interface to provide helpful field tips and
definitions Addition of more choices to several fields for more
precise data entry 2.0
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75yrs 414.01 1650 ft 83.4 kg females
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CR Registry Data Elements Demographics Admitting diagnoses and
comorbidities Anthropometric, lipid, glucose values Functional
capacity (6MWD, peak METs, ETT METs) Psychosocial/HRQoL assessments
Healthcare utilization/events Programmatic outcomes
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Supported Assessment Tools CES-D PHQ-9 PSRF Survey MacNew BDI-2
Duke Activity Status Index SF-36/SF-12 Ferrans & Powers QLI
Dartmouth COOP
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Supported Dietary Assessment Tools Diet Habit Survey Rate Your
Plate-Heart MEDFICTS (from ATP-3) Block Dietary Fat Screener
Resources for all tools available on AACVPR Registry Resources
site
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Current Status: CR Registry 390 active programs 89,000+ patient
records entered
Application Steps Designate Principal User through Application
form (follow directions on registry page) Log in and go to My
Programs Principal User updates program information (used for both
Registry and Certification apps) Principal User designates
secondary users Check subscription process on Process
dashboard
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Test Pulmonary Program Review Facility and Program information
for accuracy Update information as necessary Complete program
roster
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Add secondary users (required)
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Subscription Steps Read, sign and return Participation
Agreement Pay subscription fees View training webcast Complete data
entry test
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Important Documents Frequently Asked Questions (FAQs)
Everything about everything Data Elements list List of all fields
in Registry Definitions and Comments Description of selected
elements and definitions Registry User Guide How to get around the
Registry interface Data sheets Tool for capturing outcomes
data
Reporting features Individual Patient Outcomes summary Program
Outcomes Summary Report Program Comparison Report (like-size,
state, national benchmarks) Performance Report (CR only) Data
Extraction utilities
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Frequently Asked Questions (or Answers to FAQs)
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Participation Agreement and Legal IRB not required per HIPAA
regulations; however, local institution may require review Patient
consent not required AACVPR Participation Agreement document
required as basis for agreement; some language can be
modified/added if needed Program does NOT need to be
AACVPR-certified in order to participate
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Training Principal User responsible for seeing that secondary
users trained and following protocols ALL users must view Registry
webcast and enter test data before being given access rights Review
documents, review documents, review documents
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Data entry Enter as much data as needed to track patient health
and outcomes Very few required data points, and a handful of highly
recommended ones
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Registry Patient Assessment Tools No required tools Mix of free
tools and tools requiring a license Supported tools not
providedprograms must secure required licenses and scoring
algorithms.
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Telemetry/Registry solutions Working with partners on methods
for uploads Vendors will be contacting customers with
information
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[email protected] or 312.321.5146 Questions? Subscription
Legal Technical Clinical