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USA
ALL STATES
THE MULTIPLE SYSTEM ATROPHY (MSA) COALITION (formerly the Shy-Drager/MSA Support Group) 8311 Brier Creek Parkway, Suite 105-434 Raleigh, NC 27617 USA www.MultipleSystemAtrophy.org Toll free: 1-866-737-4999 or 1-866-737-5999 “United to Defeat MULTIPLE SYTEM ATROPHY”
The Multiple System Atrophy (MSA) CoalitionTM is a 501(c)3 charitable organization (EIN: 74-2926378) devoted to a four pillar mission: • Supporting patients and caregivers affected by multiple system atrophy • Educating patients, caregivers and healthcare professionals • Financing and encouraging meaningful research toward identifying a cause and finding a cure for MSA • Advocating for issues important to the MSA community, including creating greater awareness
Information: We offer two toll free support lines staffed by former MSA caregivers. Contact: Vera James (CA USA) 1-866-737-5999 [email protected] Judy Biedenharn RN (OH USA) 1-866-737-4999 [email protected] Meeting Time(s): We host an annual conference for MSA patients and families in a different US city each year, usually September or October timeframe. Please watch for announcements on our website www.MultipleSystemAtrophy.org DVD’s of past conferences are available to order Other contacts: Carol Langer (MA USA) [email protected]
Don Crouse (NC USA) [email protected] Pam Bower (NS CANADA) [email protected]
Larry Kellerman (IA USA) [email protected] Phil Fortier (MI USA) [email protected] Tom Looney (NC USA) [email protected] Cynthia Roemer (NJ USA) [email protected] Sharon Sutton (TX USA) [email protected]
List of Support Meetings & phone/email support
USA and Canada
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This list is maintained by Vera James [email protected]
Note: Every effort is made to ensure meeting times & dates are accurate, however we do suggest that you contact the facilitator first before attending a meeting for the first time. ALABAMA
CHICKASAW Information: No Meeting Phone Support Only Contact: Janiece Naber Martindale 251-300-1196 [email protected]
ARKANSAS
LITTLE ROCK Information: For anyone affected by PSP<CBD or MSA Location: Alzheimer’s Arkansas 201 Markham Center Drive, Little Rock, AR 72205 (ask front desk for room details, 501-224-0021 Meeting Time: 4th Thursday of every months from 1:00pm-2:30pm Facilitator: Randi Haley 870-703-6417 [email protected]
ARIZONA
TEMPE Information: No Meeting Phone Support Only Contact: Jean Suico 480-839-3794 [email protected]
GILBERT
Information: No Meeting
Contact: Tandy King Facebook: www.facebook.com/kingchtata
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USA and Canada
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CALIFORNIA
FREMONT Information: Non-profit for MSA Cure MSA – Kathy Shih Memorial Foundation P.O. Box 15088 Fremont, CA 94539 USA www.curemsa.org
Contact: Lily Shih (Executive Director) 510-226-0453 [email protected]
BURLINGAME Information: No Meeting Phone Support Only Contact: Candy Welsh 650-375-0229 [email protected]
FOUNTAIN VALLEY
Information: For family members and caregivers dealing with Atypical PD+ Disorders Location: Orange coast Memorial Medical Center, Classroom C, 9920 Talbert Ave Fountain Valley, CA 92708 Facilitator: Justin Aquines 714-907-0074 [email protected] FREMONT Information: No Meeting Phone Support Only Contact: Sandy Bierman 510-656-6897 [email protected] Lily Shih 510-226-0453 [email protected] GOLETA Information: No Meeting Phone Support Only after 11am EST Contact: George Relles 805-683-4829 [email protected]
LIVERMORE Information: No Meeting Phone Support Only Contact: Carol Dutcher 925-998-3656 [email protected]
List of Support Meetings & phone/email support
USA and Canada
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CALIFORNIA (continued)
LOS ANGELES Information: Parkinsonian Disorders Support Group MSA ,PSP, CBD, OPCA, SND, SDS, PD Location: Ronald Reagan UCLA Medical Center. 757 Westwood Plaza, Los Angeles, CA 90095,
Conference Room 3102 Meeting Time(s): 1st Friday of every month from 2:00pm - 4:00pm (for directions only: 310-825-9111) Sponsors: Dr. Yvette Bordelon, UCLA Movement Disorder Department Facilitator: Loretta Mazorra RN,MN,MA, Nurse Practiioner [email protected] Contact: Dolly West 310-430-6678 or 310 206-2154
MODESTO Information: No Meeting Contact: Janeice Partridge [email protected] NORTHERN/SAN MATEO Information: Neurodegenerative movement disorder group (MSA PSP, CBD, etc.) – caregivers
only. Contact facilitator for more info. Location: Mimi's Cafe, 2208 Bridgepointe Parkway, San Mateo, CA 94404 Meeting Time(s): Every six weeks (call or e-mail for schedule) from 5:00pm - 7:00pm Facilitator: Robin Riddle 650-814-0848 [email protected] SAN DIEGO Information: For patients/caregivers dealing with Atypical Parkinsonian Disorders like MSA, PSP,
CBD, OPCA, SND, SDS Location: UCSD Thornton Hospital, 9300 Campus Point Drive, La Jolla, CA 92037, SDG&E
Room (3rd floor) Meeting Time(s): 3rd Thursday of every month from 1:00pm -3:00pm (for directions only: 858-657-7000) Sponsors: Dr. Stephanie Lessig, UCSD & VA Movement Disorder Department Facilitator: John Jenkins 619-787-2760 [email protected]
SAN DIEGO
Information: For ONLY caregivers dealing with Atypical Parkinson Disorders (MSA, PSP, CBD, OPCA) Location: Holy Angels Byzantine Catholic Church, 2235 Galahad Road, San Diego, CA 92123 Meeting Time(s): Every other month from 11:00am - 1:00pm Facilitator: Patricia Hagan 619-223-1645 [email protected]
List of Support Meetings & phone/email support
USA and Canada
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CALIFORNIA (continued)
SANTA BARBARA Information: No Meeting Phone Support Only
Contact: Suzanne Grimmesey-Kirk 805-692-4010 [email protected]
THOUSAND OAKS
Information: For patients/caregivers dealing with Atypical Parkinsonian + Disorders like MSA,PSP,CBD,OPCA,SND & SDS Location: 672 Rosario Drive, Thousand Oaks, CA 91362 Meeting Times: One Saturday every quarter from 1:00pm-4:00pm Call or email for meeting date. Facilitator: Kathy Schwaiger 805-496-7018 [email protected] Ceri Williams [email protected]
COLORADO
DENVER/ENGLEWOOD Information: Neurodegenerative movement disorder group (MSA, PSP, CBD) Location: Johnson Adult Day Center, 3444 South Emerson St., Englewood, CO 80113
Meeting Time(s): 2nd Friday of each month from 10:00am - 12:00pm for Patients/Caregivers 4th Friday of each month from 10:00am-12:00pm for Caregivers only
Facilitator: Helenn Franzgrote 303-789-9900 [email protected] JOHNSTOWN/LOVELAND Information: MSA,PSP,CBD Location: Northern Colorado Rehabilitation Hospital 4401 Union Street Johnstown/Loveland, CO 80528 Meeting Time: 1st Friday of each month from 1:00pm - 3:00pm (No Dec/Jan meeting) Facilitator: Ruth Fletcher-Carter 970-532-2681 [email protected]
List of Support Meetings & phone/email support
USA and Canada
Page 6 of 22
This list is maintained by Vera James [email protected]
FLORIDA
BRADENTON
Information: No Meeting Phone Support Only
Contact: Dan Stone 678-581-9237 [email protected]
Contact: Connie Ferguson 941-778-5294 [email protected]
HOLMES BEACH Information: No Meeting Phone Support Only Contact: Connie Ferguson 941-778-5294 [email protected]
PORT ORANGE Information: No Meeting Phone Support Only Contact: Jim Grant 386-334-2691 [email protected]
SOUTHEAST/DEERFIELD BEACH
Information: For patients/caregivers/families affected by MSA, PSP, CBD and related diseases Location: North Broward Medical Center, 201 E. Sample Road, Deerfield Beach, FL 33064, 1st
Floor, Classrooms 7&8 (for directions only: 954-941-8300) Meeting Time(s): Contact Facilitator for more info Facilitator: Paul Freeman 305-970-0805 [email protected] SOUTHWEST/NAPLES Information: For patients/caregivers/families affected by MSA, PSP, CBD and related diseases Location: Manor Care at Lely Palms, 6135 Rattlesnake Hammock Road, Naples, FL 34113 Meeting Time(s): 2nd Saturday of each month from 2:00pm - 3:30pm Facilitator: Cindy MacDonald 239-353-3960/239-404-4429 [email protected]
List of Support Meetings & phone/email support
USA and Canada
Page 7 of 22
This list is maintained by Vera James [email protected]
GEORGIA
ATLANTA Information: For patients/caregivers living with Atypical Parkinsonism’s, PSP and CBD Location: Wesley Woods Health Center, 1841 Clifton Rd, Atlanta, GA 30329, 3rd Floor
Conference Room Meeting Time(s): 2nd Saturday of each month (except May) from 10:00am – 11:30am Facilitator: Lynn Ross 404-728-6300 [email protected] ELLIJAY
Information: No Meeting Phone Support Only
Contact: Paula Davis 706-669-1978 [email protected]
INDIANA INDIANAPOLIS
Information: No Meeting Phone Support Only Contact: Gary Huddleston 317-501-4899 [email protected] KOKOMO Information: For MSA Patients/caregivers Contact: Renate Sharp 765-453-5351 [email protected] Chris Markiewicz 765-513-5219 [email protected] Francie Hutton 765-453-9020 [email protected]
WARSAW
Information: No Meeting Phone Support Only
Contact: Terry Shepherd 574-267-1566 [email protected]
ILLINOIS
ORLAND PARK Information: No Meeting Phone Support Only Contact: Arthur (Ed) Wall 708-478-1236 [email protected]
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USA and Canada
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CHICAGO AREA
Information: MSA Support Meeting for Patients/Caregivers Meeting information: Quarterly meetings. Time and place announced on Facebook NE Central USA Page or Contact Facilitator. Facilitator: John Standley 815-403-2221 [email protected] NORTHWESTERN AREA Information: For those with PD and other movement disorders Location: Northwestern Memorial Hospital 251 East Huron, Feinberg Pavilion, 3rd Floor Room A (free parking at Huron/St. Clair) Meeting Time : 4th Thursday of every month from 1:00-2:00 pm Facilitator: Pamela Palmentera 312-503-4397 [email protected]
IOWA
WESTERN IOWA AREA Information: No Meeting Phone Support Only Contact: Keryn Paul 402-813-7315 [email protected] NEW LONDON
Information: No Meeting
Contact: Larry Kellerman [email protected]
KENTUCKY
LOUISVILLE Information: Atypical Parkinsonian Disorders (MSA,PSP, CBD) Location: PSCKY Office, Middletown 315 Townepark Circle, Suite 100 Meeting Time: 2nd Tuesday of every month 12:00pm-1:00pm Facilitator: Dan Heins 502-216-4563 [email protected]
List of Support Meetings & phone/email support
USA and Canada
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LOUISANA
NEW ORLEANS Information: Patients/families/caregivers with PSP/CBD/MSA & related diseases Location: Little Farms United Church of Christ, 135 Sauve Road, River Ridge, LA 70123 Meeting Time(s): 3rd Thursday of each month from 7:00pm - 8:00pm Facilitator: Shiela Grose 504-737-2614 [email protected] CLINTON
Information: No Meeting
Contact: Gloria Chaney [email protected]
MAINE
FALMOUTH Information: For patients/caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD, MSA, OPCA, SND, SDS Location: Maine Parkinson’s I&R Center, 5 Bucknam Road, Falmouth, ME Meeting Time(s): One Sunday per quarter from 1:00pm - 3:00pm. Contact Facilitator for info. Facilitator: Janet Edmunson 207-799-4963 [email protected] Barbi Johnson 207-633-0881
MARYLAND
ANNE ARUNDEL COUNTY Information: For patients/caregivers affected by PSP, CBD & other neurodegenerative diseases Location: Kris Leigh Assisted Living Facility, 831 Ritchie Highway, Severna Park, MD Meeting Time(s):3rd Saturday of every month from 1:00pm – 3:00pm Facilitator: IIeen Watson 410-271-1818 [email protected]
BALTIMORE Information: For caregivers affect by Neurodegenerative diseases Location: Govans Presbyterian Church 5828 York Road, Baltimore, MD 21212 . Peace Center
Library. Meeting Time 4th Thursday of every month Facilitator: Becky Dunlop,RN 410-955-8795 [email protected]
BEL AIR Information: For caregiver affected by MSA,PSP,CBD & other neurodegenerative diseases Location: William McFaul Activities Center 525 West McPhail Road , Bel Air,MD 21014
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USA and Canada
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Meeting Times: 4th Thursday of every month from 2pm-4pm Facilitatior: Becky Dunlop , RN 410-955-8795 [email protected] ELDERSBURG Information: No Meeting Phone Support Only Contact: Shirley Snyder 410-259-1354 [email protected]
PRINCE FREDERICK
Information: No Meeting Phone Support Only Contact: James Taylor 410-535-0780 [email protected]
MASSACHUSETTS BOSTON
Information: For MSA Patients/Caregivers Location: Boston University Medical Center; 88 East Newton Street, 2nd floor, Conf Rm C, Boston, MA Meeting Time: quarterly Facilitator: Melissa Diggin 339-927-5468 [email protected] Or contact: Carol Langer 617-93603053 [email protected]
GARDNER Information: For MSA patients/caregivers Location: Heywood Hospital in Gardner, MA Meeting Time: last Wednesday of each month at 2 PM Facilitator: Marybeth Kumph 978-630-643 Carl Billington 987-632-9682
MICHIGAN
DETROIT Information: Non Profit for MSA
Joseph G Fortier Foundation for MSA P.O. Box 80778 St. Clair Shores, MI 48080 USA [email protected] www.movingtodayformsa.org www.facebook.com/JGFFoundationForMSA
List of Support Meetings & phone/email support
USA and Canada
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We move today, in service of tomorrow! Contact: Philip M Fortier (Co-Director) 586 246-1475 (cell/vm) [email protected]
ALMA
Information: For patients, caregivers, and families dealing with PSP, CBD, MSA and other
atypical Parkinsonian disorders
Location: Masonic Pathways, 1200 Warwick Drive, Alma, Michigan, Diog Conference Center
(below chapel)
Meeting Time(s): 4th Wednesday of every month
Facilitators: Robbie and Keith Virgo 989-681-6321 [email protected]
DELTON
Information: For patients, caregivers and families with PSP, CBD, MSA and other atypical
parkinsonian
location: 1137 Floria Drive, Delton, MI 49046 (park in church parking lot)
Meeting Time : 2nd Saturday of each month from 2:00pm-3:30 pm beginning April 12, 2014
Facilitator : Mary Meagher 269-267-3117 [email protected]
MINNESOLA
MINNEAPOLIS
Information: For patients and families dealing with PSP, CBD, MSA
Location : Struther's Parkinson's Center 6701 Country Club Drive, Golden Valley, MN 55427
Meeting Time: 2nd Wednesday of every month from 1:00pm -2:30pm
Facilitator: Joan Hlas 952-993-6650
MONTANA
KALISPELL Information: No Meeting Phone Support Only Contact: Gary Cuthbertson 406-257-4392 [email protected]
NEBRASKA
OMAHA Information: No Meeting Phone Support Only Contact: Keryn Paul 402-813-7315 [email protected]
List of Support Meetings & phone/email support
USA and Canada
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LINCOLN
Information: For caregiver and families dealing with PSP, CBD, MSA and others Atypical PD
Location: 5901 N. 27th Street , Lincoln , NE
Meeting Time: 4th Tuesday of every month from 6:30pm-8:30pm (beginning Jan 28, 2014)
Facilitator: Susie Luxford 402-525-7367 [email protected]
NEVADA
LAS VEGAS Information: No Meeting Phone Support Only Contact: Marty Koppel 702-914-8041 please leave message if no answer
NEW HAMPSHIRE
CONCORD
Information: No Meeting
Contact: Gayle Gardner [email protected]
NEW JERSEY
TRI-STATE AREA Information: Non profit support group covering the tri-state area MSA NJ P.O. Box 773 Howell, NJ 07731 www.msanj.org Contact: Cynthia Roemer [email protected]
CAPE MAY Information: For caregiver dealing with Atypical Parkinson+ disorders Location: Cape Regional Medical Center, 2 Stone Harbor Blvd, Cape May Court House, New Jersey (exit 10 off the Garden State Parkway, Maruchi Room (first floor of medical center) Meeting Time: 1st Tuesday of every month 1:00pm -3:00 pm Facilitator: Bonnie Kratzer 609-463-4043 [email protected] MOORESTOWN (5 minutes from Philly and 30 from Trenton) Information: No Meeting Phone Support Only Contact: Rachel Zambrano 856-316-6742 [email protected]
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USA and Canada
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NEW MEXICO
ALBUQUERQUE Information: For patients, caregivers and families affected by PSP, CBD, MSA and Atypical PD Location: The Flying Star 10700 Corrales Road, Albuquerque, NM
Meeting Time : 1st Wednesday of each month from 6:30pm-8:00pm until Sept. Note : Starting Sept meeting will change to the first Tuesday of each month at same time Facilitator: Roxi Padrid 312-485-485-9342
NEW YORK
TRI-STATE AREA Information: Non profit support group covering the tri-state area MSA NJ P.O. Box 773 Howell, NJ 07731 www.msanj.org Contact: Cynthia Roemer [email protected]
BUFFALO Information: No Meeting Phone Support Only Contact: Maureen Conley 716-627-7344 [email protected]
NEW YORK CITY Information: For MSA patients/caregivers Location: Contact Michael DeMarsico for location Meeting Time: 3rd Saturday of each month from 2:00pm-4:30pm Contact: Michael DeMarsico [email protected]
NEW YORK CITY METRO AREA Information: For patients/caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD, MSA, OPCA, SND, SDS Location: North Shore University Hospital, Tower Conference Rooms, First Floor, 300
Community Drive, Manhasset, NY 11030 Meeting Time(s): 3rd Saturday Quarterly from 1:30pm - 3:30pm Facilitators: Kara Holisher 516-932-1696 [email protected]
Harriet Feiner 718-224-4654 [email protected]
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USA and Canada
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SYRACUSE/CHITTENANGO Information: For Anyone with Parkinson or SDS/MSA Location: Jim Marshall Farm Foundations Facility North Chittenango Directions to the farm can be found at http://www.jmffinc.org/services Meeting times: 4th Tuesday of each month from 12:30PM-2:30PM Contact: Wayne Hamilton 315-687-9014
NORTH CAROLINA
CHARLOTTE Information: No Meeting Phone Support Only Contact: Robert Lee 704-552-9198 [email protected] RALEIGH Information: No Meeting Phone Support Only Contact: Joe Turner 919-971-3512 [email protected] Melissa Turner 919-741-9668 [email protected] ADVANCE Information: No Meeting Phone Support Only Contact: Tammy Hunt Hauser 336-998-2942 [email protected]
OHIO
BEREA Information: For patients/families/friends/caregivers affected by PSP, CBD, MSA, Shy-Drager+ Lewy Bodies Location: Southwest General Hospital, 18697 Bagley Road, Middleburg Heights, OH, Room
15C (basement level) Meeting Time(s): 2nd Sunday of each month from 1:00pm - 3:00pm Directions/Parking: Hospital is easy accessed from I-480, I-71 and the Ohio Turnpike - free parking rear garage of hospital. Facilitator: Pat Beekman 440-234-0007 [email protected]
CINCINNATI Information: No Meeting Phone Support Only Contact: Kathy Griffin 513-208-6621 [email protected]
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USA and Canada
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KETTERING
Information: For MSA patients/caregivers
Meeting Time(s): A get together is arranged in this area a couple
times a year
Contact: Susan Cervone 937-369-9531 [email protected]
WESTERVILLE Information: For MSA caregivers Meeting Time(s): Occasional meetings are now being held Contact: Cathy Rapenport 614-403-1440 [email protected]
OKLAHOMA
GROVE Information: No Meeting Phone Support Only Contact: Paul Nandico 918-786-4949
OREGON
PORTLAND Information: For MSA Patients /Caregivers Location: Marquis Care Center, 319 NE Russet ST, Portland, OR Meeting Time: 3rd Saturday of each month 10 am to noon Facilitator: Vicki Blacken 503-651-3633 [email protected]
PORTLAND
Information: For families & caregivers of people with PSP & CBD also welcomes MSA Locations: OHSU River side building Room 12181 3303 SW Bond St. Portland, OR 97239 Meeting Time: 1st Thursday of each month at 5:30pm Facilitator: Tod Lundy 503-281-4123 [email protected]
BEND Information: No Meeting Phone Support Only Contact: Nena Close 541-419-6408(cell) 541-383-0302(work) [email protected]
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USA and Canada
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This list is maintained by Vera James [email protected]
PENNSYLVANIA
TRI-STATE AREA Information: Non profit support group covering the tri-state area MSA NJ P.O. Box 773 Howell, NJ 07731 www.msanj.org Contact: Cynthia Roemer [email protected]
N.VERSAILLES Information: No Meeting Phone Support Only Contact: Carole Barber 412-678-8948 [email protected] PHILADELPHIA Information: No Meeting Contact: Liz Martin [email protected]
PHILADELPHIA Information: For persons with movement disorders Location: Pennsylvania Hospital Movement Disorder Center, 330 S. 9th Street, 2nd floor conference room. Philadelphia, PA 19107 Meeting Time: 3th Saturday of each month from 1:00pm to 2pm Facilitator: Christin Salemno 215-829-2347 [email protected]
YORK Information: No Meeting Phone Support Only
Contact: Thomas Fitzgerald 717-840-3830
PUERTO RICO
Information: No Meeting Contact: Alexis Brewer [email protected]
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USA and Canada
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RHODE ISLAND
CRANSTON Information: No Meeting Contact: Jan Gillis [email protected]
SOUTH DAKOTA
SIOUX FALLS
Information: No Meeting Phone Support Only
Contact: Dawn Koenig 605-759-6740 [email protected]
TENNESSEE
TULLAHOMA Information: No Meeting Phone Support Only Contact: Marilyn Morris 913-455-3108 [email protected]
FAIRFIELD GLADE Information: PD & Movement Brian disorder Support Group (PD,MSA, ET,PSP,CBD)
Location: Christ Luthern Church Fellowship Hall 481 Snead Dr. Fairfield Glade, TN Meeting Time: 1st Tuesday of each month at 2:30 pm Facilitator: Gary & Sally Dixner 931-484-0193
TEXAS
ARLINGTON Information: No Meeting Phone Support Only Contact: Barbara Selleck 817-469-6044 [email protected] HOUSTON Information: For patients/families with PSP, CBD, MSA, LBD Location: Memorial Hermann SW Hospital, Houston, TX, Learning Center B, Professional
Building II Meeting Time(s): 3rd Saturday of each month (except July and December) at 1:00pm Facilitator: Karen Kennemer 281-358-2282 [email protected]
List of Support Meetings & phone/email support
USA and Canada
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DALLAS Information: For PSP/CBD/MSA patients and caregivers Location: Texas Health Resources University (THRU) building, Room 111 Meeting Time(s): 3rd Saturday of the month (except August) from 10:00am - 11:30am Facilitator: Kathryn MacDonell 214-908-4793 [email protected] SEYMOUR Information: For patients & caregivers affected by MSA,PSP,CBD & Atypical PD+ Location: Baylor Country Extension Building 500 N. Main Street Seymour ,TX 76380 Meeting Time: 3rd Monday of each month from 4:00pm-5:30pm Facilitator: Sis Hammack 940-889-6638 [email protected] SAN ANTONIO Information: No Meeting Phone Support Only Contact: Sharon Sutton 210-296-4619 [email protected] Candice Valenta 210-912-4530 [email protected]
VERMONT
BURLINGTON Information: For caregivers of Parkinson's with mild cognitive impairment and Parkinson's Plus syndromes Location: Varies; contact facilitator for info Meeting Time(s): Varies; contact facilitator for info Facilitator: Janice Clements 802-862-7464 [email protected]
VIRGINIA
AMISSVILLE Information: Will meet with people if they want to travel to Amissville or will meet at other’s home if accessible and can arrange a time and date to have a meeting Contact: Bill Werre 540-937-6092 [email protected] ANNANDALE Information: For patients, caregiver, and families dealing PSP,CBD, MSA and Atypical PD Location: George Mason Regional Library, 7001 Little River Turnpike, Annandale, VA 22003 Meeting time: 2nd Thursday of every month from 7:00pm -9:00pm Facilitator: Kristin Washington , 709-256-3800 [email protected]
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VIRGINIA BEACH
Information: No Meeting Phone Support Only
Contact: James (Jim) Alvaro 757-430-2237 [email protected]
WASHINGTON
SPOKANE Information: For patients/caregivers with PSP/CBD but supports other neurodegenerative diseases Location: Contact facilitator for info Meeting Time(s): Contact facilitator for info Facilitator: Mary Anne Memminger 509-921-6645 Jim Barron 509-332-6053 [email protected] SEATTLE Information: For Patients/Caregivers with MSA Location: Virginia Mason Medical Center 1201 Terry, Seattle, WA Change location starting January 2014 to Exeter House 720 Seneca St. Seattle ,WA
Meeting Time: 4th Monday of each month at 11:00 am Contact: Carin Mack 206-230-0166 [email protected]
WEST VIRGINIA
BECKLEY Information: For patients, caregivers, and families dealing with PSP, CBD, MSA and other atypical Parkinsonian disorders Location: Offices of Dr. Rhonda Guy, 424 Stanaford Road, Beckley, West Virginia Meeting Time(s): 3rd Saturday of every month from 1:00pm - 3:00pm Facilitator: Jean Johnson 304-573-3284 [email protected]
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USA and Canada
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MARTINSBURG
Information: No Meeting Phone Support Only
Contact: Shelli Hannon Kuhn 717-830-6199 [email protected]
WISCONSIN
MILWAUKEE
Information: Phone Support, but looking for interest for a support group.
Location: Milwaukee or the surrounding areas
Contact: Aaron Kittson 715-470-2007 [email protected]
WYOMING
JOHNSTOWN/LOVELAND (COLORADO)
Information: Neurodegenerative disorder (MSA,PSP,CBD)
Location: Northern Colorado Rehabilitation Hospital, 4401 Union Street, Johnstown/Loveland,
CO 80528
Meeting Time: 1st Friday of each month from 1:00 pm - 3:00pm
Facilitators: Ruth Fletcher-Carter 970-532-2681 [email protected]
CANADA
ALL PROVINCES
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Information: No Meeting – Email and Website for MSA information only
Multiple System Atrophy Awareness Website: www.MSAawareness.org
“Spreading awareness worldwide”
Contact: Pam Bower [email protected] or [email protected]
ALBERTA
FORT MCMURRAY
Information: No Meeting Phone Support Only - Contact for the northern region of Alberta
Contact: Iris Kirschner 780-792-7732 [email protected]
BRITISH COLUMBIA
SIDNEY
Information: No Meeting Phone Support Only
Contact: Ann Jeffrey 250-656-9799 [email protected]
NOVA SCOTIA
HALIFAX
Information: No Meeting – Email and Website for MSA information only
Contact: Pam Bower [email protected] or [email protected]
Website: www.MSAawareness.org
ONTARIO
HAMILTON
Information: No Meeting Phone Support Only
Contact: Bonnie Llewellyn 905-979-8254 [email protected]
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USA and Canada
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BURLINGTON
Information: For patients, caregivers, and families dealing with PSP/CBD/MSA and other atypical
Parkinsonian disorders
Location: Appleby Place Retirement Residence, 500 Appleby Line, Burlington, ON
Meeting Time(s): 1st Thursday of every month from 6:30pm - 8:30pm (beginning October 3,
2013)
Facilitator: Kimberley Adrovez 905-296-1095 [email protected]
KINGSTON
Information: For patients and families affected by PSP, CBD and MSA
Location: Legion 560 (Fireside Room), 734 Montreal Street, Kingston, ON (free parking and
handicap accessible)
Meeting Time(s): 1st Thursday of every month from 6:00pm - 8:00pm beginning August 1, 2013
Facilitator: MJ Overby 613-531-2685 [email protected]
TORONTO Information: For care partners of PSP/CBD/MSA patients; hosted by Parkinson Society of Central & Northern Ontario Location: 4211 Yonge Street, Suite 321, Toronto, ON Meeting Time(s): 3rd Wednesday of every month from 6:15pm – 8:00pm Facilitator: Robert TerSteege 416-227-3372/ 1-800-565-3000 x3372 [email protected]
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