Immune Deficiency Foundation of Australia Ltd Annual Report 2012-2013
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 2
2
Immune Deficiency Foundation of Australia Annual Report 2012-2013
Christine Jeffery, Executive Officer
Immune Deficiencies Foundation Australia - PO Box 969 Penrith NSW 2751 – ABN 99 117 585 976
T: 1800 100 198 M: 0409 945 114 E: [email protected]
CONTENTS
Immune Deficiencies Foundation Australia 3
Chair Summary 3
Governance 4
Executive Summary 7
Operations 7
Strategic Plans 8
Vision 8
Mission 9
Goal 9
Values 9
Key Performance Indicators 10
Strategies to achieve Goals and KPIs 11
Major Achievements 12
Finance 15
Finance and Audit Chair Summary 15
Marketing Growth 20
Appendix 22
Financial Statements 22
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 3
3
Immune Deficiencies Foundation Australia IDFA supports people affected by Primary Immune Deficiencies in Australia. IDFA is committed to raising
awareness about primary immune deficiencies and improving quality of life for patients.
Chair Summary
I am pleased to present the 2012-13 Annual Report for the Immune Deficiencies Foundation Australia (IDFA).
The past twelve months have been extremely successful for the IDFA. Our key achievements during this period
have included:
increasing our membership by more than 100 per cent
introducing more sustainable long term staffing arrangements, including recruiting a new Executive
Director
hosting a successful national conference attended by more than 100 IDFA members
delivering a modest budget surplus, positioning the organisation well to face the challenges of 2013-14
and future years.
General Manager position
The most significant changes in the IDFA’s operations during the 2012-13 were changes in the position of
General Manager/Executive Officer.
Our previous General Managers, Cathryn Baker, resigned at the end of September 2013. The IDFA Board of
Directors took the opportunity presented by this change to restructure our staffing arrangements, creating an
Executive Officer position with more sustainable long term cost arrangements. Initially, the Board co-opted an
existing Board member, Christine Jeffery, to act in this new position.
Following the end of the 2012-13 year, Christine has subsequently (August 2013) been confirmed in the
Executive Officer position after an external selection process, and has been appointed for an initial three year
contract. Christine will remain as a non-voting board member during this time.
Board membership
The Board appointed two new members during 2012-13 – Linda Holdaway (appointed 09/02/2013) and Dr David
Gillis (appointed 29/04/2013). The Board also had one departure this financial year, with Dr Karl Bleasel, who
retired from the Board in November 2012, following the conclusion of his term on the Board. More information
on the Board of Directors is provided under the Governance section of this Annual Report.
Key directions
At its February 2013 planning meeting, the Board of Directors confirmed its existing strategic planning
framework for the IDFA. The key organisational goals in the strategic plan, as outlined at last year’s AGM, are:
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 4
4
increasing PID awareness in the general and medical communities
increasing our membership with the aim of reaching all Australians with PID
advocating/supporting our members and their families
communicating with our members, their families, our stakeholders, partners and key alliances.
ADAM FRIEDERICH
Chair
IDFA Board of Directors
Governance Board of Directors 2012-2013
IDFA is governed by a Board of seven Directors. Adam Friederich is the IDFA Board Chair.
Adam Friederich
BOARD CHAIR
Richard Price
DEPUTY CHAIR COMPANY
SECRETARY
Dr Melanie Wong MEDICAL
ADVISORY CHAIR
LIinda Holdaway
FINANCE CHAIR
Lara Alexander
FUNDRAISING CHAIR
Dr David Gillis
Jackie Murphy
Christine Jeffery EXECUTIVE
OFFICER (non-voting)
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 5
5
Directors
The following persons were directors in office during2012-2013:
Adam Friederich Dr Melanie Wong
Richard Price Jacqueline Murphy
Lara Alexander Dr David Gillis (Appointed 29 April 2013)
Dr Karl Bleasel (Retired 26 November 2012) Linda Holdaway (Appointed 9 February 2013)
Christine Jeffery (non voting)
Information on Directors
ADAM FRIEDERICH
SPECIAL RESPONSIBILITIES: Board Chair
QUALIFICATIONS: Grad Cert (Mgmt), Grad Dip (Sc, Com), CIII Public Sector Admin, CIII Public Sector Qual
Mgmt, BSc (Hons)
EXPERIENCE AND EXPERTISE: Adam has 20 years’ experience with not for profit boards, and has been a board
member or office bearer with numerous NFP organisations. Adam also has more than 15 years’ experience
working with the Australian Public Service, where his responsibilities focus on governance issues, such as
strategic and business planning, performance reporting, and financial and HR management.
RICHARD PRICE
SPECIAL RESPONSIBILITIES: Deputy Chair, Company Secretary
QUALIFICATIONS: BEng (Mining, Hons), MSc (Mineral Economics), M AusIMM
EXPERIENCE AND EXPERTISE: Richard is a mining engineer with 10 years’ experience in the mining industry
and 5 years’ experience in financial services. Richard has a Primary Immunodeficiency (PID) and lives in Perth.
LARA ALEXANDER
SPECIAL RESPONSIBILITIES: Chair Audit & Finance Committee
QUALIFICATIONS: CPA, BA Econ Studies (Hons)
EXPERIENCE AND EXPERTISE: Lara has worked in the NFP sector for over 15 years, working in various senior
management and executive roles with organisations such as St John Ambulance, Cancer Council, Save the
Children, Bethesda Hospital and more recently in the aged care sector with Presbyterian Care Tasmania. Lara’s
expertise is predominantly in areas such as finance and budgeting, management, human resources and payroll
and fundraising.
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 6
6
CHRISTINE JEFFERY
SPECIAL RESPONSIBILITIES: Director (non voting), Executive Officer
QUALIFICATIONS: Adv Dip Bus Mgmt, Cert IV in Training & Assessment, SA Sustainability
EXPERIENCE AND EXPERTISE: Christine has 20 years’ experience in Management and 10 years’ experience in
Education & Training. Christine joined the IDFA Board in 2011 and became Executive Officer in 2012. Christine
is also a Board Member and Asia Pacific Representative of IPOPI (International Patient Organisation for Primary
Immunodeficiencies). She has an adult daughter with complex immune and autoimmune diseases.
DR MELANIE WONG
SPECIAL RESPONSIBILITIES: Chair Medical Advisory Committee, Director
QUALIFICATIONS: MBBs (Hons), PhD, FRACP, FRCPA EXPERIENCE AND EXPERTISE:
Senior staff specialist, Department of Allergy and Immunology, The Children’s Hospital at Westmead
Director of the Immunology Laboratory and Head of the Immunodeficiency Service
President Elect, Australasian Society of Clinical Immunology and Allergy (ASCIA)
Board member, Allergy and Immunology Foundation of Australasia (AIFA)
LINDA HOLDAWAY
SPECIAL RESPONSIBILITIES: Director
QUALIFICATIONS: B Comm (Acc) Grad Dip (ICAA) CA
EXPERIENCE AND EXPERTISE: Linda is a qualified Chartered Accountant with 16 years’ experience in
accounting and finance, including 7 in professional practice and the last 9 as a finance executive across various
industries, including fashion, media, retail, cosmetics and not for profit. Linda joined the Board in 2013.
JACQUELINE MURPHY
SPECIAL RESPONSIBILITIES: Director
QUALIFICATIONS: CPE Level 1 (Clinical Pastoral Education), Assoc Dip Christian Studies
EXPERIENCE AND EXPERTISE: Jacqueline has spent a number of years working as a sub-contract moderator
online as well as establishing and facilitating self help support groups and community groups. She is also a
qualified Chaplain. Jacqueline has Primary Immunodeficiency (PID) and other complex medical issues.
DR DAVID GILLIS
SPECIAL RESPONSIBILITIES: Director
QUALIFICATIONS: MBS BS (Ist class Hons), FRACP, FRCPA
EXPERIENCE AND EXPERTISE: David is an Immunologist with 27 years’ experience in the clinical management
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 7
7
of primary immunodeficiency in adults. He is also a pathologist with extensive experience in the testing for
primary immunodeficiency. David was a previous chairperson of the primary immunodeficiency committee of
ASCIA and was chairman of the South Australian IVIG Users Group for many years .
DR KARL BLEASEL
SPECIAL RESPONSIBILITIES: Director – retired 26 Nov 2012
QUALIFICATIONS: MBBS BMedSc FRACP
EXPERIENCE AND EXPERTISE: Immunologist, Hobart
Staff
In 2012-2013, IDFA had 2 staff:
Executive Officer Christine Jeffery (Fulltime)
Support Services Officer Kim Atkinson (7 hrs p week)
Executive Summary
IDA has had a busy year of professional development and growth. We have increased our visibility and built our
brand. Our achievements this year have successfully aligned with our Vision, Mission, Goal and Values. The key
achievements this year have been:
IDFA National Conference, attended by 114 members
Membership doubling
Production of a new member pack with resources and booklets about Primary Immune Deficiencies
Launch of a new website www.idfa.org.au
Operations
Operational growth included:
Change in leadership with new Executive Officer
Addition of two new Board Members
Development of IDFA’s Strategic Plans
Reporting now centred on the KPIs developed with the Strategic Plans
IDFA Executive Officer admitted to the International Board of IPOPI (International Patient
Organisation for Primary Immunodeficiencies)
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 8
8
International Campaigns
IDFA participates in:
Rare Disease Day
World PI Week
Industry association
IDFA is proud to be associated with:
ASCIA (Australasian Society of Clinical Immunology and Allergy)
IPOPI (International Patient Organisation for Primary Immunodeficiencies
NBA (National Blood Authority)
Red Cross
IDFA is grateful to all blood donors.
Immunoglobulin (made from plasma) is the main treatment for our members.
Strategic Plans
Vision
A future where Primary Immune Deficiencies are diagnosed early, communities are more aware of the signs and symptoms of PID, and those affected by PID feel supported.
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 9
9
Mission
Supply information and resources to promote an understanding of Primary Immune Deficiencies by linking members, their families and medical teams.
Goal
Promote an understanding of Primary Immune Deficiencies within both the general and medical communities through:
Awareness We work to increase PID awareness in the general and medical community.
Membership We acknowledge that unity is strength and our aim is to reach and support all Australians with PID.
Advocacy We will act for our members and their families.
Communication We will continue to develop and maintain our communication with members, their families, our stakeholders, partners and key alliances.
Values
Courage PID can get you down but we get back up together.
Strength Sometimes, just getting through the day can be tough. We understand.
Engagement and Collaboration We seek to involve PID affected individuals, families, medical staff and the wider community.
Determination Our members, volunteers and staff work tirelessly to give those with PID a better quality of life.
Our members We can all learn something from someone, and those affected by PID have a story worth listening to.
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 10
10
Key Performance Indicators
Focus areas
IDFA has a Board approved Strategic Plan focusing on three main areas –
Marketing
Operations
Finance
Performance Measures and KPIs
IDFA uses the following Kaplan Norton Balanced Scorecard Indicators:
Customers
Growth and Development
Business Processes
Financial Strategies
The Focus areas and Balanced Scorecard Indicators were used to develop Key Performance Indicators based
around the IDFA Goals. The performance measures are outlined in the table below.
Strategic Plan Focus MARKETING OPERATIONS FINANCES
Balanced Scorecard
Indicators Customers
Growth &
Development Business Processes Financial Strategies
Go
als
Membership Increase membership Increase Fundraising volunteer force
Increase Member events (Public Speaking, fundraising)
Fund improved resources for member services
Awareness Increase direct communication with Health Professionals
Increase alliances with rare disease groups
Update Procedure Manual - Increase number of Business and IT processes
Fund improved resources for awareness
Advocacy
Increase member access to practical advice and general coping skills
Continue face to face meetings with stakeholders relating to Advocacy issues
Increase applications for fundraising and grants
Fund improved resources for advocacy (Counselling costs, pumps etc)
Communication Increase communication to existing members
Continue face to face meetings with stakeholders
Review effectiveness of recently established communication tools (brochures, surveys, Facebook)
Fund improved resources for communication (member pack, brochures, conference and media promotions)
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 11
11
Strategies to achieve Goals and KPIs
The strategies for achieving IDFA goals are through:
Communication
□ visits, phone calls, emails, new website, newsletters, membership packs, IDFA information and membership brochures, booklets about Primary Immune Deficiencies, media releases, member stories, speaking at events and seminars, maintaining contact with Industry and government organisations and other Rare Disease organisations
Visibility
□ IDFA Conferences, Industry Conferences, Rare disease meetings, Media stories, website
Compliance
□ with government and regulatory authorities
Member Engagement
□ teleconferencing, PID Chats, picnics, social get togethers, Mentors and Buddies, encouraging volunteers, seminars, conference
Collaboration
□ Immunologists, Hospital infusion wards, Immunology Nurses, Industry Conferences, Allied Rare Disease groups, ASCIA (Australasian Society Clinical Immunology and Allergy), IPOPI (International Patient Organisation for Primary Immunodeficiencies)
Participation
□ trade events – ASCIA, IPOPI, PPTA, IPPIC, Nurses Education days, Immunology Seminars
Fund raising
□ IDFA uses a Fundraiser, International Entertainment, to raise funds on our behalf. This is through the selling of tickets to Shows (Magic Show, Razzamatazz and Circus Quirkus). Corporate clients purchase tickets for disadvantaged children to attend the shows.
□ Funds are also raised by members and volunteers.
Sponsorship
Seeking sponsors (corporate or government) continues to be a priority and an important part of the
Executive Officer’s role.
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 12
12
Major Achievements
Membership increase of 107%
National Conference for 114 members
Production of Member Pack with Resource booklets
New website launched
Increase in Grant Revenue
KPI Achievements
Performance against the KPIs are shown below.
KPIs Goal Balanced Scorecard Indicator
Strategic Focus Area
LFY 2011-2012 TFY 2012-2013 % ↑ Membership
338 698 107% Increase membership
Customers Marketing
260 501 93% o Members
35 68 94% o Professional Contacts
8 19 138% o Rare Disease Alliances
35 110 214% o Stakeholders
2 8 300% Increase Fundraising volunteer force
Growth & Development Marketing
24 47 96% Increase Member events (Public Speaking, fundraising) Business Processes Operational
Increase Funding for improved resources for member services Financial Strategies Finances
$ 3,523.00 $ 6,041.02 71% o Total Donations Revenue
KPIs Goal
Balanced Scorecard Indicator
Strategic Focus Area
LFY 2011-2012 TFY 2012-2013 % Awareness
0 175 Increase direct communication with Health Professionals Customers Marketing
8 29 263% Increase alliances with rare disease groups
Growth & Development Marketing
14 35 150%
Update Procedure Manual - Increase number of Business and IT processes Business Processes Operational
Fund improved resources for awareness -
Financial Strategies Finances
$ 3,000.00 $ 5,200.00 73% o Total Speakers Network Revenue
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 13
13
KPIs Goal
Balanced Scorecard Indicator
Strategic Focus Area
LFY 2011-2012 TFY 2012-2013 % Advocacy
16 50 213% Increase member access to practical advice and general coping skills Customers Marketing
14 41 193% Continue face to face meetings with stakeholders relating to Advocacy issues Growth & Development Marketing
2 9 350% Increase applications for fundraising and grants
Business Processes Operational
Fund applications for improved resources for advocacy (Counselling costs, pumps etc) Financial Strategies Finances
$ 276.00 $ 1,879.90 581% o Total Fundraising Volunteers Revenue
KPIs Goal Balanced Scorecard
Indicator Strategic Focus Area
LFY 2011-2012 TFY 2012-2013 % Communication
8 37 363% Increase communication to existing members
Customers Marketing
8 41 413% Continue and increase face to face meetings with stakeholders Growth & Development Marketing
Review effectiveness of recently established communication tools (brochures, surveys, Facebook) Business Processes Operational
293 o IDFA Member survey
168 o Hospital infusion wards/ Igi.V Educational Bear and Kit sent out
90 362 302% o Email membership
0 612 o New Website hits March to June 2013: 612
70 117 67% o Facebook closed group membership
114
o National Conference held - 114 participants sponsored to attend
3 5 67% o No of PID brochures produced
1 3 200% o No of Immunologist/Nurse/Allied Health professional Resources produced:
8 7 -13% o SN Events
1 4 300% o Fundraising events
4 22 450% o Members stories in media
4 3 -25% o Media releases
1 3 200% o Participation in research studies/surveys
Fund improved resources for communication (member pack, brochures, conference, media promotions) Financial Strategies Finances
$ 24,500.00 $ 50,565.62 106% o Total Grants revenue
$ 937,545.00 $ 988,986.21 5% o Total IE (Fundraiser) revenue
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 14
14
Alliances Alliances have been formed nationally with
□ hospitals
□ Immunologists
□ Nurses
□ CSL Behring
□ Baxter
□ Octapharma
□ Other rare disease groups
Increased communication with Peak Bodies
□ ASCIA (Australasian Society of Clinical Immunology and Allergy)
□ NBA (National Blood Authority)
□ IPOPI (International Patient Organisation for Primary Immunodeficiencies)
Processes
□ Financial recording improved
□ Building Policies and Procedures Manual
□ WH&S compliance
□ Compliance with financial and regulatory bodies
IPOPI
□ Executive Officer co-opted onto IPOPI Board
□ Attended IPOPI Conference Florence Italy
□ Attended PPTA (Plasma Protein Therapeutics Association) Conference in Dublin
□ Attended the first IPOPI Asian NMO Professionalization Workshop in Bangkok to assist forming a
National Member Organisation in Thailand
Workplace Health & Safety
□ WH&S compliant
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 15
15
Finance
Finance and Audit Chair Summary
During the financial year 2012/13 the Board’s decision to restructure the position of General Manager replacing
it with an Executive Officer role, translated in increased efficiencies in our spending and excellent results in
attracting additional sponsorship and donations.
Christine Jeffery worked very closely with the Board and the Audit and Finance Committee in controlling
spending, maximising the value of every dollar spent and applying for sponsorship, donations and funding for
our National Conference. This resulted in IDFA delivering a very successful event to its members and
supporters, mainly covered by the funding and sponsorship sought and with minimal contribution from within.
In addition to the organising of a major event some of the positive results include:
A Revenue increase of 6.44% in 2012/13 compared to previous year, whilst expenditure increased by
only 5.59%.
Net Profit increase from $462 in 2011/12 to $8,726 this Financial Year.
The Net decrease in Cash Flow during the year has been reduced from ($39,409) in 2011/12 to ($7,677).
This is a positive result considering the organisation had to pay approximately $23K in employee
entitlements and redundancy, which was above the regular business cash activities.
Increase in grants, donations, sponsorship from $32K in 2011/12 to more than $62K this Financial Year.
Other measures adopted in 2012/13 include:
The transfer ‘in house’ of the bookkeeping activities. This has resulted in better controls, more
accountability and reliability on the financial information.
Better management of our investment bank accounts with the Executive Officer seeking from Westpac
the best option for maximising our interest received on the longer term deposit account.
Better scrutiny and increased diligence by the Executive Officer in checking the reports and invoices
received from IE for campaigns. A general, overall increased communication with IE.
Setting specific budgets for proposed activities which are outside the operating budget of the
organisation.
Future financial performance will continue to be the subject of close scrutiny by the Audit and Finance
Committee, looking at maximising the benefits derived from spending our funds. With the support of the
Executive Officer, it is planned that major events and/or initiatives will be budgeted before committing to
spending and endeavour to obtain funding and sponsorship for majority of costs, with minimal contribution
from within.
Overall, IDFA has improved its result from previous Financial Year whilst also delivering on its commitment to
members. It is also significant in the context that the overall not for profit climate has been quite uncertain in
2012/13 with community members having fewer funds available to donate or support charities.
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 16
16
Additional details on the financial performance of the organisation are available in the audited Financial
Statements.
LARA ALEXANDER
Chair, Audit and Finance Committee
IDFA Board of Directors
Fundraiser - International Entertainment
To assist us in Fundraising, International Entertainment run shows for IDFA. Purchasing tickets for the shows provides opportunities for those who are sick, have a disability or impoverished and their carer to enjoy a great afternoon of entertainment and fun! These shows include Razzamatazz, Circus Quirkus and World Festival of Magic. Tickets are $55 ea or $110 for a child and their carer. They are tax deductible. By purchasing tickets to a show, sponsors enable children and families whose lives are difficult due to illness, disability or poverty, to have a great few hours of fabulous entertainment.
IDFA members attend these shows and are very grateful to those who purchase tickets. International Entertainment run 3 types of shows:
World Festival of Magic
World Festival of Magic has been touring Australia since 1988. It features the great Illusionist Michael Boyd. The show features acts of interactive magic, acrobatic cyclists and circus acts. The IDFA show is run in:
Wagga Wagga
Razzamatazz
Razzamatazz has been touring Australia since 2008. It is a mix of circus, magic, comedy and dazzling dancers in spectacular costumes. It is a great variety show and fun for everyone. The show runs for about 1 hour with no interval. The IDFA shows are run in:
Canberra
Melbourne
Penrith
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 17
17
Circus Quirkus
Circus Quirkus has been touring Australia since 2002. is a contemporary take on traditional circuses of ages past. It is an eclectic and entertaining mix of Circus acts brought to you from all over the world. Internationally renowned Clowns, Jugglers, Acrobats, and more deliver funny, hugely engaging and sometimes death-defying acts of unbelievable skill. The IDFA shows are run in:
Cairns
Townsville
Lismore
Toowoomba
Mackay
Newcastle
Bendigo Burnie
Major Sponsors
□ FaHCSIA
□ Baxter
□ Octapharma
□ CSL Behring
Other Sponsors and Donors
□ IPOPI
□ Rotary Club of Waratah
□ Bowens Health Services (Chemist Outlet)
□ Nekon (Waratah Shopping Village)
□ Lions Club of Swansea
□ Chemist Outlet
□ Rotary Club of Merimbulah
□ Saddington and Sons
□ UHY Accounting
□ Paul Richardson
□ GJ Davies and Sons
□ Mathieson family
□ Jenny Tyrrell
□ Robyn Lamont
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 18
18
Fundraising Volunteers
Building IDFA’s Fundraising Volunteers is also an area of priority for 2013-2014.
Financial Statement 2012-2013
IDFA retained a surplus income before tax expense of $ 8726. This was an increase on last financial year ($ 462)
INCOME COST OF SALES EXPENSES GROSS PROFIT
FUNDRAISER IE INCOME
International Entertainment (fundraise on IDFAs behalf)
International Entertainment income $ 947,828.37
COST OF SALES
IE Telemarketer Share $ 377,767.67
IE Producer Share $ 377,622.81
IE Show Share $ 20,810.46
Merchant Fees $ 6,284.69
Late fees paid $ 292.00
Westpac Charge Back $ 1,018.19
TOTAL COST OF SALES $ 783,795.82
Gross Profit from Fundraiser International Entertainment $ 164,032.55
Tracy Kleef Leanne DeGroot Waratah Rotary Trivia night Raised $5700 towards National Conference
Karen Stackman Raised $500
Michael Daniel Raised $500
Annette Farrugia Raised over $2,000
Maria Chatfield Raised over $1,000
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 19
19
Gross Profit from Fundraiser International Entertainment $ 164,032.55
INCOME COST OF SALES EXPENSES GROSS PROFIT NET PROFIT (LOSS)
OTHER INCOME Grant Income $ 35,209.65
Donation/Gift Income $ 27,632.01
Income From Fundraising Events
$ 154.55
National Conference Deposit $ 3,772.69
Other Income $ 2,330.00
IE Merchant Fees Charge Back $ 1,530.08
$ 70,628.98 $ 70,628.98
Total Gross Profit
$ 234,661.53
Expenses
Accounting/Bookeeping Fees
$ 3,622.28
Bank Fees
$ 2,205.86
Audit Fees
$ 6,054.55
Postage & Courier
$ 3,473.81
Travel & Accom Expenses
$ 7,744.57
Office Expenses
$ 3,698.01
IDFA Members Functions
$ 1,665.56
Printing
$ 12,333.17
Internet
$ 640.88
Computer Expenses
$ 249.07
National Conference Expenses
$ 47,929.57
Telephone Expenses
$ 6,538.50
Stationery
$ 603.12
Licence Fees & Subscriptions
$ 409.00
Total General Expenses
$ 97,167.95
Wages & Salaries Expenses
120491.66
Work Cover Premiums
496.65
Travel Kms Expenses
856.99
Total Payroll Expenses
121845.3
Pro Indemnity Insurance
1106.04
Public Liability Insurance
2621.57
Total Insurance Expenses
3727.61
Total Expenses
$ 222,740.86
Operating Profit
$ 11,920.67
Other Income
Interest Income 5878.03 $ 5,878.03
Other Expenses
Interest Expense
1.38
Other Expense
3563.96
Bad Debts
5507.12 9072.46
Totals $ 1,024,335.38 $ 1,015,609.14 $ 8,726.24
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 20
20
Marketing Growth
Mounted successful advocacy campaign for SCIg
Subcutaneous immunoglobulin treatment has now been funded in Australia
Printing
BROCHURES
□ IDFA information and membership brochure
□ Our Immune System S. LeBien
□ IPOPI PID in adults
□ IPOPI Diagnosis of PIDs
□ IPOPI PID Treatments
□ IPOPI A guide for Schools
□ IPOPI Transition - moving from child to adult care
OTHER MARKETING RESOURCES
□ Card holder and PID Business Card for Health Professionals
□ Large postcard for Business Professionals
□ Certificates of Appreciation
□ New banner
□ Badges
□ Folders
□ Wristbands
□ All in an A4 and A5 IDFA Presentation folders
PID Patient Social events
□ IDFA members have been successfully running PID picnics, lunches and social get togethers throughout
Australia.
Events
IPOPI CONFERENCE FLORENCE (NOV 2012)
□ Report on website
NURSES TRAINING DAY WESTMEAD (DEC 2012)
□ Presented as a Guest Speaker
□ Also answered questions as a parent of a transition child
□ Positive feedback
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 21
21
PPTA CONFERENCE DUBLIN (MARCH 2013)
□ Report on website
NATIONAL CONFERENCE (JUNE 2013)
□ Very successful! Positive feedback
□ Profit made
□ Report on website at: http://www.idfa.org.au/resources/
SA IMMUNOLOGY SEMINAR (JUNE 2013)
□ Organised by Noelene Davies and IDFA
□ 28 attendees (4 members, 1 new patient member) + nurses
and Immunologists
□ Saturday 6th July 2013 at The Womens and Childrens
Hospital Adelaide.
□ Excellent presentations were made by the Guest Speakers:
o Dr Damien Chan “Historic events and discoveries in
primary immunodeficiency”
Dr Jovanka King “Keep calm and make antibodies …
A Cook’s tour of the immune system”
Professor Antonio Ferrante “Milestones in cutting edge technology in diagnosis of
immunodeficiency”
o Presentations are available on the website at
http://www.idfa.org.au/resources/
PID Chats
□ The most successful PID Chats were:
o CVID over 50s
o CVID 30-50
PID Connections
□ The most successful PID Connections were:
o Entitlements and Benefits
o Noelene Davies Transfusion Nurse talking
immunoglobulin treatment and care
o Being a Carer
Website
□ New website launched www.idfa.org.au
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 22
22
Appendix Financial Report
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 23
23
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 24
24
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 25
25
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 26
26
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 27
27
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 28
28
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 29
29
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 30
30
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 31
31
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 32
32
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 33
33
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 34
34
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 35
35
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 36
36
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 37
37
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 38
38
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 39
39
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 40
40
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 41
41
Immune Deficiency Foundation of Australia Annual Report 2012-2013 | 42
42
Top Related