Health Data Sets

How to find what you need

Sastry Nanduri, HealthTap

Many Sources of Health Data

• Government agencies at various levels

• Research centers, organizations, societies

• Universities

• Private sectors

Many Formats of Data

• XLS

• RDF

• Proprietary

• PDF (!)

• Interactive maps

• SQL

• And many others…

Uniform Data Catalog Valuable

Most Data Not Catalogued

• Available Data Sets: 1000s

• Data Sets Catalogued: less than 100

Going beyond catalogued data

Types of Health Data

• Four major types of health data• Health outcome data• Risk factor data• Resource data• Demographic data

Health Outcome Data

• Presence or Absence of• Disease• Injury• Physical disability• Death

Risk Factor Data

• Factors that explain Health Outcome• Disease agents (high blood pressure)• Personal characteristics (age, gender, race)• Behavioral factors (exercise, diet, alcohol use)• Environmental factors (air pollution, contaminated ground water)

Resource Data

• Describe resources available to treat diseases or alleviate risk factors• Health care facilities• Health care professionals• Smoking cessation classes

Demographic Data

• Understand population of interest• Population (age, race, sex, personal income marital status,

educational attainment)• Households (household size, structure, family type and

household income)

Health Outcome Data

• Mortality Data• http://wonder.cdc.gov/cmf-icd9.html

• Injury Data• http://webappa.cdc.gov/sasweb/ncipc/mortrate10_sy.html

• Prevalence Data• http://apps.nccd.cdc.gov/cdi/AdvancedSearch.aspx

• Other Data• http://wonder.cdc.gov/WelcomeT.html

Risk Factor Data

• Behavioral Risk Factors• http

://apps.nccd.cdc.gov/BRFSS-SMART/SelMMSAPrevData.asp

• Environmental Risk Factors• http://h4h.healthtap.com/pages/45840• http://h4h.healthtap.com/pages/46056• http://www.cdc.gov/brfss/cde/2006.htm

• Disease Agents• http://apps.nccd.cdc.gov/cdi/AdvancedSearch.aspx

Resources Data

• Hospital Care• http://data.medicare.gov/#type=popular&tag=hospital%20compa

re

• Directory of health care services and facilities• http://www.nlm.nih.gov/medlineplus/directories.html

Demographic Data

• Census Data• http://factfinder.census.gov/home/saff/main.html?_lang=en

Questions?