Existing Caregiver Task Forces
A Presentation to the California Task Force on Family Caregiving
California Task Force on Family Caregiving
tffc.usc.edu
Agenda1. Exemplary Task Forces
• Alabama
• Delaware
• Idaho
• Maryland
• Mississippi
• New Mexico
2. Other Task Forces• Virginia
• Specific task forces
Exemplary Task Forces
DelawareFamily Caregiving Task Force
Summary FactsFamily Caregiving Task Force
Years Convened 2014 - 2015
Final report Yes, “Caregiver Support Blueprint for Delaware: A report to the Delaware general assembly”
Website No
Social media No
Were state best practices identified? No
Advocacy work Listening sessions, recommendations to legislature
Work regarding availability of services None, but noted that the Delaware Aging Disability Resource Center (ADRC) does this
Why is it noteworthy? • Developed recommendations for the legislature• Collected testimony from caregivers through
listening sessions• Recommendations became the basis for the CARE
Act (SB 52) signed on August 3, 2016
Establishment
Delaware’s Family Caregiving Task Force was established by HCR 57 in
2014 to “study and make findings and recommendation regarding the
support necessary for family caregivers assisting older persons and
adults with disabilities.”
Decision-Making Process• Co-Chairs =
o Lisa Bond Deputy Director, Delaware Division of Services for Aging
and Adults with Physical Disabilities
o Jeanne Nutter, Ph.D. AARP Lead Caregiving Volunteer
• Monthly meetings
• Work groups
• Review of existing materialo Guide to Services for Older Delawareans and Persons
with Disabilitieso 2014 AARP Caregiving Survey
• 6 Listening Sessions
Final Report• Included
oBackground information
o Testimony results
o Existing actions
oAddendum with resources
• Recommendationso Legislative
oBudgetary
oPolicy/Program
Participating Organizations
AARP Delaware Delaware House of Representatives
Alzheimer’s Association Delaware Valley Chapter
Delaware State Chamber of Commerce
Brandywine Village Network of Jewish Family Services of Delaware
Delaware State Senate, Bethany Hall-Long
Delaware Aging Network Developmental Disabilities Council
Delaware Association of Home and Community Care
Easter Seals Delaware
Delaware Association of Rehabilitation Facilities
State Council for Persons with Disabilities
Delaware Division of Services for Aging and Adults with Physical Disabilities
United Way Delaware
Delaware Healthcare Association Community Members: Ana Figueras, Ken Bock, Yvonne Gordon, Nancy Kinsella and Lawondale Parker
CARE (Caregiver Advise, Record, Enable) Act
• Requires Hospitals to
o Include caregiver information in EHR
oNotify designated caregivers of discharge plans
o Educate and train caregivers on aftercare tasks contained in the discharge plan
HawaiiThe Legislative Family Caregivers Working Group
Summary Facts
The Legislative Family Caregivers Working Group
Years Convened 2014 - 2016
Final report Yes, “Report of the Legislative Family Caregivers Working Group”
Website No
Social media No
Were state best practices identified? No
Advocacy work Wrote a report on information briefings
Work regarding availability of services Identified in report
Why is it noteworthy? • Convened two times• Only second task force made recommendations
Establishment
The Legislative Family Caregivers Working Group was established by HCR 78
(2014) “to examine and assess issues contained in Senate Bill No. 2264.”
The Legislative Family Caregivers Working Group was again convened by
SCR 107 (2015) “to examine and assess issues contained in SB 296.”
Decision-Making Process• 8 meetings
• Current hospital discharge practices• Federal rules regarding patient
discharge• Legislation in other states• Hospital accreditation requirements
• Consensus decision making
• 5 informational briefings
• Public hearing
• Supported by the Legislative Reference Bureau
Final Report• Included
• Current procedures• Existing resources• Informational briefings content• Comparison of SB 296 to CARE Acts• Recommendations• Points of General Consensus
• Recommendation to “take no action at this time to mandate hospitals to provide caregiver training” but to consider funding for further studies and organizations to support at-risk population with post-hospital care (2014)
• “supports funding of a comprehensive range of services and programs for kupuna and caregivers” (2015)
• “also supports serious consideration of legislation to require hospitals to offer patients the opportunity to identify a caregiver; involve patients and caregiver sin the patient discharge planning process; and prepare caregivers for post-discharge aftercare.” (2015)
IdahoIdaho Family Caregiver Task Force
Summary FactsIdaho Family Caregiver Task Force
Years Convened 2015 (6 months)
Final report Yes, “Caregivers in Idaho: A report from the Idaho Family Caregiver Task Force and the Idaho Caregiver Alliance”
Website No
Social media No
Were state best practices identified? No
Advocacy work recommendations to legislature
Work regarding availability of services None, but included in recommendations
Why is it noteworthy? • Layout of the final report• Included list of caregiver concerns• Included data sources (referred to Delaware and
Mississippi Blueprints)
Establishment
The Idaho Family Caregiver Task Force began as the Idaho Lifespan
Respite Coalition, whose mission was “to advance the well-being of
caregivers by promoting collaboration that improves access to quality,
responsive lifespan respite care across the state.” The task force was
official recognized by HCR 24.
Decision-Making Process
• ExaminedoCurrent policy initiatives
oAvailable information/research
• Categorized member concerns
• Discussion on creation of a network
• Call themselves “Idaho Caregiver Alliance”
Final Report• Goal: to serve as the
foundation and guide for the creation of an Idaho State Family Caregiver Plan
• IncludesoBackground information
o Existing opportunities for partnership
oRecommendations (priorities) followed by “Action Steps”
oCaregiver concerns
MarylandTask Force on Family Caregiving and Long-Term Supports
Summary Facts
Task Force on Family Caregiving and Long-Term Supports
Years Convened 2015 - 2016
Final report Yes, “2016 Final Report”
Website No
Social media No
Were state best practices identified? No
Advocacy work recommendations to legislature
Work regarding availability of services None, but included in recommendations
Why is it noteworthy? • Final report submitted to legislature
Establishment
Maryland’s Task Force on Family Caregiving and Long-Term Supports was
formed by SB 297, Ch 155 to “identify those policies, programs, and resources
currently available to [caregivers], and also look for innovative and creative
means to support [caregivers] as they provide in-home care and assistance to
elderly adults.”
TASK FORCE ON FAMILY CAREGIVING & LONG-TERM SUPPORTS. (2017). Retrieved May 12, 2017, from http://msa.maryland.gov/msa/mdmanual/26excom/defunct/html/14familycare.html
Decision-Making Process
• Co-chairs• Delores G. Kelley (chosen by Senate
President)
• Angela M. Angel (chosen by House Speaker)
• Received testimony• Speakers
• Staff = AARP Maryland
• 8 public meetings
Final Report• Included
• Background (national and Maryland)• Summary of issue• Recommendations
• Recommendations• Telemedicine• Medicaid community-based waivers• Transportation needs• Mental health of caregivers• Respite care• Adult medical daycare• Assistive devices• Maryland Caregivers Support Coordinating Council
MississippiMississippi Caregivers Task Force
Summary Facts
Mississippi Caregivers Task Force
Years Convened 2014
Final report Yes, “The Caregiver Report and Blueprint”
Website No
Social media Yes – Facebook “Mississippi Caregivers Task Force SCR 561”
Were state best practices identified? No
Advocacy work Facebook group
Work regarding availability of services Facebook group
Why is it noteworthy? • Facebook group• Caregiver Act (SB 2108)
Establishment
The Mississippi Caregivers Task Force was established as part of the 2014
Caregiving Resolution (SB 561) with the mission to “study issues relating to
family caregivers and long-term care services.”
Facebook Group
• ContentoPolicy needs
oAvailable resources
oNew policy
oResearch
CARE (Caregiver Advise, Record, Enable) Act (SB 2108)
• Requires Hospitals to
o Include caregiver information in EHR
oNotify designated caregivers of discharge plans
o Educate and train caregivers on aftercare tasks contained in the discharge plan
New MexicoFamily Caregiver Task Force
Summary Facts
Family Caregiver Task Force
Years Convened 2014 - 2015
Final report Yes, “New Mexico State Plan for Family Caregivers”
Website No
Social media No
Were state best practices identified? Yes
Advocacy work Final report
Work regarding availability of services Public input forums, listening sessions, surveys
Why is it noteworthy? • Included over 50 members• Collected their own data
Establishment
New Mexico’s Family Caregiver Task Force was established by HJM 4 in
2014 to “create a state plan for addressing the challenges faced by
family caregivers.”
Decision-Making Process• 50 representatives
• 7 meetings
• Outreach eventsoALTSD website
oCaregiver surveys
oCaregiver forums (3)
oALTSD listening sessions (4)
• AARP New MexicooCaregiving survey
• 5 work groups
Overarching Principles
Address the rural and frontier nature of cultural traditions
Respect and incorporate ethnic and cultural traditions
Recognize and address the high rate of poverty in the state
Ensure that recommendations are actionable
Final Report• Included
o Processo Backgroundo Current supportso Recommendations (goals and strategies)
• 7 Main Goals1. Ensure that family caregivers access the resources they need2. Ensure that family caregivers are properly trained3. Limit future caregiver burden4. Ensure that family caregivers are supported5. Make family caregiving easier through coordination of care6. Ensure support for family caregivers who work7. Ensure that family caregivers access respite
Other Caregiving Task Forces
VirginiaJoint subcommittee to study issues related to family caregiving and long-term care supports and services
Establishment
Currently, resolution HJ 680 has been filed to establish a “joint
subcommittee to study issues related to family caregiving and long-term
care supports and services.”
Other states have more specific task forces
Task Forces That Include Caregiving
State Task Force
Colorado Respite Care Task Force
Florida Purple Ribbon Task Force (PRTF)
Georgia Alzheimer’s Disease Task Force
Illinois Illinois Task Force on Grandparents Raising Grandchildren
Iowa Direct Care Worker Task Force
Louisiana Committee on Family Caregiving
Maine Medical Marijuana Caregiver Task Force
Missouri Missouri Alzheimer’s State Plan Task Force
State Task Force
Nebraska Aging Nebraskans Task Force
Nevada Alzheimer’s Disease (TFAD)
New Jersey (proposed) Caregivers Task Force
Oklahoma Caregiver Insurance Task Force
Oregon Task Force on the Future Services to Seniors and People with Disabilities
Utah State Plan for Alzheimer’s Disease and Related Dementias
Washington Long-Term Care Task Force
Wisconson Speaker’s Task Force on Alzheimer’s and Dementia
Questions?
References
• Caregiver Support Blueprint for Delaware: available at http://dhss.delaware.gov/dsaapd/files/caregiver_support_blueprint.pdf
• (Hawaii) Report of the Legislative Family Caregivers Working Group: available at http://lrbhawaii.org/reports/legrpts/lrb/2016/famcarewrkgrp.pdf
• Caregivers in Idaho: available at http://javaidaho.org/wp-content/uploads/2016/06/Caregivers-in-Idaho_Final-Report-2016.pdf
• (Maryland) 2016 Final Report: available at http://dlslibrary.state.md.us/publications/nonmd/sb297ch155_2015.pdf
• New Mexico State Plan for Family Caregivers: available at http://www.nmaging.state.nm.us/uploads/FileLinks/93d89f60b10b4732be44e6c31f403060/New_Mexico_State_Plan_for_Family_Caregivers___final.pdf
Top Related