Vision
Theworld’sfirstcivicpartnershipsexploitingdata:
• drivepublicsectorreformforbetterhealthandcarebyprovidingactionableinformation
• fuelregion-widehealthsciencethatcitizenstrust
• acceleratebusinessgrowthforthedigitalhealthrevolution
• £20m/3y
• HubandSpokeModel
• Fourcityregions– GreaterManchester– NorthWestCoast– Yorkshire&Humber– NorthEastandNorthCumbria
• Onehub(GM)
• ~2pathwaysperregion
• StartJan2016
Population densities: North England 2012
HealthNorth:CHCpilots
Whatisalearninghealthsystem?
Anintegratedhealthsysteminwhichprogressinscience,informatics,andcareculturealigntogeneratenewknowledgeasanongoing,natural by-productofthecareexperience,andseamlesslyrefineanddeliverbestpracticesforcontinuousimprovementinhealthandhealthcare.
Key metric: data-action latency
Data-ActionLatency
Time
DataProduction
Analysis
DataProductionData-ActionLatency
Insight
ActionDataPreparation
CHCIngredients• Tri-partitecommitment
• Population&healthsystem
• Civicpride&publictrust
• InformationReadiness
• Multi-disciplinarycriticalmass
• Establishedpartnershipsandgovernance
• Industryintegration
CivicPartnership–SocialLicence
1 J Med Ethics. 2015 May;41(5):404-9
• Thesociallicenceforresearch:whycare.dataranintotrouble1
• Failuretomeetexpectationsofcitizens
– Reciprocity
– Non-exploitation
– Serviceofthepublicgood
• CitizenJuries
– forhealthdatasharing
• Open&Transparent
– Continuousinformedconsent
– Feedbacktocitizens
➔DiameterofTrust
• MassParticipation
– CityMoves
• PublicEngagement
– #datasaveslives
Howwillwedriveeconomicgrowth
• OpeninnovationpartnershipwithestablishedITcompaniestoadvancecoreinfrastructure
• Spin-inlaboratorytoacceleratedevelopmentofdigitalhealthtechnologiesbySMEs
• Platformfordeliveringreal-worldevidencestudies
ConnectedHealthCitiesPilot2016-18• Jan2016–CHCstarts
• June2017–TechnologyPlatform&KnowledgeExchangeandReusePlatformFirstRelease
• Dec2017–Ark’sfullyoperational
• Dec2018–PathwayOptimisationComplete;CHCPilotEvaluationComplete
Ark
• AnArkisatrustworthy,regionalcombinatorialinnovationcentreforhealthandsocialdataanalysis,producingtimely,actionableinformationforthecareofthepopulationitserves.
TheRoleoftheHub
• ProjectManagementandReporting
• Coreplatformdevelopment
• Communicationsandpublicengagement
• KnowledgeExchangeandReuse
HubTechnology
• Data Access, Information Governance and Citizens Control
• Ark Design and Reference Architecture
• Common Applications and Tools
• Knowledge Exchange and Reuse
• Data Federation, Virtualisation and Distributed Data Analysis
CHCOutcomes• Civicpartnerships
–Effectivemodelforpatientandpublicinvolvement
• FourpilotCHCs
–Blueprintsandplans
• FederationofCHCs
–Exchangingandreusingknowledge
• Testlearninghealthsystemmethodology
–Understanddataneeds
• Modelfordrivingeconomicgrowth
–Responsivetotheneedsofindustry
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