Young Onset Dementia (YOD) Worcestershire Consultation … · Young Onset Dementia (YOD)...
Transcript of Young Onset Dementia (YOD) Worcestershire Consultation … · Young Onset Dementia (YOD)...
Plan for the afternoon:
- Young Onset Dementia in Worcestershire –
Where are we now? (Jo Scarle – YOD
Development Officer – Worcestershire)
- Talks from people living with YOD and family
members (Marji Plowright, Ashley Little,
Jane Twigg)
- The Young Dementia UK Network (Sarah
Plummer)
- Group Work
- Feedback
Young Onset Dementia in
Worcestershire – Where are
we now? Jo Scarle (Young Onset Dementia
Development Officer)
Awareness Raising/Education/Training
St Richards Hospice
Dementia Care Trainer (WHCT)
Dementia Studies
Foundation Degree
Dementia Awareness
Week
Psychiatrists Teaching Session (WHCT)
Lunchtime Training – GP’s Upton Surgery
Care Navigators Training –
South GP’s
Local MH Teams/ AHP’s
Training Package – Learning Disability
and dementia
Occupational Therapy Students
Supporting with the review of
Alzheimer’s Society Publication
Trust Youth Board Young-Onset
Dementia Conference
Special Interest Group - Young-Onset Dementia
• Supporting children when a family member is living with
YOD
• Supporting people experiencing communication difficulties
• Driving
• What’s it like to live with dementia at a younger age – a
review of the literature
• Behavioural variant frontotemporal dementia
• Learning disability and dementia
A Website: Information for people living with young onset
dementia and their families
http://www.hacw.nhs.uk/our-services/young-onset-dementia-
new
Services and Support
• Connection Point
• Dementia Voice
- A group for younger people living with dementia which meets
once a month. We have just secured a free venue
(Community Room, Waitrose, Worcester) and are using
Sharelink Transport.
• Family Voice
- A group for family members/ friends of someone who is
living with YOD. Meets 6 times a year during Connection
Point Meetings.
• Al’s Café’s
Worcestershire Alzheimer’s Society run 3 evening café’s for people living
with YOD and their families/ friends – Worcester, Redditch and
Kidderminster. These groups provide advice, information and an
opportunity to build peer support networks.
• Rare Dementia Support
Although not specifically for people living with YOD; it is recognised that
rarer types of dementia occur more commonly at a younger age.
Alzheimer’s Society have built on the success of groups they ran last year
to establish 4 meetings which will run during 2017 to support people living
with types of Frontotemporal dementia, Logopenic Aphasia and Posterior
Cortical Atrophy.
• Meeting Dem (Droitwich)
Which is open 3 Days a week is currently providing support to a number of
younger people living with dementia and their families/ supporters.
• Dementia Advice Service
The Dementia Advice Service offers information and advice to
people who are living with dementia, as well as their family
and friends. This service is also currently piloting a scheme in
some GP surgeries in the south of the county where a
Memory Loss Advisor is linked with some surgeries to
support people who may be living with dementia.
ConnectED Service
Offers 1-1 support to people living with YOD – helping people
to maintain or find new interests and activities to be involved
in.
Worcestershire Health and Care NHS Trust
“Young-Onset Dementia Champions”
Early Intervention
Dementia Service
Older Adult Mental Health
Services
Adult Mental Health Services
Admiral Nursing Service
Learning Disability Services
Speech and Language Therapy
Links with Worcestershire Acute NHS Trust
Other local services currently supporting or keen to look
at options for supporting people living with YOD
Adult
Social Care (WCC)
Care Farms Care Home Providers
Fire Service
Headway Health Walks
Home Care Providers
Link Nurseries
Shared Lives (WCC)
Worcs Association
of Carers
What are the Benefits of Delivering Support in this way?
Although we have no dedicated clinical team working
with people who are living with young-onset dementia in
Worcestershire, the role of Young-Onset Dementia
Development Officer does provide a local voice and
supports in raising awareness about young-onset
dementia. Having the opportunity to provide training and
to work alongside other colleagues in health, social care
and the voluntary sector to look at how we can all come
together to better meet the needs of younger people
living with dementia and their families is key to this role.
A final thought
My personal feeling about what helps things to work
in Worcestershire is team work (in the widest sense).
People living with young-onset dementia, their
families, health and social care staff and colleagues
in the voluntary sector all need to work together to
review what is needed, what is working and what
needs to change, being realistic of financial
constraints and making the best of the
resources that we have available to us.
Film
https://www.youtube.com/watch?v=KXSrfKe-c1s
Young Onset Dementia
“Simply Life Giving”
Next Steps
• A draft report about today’s meeting will be sent out to you
all by 7th April
• A final report will be issued by the end of April – this will be
shared with The Young Onset Dementia Steering Group,
Worcs Health and Care Trust Dementia Steering Group
and the group currently looking at the redesign of Older
Adult Mental Health Services in Worcestershire
• Outcomes will be used to inform the work going forward
• If anyone hasn’t been involved to date, but is interested in
supporting the work in some way please let us know!
• We welcome the support
Contact
Jo Scarle
Young Onset Dementia Development Officer
Early Intervention Dementia Service
Worcestershire Health and Care NHS Trust
F Block
Kidderminster General Hospital
Bewdley Road
Kidderminster
DY11 6RJ
Tel : 01562 828894
Mobile: 07776992349
Email: [email protected]