Young advocates – it is possible! ‘The experience of the EFCCA Youth Group’
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Transcript of Young advocates – it is possible! ‘The experience of the EFCCA Youth Group’
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Young advocates – it Young advocates – it is possible!is possible!
‘The experience of the EFCCA Youth Group’
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This is...This is...
the story of a journey
but, above all, a dream that became an amazing, concrete, experience
the story of the EYG
and also...a personal experience
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WHYWHY
Several youngster group were established in some National Association
The German team thought to invite representatives from other countries, in order to exchange views
And so...Once upon a time, in 1998: the first EFCCA Youth Meeting in Erlangen is the beginning of our story.
The tremendous success led to the second meeting, in Amsterdam, held in 1999 and still funded by a National Association
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Amsterdam Days...Amsterdam Days...
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19991999
50 participants
12 countries
a fantastic environment
a participant with an idea: to creat a “commission” inside EFCCA for discussing problems related to young people with IBD
one year later: the youngsters spontaneously started using the name “LOEKIE COMMITTEE”
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ONE THING TO ONE THING TO REMEMBERREMEMBER
IBD EMERGES TIPICALLY IN A RANGE AGE OF 14 - 25 ...BUT IT HAS NOT BEEN ALWAYS LIKE THAT !
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Who’s Loekie ?Who’s Loekie ?
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HOWHOW
NOT AN EASY NEGOTIATION
ECTIC REACTIONS
SKEPTICISM (are they going to resist ?)
GENERATIONAL GAP EMERGES
TECHNOLOGICAL BARRIERS (internet was not that developed...and we had analogic modems)
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HOW /2HOW /2
Overcome barriers through mediation
Definition of the age-range: 18-30
Creation (2003) of a Joint Commission
2004: the EYG was born officially
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ACTIVITIESACTIVITIES
Vision and mission sharing
Good practices exchange
Common framework co-design
Networking (e.g. CYE)
Concrete projects development and implementation
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some of the EYG some of the EYG projectsprojects
youngsters developing activities for kids:
the GAME (now available in 11 languages)
the SUMMER CAMP
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POLICY MAKINGPOLICY MAKING
Preparatory work:
2 team bulding meetings
2 focus groups on group management and leadership
quarterly meetings
EYM as key moment of EYG activity
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POLICY MAKING /2POLICY MAKING /2
day to day work:
EYG-Zine
dedicated space in the EFCCA GA and Board
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GOVERNANCEGOVERNANCE5 youngsters (+ 2 subst.) elected indipendently by the youth delegates at the annual EYM
in charge for 3 years (1 for subst.)
direct management of an annual budget approved by EFCCA GA
considered as a special “EFCCA group”
EYG leader can participate in the EFCCA Board
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MUTUAL BENEFITSMUTUAL BENEFITS
Youth Point of View
Better mirror needs and peculiar visions
Dedicated services
“P - 2 - P” approach
Empowerment = > L.O.T.
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MUTUAL BENEFITS / 2MUTUAL BENEFITS / 2
EFCCA perspective:
Possibility of better meet needs of a key target of the disease
Some “generational” problem
Increased use of communication tools
Investing in our future => L.O.T.
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L.O.T.L.O.T.Leaders of Tomorrow program
teaching how the organization work
providing tools and resources
provinding a fertile environment for creativity
learning from each other
exchanging weaknesses and strenght
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and...and...
feeding the new generation of volunteers and leaders (motivated, skilled and inspired)
paving the way towards our handover
spending much less than you can imagine !!!!
does it work ?
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ACHIEVEMENTSACHIEVEMENTS
14/48 EFCCA delegates have attended at least one EYM meeting
4/8 member of the EFCCA Board have been in the L.O.T. program
the actual chairman of EFCCA founded the EYG and led it for 6 years.
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ConclusionConclusion
YES, WE CAN ! if...UNITED WE STAND !