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Welcome and Introductions

Rosie Pope welcomed everyone to the meeting. Rosie is the lead Director for peoplewith Learning Disabilities in Yorkshire and Humber for the Association of Directors ofSocial Services (ADASS).

This meeting is about

How some people are working with people with Learning Disabilities and familymembers to check the quality of support or services

The Care Act that became a law in 2014 and the changes start to happen in2015

Everyone introduced themselves.

Yorkshire and Humber LearningDisability Leadership Meeting

22ndOctober 2014 in York

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How the Good Lives Leaders work in Leeds

Janet, Shirley and Liz from Leeds told us how the Good Lives Leaders project works inLeeds.

Janet is the commissioner (the person who buys and plans for services) and Liz andShirley are family members and Good Lives Leaders.

People with Learning Disabilities, family members, staff from support organisations andadvocacy groups worked with the commissioner and contracts people in Leeds todevelop the Good Lives Leaders.

Lots of different people were involved to come up with the best way they could ofchecking the things people with learning disabilities and families think are important aswell as the usual checks the Council do.

You can see their presentation on how Good Lives Leaders work and what they thinkhas gone well or needs to get better at

http://bit.ly/1qxMioP

http://bit.ly/1qxMioPhttp://bit.ly/1qxMioPhttp://bit.ly/1qxMioP

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How Care Quality Commission are working with Experts byExperience

Lucy and Maralyn told us about how the Care Quality Commission (CQC) works withExperts by Experience when they are checking on services.

CQC regulate health and social care servicesthis means they check if services aregood enough against national standards.

Maralyn said what was good and bad for her about being an Expert by Experienceinvolved in CQCs workMaralyn thinks that Experts by Experience make a realdifference to the work.

You can see their presentation athttp://bit.ly/1vsh6sS

How people are involved in checking quality in other ways

We worked in groups and talked about how people with learning disabilities and familymembers are involved in checking in other ways.

Lots of groups have different ways of doing this and said they are happy to tell otherpeople about it.

http://bit.ly/1vsh6sShttp://bit.ly/1vsh6sShttp://bit.ly/1vsh6sShttp://bit.ly/1vsh6sS

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You can see a list of different examples in Yorkshire and Humber and how to find outmore at the end of these notes.

The groups also said what is important about people and families being involved inchecking

People and families will notice things other people do not

It is an important part of valuing peoples experience and skills

People will understand the issues better for other disabled people and families

People with learning disabilities and families can be an independent check andvoicefocus on the person

The Care Act the big changes

Sam did a presentation about the Care Act because Pete Lenehan who is working forADASS in the region cannot come.

The Care Act is a change to the law on how Social Care services work. The changeswill start happening in April 2015 but some will not happen until 2016.

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The big ideas in the Act are

Services must promote health and wellbeing

Try to help people not need care and support where possiblebe independent

Focus on making peoples livesbetter

Support families and carerssame legal rights

Care services must be of a high standard

Adult social care, NHS and housing work together

Similar ways of working across boundaries so it is better for people

There are lots of big ideas and changes in the Act. Sam said she thinks we all needto take some time to think it through and work out what it meanstoday was achance to start that but we know there is loads more to do.

You can see the presentation at:http://bit.ly/1ue0gqA

You can see an Easy Read version of the Act from the Department Health at

https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/36534

5/Making_Sure_the_Care_Act_Works_EASY_READ.pdf

Sam said she will share easy read information or resources about the Care Act withpeople in the Leadership Group and local areasif you have any can you send themto Sam and she will send them round local groups and Boards.

http://bit.ly/1ue0gqAhttp://bit.ly/1ue0gqAhttp://bit.ly/1ue0gqAhttps://www.gov.uk/government/uploads/system/uploads/attachment_data/file/365345/Making_Sure_the_Care_Act_Works_EASY_READ.pdfhttps://www.gov.uk/government/uploads/system/uploads/attachment_data/file/365345/Making_Sure_the_Care_Act_Works_EASY_READ.pdfhttps://www.gov.uk/government/uploads/system/uploads/attachment_data/file/365345/Making_Sure_the_Care_Act_Works_EASY_READ.pdfhttps://www.gov.uk/government/uploads/system/uploads/attachment_data/file/365345/Making_Sure_the_Care_Act_Works_EASY_READ.pdfhttps://www.gov.uk/government/uploads/system/uploads/attachment_data/file/365345/Making_Sure_the_Care_Act_Works_EASY_READ.pdfhttp://bit.ly/1ue0gqA

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What the Care Act changes might mean to us

We worked in groups from our local area to think about the good things the Act willmean and some of the things we need to plan for.

Each area has done an action sheet for themselves and what they need to work onnext.

The Big ideas were

This could mean really good changes for people and their families in havingmore choice and control and services joining up

Everyone wants more easy to understand information and a chance to talk itthrough.

Lots of people want to find out more on what is happening in their area.

Actions:

Sam will ask Pete Lehanan about the regional Care Act leads groupwho they areand what information we can help share

Inclusion North will share any information they find or do send them things you thinkother people might find helpful

Check your local areasaction sheet for what people said is important to do there

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Any other business

Sam told everyone the information about the Learning Disability Joint Health and SocialCare Self-Assessment is out

You can find it at

https://www.improvinghealthandlives.org.uk/projects/jhscsaf2014

The easy read information explaining what should happen in each area is at

https://www.improvinghealthandlives.org.uk/securefiles/141118_1703//Governance%20Sheet%20SAF%202014%202015.pdf

Date of the next meeting

Rosy thanked everyone for coming to the meeting and working hard.

The date of the next meeting is 9thFebruary 2015.

https://www.improvinghealthandlives.org.uk/projects/jhscsaf2014https://www.improvinghealthandlives.org.uk/projects/jhscsaf2014https://www.improvinghealthandlives.org.uk/securefiles/141118_1703/Governance%20Sheet%20SAF%202014%202015.pdfhttps://www.improvinghealthandlives.org.uk/securefiles/141118_1703/Governance%20Sheet%20SAF%202014%202015.pdfhttps://www.improvinghealthandlives.org.uk/securefiles/141118_1703/Governance%20Sheet%20SAF%202014%202015.pdfhttps://www.improvinghealthandlives.org.uk/securefiles/141118_1703/Governance%20Sheet%20SAF%202014%202015.pdfhttps://www.improvinghealthandlives.org.uk/securefiles/141118_1703/Governance%20Sheet%20SAF%202014%202015.pdfhttps://www.improvinghealthandlives.org.uk/projects/jhscsaf2014

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People and families being part of checking services

What we are doing How you can find out moreCHAD involvement ingeneral hospital and with

GPs looking at how toaccess services e.g.signs and symbols

Phone or e mail us on

07467915914

What we are doing How you can find out moreSelf-Advocacy Voice atBradford People First.

User led forums forpeople with learningdisabilities to have theirsay

Phone or e mail us on

selfadvocacy@bradfordpeoplefirst.org.uk

01274 744151

What we are doing How you can find out moreChecks in leisure checksin Hambleton with a listprepared by members ofthe local Health TaskGroup

Phone or e mail us on

Sue.lear@northyorks.gov.uk

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What we are doing How you can find out more

Trying to get a grouptogether to checkservicesneed funding,

looking at this. We hadrights and responsibilitiestraining which we used totalk to staff at Henshawsarts and crafts

Phone or e mail us on

Karen.murray@keyring.org

What we are doing How you can find out more

David Bruce self-advocate Harrogate is amember of the QualityChecking Group ofHarrogate Hospital

Phone or e mail us on

Karen.murray@keyring.org

What we are doing How you can find out moreWe have done hospital

audits in Selby and Yorkto check how accessiblethey are for people withlearning disabilities

Phone or e mail us on

Belinda.croce@keyring.org

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What we are doing How you can find out moreSupporting andmonitoring visits forcarers in Shared Lives

Phone or e mail us on

barnsleysharedlives@barnsley.gov.uk

What we are doing How you can find out moreQuality checks on supportreceived direct fromservice users and familycarers (Shared Lives)

Service users involved inapproval of Shared Livescarers/panel meetings

Phone or e mail us on

sharonclarke@barnsley.gov.uk

What we are doing How you can find out moreHow people are involvedand how it works

I was a quality checkerfor my provider at homein Calderdale

Phone or e mail us on

Marion Belshaw viaJackie.dolman@cloverleaf-advocacy.co.uk

mailto:Jackie.dolman@cloverleaf-advocacy.co.ukmailto:Jackie.dolman@cloverleaf-advocacy.co.ukmailto:Jackie.dolman@cloverleaf-advocacy.co.ukmailto:Jackie.dolman@cloverleaf-advocacy.co.uk

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What we are doing How you can find out moreWe have been doingGetting Things Right withour LDPB- they havelistened to us that we

need an exp by expprogramme in Calderdaleand commissioners arelooking at this

Phone or e mail us on

Jackie.dolman@cloverleaf-advocacy.co.uk07769167762

What we are doing How you can find out moreTwo people from ourservice user rep group

are part of the checkinggroup for Choice Support.They feel it is good to bepart of the check andtheir views listened to

Phone or e mail us on

mailto:Jackie.dolman@cloverleaf-advocacy.co.ukmailto:Jackie.dolman@cloverleaf-advocacy.co.ukmailto:Jackie.dolman@cloverleaf-advocacy.co.uk

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What we are doing How you can find out moreChecked 3 buildings andtalked to staff and clients.We gave certificates tothem if the service was

good. If things were badtold service leader and ifthey didnt do anythingwe took it tocommissioners and thePartnership Board

Phone or e mail us on

Karen.murray@keyring.org

What we are doing How you can find out moreGood Lives Leaders

Project in Leeds

Phone or e mail us on

Sandra.twitchett@leeds.gov.uk

mailto:Karen.murray@keyring.orgmailto:Karen.murray@keyring.orgmailto:Sandra.twitchett@leeds.gov.ukmailto:Sandra.twitchett@leeds.gov.ukmailto:Sandra.twitchett@leeds.gov.ukmailto:Karen.murray@keyring.org

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Who was at the meeting

Name Area

Adam Wakefield

Adam Snowball Barnsley

Alison Owen Rotherham Speakup

Belinda Croce North Yorkshire

Beverley Cowen North Yorkshire

Claire Collins Leeds

Carol Travis Barnsley

Danielle Michelle Leeds

Derek Barker Doncaster

Di Lofthouse Harrogate

Eden Haytree Rotherham Speakup

Gillian Carlin Bradford People First

Glynis Smith Doncaster

Hazel Griffiths North Yorkshire

Jackie Dolman Cloverleaf

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Jai Rea Wakefield

Janet Wright Leeds

Jill Burton Hull

Joanne Hodgson Barnsley

Julie Cole Leeds

Julie Dodsworth North Yorkshire

Julie Sabin Barnsley

Karen Amos Bradford

Liz Davis LeedsMaggie Kelly York

Maralyn Adey Bradford

Mark Johnson Doncaster

Matthew Pitt

Michael Hyde

Mildred Smith Cloverleaf

Pamela Mellor East Riding

Paul Haworth Cloverleaf

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Paul Howatson York

Peter Collier Doncaster

Rosie Tozer York

Rosy Pope East Riding

Rowy Lodge Wakefield

Sam Suttar North Yorkshire

Samuel Barrington East Riding

Sarah Kenny North Yorkshire

Sandra Twitchett LeedsSharon Clarke Barnsley

Shirley Evison Leeds

Stephanie Nicholson East Riding

Steve Foy Leeds

Sue Lear North Yorkshire

Tom Newton North Yorkshire

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Apologies

Angie Dyson North East Lincolnshire

Jean Riley North Yorks

Judith Wild Rotherham

Peter Choules East Riding

Sharon Graham Barnsley

Stephen Mirfin Hull