Quality Online Medical and Health Information Universal access of the Web from utopia to reality:...
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www.healthonnet.org Quality Online Medical and Health Information Universal access of the Web from utopia to reality: experience with the ProVisu project Vincent Baujard, Samia Reffas , Arnaud Gaudinat and Celia Boyer Health on the Net Foundation, Geneva, Switzerland SGMI– SSIM Tuesday 2 rd May 2006
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Transcript of Quality Online Medical and Health Information Universal access of the Web from utopia to reality:...
www.healthonnet.org
Quality Online Medical and Health Information
Universal access of the Web from utopia to reality: experience with the ProVisu project
Vincent Baujard, Samia Reffas, Arnaud Gaudinat and Celia Boyer
Health on the Net Foundation, Geneva, Switzerland
SGMI– SSIM
Tuesday 2rd May 2006
www.healthonnet.org
SGMI-SSIM 2rd May 2006
Agenda
What is HON?
Presentation of the overall Internet situation
Accessibility guidelines and initiatives
HON’s solutions: approaches implemented in the ProVisu project
Conclusions and perspectives
www.healthonnet.org
SGMI-SSIM 2rd May 2006
Health On the Net
Established in 1995 under the aegis of Geneva Health Ministry (DES)
Mission: To guide Internet users to reliable, understandable and relevant sources of online health and medical information.
www.healthonnet.org
SGMI-SSIM 2rd May 2006
Online Health and Medical Information
Internet is mainstream media934 million users worldwide connected in 2004Half of all European Citizens connected (7 country survey*)
Importance of medical information on the Internet4,190,000,000 results for the search term, “health” on Google (March, 2006)74% of Internet users in the United States have gone online in search of health information **
Is the health web accessible for visually impaired and blind persons?
* http://www.ejic.org/page2.html Germany, France, Great Britain, Spain, Belgium, Austria, Switzerland** Harris Interactive Health report July 2005
www.healthonnet.org
SGMI-SSIM 2rd May 2006
The Internet should be adapted to the needs of all citizens
Reading disabilities and Visual disabilities In Europe :
7 millions with visual disabilities, 700’000 are blind
Dyslexic and Intellectual handicaps
Neurological and physical impairment In Europe :
56 millions are physically impaired *
Elderly and Patients amongst others
www.healthonnet.org
SGMI-SSIM 2rd May 2006
HON surveys with the European ENABLED project *
A large number of websites are not fully accessible, because :
Website developers, designers and managers are not aware of accessibility issues
Lack of knowledge or training to use the available tools
The responsibility of software manufacturers, who must provide tools to produce accessibility
* Analysis of the ENABLED Web Developer Survey http://www.enabledweb.org/public_results/survey_results/analysis.html
www.healthonnet.org
SGMI-SSIM 2rd May 2006
WAI (Web Accessibility Initiative)
Guidelines and tools to increase Web accessibility for people with disabilities
NIH : a checklist to assess the accessibility of Web sites *
HON survey with the European ENABLED project **
36% were concerned
58% were not aware of the WAI guidelines269 survey respondents
* The National Health Institute check list for webmasters http://www.nlm.nih.gov/pubs/checklist.pdf** Analysis of the ENABLED Web Developer Survey http://www.enabledweb.org/public_results/survey_results/analysis.html
www.healthonnet.org
SGMI-SSIM 2rd May 2006
Accessibility
Readability : typeface, size, colour and background complexity of the page layout
Speech-enabled web sites
Universal readability
Multilingualism
Health literacy : complexity of the content Manual : Extraction Automatic : On going project
www.healthonnet.org
SGMI-SSIM 2rd May 2006
The ProVisu project
Raise awareness and prevention with the citizen and health professionals for eye diseases
Provide trustworthy information about all eye diseases (HONcode sites), available services, treatments, and associations
Be accessible to visual impaired person
Quality of thrustworthy health information : HONcode
www.healthonnet.org
SGMI-SSIM 2rd May 2006
Approaches implemented by HON in the ProVisu project
1. The reading comfort (text size, colour, background)
2. The seamless speech-enabled (TTS) service and the navigation with the keyboard
3. The adaptation of external websites (via a bookmarklet)
4. Multilingualism
5. Health literacy : complexity of the content
www.healthonnet.org
SGMI-SSIM 2rd May 2006
Accessibility
Readability : typeface, size, colour and background complexity of the page layout
Speech-enabled web sites
Universal readability
Multilingualism
Health literacy : complexity of the content Manual : Extraction Automatic : On going project
www.healthonnet.org
SGMI-SSIM 2rd May 2006
1. Accessibility : Reading comfort
Default HomePage of the Provisu Web site
www.healthonnet.org
SGMI-SSIM 2rd May 2006
1. Accessibility : Reading comfort
typeface, size, colour and background
www.healthonnet.org
SGMI-SSIM 2rd May 2006
1. Accessibility : Reading comfort
complexity of the page layout
www.healthonnet.org
SGMI-SSIM 2rd May 2006
Accessibility
Readability : typeface, size, colour and background complexity of the page layout
Speech-enabled web sites
Universal readability
Multilingualism
Health literacy : complexity of the content Manual : Extraction Automatic : On going project
www.healthonnet.org
SGMI-SSIM 2rd May 2006
•Listen / Stop: Age-related macular degeneration (ARMD), is the gradual loss of vision caused by the oxidation of the macula, which is a small, circular membrane at the center of the retina. This membrane is light sensitive and responsible for our central vision. When the macula degenerates, central vision deteriorates, resulting in dark spots and cloudiness. It is caused by the oxidation of the macula. As the arteries harden with age, the delicate structures of the eye begin to lose some of their function.Source: Age-related macular degeneration (ARMD) (uniteforsight.org)
Macular Degeneration Age Related
2. Accessibility : Speech-enabled web sites
www.healthonnet.org
SGMI-SSIM 2rd May 2006
Accessibility
Readability : typeface, size, colour and background complexity of the page layout
Speech-enabled web sites
Universal readability
Multilingualism
Health literacy : complexity of the content Manual : Extraction Automatic : On going project
www.healthonnet.org
SGMI-SSIM 2rd May 2006
3. Accessibility : Universal readability
www.healthonnet.org
SGMI-SSIM 2rd May 2006
3. Accessibility : Universal readabilityAdaptation of external websites
Provisu bookmarklet
www.healthonnet.org
SGMI-SSIM 2rd May 2006
3. Accessibility : Universal readabilityAdaptation of external websites
www.healthonnet.org
SGMI-SSIM 2rd May 2006
Accessibility
Readability : typeface, size, colour and background complexity of the page layout
Speech-enabled web sites
Universal readability
Multilingualism
Health literacy : complexity of the content Manual : Extraction Automatic : On going project
www.healthonnet.org
SGMI-SSIM 2rd May 2006
4- Accessibility : Multilingualism
(French)
www.healthonnet.org
SGMI-SSIM 2rd May 2006
4- Accessibility : Multilingualism
(English)
www.healthonnet.org
SGMI-SSIM 2rd May 2006
Accessibility
Readability : typeface, size, colour and background complexity of the page layout
Speech-enabled web sites
Universal readability
Multilingualism
Health literacy : complexity of the content Manual : Extraction Automatic : On going project
www.healthonnet.org
SGMI-SSIM 2rd May 2006
5- Accessibility : Health literacy
• Manual : Extraction and selection to help access to health literacy
www.healthonnet.org
SGMI-SSIM 2rd May 2006
Conclusion
Through these simple solutions ProVisu demonstrates that respecting elementary rules and using appropriate web technology such as the bookmarklet, the Internet could be an integration and autonomy vector for all of us.
Perspectives
• Development of simple guidelines
• Implementation of an Accessible Web Content accreditation
www.healthonnet.org
SGMI-SSIM 2rd May 2006
HON Team
HONcode AccreditationSergio Garcia Vicente, MD
Erik Montesinos, MD
Mélanie Provost, DPharm.
Samia Reffas, Phd,
Mikhail Mizin
Computer developmentVincent Baujard
Arnaud Gaudinat
Hamidul Huq
Samia Reffas, E-mail : [email protected]
Design
Ndaté Sylla
Secretary
Guilia Ramagnano
Direction
Celia Boyer
