Working Together as Partners in+care Introducing the Partners in+care Toolkit

Working Together as Partners in+care

Introducing the Partners in+care Toolkit

June 28, 2012

For Audio: Dial-in#: 866.394.2346 Participant Code: 3971546368#

For more information: www.incarecampaign.org

This Partners in+care webinar is offered as part of the in+care Campaign.

The in+care Campaign is a national effort to improve retention in HIV care.

Webinars are one of many Partners in+care activities designed to engage people living with HIV/AIDS and their allies in the in+care Campaign.

This webinar introduces tools you can use to engage peers and consumers in the in+care Campaign.

Michael HagerNQC Manager, TA/DisseminationNew York, [email protected]

Welcome & Overview

This is a “public event.” If you have confidentiality concerns . . .

- Your names appear on-line in the list of webinar registrants--consider just listing to the audio or to viewing the webinar at a later time, after it is posted at www.incarecampaign.org

- All webinars are recorded--do not use identifying information when asking questions


Participation Guidelines

Actively participate and write your questions into the chat area during the presentation; we will also have a “pop up” question exercise, and will pause for conversation during the webinar

Do not put us on hold Mute your line if you are not speaking (press *6, to unmute

your line press #6) The slides and recording of this and other Partners in+care

webinars are available for playback and group presentations at www.incarecampaign.org – “Resources” tab


Participation Guidelines

Welcome, Overview, Participation Guidelines - 5 mins

Agenda, Learning Objectives, Introductions - 5 mins Partners in+care Refresher, 20 mins Opening the Partners in+care Toolkit, 20 mins The Impact of Retention, 5 mins Wrap-up & Evaluation, 5 mins

Conversation opportunities throughout webinarBob Tracy, NQCPeer ConsultantSt. Paul, [email protected]

Agenda

At the end of this webinar you will know . . .

How the in+care Campaign and Partners in+care fit together

What resources are available in the Partners in+care Toolkit

Why it is important to engage peers and consumers in our “push” to improve retention

Learning Objectives

Purpose for in+care Campaign

Partners in+care Refresher

The purpose for the in+care Campaign is to improve health and prevention by keeping and getting more people living with HIV/AIDS in care.

We are doing this by facilitating local, regional and state-level initiatives to improve retention.

Visit www.incarecampaign.org

Webinars/Meet Authors

Coaches

QI Projects &Data

Champions

Partners in+care


Five Parts of the in+care Campaign


Partners in+carePurpose

Successful results in HIV care depend upon partnership between consumers and their providers.

So does the in+care Campaign.


Web “hub”WebinarsResourcesNational NetworkPeer-to-peer exchange

Self CarePeer-to-PeerEngage in QI


Purpose for Partners in+care CampaignEngage people living with HIV/AIDS as partners in the in+care Campaign

Increase Knowledge

Visit www.incarecampaign.org – “Partners” tab


Pop-up QuestionHow have you been involved with the in+care Campaign?

Signed-up for in+care Campaign?Participated in webinars?

Worked with a regional coach?Involved with a regional learning group?

Signed up for Partners in+care?I’m new. Today is the first.

Other?Select all that apply.


Partners in+care RefresherWhat has Partners in+care offered, to

date?

* Sign up for Pi+c network at www.incarecampaign.org – “Partners” tab** Send email to [email protected] – “Facebook” in subject line

November – Pi+c work group formed

February - Launched Pi+c web site and introduced the Pi+c network *

March – Webinar introducing retention and Pi+c

April – Webinar on self-care and retention

May – Webinar on retention and peer-to-peer outreach & support

June - Introduced the Pi+c Facebook page; exchange tips, stories, information & experiences **

June – Pi+c Toolkit launch & introductory webinar

Partners in+care Toolkit

Introducing the Pi+C Toolkit

A set of resources to reach peers and consumers that are easy-to-find on the Partners in+care web page that you can use to:

Support knowledge about retention

Promote involvement in Pi+c

Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkit


What’s in the Pi+C Toolkit

“How To” guide Pi+c awareness and

promotional tools Web resource links Key articles Short Powerpoint

presentations Webinar archive



Using the Pi+C Toolkit

Getting what you need from the Pi+c web site to take the Pi+c experience beyond the web



Where to find the Pi+C Toolkit

www.incarecampaign.orgClick the “Partners” tabOpen the Pi+c Toolkit

Partners in+careToolkit



in+care Campaign video Promotional flier [PDF] Palm card [PDF] Tear sheet [PDF – updated to promote

next Pi+c webinar] Tip Sheet [messages for email, FB &

Twitter]

Awareness Tools



Have you used any of the Pi+c awareness tools?

Tell us how you have used the tools and about your experiences in the chat room.

Awareness Tools



Key HIV Terms [HRSA] Ryan White Services [HRSA]

Living History [HRSA]

HIV self-care [HRSA]

Info about HIV [CDC]

Self Care [The Body]

Consumers & QM/QI [NQC]

Resources to Share



More Resources to ShareCheever, Laura. Engaging HIV-infected Patients in Care: Their Lives Depend on It, Clinical Infectious Disease, 2007; Vol.44, Issue 11, pp 1500-1502.

Giordano TP, Gifford AL, White AC Jr, et al. Retention in Care: A Challenge to Survival with HIV infection. Clinical Infectious Disease, 2007; Vol.44, Issue 11, pp 1493-1499.



Things You Can Show

Pi+c overview Retention: What It Means for You Retention & Self-care Retention & Peer-to-Peer Support Retention & Consumer Involvement in

Quality Management & Improvement

Short Powerpoint Presentations & Discussion Tools




Things You Can Watch

Retention: Partners Make It Happen It Starts with One: Retention & Self-

care Reaching Out to Share the Benefits of

Care: Retention & Peer Advocacy Other in+care Campaign webinars available

@ www.incarecampaign.org

Pi+c Webinar Archive



Ways To Connect

Email notices and updates about Pi+c and in+care Campaign

Provide advice [Pi+c surveys]

Pi+c Network

+Sign up to Be a Partner in Care


Ways To Connect

Share tips, stories, experiences & resources

Community of people living with HIV/AIDS and allies

Secure and confidential Join. Send email to

[email protected] – Facebook in subject line

Pi+c Facebook Community


Visit www.incarecampaign.org – “Partners” Tab – Partners in+care ToolkitSend email to [email protected] – “Work Group” in subject.

Ways To Share

Share your experiences.

Share your resources. Send them to [email protected]

Join Pi+c work group.

+ Tell Us Your Improvement Stories

Raise Your Hand

Are you connected with Partners in+care?

How many have signed up for the Pi+c network through the Pi+c web page?

How many have joined the Pi+c Facebook page?

Who wants to join?


Sign up for Pi+c network at www.incarecampaign.org – “Partners” tabSend email to [email protected] – “Facebook” in subject line

1/3 to 2/3 of PLWHA in US are not in regular care

What We Want to Change

17-40% of PLWHA who know status are not in regular care

40% of patients newly diagnosed did not see provider within 6 months

Our Goal

Stay in care / Return to care

Retention –having a routine for seeing your doctor/health care provider on a regular schedule

Doing this persistently – year-after-year-after-year

There is a relationship—a seemingly obvious relationship— between regular medical visits and improved health and reduced mortality. Research published in 2010 provides the first data to demonstrate the survival advantage of regular HIV care. [Giordano, 2010]

The Value of Retention

Our Goal

Not in HIV Care Engaged in HIV Care

Unaware of HIV infection

Aware of HIV infection (not in care)

Receiving some medical care but

not HIV care

Entered HIV care but lost to

follow-up

Cyclical or intermittent user

of HIV care

Fully engaged in HIV care

Continuum of Engagement

Our Goal

Partners in+care: Providers & Consumers Coming Together to Overcome Retention Challenges

• Self-care – learning more• Reaching out to others – peer-

support, peer navigators, friends and family

• “Systems” that work with us by working with them

Visit www.incarecampaign.org – “Partners” Tab

Our Goal

What We will Accomplish

Create a network of 1000 consumers ready to be engaged in retention through Pi+c.

Identify 100 consumers ready to become Pi+c leaders & advisers.

Sign up for Pi+c network at www.incarecampaign.org – “Partners” tab

Send email to [email protected] – “Facebook” in subject line

Our Goal

Share what we know so we all get better at: Seeing our doctor and HIV care providers on a regular

basis Reaching out and supporting others so they see their

doctors and HIV care providers on a regular basis – especially those who are new to HIV care or who have stopped regular visits

Making sure we all get the full benefit of care and treatment in order to improve our health

What We will Accomplish

Our Goal

Will You Join Pi+c?How Can You Use the Pi+c Toolkit?

Visit www.incarecampaign.org - “Partners” tabSign up for Pi+c network at www.incarecampaign.org – “Partners” tab

Send email to [email protected] – “Facebook” in subject line

Campaign Headquarters:National Quality Center (NQC)90 Church Street, 13th floorNew York, NY 10007Phone 212-417-4730

Visit Web / Open the Toolkit www.incarecampaign.org -

“Partners” tab

Sign up for Pi+c Network www.incarecampaign.org –

“Partners” tab

Join FacebookSend email to

[email protected] – “Facebook” in subject line

Working Together as Partners in+care Introducing the Partners in+care Toolkit

Documents

Transcript of Working Together as Partners in+care Introducing the Partners in+care Toolkit