What is the PRSB and what’s in it for me?

Marlene WinfieldNon-executive Director for Patient and

Public affairsmarelenwinfield@gmail.com

What is the PRSB?

• Registered as a Community Interest Company (CIC) in May 2013

• Delivers and supports standards for the structure and content of electronic records used in health and social care

• Aims to reflect the needs of those who commission, provide and receive care - and those who provide the IT systems that enable care

How do we deliver those aims?

• Quality-assure existing and new standards according to clear criteria

• Support those developing standards, for example by putting them in touch with professional leads/experts /organisations who can help them

• Undertake consultations and help others with their consultations

• Provide considered opinions, information, advice and implementation guidance

• Publish quality assured standards

We aim to be a unified voice that ensures care record standards:

• Reflect the way people work together

• Reflect current best practice

• Enable information to cross boundaries

• Enable good outcomes

• Enable data to be aggregated and used for research, management, and planning

• And can be adopted by information systems

Unifying features

• We have representation from the four nations and links into their relevant initiatives

• We have been confirmed as 'the preferred route for clinical involvement in patient record keeping national activities' by the National Informatics Board (previously Informatics Services Commissioning Group - ISCG)

Range of founder members

• National Voices (umbrella patient group organisation)

• Royal College of Physicians

• Allied Health Professions Federation

• Royal College of Nursing• Royal College of General

Practitioners• Royal College of

Pathologists

• Royal College of Surgeons of England

• Royal College of Psychiatrists

• Royal College of Paediatrics and Child Health

• Academy of Medical Royal Colleges

• Association of Directors of Adult Social Services

• British Computer Society

What’s in it for me as a patient?

Next year I can access my GP record• Check it for accuracy• Be an informed partner in my care• Manage my prescriptions and appointments• Check immunisations, test results, letters • Use on holiday if I am ill• Link up my care in the community• Keep my relatives informed

My hospital records are not far behind

Increasingly I might also want to:• Record my self-monitoring information• Add medicines I prescribe for myself• Add to my interactive care plan and check what

others are doing• Order routine tests and check test results• Keep a health diary• Record my appointments and set reminders

All this has implications for you as IT system suppliers

In the past there have been disconnects . . .

• Between those who develop records and those who use them

• Between those who supply IT systems and those who develop records

• Between those who use records and those who supply the IT systems

• And between everyone and the patient!!!!!

The disconnects meant

• What people built was not always wanted • What people wanted couldn’t always be built• No one considered the patient’s needs as a

future record user or system user

Through shared standards, the PRSB aims to bring the pieces together

So that when care records are developed - and systems enable them - everyone is happy, including me!