Colostomy Catheater Bag Foundation

(CCBF)P.O. Box 85 Lira Uganda‐

Tel: +256 782849475 / +256 756730399 E-mails: ccbfoundation16@gmail.com

Organizational Profile

The Pictures above explains in part what our name “Colostomy” Means!“A surgical procedure that brings one end of the large intestine out through the abdominal wall”

Please, Keep Reading!

WHO WE ARE

Colostomy Catheter Bag Foundation Uganda is a Non Profit, Non-governmental Organization based in Uganda. It is incorporated by the Uganda Registration Services Bureau (URSB) as a company limited by guarantee With Reg. No. 80020000506736, Lira District Local Government NGO board (Reg. No LDLG/2015/036) and a member organization of Lira NGO Forum (Reg. No LF/NGO/LR/1226) and registered with the National NGO Registration Bureau as a local NGO.

It was initiated in 2015 through a group of people with shared common interested. The group has a wide vision in response to Colostomy Catheter bags conditions/diseases that has affected most of the population within northern Uganda, due to stigma and discrimination from the community members, the members came up with the organization to address all categories of people affected by this condition irrespective of age.

AREAS OF OPERATION

The organization operates in Northern Uganda with its Headquarter in Lira Town with intentions of opening branches country-wide.

VISION:

To create and establish sustainable access of urethral bags and expert timely medical assistance to the communities

MISSION STATEMENT:

To support and facilitate local initiatives aimed at low stigma reduced post operation secondary infections.

CORE VALUES:

God-fearing: We will at all times promote Biblical principles and the Bible will be our foundation block for the organization.

Integrity: We are committed to high standard moral principles at all times.

Social Justice and Equity: We will work with other NGOs to promote equality, dignity, and a more just society especially with the poor and the marginalized communities.

Gender and Diversity: We will work towards and promote respects for gender equality and diversity. Work towards achievements of equity and gender parity in the designing of policies, programmes and in the allocation of resources.

Accountability: Will hold all members accountable to the highest level of ethical behaviors and responsibility for its actions while maintaining integrity in its performance

Transparency: We shall at all times uphold openness to its members, beneficiaries, and partners with respects to its process, operations, actions and outcomes.

OBJECTIVES

Summary of the objectives for which the Organization is established are:

1. To mobilize, sensitize and give essential primary health services to people using stoma(urethra) bags.

2. To create a project that will ease accessibility to quality, hygienic stoma (urethra) bags and timely medical support in case of sudden attacks.

3. To establish care Centre that will have a ready medical personnel and hygienic facilities for proper storage of stoma (urethra) bags and other essential equipment

4. To promote, educate and advance the cultures of all communities centered on the colostomy catheater bag foundation procedures.

5. To support the promotion of Human rights and social justice.

6. To empower economic development in the community through skills development and job creation.

7. To provide vocational skills/ studies to teen-age school drop-outs due to colostomy/ stoma problems.

8. To formulate women, youth and Children groups to reach out other women youth and children in their various communities through the ministries of women, youth and children.

9. To establish, promote, operate, conduct, or organize schools with a view to providing general education to the public at large, run vocational centers, child care centers and other institutes of learning in selected areas in Uganda.

10. To inaugurate and promote general knowledge and to encourage educational work, pay school fees for children from poor social-economic background, orphans of HIV/AIDS and displaced children and the spread of learning Materials through correspondence courses and bookshops.

11. To undertake contributions towards community building programs and organizing courses in special skills for the purpose of attaining self-help and reliance in environmental conservation of abundant biodiversity for income generation, agriculture, and farming to improve livelihood as a means of survival.

12. To launch and manage charitable and developmental projects like institutions of learning, hospitals, dispensaries, maternities, health care centers, child orphan care, health care and related programs. To establish, develop and run charitable programs for social development, relief and rehabilitation of people in areas affected by natural or other human or pestilential disaster and to alleviate the suffering of victims of such plagues as Aids.

13. To work hand in hand with any lawfully registered and recognized local and international NGOs whose aim and objectives are similar to those of Colostomy Catheater bag foundation for the purpose of achieving any or all of these objectives.

14. To apply to any appropriate international bodies, governments, departments, co-operations and companies and to accept grants of money, land, donations, gifts and other kinds of assistance with the view of promoting the aims and objectives of colostomy catheater bag foundation and even if such gifts or properties are subject to the special trust which may be prescribed by the donor.

15. To take steps by personal or written appeals, public meetings or otherwise for the purpose or procuring contributions to the funds of the organization by way of endowments, gifts, funds raising, donations or other wise to promote any activities for the purpose of raising money for the running of affairs of the organization.

16. To acquire or take on lease or grant, purchase, sell transfer, or otherwise deal in any movable property anywhere in Uganda or elsewhere for any estate or interest whatever, any rights easements, privileges, in land, building, machinery, engines, plants, live or dead stock or things whatever in order to service the above stated objects and to sell or in any other way dispose of the so acquired properties as determined from time to time by this constitution.

17. To provide for the educational, sanitary and general welfare of settlers on the establishing, making or supporting house, factories, stores, building societies, insurance societies and other institutions, water lighting, drainage and improvement.

18. To distribute among other members of the Organization in kind or otherwise any property of the Organization and particular any shares, debenture or securities of other Organization belonging to this Organization or for which this Organization, corporation, municipal or local or other body or authority.

19. To give guarantee and/or become sureties for any person or persons, firm or firms, corporation or corporation whether incorporated for moneys raised and or corporation or for any persons firm corporation for any purpose whatsoever for the performance, discharge and fulfillment for such obligations and guarantees.

20. To procure the Organization to be registered or recognized in other territory, colony, place and in any foreign country or place.

21. To purchase or otherwise acquire real and personal estates for the objects and purposes of the Organization and to sell, lease, exchange, mortgage proprietors’ deal with all or any of the real and personal property of the Organization.

22. To do all other things as may be deem incidental or conducive to the attainment of the above objects any of them. And it is hereby declared that the word Organization in the clause shall be deemed to include any partnership or other body or persons whether incorporated or not incorporated and whether domiciled in Uganda or elsewhere, and the intension clause shall, except where otherwise expressly stated in such paragraph, be independent of a main object and shall be in no way limited by any other paragraph.

23. The income and property whosoever derived shall be applied solely towards the promotion of the objectives of the Organization as set forth in the memorandum of association and also portion therefore may be paid.

GUIDING PRINCIPLES

Human rights based approach to programming

Integration and inclusion.

Participation and empowerment.

Gender Equity.

Targeting most vulnerable children, youth and households affected by Colostomy / Stoma problems

Partnerships.

STRATEGIC APPROACH:

1. Raise awareness at all levels through sensitization and social mobilization to create a Supportive Environment for children and families affected by Colostomy/stoma are in need of catheater bags.

2. Strengthen the Capacity of Families to protect and care for of stoma and colostomy by providing colostomy bags, economic, psychosocial and other support.

3. Mobilize and support Cultural and Community-based responses, through constant dialogue with clan and community leaders

4. Ensure that Duty Bearers are responsible to protect victims through improved policies, legislation and proactive activities.

5. Ensure access for OVC, youth and women to Essenti a l Se r vices, including education, health care, birth registration, economic and livelihood support, life skills training and others.

6. To ensure Gender sensitivity in Program implementation to promote equality between men and women, children and adults.

WHAT WE DO:

We work with, support those who are suffering from Colon Cancer

Because of their conditions, they were subjected to A Colostomy or bowl diversion.

As shown in the pictures, “A colostomy is a surgical procedure that brings one end of the large intestine out through the abdominal wall. During this procedure, one end of the colon is diverted through an incision in the abdominal wall to create a stoma. A stoma is the opening in the skin where a bag for collecting feces is attached. People with temporary or long- term colostomies have pouches attached to their sides where feces collect and can be easily disposed of.

Colostomies aren’t always permanent, especially in children

with birth defects.

A colostomy can be the result of one of several procedures to correct problems with the lower digestive tract. Other “ostomies” include ileostomy and urostomy. An ileostomy is a diversion of the bottom of the small intestine. A urostomy is a diversion of the tubes that carry urine out of the bladder. A colostomy may also be referred to as bowel diversion therapy”.

According to the Hopkins medicine health news, “During a colostomy, surgeons divert one end of the large intestine into a visible opening known as a stoma on the patient’s abdomen. Small pouch or colostomy bag is then placed over the stoma to collect waste products that wouldnormally pass through a person’s rectum and anus”, (www.hopkinsmedine.org>healthnews)

The situation explained above is not only inconveniencing but it is also very expensive as the bag has to be changed from time to time. Failure to do so would mean that the person’s body odor changes. For an ordinary person with NO stable income, feeding and meeting other basic needs alone is very difficult; this is not only a nightmare but more of a death sentence. Therefore, these people lives in fear and shame of their conditions. Those who had employments can no longer keep the job, students and school going pupils cannot continue with school with fear of being stigmatized by their colleagues.

Furthermore, the community of people living Uganda lacks sufficient knowledge about the problem.

In Uganda, There is no government health program targeting to sensitize the people about these conditions. The people suffering from these conditions suffer and or die in silence. If they incidentally get colostomy and a stoma created, they have to live their entire lives in isolation, fear and shame because of the poor hygienic conditions they are in.

This happens because none of them can afford to buy colostomy bags that are always very rare to get. The pictures in this document explain the dire conditions these people are living. Because they are still alive, they must try and solve the problem, e.g. using polythene bags commonly known as “Kaveras” and clothes instead of colostomy bags. These materials are not only unhealthy, but can only help for some few minutes and must be changed

OUR ACHIEVEMENTS:

Since its inception in 2015, colostomy catheater bag foundation has been able to mobilize support and are currently working with and supporting fifty seven (57) victims. Below are few pictures of our beneficiaries;

Please Note: we respect the wishes of our clients and only displays pictures with which the owners consented for us to do so, you can view all pictures in our office located at the address at the end of this presentation.

The children’s condition can still correct through and operation, the

only challenge is finance. Some these families can hardly afford one

meal a day not to talk of buying a colostomy bag which cost 172,

500 shillings per box per month and operation that cost between

five to ten million shillings

Unlike in children surgical procedure to correct this condition through and operation in adults is more complicated and risky and can cost more. As you already know, some these families can hardly afford one meal a day not to talk of buying a colostomy bag which cost

172, 500 shillings per box per month and operation that cost between five to ten million shillings. They can’t afford it. Their only hope is to have access to colostomy bags available

to them at all times so that their daily activities are not disrupted because their body suddenly starts smelling bad.

OUR CHALLENGES

Due to our limited resources, we are unable to provide enough and timely support to these

patients and families and some are without colostomy bags, as explained above, they

cannot continue with their regular activities hence addition to their sufferings. This is

because of the overwhelming number and our dependency on the support provided by well-

wishers.

In the communities, most people are not aware of these conditions, including some health

that we expect them to know. As a result the people facing these challenges are often

stigmatized, hated and called all sorts of names, This only frustrate them but discouraged

those who have same condition from out to seek for help. This is the reason why we need

more community sanitations. The challenge here is we don’t the resources.

There are rising needs towards the support of colostomy catheater patients due to high rate

of poverty and increased vulnerability of Communities in this post conflict region of

Northern Uganda. Many parents are unable to provide proper support for their health and

their family due to extreme poverty.

Most community members have little knowledge about this sickness especially in children

and rights and responsibilities of children and women, so there are not enough messages

reaching them.

Community members still find it hard to report some cases because of cultural beliefs and

norms, and also some of the survivors still find it hard to report come out in the open for

fear of community reactions e.g. Stigma and other things.

COLOSTOMY CATHEATER BAG FOUNDATION

Appeal!!!We are appealing to any well-wisher, any one whose heart is touched to help these children live a normal life again, please

contact us on the following details;

P.O. Box 85 Lira-Uganda,Tel: +256 782849475 / +256 756730399 E-mails:

ccbfoundation16@gmail.comOR

Come to Our Office located in;Bar-onger Village, Alito Camp Parish, Ojwina Division, Lira

Municipality, Lira District, Northern Uganda