Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.
-
Upload
luke-smith -
Category
Documents
-
view
214 -
download
1
Transcript of Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.
![Page 1: Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.](https://reader030.fdocuments.in/reader030/viewer/2022032707/56649e045503460f94af0b2a/html5/thumbnails/1.jpg)
Virtual Townhall Meeting:
Reducing the Risk of Spinal Cord Injuries for People with SCI
![Page 2: Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.](https://reader030.fdocuments.in/reader030/viewer/2022032707/56649e045503460f94af0b2a/html5/thumbnails/2.jpg)
Rehabilitation Research and Training Center: Secondary Conditions in the Rehabilitation of Individuals with Spinal Cord Injuries
Research Sites:
National Rehabilitation Hospital, Washington DC.
University of Miami School of Medicine
Collaborators: Independent Living Research Utilization Program
The National Spinal Cord Injury Association
Spinal Cord Injury Network
![Page 3: Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.](https://reader030.fdocuments.in/reader030/viewer/2022032707/56649e045503460f94af0b2a/html5/thumbnails/3.jpg)
RRTC TeamRRTC Team
• Composed of national leaders in SCI medicine, research & advocacy– Consumers– SCI clinicians– SCI researchers– SCI organizations– Independent living
advocates
![Page 4: Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.](https://reader030.fdocuments.in/reader030/viewer/2022032707/56649e045503460f94af0b2a/html5/thumbnails/4.jpg)
RRTC Mission1. Expand our understanding and prevention of
secondary conditions after SCI, including– Cardiovascular disease– Osteoporosis– Depression– Quality of life– Pain– Decubitus ulcers– Respiratory complications
2. Participation from consumers 3. Dedicated to education
![Page 5: Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.](https://reader030.fdocuments.in/reader030/viewer/2022032707/56649e045503460f94af0b2a/html5/thumbnails/5.jpg)
Secondary Conditions After SCI
• People with SCI are surviving longer
• Chronic diseases are now being seen in people with SCI– Heart disease– Cancer
![Page 6: Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.](https://reader030.fdocuments.in/reader030/viewer/2022032707/56649e045503460f94af0b2a/html5/thumbnails/6.jpg)
“Accelerated Aging”
• In people with SCI, this can be the occurrence of disease earlier than expected compared with able-bodied people
• In some cases, it can also mean that the disease occurs more rapidly or is more aggressive
![Page 7: Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.](https://reader030.fdocuments.in/reader030/viewer/2022032707/56649e045503460f94af0b2a/html5/thumbnails/7.jpg)
Exercise
• Known to decrease the risk for many diseases, including diabetes, stroke, heart disease, and some cancers
• People with SCI exercise less than others
![Page 8: Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.](https://reader030.fdocuments.in/reader030/viewer/2022032707/56649e045503460f94af0b2a/html5/thumbnails/8.jpg)
Cardiovascular Disease and SCI
• Diabetes occurs more often
• Heart disease occurs with the same or greater frequency in people with SCI
• Heart disease strikes people younger
• Heart disease is more advanced at diagnosis
![Page 9: Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.](https://reader030.fdocuments.in/reader030/viewer/2022032707/56649e045503460f94af0b2a/html5/thumbnails/9.jpg)
Cholesterol
• Total cholesterol
• HDL = Healthy cholesterol = High
• LDL = Lousy cholesterol = Low
• Low HDL and high LDL contribute to heart disease risk
![Page 10: Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.](https://reader030.fdocuments.in/reader030/viewer/2022032707/56649e045503460f94af0b2a/html5/thumbnails/10.jpg)
Cholesterol and SCI
• HDL tends to be lower– Can increase HDL with exercise
• LDL tends to be higher– Can decrease LDL by eating less fat and with
medications
![Page 11: Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.](https://reader030.fdocuments.in/reader030/viewer/2022032707/56649e045503460f94af0b2a/html5/thumbnails/11.jpg)
What We Are Doing…
• We will determine typical levels of the different types of cholesterol according to type of SCI
• Then, we can give recommendations about the need to change one’s diet, exercise level, or even start medications
![Page 12: Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.](https://reader030.fdocuments.in/reader030/viewer/2022032707/56649e045503460f94af0b2a/html5/thumbnails/12.jpg)
Osteoporosis
• Decreased bone mass
• Typically occurs much more often in women than in men
• In women, it usually occurs after menopause
• Significant osteoporosis in men is rare
• Danger = fractures
![Page 13: Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.](https://reader030.fdocuments.in/reader030/viewer/2022032707/56649e045503460f94af0b2a/html5/thumbnails/13.jpg)
Osteoporosis and SCI
• Men AND women affected
• Loss of bone mass starts within DAYS of SCI (hence “accelerated aging”)
• Loss of bone mass continues for months-years
• Loss of bone mass is much greater
• Loss of bone mass occurs below the SCI
![Page 14: Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.](https://reader030.fdocuments.in/reader030/viewer/2022032707/56649e045503460f94af0b2a/html5/thumbnails/14.jpg)
Osteoporosis and Broken Bones
• Without SCI– Lower spine
– Wrist
– Hip
• With SCI– Around the knee
– Lower leg
![Page 15: Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.](https://reader030.fdocuments.in/reader030/viewer/2022032707/56649e045503460f94af0b2a/html5/thumbnails/15.jpg)
How Do I Prevent Osteoporosis?
• Exercise– Type of exercise dependent on type of SCI– Functional electrical stimulation– Standing– Walking
• Medications– Bisphosphonates, PTH, Statins showing
promise
![Page 16: Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.](https://reader030.fdocuments.in/reader030/viewer/2022032707/56649e045503460f94af0b2a/html5/thumbnails/16.jpg)
Other Questions
• There are numerous secondary conditions that occur after SCI– Breathing problems– Depression– Bladder infection– Skin breakdown
![Page 17: Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.](https://reader030.fdocuments.in/reader030/viewer/2022032707/56649e045503460f94af0b2a/html5/thumbnails/17.jpg)
Other Questions
• Will regular exercise actually prevent these secondary conditions?
• What type of exercise is best for me?
• Where is the best place to exercise, at home or at the gym?
![Page 18: Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.](https://reader030.fdocuments.in/reader030/viewer/2022032707/56649e045503460f94af0b2a/html5/thumbnails/18.jpg)
Some Answers….Soon
• We will try to determine the best place for and best type of exercise
• We will determine whether regular exercise actually does decrease secondary conditions after SCI
![Page 19: Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.](https://reader030.fdocuments.in/reader030/viewer/2022032707/56649e045503460f94af0b2a/html5/thumbnails/19.jpg)
Training activities
• Prevent secondary conditions in people with newly acquired spinal cord injury as they get discharged from the rehabilitation hospital
• Educate future healthcare professionals about secondary conditions and the benefits of exercise from a consumer perspective
![Page 20: Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.](https://reader030.fdocuments.in/reader030/viewer/2022032707/56649e045503460f94af0b2a/html5/thumbnails/20.jpg)
Prevention of secondary conditions
• NRH and SCI Network are developing a peer mentor program to monitor and prevent secondary conditions among people with new SCI
• 10 peer mentors will meet weekly by phone and in person with 150 mentees
• Peer mentors will be supervised weekly by hospital staff and SCI Life Consultants
![Page 21: Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.](https://reader030.fdocuments.in/reader030/viewer/2022032707/56649e045503460f94af0b2a/html5/thumbnails/21.jpg)
What peer mentors do...
• Provide information about secondary conditions and prevention
• Demonstrate prevention techniques• Discuss and answer questions around prevention
and exercise• Support community integration• Initiate referrals to clinical providers when needed• Update their information and training on an ongoing
basis
![Page 22: Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.](https://reader030.fdocuments.in/reader030/viewer/2022032707/56649e045503460f94af0b2a/html5/thumbnails/22.jpg)
The outcomes we are tracking
• Reduction in the occurrence of pressure ulcers, urinary tract infections, pain, neurocognitive problems, general deconditioning
• Fewer hospitalizations for avoidable complications
• Better self-management and control over SCI
![Page 23: Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.](https://reader030.fdocuments.in/reader030/viewer/2022032707/56649e045503460f94af0b2a/html5/thumbnails/23.jpg)
Consumer Professional Partnership Program (CPPP)
• Consumer-directed and delivered education program about prevention and exercise for physical therapy and medical students
• Individuals with SCI will co-teach program at Washington DC area universities
• 1000 future health professionals will be trained in 3 hour sessions
• Integration in existing curricula and continuing education programs
![Page 24: Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.](https://reader030.fdocuments.in/reader030/viewer/2022032707/56649e045503460f94af0b2a/html5/thumbnails/24.jpg)
CPPP continued...• Content will focus on “what is important from a
consumer perspective”• Examples include “Barriers to obtain medical
care”; “experiences with medical complications”; “patient-provider communication”; “consumer-defined strategies to prevent secondary conditions”; “benefits of exercise”
• Help us develop this program at the second Virtual Townhall Meeting in May
![Page 25: Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.](https://reader030.fdocuments.in/reader030/viewer/2022032707/56649e045503460f94af0b2a/html5/thumbnails/25.jpg)
The Virtual Resource Network on Exercise and Prevention
(VRNEP)• RRTC partner ILRU is developing the VRNEP
consisting of• A fully accessible Internet site• A Virtual Resource Library (publications and links
about exercise and prevention)• A video library• Interactive meetings with SCI Life Consultants,
Consumers, Advocates and Clinical Experts• Check back, we need your input!
![Page 26: Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.](https://reader030.fdocuments.in/reader030/viewer/2022032707/56649e045503460f94af0b2a/html5/thumbnails/26.jpg)
Virtual Townhall Meetings (VTHM)
• Every quarter over the next 5 years
• We ask for your support and input on RRTC topics
• Become a virtual RRTC member and participant
![Page 27: Virtual Townhall Meeting: Reducing the Risk of Spinal Cord Injuries for People with SCI.](https://reader030.fdocuments.in/reader030/viewer/2022032707/56649e045503460f94af0b2a/html5/thumbnails/27.jpg)
Today’s questions
What are your personal experiences with secondary conditions related to spinal cord injury?
As a person with SCI what are your personal experiences with exercise and physical activity?
What would you like the RRTC on Secondary Conditions and Exercise accomplish?