CRP helps support Rohingya Refugees

Valerie Taylor TrustSupporting the work of Valerie Taylor in Bangladesh

Spring2018

Chairman’s Notes

Since August 2017, nearly 700,000 Rohingyarefugees have fled Myanmar for camps inBangladesh. A.K. Khan-CRP Chittagong isworking in the Rohingya refugee camps incollaboration with several other NGOs. A recentsurvey of nearly 90,000 refugees completed byCRP identified 320 people who requiredrehabilitation services or assisted devices suchas wheelchairs, prosthetics or walking aids. Asthis was just a small sample, the number ofpeople requiring these services is likely to bemuch greater. CRP is working with other NGO’sin the area, particularly Handicap International,to meet these needs as best as possible. Theareas where the Rohingya refugee camps arebased are very hilly and CRP has developed aone-wheeler wheelchair that is able to handlethe hilly terrain much better than a standardchair. They are working with HandicapInternational to distribute this.

The refugee crisis in the area is unprecedentedand has put immense strain on Bangladesh’sresources across the board. As well as the Trialling the new wheelchair design

immediate needs for food and shelter and thephysical disabilities identified, the trauma ofseeing their villages burned and relativesrounded up for execution will surely have leftmany of the refugees with long-term mentalhealth issues. In the face of such immensechallenges, clearly CRP can’t do everything,but for as long as the need remains, CRP willwork hard to help support those who need theirinput. Meanwhile it is up to us to lobby the UKGovernment to provide a fair share of theinternational assistance needed to helpBangladesh provide for the refugees.

The work of CRP continues to flourish with the

most recent development being a capability to

treat those with Mental Health difficulties. Here

in the UK fundraising continues and over £1.7M

has been sent to CRP since 2008. This is a

remarkable effort – thanks to all those who have

contributed in so many ways. Please do read

the articles about Data Protection Regulations

and Safeguarding Policies and how VTT is

complying with the respective requirements.

Both are important areas of our business.

Early this year Nick Lack, our Secretary for

several years, died after a long illness. He had

worked with the British Council and said that his

time in Bangladesh was his favourite posting. He

will be greatly missed.

VTT Trustees are all volunteers and balance their

business and personal lives with their VTT work.

Stuart Jeffreys has now served as Treasurer for 3

years and wishes to stand down to make time for

his other commitments. We urgently need a new

Treasurer – are you that person or do you know

someone who would be able to carry out this

role? If so please do get in touch with a Trustee

or our Administrator.

On a similar note I will be standing down this year

after 10 years as Chairman. It has been a very

fulfilling time. My thanks and appreciation go to all

of our Members and Supporters who have done

so much to help give those in need a better life.

Bertie Woolnough CBE Chairman, Valerie Taylor Trust

Occupational Therapy (OT) as a profession hasits foundations in mental health and CRPtrained OTs are a valuable resource for MentalHealth patients. Unfortunately, in Bangladeshthere are limited opportunities for OTs to workin Mental Health and posts that do exist, forexample at the National Institute for MentalHealth and the Pabna Psychiatric Hospital, areoften not occupied by OT’s. However in thepast 4 years this has been slowly changing.

The Kadoorie Charitable Foundation hasagreed to fund a day centre for people withmental health needs for the next 3 years. Thecentre, which opened on the 1st March 2018will be based at CRP Gonokbari and staffed byOTs from CRP.

The day centre will be the first of its kind inBangladesh and will focus on users feeling lessstigmatized and more empowered with a focus

Mental Health Day Centre Opens

Karen and other staff at the launching workshop

on community integration. The day centre willgive service users a safe platform to developand learn daily living skills that they may havelost due to illness or a stay in hospital. Thiswould then in turn enable a smoother transitioninto community living and engagement inmeaningful life.

The bus has been purchased which willtransport the service users from Dhaka andback each day. It is hoped that by basing theday centre at CRP Gonokbari, the location willalso provide opportunities for service users toexplore different types of meaningfuloccupation through vocational training. Therewill also be an emphasis on carer/familysupport and education, empowering them tobecome advocates for change in mental healthwithin their own communities, and thus tacklingthe stigma surrounding mental health.

At last year’s Annual Supporters’ meeting in May Valerie spoke amongst other things aboutMental Health provision in Bangladesh. Mental health problems are now one of the main causesof the overall disease burden worldwide, and with current studies showing that poverty andnatural disasters increase the prevalence, it is becoming a growing concern in Bangladesh.

administering standing orders). VTT uses thedata to monitor membership and donors andpayments, to correspond and circulateinformation and newsletters, and to advise ofmeetings and events. Personal Data will not bepassed to any other organisation orcommercial undertaking without your consent,except for HMRC in relation to claims madeunder the Gift Aid Scheme or, as requested, toCRP, as the recipient organisation of VTTfunds, for the circulation of information andcalendars from them. On occasions, data maybe required to be released by law.

By providing your Personal Data to VTT, weacknowledge your agreement to use the itemsof data as indicated to monitor yourmembership, donations, to correspond withyou and circulate information and newsletters,and to advise you of meetings and events.Donors can update their contact preferences orwithdraw consent for any of the uses specified,at any time by contacting, in writing, theAdministrator, Valerie Taylor Trust, 4, WilberforceRoad, Coxheath, Maidstone, Kent, ME17 4HAor email: admin@valerietaylortrust.org.

Your request will be recorded. You may alsoobtain a copy of the information we hold andhow it is used by applying in writing to the aboveaddress. The full Privacy Statement may be seenon our website – www.valerietaylortrust.organd if required, a paper copy of the PrivacyPolicy may be obtained from The Administratorat the above address.

Safeguarding – VulnerableChildren and AdultsThe Charity Commission has stated that VTT isrequired to carry out ‘due diligence’ on theSafeguarding Policies in place at CRP. We donot need to have our own Safeguarding Policyas VTT is not in direct contact with staff andpatients at CRP. It has been confirmed thatCRP has a TRP agreed policy in place forchildren but not for adults. It has been agreedwith CRP that their current policy will be nowbe revised to include adults at risk. VTT will berequired to report annually to the CharityCommission that this due diligence has beencarried out. This year’s report will state thecurrent position at CRP and note that work is inprogress to expand the policy to include adults.

Summary of VTT Privacy Policy –General Data ProtectionRegulations 2018 (GDPR)On 25th May, 2018, new data protectionregulations governing the use of Personal Datawill be introduced and will require charities tomeet the necessary requirements. VTTTrustees are jointly responsible for theadministration and governance of any PersonalData held by VTT. Personal Data is anyinformation that will enable the individual to beidentified, eg. Names and addresses, emailaddresses, telephone numbers, and bankaccount details (these are only held for

Important Information from VTT’s Administrator:

Following discharge from the day centreservice users will be followed up by the OTs and if needed, a Community Based Rehabilitation Team. This will allow a phased discharge with a focus on preventing readmission.

Karen Heaslip, a volunteer OccupationalTherapist from Ireland arrived on 28th February,2018 and will spend 3 weeks helping in the initial work, along with the other OTs.

A successful launching workshop was held onthe 15th March with encouraging feedbackfrom all guests.

Looking at all this from the UK, it’s easy to bediscouraged by the sheer scale of the problemfacing Bangladesh. However it is felt this daycentre is the best way to start to tackle theenormous task of rehabilitating people sufferingwith mental health difficulties in the country.CRP is very excited about this new venture.

Kat relaxing with Shamoly, the housekeeper

CRP’s Vocational Training Unit (VTI) plays an essential role in supporting people withdisabilities find or return to employment. Katherine Murphy reports on how her researchproject demonstrated its benefits can be even further reaching.

Vocational Training Institute offersmore than just employment

I had the opportunity to spend eight weeks atCRP doing research for my dissertation in thespring of 2017. Through the University ofEdinburgh’s partnership with CRP I was giventhe chance to conduct my research inBangladesh, evaluating the employmentoutcomes of CRP’s VTI. I worked with theResearch and Evaluation Department to designand carry out my project. Most of my time wasspent conducting interviews with VTI staffmembers and individuals who had completedone of the training courses in order to evaluatethe impact of the VTI on the lives of participants.

People with disabilities tend to suffer higherunemployment rates than their peers withoutdisabilities. CRP’s VTI meets a critical need in Bangladesh for vocational training coursesspecifically designed for people with disabilities.Vocational training promotes skill developmentand improves employability by giving peoplewith disabilities the opportunity to relearn skillsor learn new skills that will allow them tobecome employed. While there are somevocational training centres in Bangladesh, theyare not tailored to meet the needs of peoplewith disabilities.

The VTI was established in 1999 and currentlyoffers vocational training courses at five CRP

locations. The courses offered through the VTIare free of cost and prepare trainees to work inone of six trades: IT, electronics repair, dressmaking and tailoring, shop management,linking machine operation and sewing machineoperation. Participants can also learn beekeeping and/or mushroom cultivation tosupplement their income.

As I began conducting interviews, it quicklybecame clear that the VTI has had a hugeimpact on both VTI staff members and courseparticipants alike. All of the staff members Iinterviewed spoke passionately about theimportance of vocational training and thepositive effect that the training courses had onthe lives of participants. When speaking withindividuals who had completed a course, I heardmany stories about the impact that the courseand employment had on their lives. In addition tothe financial benefits, some participantsdescribed feeling more confident in their abilities,others expressed that they received morerespect from their peers in their communities.

Many of the participants used what theylearned in training to become self-employed,opening up electronics repair shops or snackshops. Others, who had been trained in sewing

A trainee practices on a linking machine

or linking, found jobs at factories. Of course,not all participants succeeded in findingemployment after completing a course.However, even the individuals I interviewed thatwere unemployed spoke very highly of CRPand their experiences at the VTI.

When I wasn’t working on my research, I hadthe chance to get to know patients and CRP

staff in other departments by participating inthe daily activities during my free time. Whetherit was being invited to iftar during Ramadan,practicing my Bangla or playing cards in themain hall, there was always something to takepart in. The CRP community was incrediblywelcoming and I am extremely grateful to havehad the opportunity to volunteer there.

Theatre Improvement Project moving forwardRoger and Jan Varney are continuing theirfocus on the improvement and updating ofthe Operating Theatres at CRP Savar.

They have recently returned from NATO inBrussels where they received a cheque for€8,878.80 which has been used to pay for thelaying of new specialist flooring (PolyFlor) in the2 Operating Theatres and the MRI room.Through the generosity of CRP this flooring hasalso been laid in the main corridor bringing themain Operating Theatre area up to theacceptable 21st century requirements. This willprovide the foundation for the provision ofupdated equipment. The Rotary Clubs of StAustell Bay and Gulshan in Dhaka areprogressing well with raising the $85,000needed for this and it is anticipated the work willbe completed this year. This is only the firststage in equipping the Theatres. A C-arm,

A tribute to a colleague and a friendIt is with great sadness that we inform you of the death of one of our former Trustees Nick Lack.Nick died earlier this year after a long illness and his funeral was held in the parish church ofKingston Upon Thames, Surrey on 13th February.

Nick was born in 1948, married to Nora, and served in several countries with the British Council.He spent 5 years in Bangladesh – and said that that was the country he enjoyed the most.

Nick became Secretary of VTT in 2013 and stood down at the end of 2016. He was passionateabout the work of CRP and was thorough and dedicated in his Trustee role.

Michael Woodley, a previous VTT Trustee and long-time friend of Nick, together with BertieWoolnough and Ben Clackson attended the funeral.

Thank you Nick for all that you did for VTT.

Roger and Jan with the cheque from NATO

Anaesthetic Machine and replacement PositiveAir Control system needs to be provided at thecost of $300,000 USD.

Masters Program strengthensintra-professional working

International Hostel opening ceremony – Valerie Taylorwith Mr. Motiwal, CEO of the SAARC development fund

and Dorine van Ravensberg (far right)

The Bangladesh Health Professions Instituteis highly respected in South East Asia andhas become a popular place to study,particularly for those looking to improve theirrehabilitation knowledge.

The BHPI offers an inter-professional MastersProgramme in Rehabilitation Science (MRS). Thisyear 18 international students from countriessuch as Nepal, Sri Lanka and Afghanistan cameto the BHPI to study alongside their Bangladeshicounterparts. Additionally, this course allowsstudents from different health care professions tostudy together. In 2017 work was completed on an InternationalHostel, on the grounds of CRP Savar. This hostelprovides international students with a modernplace to live and study, further adding to theappeal of CRP’s Masters programmes. Both the MRS and the International Hostel areSouth Asia Association for Regional Cooperation(SAARC) funded.Dorine van Ravensberg PhD is a HumanMovement Scientist, living in the Netherlands.She tells of her role on the Masters Program andthe interesting research the course is producing. About 2 months a year I teach methodology andadvise students and staff about their patient-related thesis research. Very interestingly, I alsolearn a lot myself, with respect to the challengesand differences in way of life and the physicaland social environment of disabled persons inthose countries. I love to be there, in thatwonderful positive and cheerful society at CRP,

notwithstanding all pain, disability and societalchallenges that people have to cope with.The MRS staff have already started importantresearch and development projects, based onresults of MRS students’ theses. For example• Research into the impact of MRS studies onCRP treatment programs and outcomes.

• Development of an evidence based exerciseand educational program to treatunnecessary female urine incontinence.

• Development of a video to emphasizeimportance of therapy adherence in thePonseti clubfoot program

Personally, I like the latter development projectmost. In the video a man will be followed in hishome, while doing his work as a day-labourer. Theman has one untreated clubfoot and is the fatherof a 2 months old girl with bilateral clubfeet. The girlis enrolled in the long-lasting treatment processthat can correct the deformity. That process will befollowed with explanations and advice from healthcare professionals. This video can be used toimprove compliance with the program thereforeimproving outcomes for children with thecondition. Additionally the video recordings will bemade by a woman with disabilities. I like that it issuch an inclusive project. Full inclusion of disabledpersons in all aspects of the society: that is whatValerie so strongly stands for.So, if you think that you also can make acontribution to the Master program or to otheraspects of life and rehabilitation at CRP: pleasemake contact with CRP. You will not regret it, Iam sure.

MRS students attending a conference

Trying out the new harness

Improving English Skills at CRPVolunteer Adam Page tells how a chat and a board game canbe the best way to help at CRP.

A physiotherapy gait harness is a common assistive devise, used to allowsafe and early walking practice in a variety of patient groups fromtoddlers with cerebral palsy to adults following strokes or head injuries. Ajoint venture between the Physiotherapy and Special SeatingDepartments has resulted in the development of a gait harness to beused at CRP. This harness is an affordable device manufactured byCRP’s workshop using local materials and resources.The harness system enables physiotherapists to challenge theirpatients while walking and also keeps them safe. From a teachingperspective, the harness gives clinical instructors another layer ofconfidence and allows novice therapists to safely explore treatmentoptions. With it, a patient can move anywhere within the 20-square-foot boundary of the structure. Consequently, the device will reduceeffort, both by the therapist and patient, and, of course, buildconfidence towards walking independently. This harness is another toolthat can be used to improve outcomes for patients receivingrehabilitation at CRP.

I got to know of CRP at thevery beginning, when Valerie’sdream was becoming a reality,the fountain at the entrancewas designed and built by mymother. My wife had just diedand I needed an escape, somum suggested CRP. So inearly 2017, from writing anemail, filling out the volunteerform, getting a visa and arrivingto Bangladesh was a pain freesix week process.

Gait harness improves therapy for a variety of patients

I had no preconceived ideas ornotions or plans, only that Iwas going there to do “Englishconversation”. A few yearspreviously I had spent tenmonths in China, so I knew if Icould cope there, Bangladeshshouldn’t be a problem, luckilyI was right in that aspect.

I taught English classes to avariety of students, often usingword searches and puzzles toencourage participation. Oftenthe students were very shy inclass, making it hard for themto learn from each other.

I soon discovered thatalthough most of the staffknew English, there acomplete lack of practice, andas they had been taught byBangladesh natives, to beblunt some of theirpronunciations were “definitelyoff”, (Adam being diplomatic)so when I wasn’t giving Englishclasses in the school, I’d becirculating around CRPchatting. I can assure you it’s aEverybody wins

big place with lots of nooksand crannies, with staffeverywhere always having timefor a quick chat to practicetheir English about what theywere up to in their jobs.In my four and a half monthsthere only once was there anoccasion when I heard a mancomplaining about “his lot”otherwise CRP thrives withpositivity and good humour,everybody supporting eachother but when needed,ribbing each other for missingthe basketball or volleyballpractice… again.I don’t know what the futureholds for CRP but I do knowfrom being there, how vital thesupport and fund raising is.Also it’s not just about money,I took with me myBackgammon set and nearenough every night I was in thehall introducing patients andstaff to the game, it was agreat success. If you havechess sets, dominos or evenbackgammon which you’vegrown out of, CRP is oneplace I know all those gameswould be greatly appreciated,besides a cheque.

Volunteer physiotherapist Rieke Hayes reports:

I don’t think you can trulyappreciate the importance ofCRP’s existence inBangladesh without seeingthe public healthcare at work.Rehabilitation for all intentsand purposes does not existin Bangladesh, never mind re-integration into society.

My main role while at CRP wasto lecture on the Masters ofPhysiotherapy programme atthe Bangladesh HealthProfessions Institute (BHPI),teaching on the EvidenceBased Practice and disability,community-based rehabilitationand disaster managementmodules. There was a certainirony to an Irish personlecturing Bangladeshistudents on cyclones, floods,and earthquakes. Moststudents were CRPphysiotherapists and thecourse was aimed atbroadening their knowledge

Having fun with a patient

CRP based research could provevital to improving healthcare

and awareness of issuessurrounding disability globallyand promoting the use ofevidence based practice atwork by questioning theircurrent practice and thestatus quo. This is vital forensuring that the treatmentprovided to patients is timely,effective and efficient.

I also assisted with researchwhile working at the BHPI.

A significant obstacle topushing for healthcare reformis the absence of data; todemonstrate that there areissues, highlight the scope ofthese, show how investmentinto prevention is financiallyworthwhile to the government,and why the provision ofrehabilitation is essential andshould be accessible to all.What are the main causes forspinal cord injury/stroke inBangladesh? Were theypreventable? How manyweeks or months had passedand how many facilities did

these people even see beforeattending the onlyrehabilitation facility inBangladesh? How were theytransported to their firstmedical establishment? Didtheir doctor even adviserehabilitation or was it word ofmouth, as is often the case,that brought them to CRP?The answers and truth behindthese are often eye-openingand shocking but theyhighlight that the issue is notonly the concern andresponsibility of CRP, but forthe nation. At BHPI, therelentless enthusiastic FirozMamin, coordinator for theMSc Physiotherapyprogramme, is leading thisresearch, collecting admissiondata, demographics, patient’sjourneys, and attitudes tohealth and safety at work. Thisdata could one day be thecatalyst that revolutionises thecountry’s healthcare, fromacute care response to rehaband re-integration to society.

I came to CRP in May 2017not quite sure what to expectbut knowing that I was in goodhands. It is well worthPhysiotherapy exercises

essential as there arecurrently no teachersof this profession inBangladesh. Thecourse has beenevaluated by theInternational Societyof Prosthetics andOrthotics (ISPO) andwill hopefully receiveinternational standardrecognition throughthis process.

Of course, the long-term plan is build and

develop the skills of these new graduates, sothey can eventually return and teach others.

At the end of January2018, ten studentsreceived a Diploma inProsthetics andOrthotics from theBangladesh HealthProfessions Institute.

This three-yearcourse, the first of itskind in Bangladesh, isfunded by theInternational Societyof the Red Cross andalso supported byPrimark who haverecently agreed to cover the cost of 3 foreignconsultants for the next 3 years. This is

Wheelchair lift increasesindependence for bus users In May 2017 CRP celebrated owning its first bus with awheelchair lift, allowing wheelchair users to enter andexit the bus independently. The lift was donated by theInternational Committee of the Red Cross in 2016 butdue to the rarity of this technology in Bangladesh it tooka number of months to find a company who was able toinstall the lift. As well as increasing wheelchair users’independence, the lift will also save time and decreasethe workload of carers and staff.

The wheelchair lift in use

P+O graduates with the ISPO evaluators

mentioning to any prospectivevolunteers – CRP not onlyappreciates its volunteers, ittakes good care of them.Everything, from my collectionat the airport by a welcomesmile from Salim, a CRPdriver, the daily mealsprepared by the wonderfulShamoly, and the local tripsand cultural events made mefeel folded into the arms of theCRP family.

When I left in December, I left adifferent person. We are soutterly privileged to live in acountry with universal healthcoverage, with the NHS. Weshould never take that forgranted. I don’t think thepeople of Bangladesh arelucky to have the CRP, I thinkit’s a great shame that a non-governmental organisation likeCRP needed to be formed toprovide basic healthcare. But aBangladesh without the CRPwould be a sorry state indeed.

10 students graduate from new P+O Diploma course

Victory Day Celebrations in GlasgowThe Bangladesh Association Glasgow (BAG) in recent years have been celebrating the Victory Dayof the Bangladesh Liberation War. This year, on 19th December 2017 the BAG held the event inthe Scottish Parliament in Edinburgh at the invitation of Ivan McKee MSP who did a 2 year VSOattachment in Bangladesh in the 1980s.

The event once again highlighted the struggle for independence from Pakistan and the eventsleading to victory. Some TV footage from that time was presented. The evening also featured a shortfilm made by BAG of the contribution of the Bangladesh Community to the culture and occupationalinvolvement of Scotland. The evening concluded with a lovely dance routine by the children.

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CRP is working to establish centres across Bangladesh to ensure its vitalservices are available to all those in need and to reduce the financial andsocial burden of travelling long distances or living away from home forextended periods. CRP has recently received land donations to establishpermanent centres in Rangpur, Khulna and, after much work andcampaigning, Moulvibazar. This completes the current expansionprogramme with the focus now turning to developing each of the centres.

CRP BAU Branch Mymensingh and CRP-Pabna Diabetic ShamityCentre in Pabna both opened last year providing out-patient and Community Based Rehabilitation.The two centres have already provided rehabilitation to nearly 2000 people.

Iskandar Shitara CRP Sylhet opened in May 2017, currently in a rental building but with plans to moveto a permanent location. The centre employs 12 staff. Volunteer Lamisha Ahmed reports on herexperience working in the newly opened centre:

In summer of 2017 I had the opportunity of visiting and working for CRP-Sylhet. I first heard of the organisation through school, as a few of myseniors had volunteered at the Savar main centre. Being a British BengaliI thought it an amazing organisation and wondered if I could get involved.I came to know there was a centre in Sylhet, near where I usually stay withmy parents. I got in touch with the organisation and explained that I wouldlike to volunteer. Mr. Kamrul the centre manager was kind enough toaccept me as a member and gave me the opportunity to get involved. Ialso talked to a few clients about their conditions, the therapy they werereceiving and how CRP was affecting their lives. The clients didn’t shy

away from expressing their gratitude, especially due to the fact that there aren’t currently any organisationsof this scale working so actively to reduce prejudice against the disabled and paralysed. I was extremelyimpressed by how updated the facilities were, despite not being finished. I learned of plans for developingan area where younger children and babies could receive therapy and having a functioning gym whereclients could exercise as a part of their treatment. They are also looking to expand to house inpatients,making a comfortable recovery process. All these prospects made me realise how much progress thecentre was making in terms of helping their clients and changing attitude. It cannot go without saying,however, that the willingness and smiles of the staff at CRP Sylhet has enabled them to make suchprogress. I also learned that many were trained by CRP themselves which was amazing to see and mademe realise how many people actually benefit from the organisation. During my time there I helped produceEnglish leaflets and information notices about the centre and what they do as the Sylhet branch is still quiteunknown. To conclude CRP-Sylhet whilst being relatively new, has huge growth guaranteed in the futureand will contribute massively to helping remove the stigma around disabled and paralysed people inBangladesh whilst aiding their recovery. I look forward to being involved in the future!

Outside the centre

Divisional Centres Update

With the receptionist, a previous client

WAYS YOU CAN HELPThe disabled poor in Bangladesh continue to need help. The Valerie Taylor Trust supports theCentre for the Rehabilitation of the Paralysed. This is the only place in the country where theparalysed are given specialist treatment – free of charge for the very poorest.

Support our work by:• Regular donations by completing the back page of this newsletter – our preferred method.

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Helping the Disabled Poor and their FamiliesAdministration Address: 4 Wilberforce Road, Coxheath, Maidstone, Kent ME17 4HA

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Helping the Disabled Poor and their FamiliesAdministration Address: 4 Wilberforce Road, Coxheath, Maidstone, Kent ME17 4HA

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Valerie Taylor Trust is a charity registered in England and Wales (number 1122245)

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