Using Photovoice to Promote Diabetes Self-Management for … baig il cb... · 2016-11-03 · Using...

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Using Photovoice to Promote Diabetes Self-Management for Latino Adults Arshiya A. Baig, MD, MPH, FACP Assistant Professor of Medicine Associate Director of Chicago Center for Diabetes Translation Research University of Chicago November 2016 AADE Illinois 3nd Annual Symposium

Transcript of Using Photovoice to Promote Diabetes Self-Management for … baig il cb... · 2016-11-03 · Using...

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Using Photovoice to Promote Diabetes Self-Management for Latino Adults

Arshiya A. Baig, MD, MPH, FACPAssistant Professor of Medicine

Associate Director of Chicago Center for Diabetes Translation Research

University of Chicago

November 2016

AADE Illinois

3nd Annual Symposium

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Financial Disclosures

National Institute of Diabetes and Digestive and Kidney Diseases Diabetes Research

and Training Center (P60 DK20595), Chicago Center for Diabetes Translation Research

(P30 DK092949), and a NIDDK Mentored Patient-Oriented Career Development Award

(K23 DK087903-01A1).

Walgreens gave us 15% discount on photo development

Bayer supplied us with 6 boxes glucometer strips

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Roadmap

Latino Demographics and Diabetes Disparities

Community-based Participatory Research and

Photovoice

Using Photovoice in Diabetes

Education

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My Background and Focus on Latino health

o Training at UCLA

o Bogota, Colombia: U.S. Fulbright Scholar

o University of Chicago

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Ask the Audience: What percentage of the U.S.

population will be Latino by 2050?

A. 15%

B. 30%

C. 50%

D. 75%

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The Hispanic population grew by 49% from 2000 to 2015 in the Midwest per the

last U.S. Census.

Currently, Illinois has the fifth largest Hispanic population in the U.S

Relevance to Midwest and Illinois

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U.S. Latinos Have Many Barriers to Care

• Socioeconomic:

- Average Latino household owns 7 cents for every $1 held by a non-

Hispanic white household (Duke University 2014)

• Barriers in the built environment—violence, limited space for

exercise, poor access to fresh food

• Language barriers: 76% of U.S. Latinos speak Spanish at home (2011 Census)

• Access to care

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Latino Health

Disparities

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Ask the Audience: What is the % chance a

Latino born in the U.S. will develop diabetes

in his/her lifetime?

A. 5%

B. 15%

C. 30%

D. 50%

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Estimated lifetime risk of developing diabetes

0

10

20

30

40

50

60

Men Women

Pe

rce

nt

Total Non-Hispanic White

Non-Hispanic Black Hispanic

Narayan et al, JAMA, 2003

U.S. Latinos born in 2000 have about a 50% chance of

developing diabetes in their lifetime

53%

45%

27%

31%

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6.4

12.511.1

12.6 11.9

8.2

0

10

20

Non-

Hispanic

whites

Non-

Hispanic

blacks

Hispanic Puerto

Rican

Mexican Cuban

% w

ith

dia

be

tes

CDC 2007

Diabetes prevalence is higher among Hispanics and varies by

subgroups

53%

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Why such high prevalence of diabetes among Hispanics?

• Genetic predisposition towards insulin resistance and beta cell

dysfunction but unclear why among Hispanics

• High rate of abdominal obesity and greater amount of visceral fat

• Higher rate of conversion from pre-diabetes to diabetes (15%) than

non-Hispanic whites (5-10%)

• Variation in risk may be related to higher proportion of Native

American ancestry

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Hispanics also suffer from disparities in diabetes outcomes

• Only 1/3 of Latinos with diabetes achieve optimal glycemic control

• Increased risk of complications:

- Twice the risk of diabetic retinopathy than non Hispanic

whites

- 40% greater risk of nephropathy

• Age-adjusted diabetes death rate is 1.4 times higher than

Hispanics than non-Hispanic whites

• Among Hispanics, the diabetes death rate in 2000 was highest

among:

- Puerto Ricans-- 172 per 100,000

- Mexican Americans-- 122 per 100,000

- Cuban Americans-- 47 per 100,000

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Diabetes in Chicago Latinos

• Chicago: 4th largest Mexican-American population in the U.S. (578,000)

• In Little Village (South Lawndale): 83% Latino, 76% Mexican

• Many risk factors for poor health

- 60% below poverty

- 40% high school diploma

- 46% have insurance

- 37 is average BMI

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Ask the Audience: Who is familiar with the term

community-based participatory research

(CBPR)?

A. Yes

B. No

C. Maybe

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Traditional vs. Partnered Research

• Traditional approach where researcher largely

determines- Questions asked and tools employed

- Interventions developed

- Kinds of results and outcomes documented and valued

• Difficulty of translating scientific findings into clinical

practice

• Many times researchers use communities for research

but then never report the findings to them

Meredith Winkler, 2003,”Community-Based Participatory Research for Health”

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A Partnered Approach: Community-Based Participatory Research

(CBPR)

• 1970’s Paulo Freire, a Brazilian educator

– Communities identify own problems & solutions

– Used with communities to understand and begin to create

structural change

• CBPR applies scientifically rigorous methodology in conducting

research partnered with a community

• CBPR is not research method itself but an approach

• Findings are “practical and relevant”

• Research findings can be applied directly to develop policy and

interventions

Jones, JAMA 2007

Wells, JAMA 2009

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Project

Designing and Testing a

Church-based Diabetes

Education Program for Latinos

Adults

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Church-based Diabetes Education

• Diabetes self-care is cornerstone of

disease management

• Many Latinos do not participate in self-

management education programs

• Churches can provide a familiar,

convenient, and trusted setting for

diabetes education and support

• Churches are central to many

racial/ethnic communities

Our Lady of Tepeyac Church,

Chicago

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We Learned How to Tailor the Intervention From Patients

• Focus groups

• Participant concerns:

- Diabetes affects all aspects of life

- Cost of care

- Psychological impact of having diabetes

- Lack of resources to manage diabetes in community

• Preferences

- Interested in group-based education program in church

- Desire diabetes education, support, self-empowerment

- Information on nutrition, exercise, causes, complications

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Identify Points of Intervention and Study design

• Formed community advisory board (CAB) for continued

input from patients and stakeholders

• Community involvement in designing intervention and in

study design

• Using local resources and working with other agencies

• Need to tailor the intervention to the church setting and

the community

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Ask the Audience: Who is familiar with

photovoice?

A. Yes

B. No

C. Maybe

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Using Patient Engaged Research Methods: Photovoice

• Uses power of pictures

• People can identify, represent, and analyze their communities by taking photos

• Photos can be accompanied by stories

• As a way to problem solve and give social support

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Background on Photovoice

Photovoice is a community-based participatory research methodology

that engages community members through the use of photos and

storytelling. (Wang, University of Michigan)

33Using Photovoice to Promote Diabetes

Self-Management for Latino Adults

In photovoice, participants take photos of their lives and tell stories

about those photos.

Photovoice has

traditionally been used for

needs assessment.

No studies have assessed

the feasibility and

acceptability of using

photovoice to promote

diabetes self-management.

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Study Design: Photovoice

• Intervention participants were given disposable cameras and asked to

take photographs of their lives with diabetes.

• Photos were developed by the academic team and given to the

participants.

• In the weekly classes, participants discussed their photos with the

group and shared their challenges and successes in diabetes self-

care. These exercise was used to promote problem solving and

empower patients to improve their diabetes self care.

• Weekly diabetes self-management classes led by lay leaders trained

in motivational interviewing.

34Using Photovoice to Promote Diabetes

Self-Management for Latino Adults

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Study Design

• The lay health educators were trained by a team of a certified diabetes

educator, registered dietitian, and a psychologist with support from a

community pharmacist who served as their diabetes experts for

information support and education.

• The class leaders guided the group photo discussions and took notes

on (1) why the photo was important to the person who took it and (2)

what others in the class discussed regarding the photo.

• Using a codebook derived from prevalent themes, two researchers

coded the photos and the discussion notes.

• Participants evaluated the photovoice activities at 6-month follow-up.

35Using Photovoice to Promote Diabetes

Self-Management for Latino Adults

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Educational curriculum

Photovoice

Patient navigation Exercise groups

8-week church-based

diabetesself-

managementintervention

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Randomized Study Design

Low intensity High intensity

Receive a 90 min diabetes lecture Picture Good Health

8-week church-based diabetes self-

management intervention

Picture Good Health

3 month measures and mailed lab results

Optional monthly group sessions

Patient navigator to establish PCP if needed

Mailed letter with baseline lab results

6 month measures and mailed lab results

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Baseline characteristics

N=100

Age 54 ± 11

% female 81

% 8th grade or less 54

% income less than $30,000 82

% Latino ethnicity 98

% of Latinos reporting Mexican origin 95

% born outside of U.S. 92

% speak “only Spanish” at home 71

% have a source of usual care 93

% insured 49

% in excellent or very good health* 3

% with family history of diabetes 69

*other categories: good, fair, poor

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N=100

No. of years with diabetes 8.3 ± 7.9

% with family history of diabetes 69

% with kidney disease 2

% eye disease 25

% hypertension* 56

% high cholesterol 70

% on insulin 25

% on oral meds for diabetes 85

Mean A1c % 8.0 ± 2.0

Mean LDL 108.1 ± 32.0

Mean systolic blood pressure mmHg 119.7 ± 14.4

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Change in A1c by Arm (n=76)

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Intervention Participants Had More Significant Improvement in

Self-Care at 6-months

Within arm Across arms

Usual Caren=41

Interventionn=41

Intervention effect

Following healthful eating plan

Average number of days per week following eating plan over last month

Having >=5 servings fruit and vegetables

Having high fat foods

Participating in >=30 min physical activity

Participating in a specific exercise session

Testing blood sugar

Testing blood sugar as recommended by healthcare provider

Inspecting the inside of shoes

Checking feet

Taking medications as prescribed

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Results

Of 50 participants who were invited to the class, 37

attended at least one class and 26 took photographs.

Of the 26 who took photographs, two participants’ photos

were not available for analysis.

A total of 503 photos were analyzed.

42Using Photovoice to Promote Diabetes

Self-Management for Latino Adults

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Ask the Audience: What was the most common

theme for the photos?

A. Participant’s workplace

B. People and family

C. Diabetes care (e.g. Medications, syringes, etc.)

D. Religious elements

E. Nutrition and exercise

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Subjects and Themes of Photographs

44Using Photovoice to Promote Diabetes

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Subjects and Themes N=503 n(%)

People 398 (79%)

People, including family, friends, community members 237 (54%)

Children 69 (14%)

Social events or gatherings 92 (18%)

Nutrition and exercise 236 (47%)

Food 121 (24%)

People exercising or exercise equipment 37 (7%)

Water bottles and people actively drinking water 33 (7%)

Soft drinks 32 (6%)

Neighborhood and built environment 195 (39%)

Neighborhood and surroundings 73 (15%)

Outdoor green spaces including parks and gardens 68 (14%)

Bikes, buses, trains, cars, modes of transportation 37 (7%)

Billboards, window, taxi or bus advertisements 16 (3%)

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Subjects and Themes of Photographs

45Using Photovoice to Promote Diabetes

Self-Management for Latino Adults

Subjects and ThemesN=503

n(%)

Diabetes specific 165 (33%)

Diabetes self-management class 63 (13%)

Diabetes supplies (strips, glucometers, lancets, scales) 34 (7%)

Medications including pills, insulin, and herbal or

vitamin supplements

18 (4%)

Home life 124 (25%)

Interior and exterior of home 95 (19%)

Pets or animals 16 (3%)

Religious figures, iconography, or ceremonies 41 (8%)

Participant workplaces (e.g. work desk, cubicle) 3 (0.6%)

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Themes of

Analysis from

Class Discussions

(N=65 photos)

46

Theme % photos

Social support

Group advice 36 (55.4%)

Group empathy 14 (21.5%)

Group motivation 7 (10.8%)

Importance of social support 5 (7.7%)

Diabetes self-management

Diet or nutrition or eating 17 (26.2%)

Exercise 8 (12.3%)

Taking medications 6 (9.2%)

Testing sugar at home 3 (4.6%)

Cultural traditions 13 (20%)

Importance of family 12 (18.5%)

Emotional health

Concern for family 11 (16.9%)

Ways to cope with stress 8 (12.3%)

Self-motivation 4 (6.2%)

Faith or religion 4 (6.2%)

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Group Advice

47Using Photovoice to Promote Diabetes

Self-Management for Latino Adults

Participantexplanation of

photograph

To remember that diabetes patients should be careful when using knifes

because they can get injured and that’s very harmful for

them.

Why the photograph is important to

the participant

Her mom reminds her to be careful

when using knifes

Classroom discussion of photograph

Everyone agrees that they need to be extra careful when using knifes or when they get their nails cut. It is even better to go to a professional to get their nails cut.

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Group Empathy

48Using Photovoice to Promote Diabetes

Self-Management for Latino Adults

Participantexplanation of

photograph

It is a photograph of his daughter who died 3 years ago. His mother gave

him the [statue of ] the Virgin Mary.

Why the photograph is important to

the participant

“I have the picture with me at all times and I just wanted to share it with you.”

Classroom discussion of photograph

Thanks for sharing your pain and your loss. They shared

their own experiences of

losing a loved one.

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Group Motivation

49Using Photovoice to Promote Diabetes

Self-Management for Latino Adults

Participant

explanation

of

photograph

“At a job, I decided

to smoke less.”

Why the

photograph

is important

to the

participant

“To remember I

decided to start

smoking less

because this would

help my health.”

Classroom

discussion

of

photograph

““It is a good way to

start smoking less

by looking at the

picture. It is good to

stop smoking even

though it is hard to

quit.”

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Importance of Social Support

50Using Photovoice to Promote Diabetes

Self-Management for Latino Adults

Participant

explanation

of

photograph

She is part of the

class. She receives

motivation from her

classmates. She feels

that they all speak the

same language with

the class leader. She

is very happy with her

work.

Why the

photograph

is important

to the

participant

Because she

receives support and

inspiration from

everyone in this

program.

Classroom

discussion

of

photograph

Being part of a group

helps them to be

stronger. Learning

how to improve their

life style. Together,

they are fighting to

have a better life.

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Diet, Nutrition, and Eating

51Using Photovoice to Promote Diabetes

Self-Management for Latino Adults

Participant explanation of

photograph

Why the photograph is important

to the participant

Classroom discussion of

photograph

“Junk food is nothing but

fats; it is venom for the

body.”

“I shouldn’t eat junk food because

it has a lot of salt and fats.”

“Not only diabetes patients but

everyone should take care of their

health.”

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Testing Sugar at Home

52Using Photovoice to Promote Diabetes

Self-Management for Latino Adults

Participant

explanation

of

photograph

“It is very

important to have

a blood exam in

order to know

our blood sugar

level.”

Why the

photograph

is important

to the

participant

“I have to check

my blood sugar

level twice daily.

That way I know

if my blood sugar

level goes up.”

Classroom

discussion

of

photograph

“It is very

important to

know our blood

sugar level.“

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Importance of Family

53Using Photovoice to Promote Diabetes

Self-Management for Latino Adults

Participant explanation of

photograph

Why the photograph is

important to the participant

Classroom discussion of

photograph

“Family photo to remind me

that I need to take care of

myself for my family since I

am the head of household,

they will suffer the

consequences.”

“If we don’t take care of

ourselves, we will not be in that

picture anymore. I would like to

have one in the future with

everybody and no one

missing.”

“If we don’t take care of ourselves then

there will be no picture with us in it in

the future and we will not be able to

achieve our goals.”

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Cultural Traditions

54Using Photovoice to Promote Diabetes

Self-Management for Latino Adults

Participant

explanation of

photograph

She has an altar with

various Saints. She

made it because she

used to often dream

of the virgin. The

other saints were

presents that she

received.

Why the

photograph is

important to

the participant

She feels that the

virgin Mary helps her

to keep on going with

her diabetes and to

take good care of her

health because of

her daughter.

Classroom

discussion of

photograph

Other participants

also have altars at

home.

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Faith or Religion

55Using Photovoice to Promote Diabetes

Self-Management for Latino Adults

Participant

explanation

of

photograph

“For me it

represents life,

faith, and hope.

When I come

here, I feel in

peace and the

best place to

meditate

because I feel

in peace.”

Why the

photograph

is important

to the

participant

“It helps me to

maintain my

faith and that

no matter how

life is, there is

always hope

and a light to

follow.”

Classroom

discussion

of

photograph

“Thanks to God

I found this

place, I feel

comfortable

when I am in

Mass and

receiving invites

for this class.”

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Concern for family

56Using Photovoice to Promote Diabetes

Self-Management for Latino Adults

Participant explanation of

photograph

Why the photograph is

important to the participant

Classroom discussion of

photograph

Her parents. Her dad lost his

left leg and some toes. Both of

them have diabetes. Both use a

wheelchair but her dad uses it

only when he goes out.

She brought a picture of her

parents because God has

allowed them to live a long life.

They asked her if her dad uses a

walker because some of the

participants might have some.

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Ways to cope with stress

57Using Photovoice to Promote Diabetes

Self-Management for Latino Adults

Participant

explanation

of

photograph

Participant

is in the

forest

where is

peaceful

and quiet.

There, he

can

exercise

and relax

from all the

stress

Why the

photograph

is important

to the

participant

“It’s very

relaxing

being in the

forest”

Classroom

discussion

of

photograph

That is a

great

picture and

is very

relaxing to

walking in

the forest

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Self-Motivation

58Using Photovoice to Promote Diabetes

Self-Management for Latino Adults

Participant

explanation

of

photograph

“One-way sign. There

is only one way and I

would like to feel free

as a bird not attached

to this illness.”

Why the

photograph

is important

to the

participant

“Because I love

myself and that love

is motivated by my

family. I need to love

myself to be able to

love others.”

Classroom

discussion

of

photograph

“We only have one

way and it’s the way

to health. You have

various choices but

only one way takes

you to a good health

and will help us guide

ourselves and to

guide our family to

avoid getting

diabetes.”

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Participant Satisfaction With Photovoice (N=30)

59Using Photovoice to Promote Diabetes

Self-Management for Latino Adults

0% 20% 40% 60% 80% 100%

How much fun did you have taking photos forclass?

How much did you enjoy talking about yourphotos in class?

How much did you learn about better managing your diabetes from other

participants’ photos?

How comfortable did you feel sharing yourphotos?

How much confidence did you gain inmanaging your diabetes from talking about

the photos?

How much did the photo discussions help youto better manage your diabetes?

How much did sharing photos make you feelmore connected to the people in the group?

Not at all (%)

A little (%)

Some (%)

A lot (%)

Of 50

participants who

were invited to

the class, 37

attended at least

one class and 30

completed the

exit survey.

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In Participants’ Words

When asked what they liked about using photos to discuss their lives

with diabetes:

o The pictures help us to remind ourselves of what is good and bad for us. It

is a great method.

o It teaches us to be better people and continue forward. To be more

conscious of our daily lives and remember essential things we had

forgotten about. To be able to coordinate our daily lives and see what we

have.

o It’s a good idea because it helps and you learn more by seeing and talking

about it.

When asked what they would change about the photo discussions:

o Nothing, they have great significance in our lives. The pictures speak for

themselves. We want more time to express their significance.

60Using Photovoice to Promote Diabetes

Self-Management for Latino Adults

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Summary of Findings

In a diabetes self-management intervention for Latinos,

participants were satisfied with the photovoice exercise and had

high rates of participation.

61Using Photovoice to Promote Diabetes

Self-Management for Latino Adults

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Summary of Findings

Participants’ photos

spurred group

discussion around

diabetes self-

management.

Participants gave advice,

were empathetic, and

motivated the

participants who

presented their photos to

make or sustain healthy

behaviors.

62Using Photovoice to Promote Diabetes

Self-Management for Latino Adults

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Limitations

This study used a convenience sample so results may not

be generalizable to all Latinos with diabetes.

63Using Photovoice to Promote Diabetes

Self-Management for Latino Adults

We analyzed the class

discussion using leader

notes which may have not

been complete.

We did not record

participants' stories

regarding the photos.

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Conclusion

• Photovoice provided an

effective vehicle to receive

and provide social support

and promote behavior

change.

• Future studies should

consider using photovoice

as a way to encourage

healthy behavior change

and facilitate social

support in a group setting.

64Using Photovoice to Promote Diabetes

Self-Management for Latino Adults

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Interpretation of Findings and Dissemination

• Academic publications and presentations

• Town Hall meeting

• CAB continuing to meet

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Project

Provider Training

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Ask the Audience: What percentage of patients

understand everything that their physician

has said in a visit?

A. 20-30%

B. 40-50%

C. 60-70%

D. 80-90%

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66 68 68

57

49

66 69

6156

48

0

20

40

60

80

100

Total White Black Hispanic Asian

Felt Doctor Listened to Them Understood Everything Doctor Said

Note: Population includes adults with health care visits in the past two years.

Source: The Commonwealth Fund. Health Care Quality Survey. 2001.

Hispanics are less likely to understand their doctor and less likely to feel

their doctor listened to them

Percentage of adults ages 18 to 64 reporting

ease of communication during doctor visits, 2001

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12 10 1319

14

0

20

40

60

80

100

Total White Black Hispanic Asian

Hispanics are twice as likely as whites to leave the doctor’s office

with unasked questions.

Percentage of adults ages 18 to 64 reporting they had questions

that they did not ask on last visit to doctor, 2001

Note: Population includes adults with health care visits in the past two years.

Source: The Commonwealth Fund. Health Care Quality Survey. 2001.

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Provider cultural competency

– “...the ability of health care professionals to communicate with and effectively provide high-quality care to patients from diverse sociocultural backgrounds”

– “Understanding the importance of social and cultural influences on patients’ health beliefs and behaviors; considering how these factors interact at multiple levels of the health care delivery system; and, finally, devising interventions that take these issues into account to assure quality health care delivery to diverse patient populations.”

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Provider cultural competency: Why is it important?

• To respond to current and projected demographic changes in the United States

• To eliminate long-standing disparities in the health status of people of diverse racial, ethnic and cultural backgrounds.

• To improve the quality of services and primary care outcomes.

• To improve patient-provider communication and improve patient satisfaction

• To meet legislative, regulatory and accreditation mandates.

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Provider’s role in patient-centered care

• Few who speak Spanish fluently

• Goes beyond speaking language however.

• Providers who see many Latino patients may not have a good understanding of their patient’s life challenges and cultural beliefs

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“Local Patients, Local Stories”

• We learned about patient challenges with provider

communication in church-based program

• Developed study aimed to address provider cultural

competency and patient centered communication

• Designed training with skill building on patient-

centered communication

• Used a video of patient stories and photos to train

providers on patient challenges AND successes

• Piloted with 42 local healthcare providers and have

noted pre to post-test improvement in cultural

sensitivity

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Patients Tell Their Stories

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Multi-level approach: Work to Date

• Community– How to mobilize community leaders through evaluation of

formation of Community Advisory Board

• Patient– Church-based education with improvement in self-care

– Texting messaging in health centers to support diabetes self-care

– Review of family based interventions for adults with diabetes

• Provider– Cultural competency assessment

– Training with patient stories

• System– Assessment of resources for Latinos in Midwestern health

centers

– Diabetes group visits in community health centers

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Summary and What’s Next?

• Latinos suffer from disproportionately high rates of diabetes

and have many barriers to care

• We need innovative, multi-pronged interventions to tackle

Latino diabetes disparities

• Integrate community partnerships into healthcare systems

to gain trust and utilize local resources

• Ultimately want results that are practical and relevant to

patients and policy makers

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Acknowledgements

78Using Photovoice to Promote Diabetes

Self-Management for Latino Adults

• Co-investigators:

• Marshall Chin

• Deborah Burnet

• Michael Quinn

• Amanda Benitez

• Cara Locklin

• Marla Solomon

• Lisa Sanchez-Johnsen

• Sang Mee Lee

• Yue Gao

• Erin Staab

• Little Village Community Advisory Board

• NIH NIDDK K23• University of Chicago DRTC• University of Chicago CTSA

• Chicago Center for Diabetes Translation Research

• Taller de José

• Father Don Nevins

• Juan Acevedo

• Maritza Gomez

• Freddy Vazquez

• Denise Salinas

• María Acevedo

• Ana Piña

• Patricia Fernandez

• Jason Espinoza

• Alexis Lopez

• Matthew Stutz.

• Anghela Paredes

• Catherine Castro

• Louis Philipson

• Peggy Hasenauer

• Kovler Diabetes Center

• Walgreens and Bayer

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Thank you.

Questions?

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Pre and Post Assessment Questions

Choose the incorrect answer.

3. Photovoice is a methodology that:

a. Uses the power of photographs and storytelling to empower patients and communities.

b. Has been traditionally used to conducted community health needs assessments

c. Has been widely used in public health research

d. Incorporates recorded video for use of health promotion

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Language

• 12% of US population speaks Spanish.

• Of these 28% report not speaking English

well or at all.

• 76% of U.S. Hispanics speak Spanish at

home

• Depending on generation as well

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Themes and Quotes from Class Discussions (N=65)

82Using Photovoice to Promote Diabetes

Self-Management for Latino Adults

Theme % photos Explanation of photograph Why the important Classroom discussion

Diet or

nutrition or

eating

17

(26.2%)

“Junk food is nothing but

fats; it is venom for the

body.”

“I shouldn’t eat junk food

because it has a lot of salt

and fats.”

“Not only diabetes patients but

everyone should take care of their

health.”

Importanc

e of family

12

(18.5%)

“Family photo to remind me

that I need to take care of

myself for my family since I

am the head of household,

they will suffer the

consequences.”

“If we don’t take care of

ourselves, we will not be in

that picture anymore. I would

like to have one in the future

with everybody and no one

missing.”

“If we don’t take care of ourselves

then there will be no picture with us in

it in the future and we will not be able

to achieve our goals.”

Group

motivation

7

(10.8%)

“At a job, I decided to smoke

less.”

“To remember I decided to

start smoking less because

this would help my health.”

“It is a good way to start smoking less

by looking at the picture. It is good to

stop smoking even though it is hard

to quit.”

Faith or

religion4 (6.2%)

“For me it represents life,

faith, and hope. When I

come here, I feel in peace

and the best place to

meditate because I feel in

peace.”

“It helps me to maintain my

faith and that no matter how

life is, there is always hope

and a light to follow.”

“Thanks to God I found this place, I

feel comfortable when I am in Mass

and receiving invites for this class.”

Self-

motivation 4 (6.2%)

“One-way sign. There is only

one way and I would like to

feel free as a bird not

attached to this illness.”

“Because I love myself and

that love is motivated by my

family. I need to love myself

to be able to love others.”

“We only have one way and it’s the

way to health. You have various

choices but only one way takes you

to a good health and will help us

guide ourselves and to guide our

family to avoid getting diabetes.”

Testing

sugar at

home

3 (4.6%)

“It is very important to have

a blood exam in order to

know our blood sugar level.”

“I have to check my blood

sugar level twice daily. That

way I know if my blood sugar

level goes up.”

“It is very important to know our

blood sugar level.“

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Using Photovoice: Some Photos

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Main Objective and Aims

We aimed to evaluate the feasibility and acceptability of

using photovoice in a diabetes self-care intervention by

assessing:

84Using Photovoice to Promote Diabetes

Self-Management for Latino Adults

o Participant participation in the photovoice activity

o The themes that emerged from the photographs

o The themes that emerged during class

discussions about the photographs

o Participants’ satisfaction with the photovoice

exercise

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Pilot Intervention Study

• Community-based, randomized pilot intervention: intervention vs. usual

care

• 100 participants adults with diabetes recruited from church and community

events

• Followed for 6 months

• Results:

– >30% of participants in both arms improved their self-rated health

– Both arms with significant improvement in diabetes self-empowerment

– Patient satisfaction:

• 79% of intervention participants said they learned a lot about diabetes

• 76% said they gained a lot of confidence in their ability to manage their diabetes.

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Pre and Post Assessment Questions

1. Which racial/ethnic group has had the largest increase in diabetes risk in the past 10

years?

a. Whites

b. African-Americans

c. Hispanics

d. All have seen the same increase in diabetes risk

2. The following is the an important concept in community-based participatory research

(CBPR):

a. CBPR projects must address racial/ethnic disparities in health.

b. CBPR excludes the use of scientifically rigorous methods like randomized controlled trials.

c. In CBPR, academic and community partners must equally divide grant funds.

d. In CBPR, the academic and community partnership is best when it begins at the inception of the research idea through implementation and dissemination of research findings.