Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across...

31
Understanding Your Neurodiverse Child Leslie O’Brien, LICSW Aspire Works Program Manager Massachusetts General Hospital/Aspire Brett Mulder, PsyD Director of Teen and Adult Programs Massachusetts General Hospital/Aspire Do not reproduce without permission Aspire/MGH Program

Transcript of Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across...

Page 1: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

1 Do not reproduce without permission Aspire/MGH

Understanding Your NeurodiverseChild

Leslie O’Brien, LICSW Aspire Works Program ManagerMassachusetts General Hospital/Aspire

Brett Mulder, PsyD Director of Teen and Adult ProgramsMassachusetts General Hospital/Aspire Do not reproduce without permission Aspire/MGH Program

Page 2: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

2 Do not reproduce without permission Aspire/MGH

Agenda

� Understanding your neurodiverse child� Supports for neurodiverse children

Page 3: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

3 Do not reproduce without permission Aspire/MGH

Aspire Mission and Philosophy

Program of MGH and MGH for Children

Dedicated to providing children, adolescents and adults with high cognitive autism or a related profile

with the knowledge and skills necessary to make social connections and lead fulfilling lives.

• Individuals on the autism spectrum need ongoing growth in the areas of self-awareness, social competency, and stress management

• Programs in Charlestown, Newton, Lexington, Westwood, and over 50 employer sites throughout MA, NH and RI

Page 4: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

4 Do not reproduce without permission Aspire/MGH

Autism and Individuality

“If you have met one person with autism, you have met one person with autism.”

--Dr. Stephen Shore

Page 5: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

5 Do not reproduce without permission Aspire/MGH

Autism Spectrum Disorder

must have all 3 of the following

Social CommunicationChallenges

must have 2 of the following

Restricted/RepetitiveBehaviors

(4) stereotyped or repetitive motor movements

and speech(1) highly restricted interests

(2) insistence on sameness(3) over- or under-sensitivity

to sensory input

(2) deficits in social-emotional reciprocity

(3) deficits in nonverbal social communication

(1) deficits in developing, maintaining, and

understanding relationships

Page 6: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

6 Do not reproduce without permission Aspire/MGH

Perspective Taking

Page 7: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

7 Do not reproduce without permission Aspire/MGH

Perspective Taking

� Perspective taking: awareness that other individuals have perspectives different from one’s own given their race, gender, ethnicity, histories, knowledge, desires, intentions, etc.

� Perspective taking allows us to perceive the minds of others

Page 8: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

8 Do not reproduce without permission Aspire/MGH

Contextual Awareness

Page 9: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

9 Do not reproduce without permission Aspire/MGH

Contextual Awareness

� Contextual awareness: awareness that the shared social situation impacts norms that guide our behavior

� Contextual awareness allows us to behave socially in a wide variety of situations

Page 10: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

10 Do not reproduce without permission Aspire/MGH

Sensory/Perceptual Differences

Page 11: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

11 Do not reproduce without permission Aspire/MGH

Sensory/Perceptual Differences

• ASD symptoms: under or over sensitivity to sensory input

• Senses:

o Vision

o Smell

o Taste

o Hearing

o Touch

o Balance

o Body awareness

Page 12: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

12 Do not reproduce without permission Aspire/MGH

Autism Spectrum Disorders

Comorbid psychiatric conditions: � Major Depression: 70-77% (Lugnegârd et al. 2011; Joshi et al.

2013)� ADHD: 68% (Joshi et al. 2013) � Anxiety Disorders: 53-59% (Joshi et al. 2013; Buck et al. 2014)Ø Most common anxiety disorders (Joshi et al. 2013):

-Social phobia (59%)-Agoraphobia (35%)-Generalized anxiety disorder (34%)

� Oppositional Defiant Disorder: 53% (Joshi et al. 2013) � Bipolar I: 25% (Joshi et al. 2013)

Page 13: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

13 Do not reproduce without permission Aspire/MGH

Autism as a Disability

• Disability is defined as a person with:

1) a physical or mental impairment that substantially limits one

or more major life activities;

2) a history or record of such an impairment;

3) or a person who is perceived by others as having such an

impairment.

• Autism spectrum disorders, ADHD and dyslexia are generally recognized as “hidden” disabilities.

Page 14: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

14 Do not reproduce without permission Aspire/MGH

Autism and Neurodiversity

Challenges as Strengths

Page 15: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

15 Do not reproduce without permission Aspire/MGH

Academic Neurodiversity

Page 16: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

16 Do not reproduce without permission Aspire/MGH

Academic Challenges Maximized

Social CommunicationChallenges

Restricted/RepetitiveBehaviors

(4) Difficulty controlling “autistic” behaviors

(1) Difficulty with small talk on trivial topics

(2) Difficulty with change and transitions

(3) Difficulty managing overstimulation in school

(2) Difficulty with group work

(3) Difficulty interpreting peer interactions

(1) Difficulty finding a tribe

Page 17: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

17 Do not reproduce without permission Aspire/MGH

Academic Strengths Maximized

Social CommunicationChallenges

Restricted/RepetitiveBehaviors (4) Strength with repetition

(1) Capacity to develop content expertise

(2) Potential for logical insights on assignments

(3) Heightened perceptual abilities

(2) Reciprocal conversation with friends on topics of

shared interest

(3) Honest and direct communication style

(1) Strong sense of loyalty to a tribe

Page 18: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

18 Do not reproduce without permission Aspire/MGH

Supports for Neurodiverse Children

When you can: preview, preview, preview!

• Give an visual overview of upcoming activities and agenda.

• Allow time for questions about what is expected and components that might be indeterminate (e.g., weather).

• Be as specific as possible, but also accurate. If a plan may change or look differently, note that.

• Teach flexibility to expect the unexpected, at times.

Page 19: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

19 Do not reproduce without permission Aspire/MGH

Supports for Neurodiverse Children

Support curiosity about the social world

• Review the social behaviors of others in a situation and possible “rules” (e.g., expected/unexpected behaviors, norms, workplace culture).

• Encourage curiosity and questions about what people typically do in a shared situation (e.g., restaurant).

• For example, “What do you notice others doing when we are on the T?” or “I notice many people reading, looking at their phones or listening with earbuds on the train.”

Page 20: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

20 Do not reproduce without permission Aspire/MGH

Supports for Neurodiverse Children

Engage the unique interests of your child

• Tapping into these areas can increase participation and enthusiasm, facilitate social connections, and be sources of insight with your children.

• Elicit connections with additional areas of interest and skill acquisition (e.g., Why would I want to do a volunteer job when I’m not getting paid?).

• Increase self awareness about a strength with being able to delve deep into a subject area.

Page 21: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

21 Do not reproduce without permission Aspire/MGH

Supports for Neurodiverse Children

Be mindful of sensory stimuli

• Difficulty with loud noises, bright lights, intense smells, and other sensory issues can be common for neurodiverse children.

• Do sensory check-ins: For example, what is your preference—lights on or off?

• If possible, try to simply sensory stimuli during an activity and collaboratively brainstorm strategies to help the child manage sensory concerns.

Page 22: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

22 Do not reproduce without permission Aspire/MGH

Supports for Neurodiverse Children

Transitions can be challenging

• Allow for a few minutes to transition from one activity to the next.

• Give a reminder and verbal supports: “We have five more minutes of this activity before we transition to _________.”

• Express empathy “It can be hard to stop this activity you love doing.”

Page 23: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

23 Do not reproduce without permission Aspire/MGH

Supports for Neurodiverse Children

Break down explanations and activities

• Break these down into manageable segments

• Be as specific and concrete as possible

• Ask specific questions to help assess for understanding and follow up with clarifying information.

Page 24: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

24 Do not reproduce without permission Aspire/MGH

Supports for Neurodiverse Children

Visual supports are a must

• Create a supplemental support of a visual aid to assist in explaining a concept or activity.

Page 25: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

25 Do not reproduce without permission Aspire/MGH

Supports for Neurodiverse Children

Be specific and concrete

• When exploring an abstract idea, apply concrete examples or a specific insight to best explain the concept.

Page 26: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

26 Do not reproduce without permission Aspire/MGH

Supports for Neurodiverse Children

Be mindful of a need for movement

• Consider structuring periods of movement into an activity to help keep your child engaged and grounded.

• Normalize the need for some children to utilize movement for self-regulation.

Page 27: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

27 Do not reproduce without permission Aspire/MGH

Supports for Neurodiverse Children

Incorporate breaks

• Short breaks can alleviate stress or anxiety and improve attention.

• This can be integrated into a schedule and beneficial for the neurotypical and neurodiversechildren.

• Designated time for transitions can help children shift between activities.

Page 28: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

28 Do not reproduce without permission Aspire/MGH

Aspire employer collaborators

Page 29: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

29 Do not reproduce without permission Aspire/MGH

Aspire Programs and Services

• Ages 4 through 45

• Consultation and trainings for workplaces and school systems

• Academic year groups (i.e., fall and spring)

• Summer programs for children, teenagers and adults

• Parent coaching

• Career coaching

• Special events

Visit: https://www.massgeneral.org/aspire/

Page 30: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

30 Do not reproduce without permission Aspire/MGH

Suggested Reading List

Grandin, T. (2006). Thinking in Pictures, Expanded Edition: My Life with Autism. Vintage Books.

Haddon, M. (2003). The Curious Incident of the Dog the Nightime. Random House.

Panek, P. & Grandin, T. (2013). The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt.

Robinson, J.E.. (2007). Look Me in the Eye: My Life with Asperger's. Three Rivers Press.

Silberman, S. (2015). NeuroTribes: The Legacy of Autism and the Future of Neurodiversity. Avery Books.

Page 31: Understanding Your Neurodiverse Child - Cotting School€¦ · The Autistic Brain: Thinking Across the Spectrum. Houghton Mifflin Harcourt. Robinson, J.E.. (2007). Look Me in the

31 Do not reproduce without permission Aspire/MGH

Questions?

Bretton Mulder, Psy.D. Leslie O’Brien Director of Teen and Adult Programs AspireWorks Program ManagerMGH Aspire MGH Aspire Email: [email protected] [email protected]: 781-708-3344 Phone: 781-860-1907