Understanding LifeSharing
30
Understanding LifeSharing: Who would Benefit? Office of Developmental Programs 6/25/2020
Transcript of Understanding LifeSharing
Understanding LifeSharing: Who would Benefit?
Office of Developmental Programs
6/25/2020
• https://www.youtube.com/watch?v=lIjZz9XVq6w
6/25/2020
(Bob's Story: A Lifesharing Experience)
6/25/2020
• Lifesharer/Lifesharing Family/Host Homes: (host family or person the individual lives with and receives care and/or support from)
• Lifesharing Agency: agency who provides oversight and support to both Lifesharer/Lifesharing Family and Individual
• Substitute Care: Person/family who provides care/support in absence of the Lifesharer/Lifesharing Family
6/25/2020
(LIFESHARING Supports Coordinator Training 2016)
6/25/2020
(LIFESHARING Supports Coordinator Training 2016)
6/25/2020
6/25/2020
• Residential model of support for people to live in a private home and feel apart of a family
• Provides a life sharing experience for individuals within the context of a “family” setting where they become a welcomed member of the family
• Resulting in: • Close personal relationships• Participation in community life• A place to live and call home
6/25/2020
The program is designed for:
• Person with disability or older adult
• Who needs daily help and support
• Has the ability to live in a lessrestrictive setting
• Someone who prefers to livein a “family” setting
6/25/2020
6/25/2020
HOME STUDY Composition, aspects of family life and schedule
INDIVIDUAL ASSESSMENTSBackground checks, health of family members, etc.
TRIAL VISITSUsually multiple visits
PLANNED ACTIVITIESAssist with developing a relationship before moving in
LIFESHARING PROVIDER
COORDINATOR+
BIOLOGICAL FAMILY
Individuals have the ability to learn:
– Life skills
– Develop self-esteem
– Learn to exist interdependently with others
– Reaching their highest potential possible
6/25/2020
6/25/2020
– Model behavior
– Instruct as part of the daily living-in vivo
– Learn social interaction and communication with others
– Reciprocity and understanding others’ point of view
6/25/2020
Principles promoted and inherent in Lifesharing:
CHOICE• Matching process of Individual and Family
INCLUSIVITY• Within a family• Within a community
RELATIONSHIP
6/25/2020
RELATIONSHIP & SAFETY• Relationships play a significant role in assuring a
person’s health and safety
People who have regular and ongoing relationships with family members, friends, neighbors, shopkeepers, coworkers, and others have people to help safeguard them from harm, potential abuse and neglect.
6/25/2020
FORMAL
• Licensing and regulations, polices and agency programs specific practices
• Lifesharing Specialist/ Managers support and supervise
• Support Coordination monitoring and oversite
• Other professionals involved in serving the individual such as Community Support, Behavioral Specialist services, etc.
6/25/2020
INFORMAL
• Person living in home
• Neighbors and community members
• Family and friends
• People from community affiliations
6/25/2020
ANNUAL REVIEW OF PROVIDER AGENCY
6500 REGULATIONS
• General Requirements
• Individual Rights
• Physical Site
• Health and Safety Issues
• Program Content- ISP, provider services, etc.
• Incident Management
6/25/2020
Supervision of Lifesharing: Residential Setting
• Ensure health and medical care if taking place
• Attending and participating in other identified activities (work, volunteer, counseling, etc.)
• Goals and Objectives that Lifesharing is workingon (personal care, cooking, domestic, social interaction and communication)
• Lifesharing attending trainings and open to technical assistance and input from other service providers (CS, SSB, BS, etc.)
6/25/2020
Residential Habilitation Lifesharing
Individuals live with other “residents”
Individuals live with individualsor a family
The home is lead by providers/ staff (hierarchy)
The home is lead by the home owner (mutual experience)
Most services are built into the res hab environment/ service
Services are in addition to the living arrangement
Most restrictive service, for those in need of this level of
supports
Less restrictive service, for those in need of residential
services but not the highest level of supports
6/25/2020
THE GENERAL ASSEMBLY OF PENNSYLVANIA HOUSE RESOLUTION, No. 531 Session of 2019:
• Aprox. 1,600 individuals with Autism and I/DD receive lifesharing services in PA each year
• Data comparison of residential services from 2007 through 2010 indicates that lifesharing participants consistently had the highest level of consumer satisfaction
• PA has a significant waiting list for individuals with Autism and I/DD for residential services
6/25/2020
THE GENERAL ASSEMBLY OF PENNSYLVANIA HOUSE RESOLUTION, No. 531 Session of 2019:
• Lifesharing costs less than other residential models and provide individualized support
• An average lifesharing budget is approximately $45,000 per year compared to a community or group home budget of approximately $150,000 per year
• By the year 2030, the number of caregivers available to care for nearly 75 million individuals 65 years of age or older will be vastly insufficient
6/25/2020
THE GENERAL ASSEMBLY OF PENNSYLVANIA HOUSE RESOLUTION, No. 531 Session of 2019:
• Our workforce cannot keep pace with the demand, so there will not be enough workers to care for the baby boomers
• Lifesharing may be an option for many of these individuals
• It is important to educate the public about lifesharing and ensure that individuals with intellectual disabilities are provided with information so that they may choose lifesharing as a viable living arrangement
6/25/2020
Individual
Lifesharing Provider
Lifesharing Specialist
Provider Agency and others involved (natural
family, friends)
Funding Sources and SC
6/25/2020
PA Offices responsible for Home and Community Based Services:
• Office of Developmental Programs (ODP)
• Office of Long Term Living (OLTL)
• Office of Mental Health and Substance Abuse (OMHSAS)
https://www.bing.com/videos/search?q=LIFESHARING+VIDEO&docid=608014223365114283&mid=639EB407D1DD783FA278639EB407D1DD783FA278&view=detail&FORM=VIRE
6/25/2020
(Lifesharing Sam and Cassi Lifesharing Video)
6/25/2020
(Conference Documents 2018 2018)
ReferencesSupported Employment Part One Pre-Service Training. www.bing.com/cr?IG=E78E26B8CB254912AAC1B0D1387F828E&CID=08B6897A00616127045D8282019C6084&rd=1&h=ZFwFHqfBK6kViRZfXkf9XV_8vkuREg5zHUK1o1_CNIA&v=1&r=http%3a%2f%2fapd.myflorida.com%2ftraining%2fdocs%2f2015%2520Best%2520Practices%2520in%2520Supported%2520Employment%2520Manual%2520Draft.pdf&p=DevEx.LB.1,5484.1.
Best Practices in Supported Employment: Perspectives from ...www.bing.com/cr?IG=264BC377D58641409926384D9DB312E1&CID=22FA2D55E5916C7D3B2F26ADE46C6D90&rd=1&h=zcOd7kl_hPi64FUHIFaQ5eDNucM9M1aIasBdM_nQ_xA&v=1&r=http%3a%2f%2fcfeebc.org%2ffiles%2fBest-Practices-in-Supported-Employment.pdf&p=DevEx.LB.1,5452.1.
Supported Employment: A Customer-Driven Approac. www.worksupport.com/.
DiLeo, Dale, et al. CONVERSION TO SUPPORTED EMPLOYMENT: INITIATIVES AND STRATEGIES. 1990, mn.gov/.
Training Resource Network, Inc. and Association for Persons in Supported Employment (APSE). APSE Supported Employment Competencies. 2010, www.apse.org/.
APD - Agency for Persons with Disabilities - State of Florida. Best Practices in Supported Employmen. 1 Jan. 2013, apdcares.org/.
Arizona Department of Economic Security | Your Partner for a Stronger Arizona. SUPPORTED EMPLOYMENT AND EXTENDED SUPPORTED EMPLOYMENT . 23 May 2018, des.az.gov/.
Bob's Story: A Lifesharing Experience. www.youtube.com/watch?v=lIjZz9XVq6w.
6/25/2020
References“Lifesharing Program.” Friendship Community, 3 Jan. 2020, www.friendshipcommunity.net/lifesharing/.
LIFESHARING Supports Coordinator Training. Pennsylvania Lifesharing Coalition, 2016, nebula.wsimg.com.
Institute, Barber National. “Lifesharing Program.” Barber National Institute, www.barberinstitute.org/adults/residential-services/lifesharing.
“Lifesharing through Family Living.” Passavant Memorial Homes Family of Services, 25 Nov. 2019, www.pmhfos.org/our-family-of-services/passavant-memorial-homes/pmh-services/lifesharing-through-family-living/.
“C.A.R.E.S.” CARES, www.cares4u.org/.
6/25/2020
6/25/2020
Thank you for attending!Please email any questions or comments
about the training to [email protected]
We strive to keep our trainings and resources up to date. If you notice any inaccurate or outdated information,
please report it to [email protected]
6/25/2020
