Online Training

Donate Life Northwest 2013-2014 School Speakers Bureau

Valerie Egan, Education Outreach Coordinatoreducation@donatelifenw.org503-418-4035

This Training

About one hour

Volunteers must have already attended a basic Ambassador Orientation AND an annual School Speakers Bureau prior to joining our roster

This training satisfies your commitment to annual training!

Questions? CONTACT US!

Education & Inspiration

Our small staff depends on highly trained volunteers to share our educational and inspirational message in schools throughout Oregon and SW Washington!

EDUCATIONAL• DVD• Power Point• Brochures • GoRecycleYourself.com

INSPIRATIONAL• You!

Our goals

• Ensure students know how to register as donors

• Create youth advocates who can, in turn, educate their families and community:• Cultivate positive attitudes towards deceased

donation• Debunk myths or fears that impede

registration with facts, statistics, data• Raise awareness of the need for registered

donors

• Emphasize the importance of talking to family about your end-of-life wishes

How it works

1. Teachers contact Donate Life Northwest to request a free presentation on donation:1. Online2. 503-418-40353. education@donatelifenw.org

2. Staff arranges logistics, sends local volunteers an email with a link with all details + online registration

3. The first volunteer to RSVP will receive a confirmation email with details; materials will be mailed to them.

How it works, part 2

4. Donate Life mails the teacher a packet of teaching materials for photocopying, including the PAPER REGISTRATION FORM, handouts, quizzes, and homework assignments.

5. Arrive at the school, always check in as a Visitor.

6. Use tools from Donate Life to craft your educational, inspirational presentation!

7. Hand out evaluations to each class. Collect, read for your own benefit, and mail back to Donate Life.

How it works, part 3

8. Follow-up from Donate Life staff: an online survey, phone call, or email. Please let us know how it went! Do you have suggestions, challenges, questions?

9. Consider attending ongoing training in January and March (in Portland) to meet fellow SSB and go in-depth with our tissue and organ coordinators

Our expectations

School Speakers Bureau (SSB) attend an annual Fall training to review our Donate Life power points & school program; may attend additional trainings in Winter/Spring

SSB members utilize tools provided by Donate Life, to ensure that various and highly complex aspects of donation receive equal parts attention and education

SSB members represent our agency in both professional dress and speech

SSB members present registration as a personal choice, not an obligation. Our job is to help students make an informed decision – not to pressure them.

School expectations

Visitors speak professionally and appropriately to youth audiences

The Donate Life Power Point is the ‘bulk’ of a Donate Life presentation; as such it can be submitted to school administrator’s for presentation approval

Donate Life presentations encourage students to think critically about their personal health decisions, and how this impacts their family and community

Visitors arrive on time, and check in as Visitors at the school’s main office

Your personal story

Your personal story can be a significant influence on someone’s decision to register. At the same time, we must meet certain criteria in order to be invited into schools! Please let staff know if you need ideas or assistance to ensure that your presentation balances neutral, fact-based information (the purpose of our Power Point!), and your personal story.

Option 1:

• Set aside 15 minutes to devote exclusively to your personal story, after you have guided students through the Donate Life Power Point.

Option 2:

• Incorporate your pictures and story within the Donate Life Power Point. Please do not delete slides to “make room”, rather, add slides, or personalize existing slides with your own images.

Resources for you

School Speakers Bureau Manual• Please review! Contact us with questions.

• EDUCATIONALwww.donatelifenw.org/content/ambassador-tools• The most recent Power Points• Links to all videos you can use in the

classroom

• INSPIRATIONAL• http://donatelifevoices.org/tools-and-gear/ • Various tools and tips for telling your personal

story

Tips!• Hand out brochures and evaluation forms prior to speaking.

• Encourage students to ask questions throughout your presentation. Pause between sections and ask if anyone has a question. This will add time, but keeps things interactive.

• Be honest : you are/are not a medical professional. Nonetheless, you’ll answer questions to the best of your ability!

• If students have too many or very complex questions, have them write down their question on the back of the evaluation form.

• Give your voice a rest: click on hyperlinked videos throughout the presentation.

• At the presentation’s end, offer the students a sticker in exchange for their completed evaluation form.

And now, for the tools

1. “Science” Power Point Brown background, you are looking at it! For use in science, biology, anatomy,

health careers classrooms Contains graphic images, detailed info

2. “General” Power Point Blue background, on website For health, driver’s education, or other

classrooms

Your Decision to Donate:Facts about organ, eye and tissue donation & transplantation

Oregon: Your Decision to DonateWashington: It’s Your Choice

What is Donate Life Northwest?

• Oregon Donor Registry

• non-profit health education

“What does that “D” on my license mean?”

Hospitals and Transplant Centers

Organ, eye and tissue procurement organizations

Regional Partners

Oregon DMV

Real donors save lives

Evan

Melanie

A growing health crisis…

2005 2006 2007 2008 2009 2010 2011 2012 20130

20000

40000

60000

80000

100000

120000

The National Donor Gap

Waiting List for OrgansDeceased donorsLiving Donors

Year

Pati

ents

on t

he U

.S.

Wait

ng L

ist

for

Org

ans

You could fill Autzen Stadium twice over with everyone on the U.S. Waiting List!

Communities of color make up 56% of the U.S. waiting list

1/3 of African Americans suffer from high blood pressure.

Hispanic Americans are 3x more likely to suffer from Type II Diabetes

Native Americans are 4x more likely to suffer from Type II Diabetes.

Asian Americans suffer significantly from liver disease.

Life on the waiting

list

• Ben’s Story: Waiting for a Transplant

1. Doctors refer sick patient to a transplant center

2. A committee of doctors, surgeons, and hospital staff decide whether a patient is a candidate for transplant

3. A transplant candidate is added to the national waiting list

4. People stay on the national waiting list for days, months, or even years.

Waiting today in Oregon

Kidney Liver Heart

Female 271 37 6

Male 484 100 15

As of September 1, 2013

Visit www.unos.org for today’s numbers.

In the United States…

On average, people will die today for lack of a donor.

Another name is added to the national waiting list every minutes.

11

18

two kinds of donors

Living donations

Deceased donations

living donation

• blood

• bone marrow

• partial liver

• partial lung

• one kidney

living kidney donation: the challenge

In the majority of cases, kidney donors are incompatible with their intended recipients – even if they are family. They must clear three “hurdles” before they can donate their kidney to a specific person:

If a donor and recipient do not match, a donor can still choose to donate to someone else in need – a friend, or even a stranger.

#1: Donor is healthy

#2 CompatibleBlood types

#3: Cross match

A Very Brief History of Transplantation

1878: First bone transplant

1906: First cornea transplant

1908: First skin allograft

1954 : First kidney transplant (between identical twins)

1967: First heart transplant

1968: Uniform Anatomical Gift Act allows gift of organs to others, USA

1981: First heart-lung transplant

For more, visit Gift of a Lifetime

Dr. Joseph Murray, American, performs first kidney transplant.

Recycle Yourself:Facts about deceased donation

It is your decision at DMV…

You will be asked whether you want to register as a universal anatomical donor upon death when you apply for or renew your DMV license, permit or identification card.

Yes! I wish to donate my…. Organs Corneas Tissues

… to save or enhance someone’s life after I die, if possible.

And/or, it’s your decision online…

Update or change your designation any time

Can specify limitations

Oregon’s Registry is smartphone-friendly

Free

www.DonateLifeNW.org/register-now

Why not register? Myths & Misconceptions

Strongly held myths and misconceptions are major barriers that prevent some people from registering as organ, eye and

tissue donors.

Organs which can be donated after death

Heart

Lungs

Liver

Kidneys

Pancreas

Small Intestine

One organ donor can save up to eight lives.

Commonly Donated Tissue

cornea donations

Each year over 46,000 people have their sight restored with a cornea transplant

Cornea transplant surgery has a success rate of 95%

the need for corneas

• hereditary

conditions

• injury

• Disease / infection

John’s Story

keratoconuschemical burn

Research

Research on glaucoma, retinal disease and eye complications of

diabetes rely on human cornea donations—leading to advanced

treatments and cures

Penetrating Keratoplasty

The original cornea procedure, it is called ‘Penetrating’ because it is a

full corneal thickness graft.

A trephine “punches” a hole out of the donor tissue, and a

corresponding hole for the recipient.

The tissue ‘button’ from the donor cornea is then sewn into the corresponding space for the

recipient. It is then sewn in with a running suture around the

interface.

Cornea transplants…

1. remove diseased layer 3. put healthy layer in place with fluid injection

2. insert healthy donor layer

4. insert air bubbles 5. transplant held in place by air pressure

6. small incision sealed with minimal sutures

Cornea transplants…

• heart valves are used to repair congenital heart

defects

• saphenous veins areused for vascular disease surgeries, such as heart

bypass surgery.

life saving tissue grafts

life enhancing bone grafts

• replace cancerous bone prevent need for amputation

• treat a wide range of medical conditions: spine surgery, joint reconstruction and treatment of trauma

Tyler’s Story

bone grafts can help over 50 recipients

life enhancing ligaments, tendons and skin

• ligaments and tendons are most commonly used in sports-related injuries

• skin grafts are used as a biological bandage for

burn victims

Jeremy’s Story

One tissue donor can save up to 50

lives.

the power of organ transplantation

before after

diseased / healthy

diseased / healthy

diseased /healthy

diseased / healthy

Donation & Transplantation: How does it work?

OrganDonor.gov

#1: lifesaving efforts

The patient is admitted to hospital, and ALL possible lifesaving attempts are made to save the patient’s life by hospital staff. Most potential organ donors are victims of a severe head trauma, a brain aneurysm or stroke.

• Only AFTER death is declared can donation take place.

An individual must meet the very specific medical criteria of ‘brain death’ before organ donation can take place.

understanding cerebral death

The image on the left shows the blood flow inside a normal, active brain.

When someone severely injures their brain, the blood flow is cut off or restricted by pressure from the swelling brain. Brain death occurs when the blood flow to the brain is entirely lost. It is the complete and irreversible loss of brain and brain stem function.

The photo on the right is of a deceased brain.

#2 Consent• The hospital notifies Pacific

Northwest Transplant Bank of

every patient that has died, or for

whom death is imminent.

• Recovery Coordinators search the

state’s donor registry to see if

deceased had enrolled as a donor:

• If deceased is not registered or under 18,

the Recovery Coordinator will seek consent

from next of kin.

• If deceased is registered, the Recovery

Coordinator will inform kin of their decision

to be a donor and will involve them in the

process.

#3 Matching donors with recipients

The UNOS computer system generates a list of individuals ranked in order of which potential recipient is the best match. The following criteria determine the best match:

Body size Blood type

Time waiting Medical urgency

Proximity of donor and potential recipient (distance)

Age, race, gender, and financial status are NEVER considered!

#4 Recovery

Recovery Coordinators:

• Decide which tissue or organs are healthy enough to consider for transplantation• Coordinate surgeons for the organ and/or tissue recovery• Like other operations, the recovery surgery takes place in an operating room, in

the same sterile and careful way as in any surgery• All incisions are surgically closed and do not interfere with open-casket funerals.

logistics

Myth or

Reality?Number of Hours for Viability

Heart 4-6 hoursLungs 4-6 hoursLiver 4-16 hoursPancreas up to 14 hoursKidney up to 36 hours

Cornea up to 14 hoursTissue up to 24 hours

#5 Post-recovery

• There are no costs to the donor family for the donation process.

• Donor families are offered bereavement services and support.

#6 Transplant

Recovery Coordinators:

• Transport the organs to the recipient’s hospital

Those on the waiting list:• Get “the call”• Prepare for surgery…

life after transplant

almost normal…

• possibility of rejection

• immunosuppressant drugs

• post-transplant check-ups

The future of transplantation…

Bioengineered organs or tissues?

Stem cell therapies?

Bionic body parts?

Limb transplants?

Improved preservation technology?

Check out GoRecycleYourself.com!

Do you have a future in donation and transplant?Chemists Can be involved in developing medicines to help organ recipients.

Dialysis Technicians Oversee the process of administering dialysis to kidney patients.

Immunologists Study and research the body’s immune system, and develop ways for body to accept a transplant with fewer side effects.

Lab Technicians Help catalog, store and test tissues, blood samples, and other important information.

Nurses Assist in treating recipients and donors, and assist in surgery. Typically have critical care experience

Nutritionists Help recipients maintain a diet that will help them regain their health during recovery

Pharmacologists Scientists who deal with the preparation, uses and effects of medications

Physical Therapists Help organ recipients recover physical strength and resume normal activities

Physicians Diagnose and treat diseases that may result in organ failure. Provide treatment and prescribe Rx for individuals waiting for transplant

Radiologists Determine best use of x-rays and x-ray therapies in the medical care of donors and transplant recipients

Researchers Chemists, biologist, radiologist, and others help develop new drug treatments, methods of transplantation, ways to treat recipients

Transplant Coordinators

Counsel the family of a recently deceased person about the option of donation, and help oversee the medical management of the donor and placement of the organs.

Transplant Surgeons

Specialize in the transplantation of particular organs; also recover organs from donors.

You are not too young to register!

Ages 13 and up can register online or with a paper form

Ages 15 and up can put a “D” / heart on their license

Parental consent is not required to register.

However, if you become a donor while under 18, your next of kin will always be asked for consent before donation can occur.

You could be the legal next of kin for your parents and siblings.

Do you know what their wishes are?

Please discuss your wishes with your family today!

You can help

Online at www.DonateLifeNW.org (OR)Oregon’s registry is smartphone-friendly!

www.DonateLifeToday.com (WA)!

D / on your DMV license/permit/ID

Talk to you family about your decision.

1.

2. 3.

in Oregon & Washington

DonateLifeNW.org

Learn more and register online…

Presentation’s over. Now what?

• Encourage students to consider organizing a campus or community donor drive! Just contact Donate Life Northwest; we’ll mail them a free box of tools to make it happen. This is a great idea for clubs, senior or leadership projects, etc.

• Collect the evaluation forms (perhaps offer a sticker in return). You’ll mail them back to Portland using an SASE envelope we provide.

• Thank the teacher for hosting us.

• Drop off a pile of Student Project flyers in the counseling center, or leave with the teacher.

THANK YOU!

Donate Life Northwest 2013-2014 School Speakers Bureau

Valerie Egan, Education Outreach Coordinatoreducation@donatelifenw.org503-418-4035