TheParkinson’s Update - Parkinson Society Southwestern ...€¦ · to support new and existing...

A Magazine for the Parkinson’s Community of Southwestern Ontario

WINTER/SPRING2017

Issue 65 8 10 16Communication Nutrition Driving

TheParkinson’sUpdate

2 The Parkinson’s Update

From TheCEO’s Desk

MISSION STATEMENT

BOARD

STAFF

Parkinson Society Southwestern Ontario is the voice of people living with Parkinson’s in SouthwesternOntario. Our purpose is to ease the burden and find a cure through support services, education, advocacy and research.

Brad Richards (President)Joseph Salamon (Treasurer and Secretary)Haad AsadAnthony BenderAlysia ChristiaenChris CurryCarol KraftJoshua MuldersDr. Michael RavenekBill ReaBev ZaifmanDr. Mandar Jog (Honorary)

Shelley Rivard CEO

Joanne BernardManager of Administration

Steve HicksonCoordinator of Special Events

Rose JohnstonCoordinator, Programs and Services

Vickie ThomasCoordinator of Volunteer Development &Administration

A special thanks tofor their significant contribution to this newsletter.

Sincerely,

Shelley RivardCEO

Partners in the Fight Against Parkinson’s

Parkinson Society Southwestern Ontario had an incredible year in 2016. With our community partners and volunteers, we worked hard to reach more people with Parkinson’s, effectively and efficiently through many activities in the region. From our Support Groups and Conferences to our April Awareness events and Carepartner Day, it is our hope that everyone feels supported and that no one faces Parkinson’s alone.

In September 2016 we asked your opinion about local research. As a result of your responses, Parkinson Society Southwestern Ontario has launched its first Graduate Student Research Program. We are excited to be announcing the award recipients on April 11, 2017 at our Medical Reception to honour our medical partners (see ad on page 4).

Also in September, WALK-IT for Parkinson’s was a huge success! Thanks to our walkers, volunteers, sponsors and donors, over $358,000 was raised to support new and existing Parkinson’s programs. We asked you to join the movement by taking the 1,000,000 step challenge and you did – an amazing 4,612,734 steps were taken!

In October, Tim Hague left his mark at our 2016 Fall Regional Parkinson’s Conference in Kitchener, sharing his ‘Live Your Best’ message. Tim received many great comments such as “very helpful and comforting”, “glad I came today, so inspiring” and “it made a difference to my dad and me – thank you for being an example and sharing faith”. Our Spring Regional Parkinson’s conference promises to be another great educational experience (see page 19 for details).

We are building on our success of 2016 by offering new programs that include the Parkinson’s webinar series, quarterly e-newsletters, Rock Steady Boxing (see page 17) and Aware In Care hospital kits (see page 9). We will continue to provide many great programs such as April Awareness events, conferences and carepartner workshops.

Thank you for your support and dedication to Parkinson Society Southwestern Ontario. Together we can make a difference in the lives of those living with Parkinson’s.

PSSO Team (from left to right): Steve Hickson, Coordinator of Special Events; Vickie Thomas, Coordinator of Volunteer Development & Administration;

Shelley Rivard, CEO; Rose Johnston, Coordinator, Programs and Services; Joanne Bernard, Manager of Administration.

3The Parkinson’s Update

117- 4500 Blakie Road, London, ON N6L 1G5Phone.................................................Toll Free.............................................Fax......................................................

e: [email protected]: www.parkinsonsociety.ca

www.facebook.com/ParkinsonSociety

www.twitter.com/ParkinsonSWO

Although we make every effort to ensure that the information in The Parkinson’s Update is accurate, we cannot take responsibility for any errors or omissions. Information is sometimes taken from letters to the editor, submissions from the Internet or other print material. We make an effort to acknowledge all of our sources.

The information is not intended to take the place of professional medical advice. If you are a patient currently being treated and have questions, or if you think you have Parkinson’s but have not been diagnosed, please seek the advice of a medical professional. This information does not replace consultation with your physician.

Recycle andCreate Awareness

(519) 652-9437

(519) 652-92671-888-851-7376

A Message from the PSSO Board PresidentBrad Richards,President,Parkinson Society Southwestern Ontario Board

Annual General Meeting and Volunteer Appreciation Reception

Speaker: Kate Young, MP London West

April 29th, 2017 11:00 a.m. – 1:00 p.m.

Goodwill Industries – London(205 Horton Street)

*Members are encouraged to attend.

*Members are defined as those who have paid their membership fee and those who are monthly

donors in the Southwestern Ontario Region.

To find out how you can become a 2017 member, see the advertisement on page 7. You

can also become a member by registering as a monthly donor by

contacting Shelley Rivard at 1-888-851-7376 or

[email protected].

It has been a pleasure serving as President of the Parkinson Society Southwestern Ontario (PSSO) board for the past year and I am encouraged to see many exciting changes. The PSSO board is in the process of forming new sub-committees to enhance Parkinson’s support services and research in Southwestern Ontario.

The Research Program Adjudication committee will be reviewing applications for the 2017 Graduate Student Research Program. The award(s) will be presented at our Medical Reception (see page 4).

PSSO has been assessing existing programs and researching community needs in order to offer the most suitable programs in the Southwestern Ontario community. Of course funding of programs is a necessity. If you are interested in helping to fund existing and future programs, please consider joining the Monthly Giving Club (see page 7).

On behalf of the board, a big ‘thank you’ goes to Anne Kinzie and Joanna Kurowski for their volunteer service on the PSSO board. We also welcome Joshua Mulders as our newest board member.

Anne Kinzie came to PSSO because her mother had Parkinson’s. Anne has been a dedicated and passionate board member since 2011. She has been part of the finance committee and has organized several golf tournaments over the past few years. Although Anne will be missed, she will continue to volunteer by running the HollisWealth Charity Golf Classic in the Waterloo region (see page 24).

Joanna Kurowski joined the PSSO board in 2016. Her expertise in communications and marketing has helped bring awareness to Parkinson’s. Because of competing priorities Joanna has to step back from her role on the board. We wish Joanna all the best in her future endeavours.

Joshua Mulders comes to the PSSO board with experience in the area of human resources as well as board experience with the Northwest London Resource Centre. We look forward to working with Joshua and sharing new ideas.

It has been an honour to be president of the PSSO board. Thank you to the hard-working and dedicated staff for all of their efforts and I look forward to another exciting year in 2017!


Tim Hague

Tim Hague brings a rich mix of attributes and history to his storytelling. Having been born in Texas, Tim was adopted and grew up in the State of Kansas. At the age of 25, Tim and his young wife Sheryl moved to Winnipeg, Canada, setting out on what has proven to be a truly amazing journey. Tim earned his Registered Nurse designation in 1995 and has cared for many Parkinson’s patients throughout his career. In addition, Tim’s adopted father also had Parkinson’s, which added to the deep understanding and compassion that Tim holds for people living with Parkinson’s. Tim is far too well acquainted with this disease. However, it is this close professional and personal association that brings power and poignancy to his presentations.

“I have watched people die in despair and I have witnessed my father live in victory despite his ongoing suffering with this disease called Parkinson’s. His legacy of determination and courage is what motivates me to both follow his example and help others ‘Live Your Best’.” – Tim Sr.

Tim was formally diagnosed with Young Onset Parkinson’s Disease in February, 2011 after first noticing a tremor in his left foot during the fall of 2010. The diagnosis came as a shock to an otherwise healthy individual. After a period of initial struggle, Tim got back on his feet continuing to work out and leading a healthy lifestyle. He successfully trained for and ran his first triathlon in the summer of 2011. Since that time, Tim has continued to partner with various organizations to encourage physical activity among people with Parkinson’s. Tim strongly promotes physical activity as it has been shown to have significant positive impacts for people with Parkinson’s.

In 2013 Tim and his son Tim Jr. applied for, competed in, and subsequently won the first season of The Amazing Race Canada. This incredible journey has had an indelible impact on Tim’s life. Having been the first person with Parkinson’s to ever run and win The Amazing Race Canada, Tim has been thrust into the spotlight as an advocate for Parkinson’s. This is a role that he has embraced and continues to use in order to educate and raise resources toward the work of finding a cure and helping individuals living with Parkinson’s to live their best.

Winning The Amazing Race has also created the opportunity for Tim to speak to thousands across Canada and the U.S. encouraging them to ‘Live Your Best’. This message is wrapped in the idea of having the Strength to do your best, the Courage to be content with what your best produces, and the will to Persevere. Tim has shared his message of living and excelling through adversity with small and large audiences, from the schoolroom to the boardroom. Tim’s message is personal and powerful. It moves beyond the mere ‘fluff’ of the typical motivational speech and teaches how to prevail and overcome life’s struggles.

Now in his early 50’s, Tim is married to Sheryl and has four children and one grandchild. He lives and works in Winnipeg, Canada.

Note: Tim Hague presented ‘Live your Best’ at the Fall Regional Parkinson’s Conference in Waterloo. To view his presentation, go to https://parkinsonsociety.ca/videos-and-audios/

I Have Parkinson’,s

But It Doesn’,t Have Me

Celebrate World Parkinson’s Day and honour our Medical Partners in the Southwestern Ontario community. Our 2017 Graduate Student Research Program recipient(s) will be announced.

Tuesday, April 11th, 20176:30 p.m. – 8:00 p.m.

Michael’s on the Thames (1 York St, London)

Wine & hors d’oeuvres will be served

Please RSVP by March 24th, 2017 by calling 1-888-851-7376

Medical Reception


Lawrence Boom

I Have Parkinson’,s

But It Doesn’,t Have Me

We are always interested in short stories involving our Parkinson’s community. If you have Parkinson’s, are caring for someone with Parkinson’s or if you are a Parkinson’s volunteer, we invite you to submit a story, no more than 500 words. Also, if you have tips for living better with Parkinson’s, please give us a call at 1-888-851-7376.

Although all submissions will be considered, we cannot guarantee that your submission will be published.

Do You Have a Story to Share for The Parkinson’’,s Update?

It started as a feeling of discomfort, a slight pain in his shoulder and neck. He put it down to his active lifestyle combined with now being sixty – just regular muscle pain. But over the next year the discomfort progressed through the right side of his body and the tremors began. Holding a fork became difficult; tying his shoes was a challenge; his handwriting changed; even pouring a drink was tricky. When he received the diagnosis he envisioned a future in a wheelchair – or worse.

But Lawrence Boom is a fighter. Literally.

Boxing is his passion. He boxed competitively for thirteen years until the age of twenty-seven. He then continued to train and coach at various gyms throughout his professional career. He worked with street kids and later led Unity Project, a homeless shelter and transitional housing organization in London, Ontario. But at fifty, Lawrence decided to leave the not-for-profit world to follow a dream and open his own boxing club. That’s when Boomerz Boxing on Richmond Street in London was born.

However, the break from not-for-profits didn’t last long. After being diagnosed with Parkinson’s, Lawrence discovered Rock Steady Boxing (rocksteadyboxing.org), a not-for-profit with the mission to empower people with Parkinson’s disease to fight back. Rock Steady Boxing helps people with Parkinson’s experience an increased quality of life through a non-contact boxing-based fitness program and it is delivering exceptional results. Lawrence spent two days at the Indianapolis corporate headquarters learning the boxing skills and techniques needed for the Rock Steady method and how intensive exercise impacts Parkinson’s. He now runs this program at Boomerz.

Lawrence’s passion and commitment to this program are strong. “What impresses me the most is the enthusiasm of the participants; the teamwork and support is incredible. People challenge each other, create contests and celebrate success – all along with a bit of good-natured ribbing on occasion. Like so many others, when I received my diagnosis, I felt lost and alone. No one feels alone going through the Rock Steady program. No one feels sorry for themselves. It’s a very social and supportive environment that is changing how people feel about their Parkinson’s – emotionally and physically.”

As a result of this success, Lawrence and his wife, Veronica are now in the process of looking for a larger, accessible site to continue their work with Rock Steady Boxing, making it easy for anyone, including those with walkers or wheelchairs, to participate in the program.

Lawrence understands the need for strong supports for those dealing with Parkinson’s, whether in the gym or at home. Rock Steady offers ‘cornermen’ – friends or family members who support those working through the boxing fitness program. They attend the sessions, train and work with their friends and partners to help them achieve the best non-contact boxing experience possible. Supports at home are also essential. “Veronica is my rock. With the ongoing hand tremors, the small things for me are frustrating. Now when I put on my shoes, Veronica is there to take care of the laces; I never have to ask.”

Lawrence also offers sound advice for anyone just diagnosed with Parkinson’s. “The first few weeks are hard, but you have to just put one foot in front of the other and keep moving forward. If you are active, remain active. If you’re not active, then get active. Even walking every day can make a difference. For me, I know I can’t control what the future will bring, and some days I have to adjust and adapt to the changes I’m going through. But for now I’m going to keep on doing what I’ve been doing all my life - I’ll just keep punching.”

To find out about Rock Steady Boxing, go to page 17.


Dr. Mandar Jog trained in Neurology and Movement Disorders at the University of Toronto and completed a post-doctoral fellowship

in Computational Neuroscience at the Massachusetts Institute of Technology in Boston. Currently, Dr. Jog is a Professor of Clinical

Neurological Sciences at Western University. He is the Director of the Movement Disorders Program at London Health Sciences

Centre. The Clinic has received the prestigious designation of ‘Centre of Excellence’ awarded by the National Parkinson

Foundation, Inc.

There are conflicting reports on alcohol consumption while taking Parkinson’s disease medication. Is it safe to consume alcohol?

For products/equipment/therapies found online that claim to assist those living with Parkinson’s disease, what is your professional advice regarding ensuring accuracy/validity of these sources?

QA

QA

It is obviously a difficult question to answer very simply. However, daily consumption of a small amount of alcohol such as a glass of wine or a beer in that order, is not a problem at all with Parkinson’s disease. There is no interference with medications as such and I would of course, not suggest that you take your medications along with the alcohol. That should be separated, just simply from the point of practicality. Heavy consumption of alcohol is harmful to one’s health and not specifically so in the case of Parkinson’s disease. Therefore, there is no contraindication in having a drink, although I would suggest that this should be kept under usual social moderation.

The answer to this is very simple, if there are therapies available and products available that would help the quality of life for the patient and caregiver, your doctor would be the best person to tell you those things. It is not a bad idea to do the online research and potentially bring these to the physician, but I certainly would not encourage anyone to buy anything online without getting the opinion of a specialist. Your specialist should have the ability to tell you and guide you with respect to the reliability and accuracy of these sources. If the specialist is not aware of the specific online therapy, then he or she would be more than happy to look into it for you and get back to you with respect to the validity. Again, the caution is related to the fact that there are many claims that make profit-based on non-validated data and this overall is dangerous to do.

If a loved one with Parkinson’s disease is experiencing violent sleeping tremors/movements, is it best to wake them? Do you have a suggestion how to handle this issue?

Ask TheExpert

QA

Patients with Parkinson’s disease can experience a condition called REM sleep behaviour disorder (RBD). During this particular state of sleep called REM sleep, many patients will have vivid dreams and nightmares which they act out. This is different than the typical Parkinson’s disease symptoms. The treatment of course is also different. Usually the physician has to first diagnose this condition specifically as RBD. Upon diagnosis, medications such as Clonazepam, Melatonin and even a low dose of atypical antipsychotics can be used for treatment of this condition. Of course, if it is not RBD and the patient is awake and experiencing wearing off in the middle of the night, the treatment is different. Therefore, the best response is to consult your physician and describe the symptoms very clearly so your doctor can make the diagnosis whether the nighttime symptoms are a return of the symptom of Parkinson’s disease in the middle of the night (because of wearing off of Parkinson’s disease medications) or new symptoms of RBD behaviour. RBD is extremely common in patients with Parkinson’s disease and that differential diagnosis has to be made because the treatment as mentioned above is quite different.

If you have a question for ‘Ask the Expert’, please write to: The Editor, Parkinson Society Southwestern Ontario, or email: [email protected]. Although all questions will be considered, we cannot guarantee that your question will be published.

The information and opinions presented in the articles are those of the professionals who submitted the articles for publication and do not necessarily reflect the opinion or viewpoint of Parkinson Society Southwestern Ontario. Parkinson Society Southwestern Ontario will not be held liable for the information presented.


QA

There are no biomarkers at this time that have been validated for Parkinson’s disease. Scientists have looked at many including blood products, cerebral and spinal fluid and lumbar puncture products as well as imaging biomarkers that have not yet been validated as being reliable enough. Markers such as loss of smell, sleep dysfunction and depression are too non-specific to be used for diagnostic purposes. Most of these do not correlate well enough with the early patients to make the biomarkers useful diagnostically.

As far as the heredity of Parkinson’s disease is concerned, most Parkinson’s disease is currently not known to be hereditary. The claims are that somewhere between 10-25% of patients will have hereditary predisposition for Parkinson’s disease but only in a small group of patients can a very clear hereditary link be diagnosed genetically. Therefore, at the moment, Parkinson’s disease is considered to be idiopathic. The common advice that I give to patients is that the higher the number of immediate family members with Parkinson’s disease, the higher the overall risk. However, this risk is not generally quoted as a number to individuals. Therefore, the advice is that as far as we know, the typical Parkinson’s disease patient does not have a strong family history and it is not considered to be a hereditary disease.

What do we know about biomarkers and Parkinson’s disease? Is Parkinson’s disease hereditary?

Ask TheExpert

Our Monthly Giving ClubPlease consider joining our Monthly Giving Club. Monthly gifts provide a secure funding base for Parkinson Society Southwestern Ontario and lowers administrative costs. This allows us to direct more money to our vital services throughout the region.

As a monthly donor you will automatically become a member and waive the $30 membership fee.

Membership Matters!There is strength in numbers, and a strong, supportive membership:

• ensures programs and supports are in place for people with Parkinson’s in Southwestern Ontario;• demonstrates a commitment to the work of our organization; strengthens our credibility and strong connection with

the community;• lends weight to our request for funding from foundations, government or corporations; and,• influences our community leaders to listen when we speak to them about issues that affect people with Parkinson’s

and their families and caregivers.

Benefits of your $30 membership (free if you’re a monthly donor) include:• a donation receipt;• having a voice in the programs and services offered to people with Parkinson’s in Southwestern Ontario;• a vote at the Annual General Meeting to elect members of the volunteer Board of Directors and approve the

organizational by-laws and audited financial statements;• receiving The Parkinson’s Update, a bi-annual magazine that contains helpful information and strategies for living

well with Parkinson’s;• receiving advance notice of special events, educational workshops and seminars through regular member

correspondence.

Being part of the Monthly Giving Club and/or becoming a Member is easy:• complete the blue monthly giving/membership form and mail to Parkinson Society Southwestern Ontario; or• complete the online form at www.parkinsonsociety.ca or call us at 1-888-851-7376.


From TheResource Centre Communication and Parkinson’’s

Angela Roberts, Ph.D., Reg. CASLPOAssistant Professor; Roxelyn and Richard Pepper, Department of Communication Sciences and Disorders Principal InvestigatorLanguage and Communication in Aging and Neurodegeneration Research Group; Northwestern University, Evanston, Illinois, USAand Adjunct Research Faculty, School of Communication Sciences and Disorders; Western University, London, Ontario

“Communication is not only the essence of being human, but also a vital property of life” – John Pierce

Communication is a complicated interplay among a variety of processes including:

• Hearing and interpreting speech sounds• Memory• Organizing thoughts• Attention/focus• Selecting and ordering words to convey the speaker’s intent and ideas• Articulating speech sounds through a finely coordinated sequence of motor events• Speaking with sufficient loudness and clarity to be understood by others• Gestural and facial expressions• Social language rules

PD can affect all of these communication-related processes resulting in loss of communication confidence and also breakdowns in conversation exchanges (e.g., misunderstandings or effortful communication).

Help for Communication Impairments in Parkinson’s

An experienced Speech-Language Pathologist (SLP) can help you select the best treatment options that optimize communication while reducing the likelihood of developing bad voice habits or voice damage from improperly performing voice exercises (even singing exercises).

Voice TreatmentsIn the Lee Silverman Voice Program® (LSVT) individuals with PD, learn to consciously use a louder voice through a series of targeted exercises and practice tasks. A number of studies have shown that LSVT® is an effective voice loudness treatment in PD. However, it may not work optimally for all individuals or in all speaking situations. LSVT® requires a substantial time commitment and a SLP who is certified in the treatment. A list of certified providers can be found on http://www.lsvt.org.

SpeechVive is a new device-based intervention that helps voice loudness by optimizing a natural response called the Lombard effect. The person with PD wears a small device, similar to a hearing aid. When their voice becomes too quiet, the device plays a background noise (similar to the sound of conversation in a restaurant) that can only be heard by the person with PD. This sound takes advantage of our natural and reflexive tendency to speak above background noise. Consequently, when the background noise is played, individuals raise their voice loudness ‘automatically’. Over time, the device actually helps to improve voice function, such that individuals have a louder voice even when not wearing the device. More information can be found on http://www.speechvive.com/.


From TheResource Centre Communication and Parkinson’s

Voice Amplification DevicesThese devices include a microphone worn by the individual with PD that connects to a speaker, which projects the amplified speech. While typical body-worn voice amplifiers may be good options for some individuals, they do not discreetly amplify the voice to a single listener. Other devices called FM systems, classically used for amplification of sound in hearing loss, can be used to achieve direct/focused amplification to a single listener or multiple select listeners with PD. An SLP can help you select an optimal device and also help secure funding from the Ontario Assisted Devices Program for covered devices.

Speech Rate DevicesIndividuals with PD can develop a very rapid speech rate (tachyphemia). While the concept of ‘slowing down’ seems simple, this strategy is difficult for individuals with PD. While a number of low-tech devices exist to help individuals pace their speech rate, a variety of smartphone and tablet based applications are also available. Another potential option, borrowed from the stuttering literature, is Delayed Auditory Feedback device (DAF). In clinical settings, DAF has been used to improve rate and understandability of speech in PD. However, with limited research the effectiveness of DAF is unclear.

Communication Strategy TrainingIn isolation or in combination with other voice therapies, individuals with PD and their conversation partners can benefit from learning to use communication strategies that are specific to the needs of the person with PD and their partner. Such strategies target not only voice impairments, but also changes in listening, finding words, organizing thoughts, etc. Emerging research suggests that individuals with PD and their carepartners benefit from joint weekly training sessions (over 4 to 6 weeks) reporting reduced burden and stress, improved communication effectiveness and efficiency, improved communication confidence and less social isolation.

Final Thoughts Communication interventions in PD should be viewed as dynamic processes that change over the course of the disease to meet the needs of individuals with PD, their families and communication partners. If you would like more information about this article, please contact Dr. Roberts at [email protected].

The Aware in Care kit is designed to protect, prepare and empower people with Parkinson’s before, during and after a hospital visit. Each kit contains tools and information to help plan for the next hospital stay – whether it is a planned visit or an emergency.

Pack the Aware In Care Kit with your medications. The kit contains:

Hospital Action Plan – helps prepare you for your next hospital visit.Parkinson’s ID Bracelet – wear at all times in case of an emergency.Medical Alert Card – complete and place in your wallet.Medication Form – complete and keep copies in your kit.Parkinson’s Fact Sheet – Share with hospital staff so a copy can be placed with your chart.I Have Parkinson’s Reminder Slips – share vital information about Parkinson’s with staff.Thank You Card – Present to a staff member who provides high quality care.Magnet – use to display a copy of your medication form in your hospital room.

The Aware in Care kit is $50 or free to members/monthly donors. Call 1-888-851-7376 or email [email protected] to request your Aware in Care kit.

Be Prepared for Hospital Stays with the Aware in Care Kit


From TheResource Centre Nutrition

Good nutrition is essential to living well with Parkinson’s disease (PD). While there is no prescription for a PD-specific diet, to maintain overall good health most people living with Parkinson’s should eat a variety of whole grains, vegetables, fruits, milk and dairy products, and protein-rich foods such as meat and beans. Consider also including nuts, olive oil, fish and eggs to your diet, for their beneficial fats. In addition, you can choose foods to optimize your medications and help to ease Parkinson’s disease symptoms.

What to Know: BenefitsPaying attention to diet may help to ease certain PD symptoms:• Digestive difficulties/constipation – Drink enough water (six glasses a day) and eat fiber-rich foods, including

brown rice, whole grains (breads with three grams or more of dietary fiber per slice), fruit and beans.• Medication management and overall symptom control – Take your medications with a full glass of water. It

may help the medication to be broken down by the body more efficiently.• Fatigue and sleep difficulties – limit sugar, alcohol, and caffeine intake particularly before bed, as they may

interrupt sleep.• Bone thinning – Vitamin D, found in fortified milk and milk products, helps maintain bone health. Ask your

doctor about taking a vitamin D supplement.• Brain health – Early research suggests that walnuts, cashews and other nuts, in small quantities, promote

brain health. Berries contain beneficial antioxidants. Foods that may have anti-inflammatory effects in the brain include salmon, tuna and dark leafy green vegetables.

What to Know: Challenges• Food and PD medications – Diet can impact your PD medications and vice versa. Levodopa medications,

such as Sinemet®, carbidopa/levodopa extended-release capsules (Rytary®) or carbidopa/levodopa/entacapone (Stalevo®), work best on an empty stomach. However for some people, the nausea caused by the drugs will make this impossible. For others, taking PD medications close to a protein-rich meal (e.g., meat, fish, eggs, dairy products, nuts and beans), may interfere with the absorption of the drug in the blood, causing it to work more slowly or less effectively. Talk to your doctor about the right option for you, whether taking the drug on an empty stomach or with a small snack, such as crackers or applesauce.

• Unintended weight loss – People with PD may eat less and lose weight because of difficulty swallowing, nausea from medications, or movement symptoms that make it difficult to eat. Address these issues, and also consider adding foods with healthy fats — nuts, nut butters and avocado — to your diet. Try bitter greens or spicy foods to stimulate your appetite. Exercise to increase hunger.

• PD symptoms and eating – Because of Parkinson’s symptoms such as tremor, stiffness or swallowing difficulties, eating certain foods may become challenging. Try eating foods that are easy to swallow. Put dishes on rubber mats to prevent them from slipping. Try weighted utensils and cups, or cups with lids or straws.

• Urinary Issues – Staying hydrated is important, but if drinking water leads to urinary urgency, try eating foods with a high water content in place of beverages, such as celery, butternut squash, grapefruit, strawberries and watermelon.

Talk to a registered dietitian for free: 1-877-510-5102 Call to request free nutrition information. www.eatrightontario.ca

Talk to a registered dietitian for free:1-877-510-5102

Call to request free nutrition information.www.eatrightontario.ca


From TheResource Centre

Tips for Getting Started• Changing your diet can be difficult. Try

making one change at a time, like eating a handful of nuts a few times a week, or avoiding white bread. Small changes can add up to big benefits.

• Consult with a registered dietician, who can help you plan menus and make shopping lists for preparing nutritious meals that you enjoy, and that account for your individual needs and the timing of your medications.

• Consult with an occupational therapist about assistive devices, including some mentioned previously, to make eating and drinking easier.

• If you experience anxiety or depression, talk to your doctor. These symptoms can suppress appetite.

• If swallowing issues are creating problems with eating, talk to your doctor about working with a speech and language pathologist to ease those issues.

Note: This article was originally published on the Parkinson’s Disease Foundation (PDF) website in August 2016. It is reprinted, in its entirety, with permission from PDF. For more tips, please visit www.pdf.org.

Nutrition (continued)

Progressive Supranuclear Palsy

Progressive supranuclear palsy (PSP) is a neurodegenerative disease that has no known cause, treatment or cure. It affects nerve cells that control walking, balance, mobility, vision, speech and swallowing. Five to six people per 100,000 will develop it.

Symptoms begin, on average, when an individual is in the early 60’s, but may start as early as in the 40’s. PSP is slightly more common in men than women, but it has no known geographical, occupational or racial preference.

PSP displays a wide range of symptoms including:• Loss of balance• Changes in personality such as a loss of interest in ordinary,

pleasurable activities or increased irritability• Weakness of eye movements, especially in the downward direction• Weakened movements of the mouth, tongue and throat• Slurred speech• Difficulty swallowing

Both PSP and Parkinson’s cause stiffness, slowness and clumsiness, a combination called ‘parkinsonism’. This is why early onset PSP may be difficult to distinguish from Parkinson’s. However, tremor, while prominent in about two-thirds of people with Parkinson’s, occurs in only about one in twenty people with PSP. A more common type of tremor occurring in PSP is irregular, mild and present only when the hand is in use, not at rest as in Parkinson’s.

Patients with PSP usually stand up straight or occasionally even tilt the head backwards and tend to fall backwards, while those with Parkinson’s usually are bent forwards. The problems with vision, speech and swallowing are much more common and severe in PSP than in Parkinson’s. Parkinson’s causes more difficulty using the hands and more stiffness in the limbs than does PSP. Finally, the medications that are so effective for Parkinson’s are of much less benefit in PSP.

For more information, go to www.curepsp.org.Gift Planning is the act of planning a gift to Parkinson Society Southwestern Ontario. Here are ways to make a difference through a bequest:

· Invest in PSSO’s greatest needs

· Contribute to a specific program

· Donate to research and help find a cure

· Commemorate a life

Making your gift of hope for today and tomorrow is easy. Call 1-888-851-7376 or email [email protected].

The Parkinson Legacy

• Parkinson Society Southwestern Ontario and our services

• Parkinson’s and Parkinson’s programs• Upcoming events, conferences and workshops• How you can help• Corporate/employee involvement• Signing up on our mailing list• And more …

Go to www.parkinsonsociety.caand find out about:



Understanding Apathy in Parkinson’s

Apathy occurs in as many as 40% of people with Parkinson’s disease (PD) yet it remains one of the more misunderstood non-motor symptoms. Current research identifies apathy as a condition separate from depression and anxiety, two common mood-related symptoms of Parkinson’s. While apathy is a separate condition, it is similar to depression and anxiety in that all three symptoms (apathy, depression and anxiety) are more likely caused by physiological changes in the brain than by psychological reactions to having Parkinson’s. In short, apathy is often a biological disorder associated with PD.

People who experience apathy are generally less interested in taking part in activities that help maintain their level of functioning. This can be extremely frustrating for carepartners/caregivers. Greater understanding of apathy and Parkinson’s is very important for individuals with PD and members of their support network. The purpose of this article is to give an overview of how apathy can differ from other Parkinson’s-related symptoms and to provide ideas for self-care and coping.

What are the Symptoms of Apathy? Apathy relates to behavioural changes including but not limited to: • Reduced interest in people and activities • Reduced spontaneous interactions with others or with pets • Lack of motivation and decreased initiation of activities • Flat/dampened affect (an inability to express emotions) • Changes in mood and thinking • Little or no goal-directed behaviour

What Causes Apathy in Parkinson’s? Apathy in Parkinson’s often results from physiological changes in the brain, specifically disruption in brain pathways as well as decreased levels of dopamine. Some cognitive problems common to PD, such as short-term memory loss and difficulty initiating behaviours, are also associated with the development of apathy.

Apathy can also be caused by an individual’s emotional reaction to living with a chronic condition. Apathy may be closely related to depression and anxiety, conditions which are treatable.

Apathy and Depression An individual who is experiencing apathy may have symptoms that are similar to those associated with depression, such as low energy and lack of interest. They may speak slowly or not at all for long periods of time. However, apathy does not share all cardinal symptoms of depression, for example: • Sadness • Hopelessness • Irritability • Thoughts of suicide • Anxiety

We are currently looking for healthcare professionals interested in being trained to give effective Parkinson’s In-Service Presentations in their own communities.

For more information, contact Rose Johnston at 1-888-851-7376 or at [email protected].

Wanted: Volunteer Trainers for PEP for Community Caregivers



Apathy and Fatigue Fatigue is an extremely common symptom of Parkinson’s. Fatigue has many similarities to apathy such as low energy, lack of interest in activities and low motivation. However, fatigue often relates to medication management. Bradykinesia (slowness of movement), dyskinesia and medication on/off periods can be unpredictable and exhausting.

Improved medication management can provide some relief from these symptoms, thereby reducing fatigue. If the symptoms of low energy, lack of interest in activities and low motivation are not resolved with improved medication management, they may be symptoms of apathy.

Apathy and Motor Symptoms of Parkinson’sIt is common for people with PD to have decreased facial expression, which can make a person appear sad or disinterested, when in fact they are not. The ‘Parkinson’s mask’ is often misunderstood by carepartners/caregivers and medical staff because the person appears apathetic. Compounding this problem is the soft voice common to Parkinson’s. Lack of facial expression and a soft voice can lead to erroneous assumptions on the part of others that the person with Parkinson’s is apathetic and/or depressed. It is possible that the person with Parkinson’s is not apathetic, but is having difficulty expressing him/herself.

The Impact on Carepartners/Caregivers Apathy is a symptom that typically has a greater negative impact on carepartners/caregivers than on a person with Parkinson’s. Many carepartners report feeling frustrated with the person they care for. It is not uncommon for them to feel they are working harder than the person with Parkinson’s. Without an understanding of the nature of apathy in PD, a carepartner/caregiver may start to see the person they care for as lazy, defiant, bored, difficult to motivate and generally unwilling to help themselves. This can become a highly stressful situation resulting in significant strain on the relationship.

Behavioural Treatment for Apathy Sometimes people with Parkinson’s don’t realize the impact apathy is having on their lives, as well as on the lives of their loved ones. It is important to bring forth any changes observed in the person with PD to the attention of the medical team. If a diagnosis of apathy is given, lifestyle changes may be encouraged: • Exercise – Physical activity has been shown to help manage symptoms of PD. • Create a schedule for physical, social and cognitive activities. • Maintain a regular sleep schedule. When well rested, people are better able to tackle daily tasks and live fuller

lives.

Some medication, although limited, may be helpful in individual cases. It is recommended to seek guidance from a medical professional.

Note: This article has been produced by, and reprinted with the permission of, Parkinson Society British Columbia.

Understanding Apathy in Parkinson’s

The Nominating Committee invites residents of Southwestern Ontario to apply to the Board of Parkinson Society Southwestern Ontario.

Please include the following information with your submission:

• Experience with governance of not-for-profit organizations • Personal experience with Parkinson’s• Familiarity with healthcare issues• Special skills that you can contribute

Call for Applications

For further information, please contact Shelley Rivard at 1-888-851-7376 or

[email protected].

REFERRAL FORM

APPOINTMENT WITH YOUR GP

CANADA’S LEADING CANNABIS-SPECIALIZED MEDICAL CLINICS.With 17 locations across Ontario, Canadian Cannabis Clinics (CCC) is Canada’s recognized leader in cannabis medicine. Our mission is to provide our patients with the highest quality of medical care and education.

1. How do I book an appointment with CCC?ANSWER: The first step is to get a referral from your GP. Ask your GP to complete our referral form, which can be found at www.cannabisclinics.ca and send us the necessary documentation. We will then get in touch with you and book an appointment.

2. Who gets a prescription for medical cannabis? ANSWER: Not everyone is a suitable candidate for cannabis medicine. If you are 25 years or older, have a confirmed diagnosis and have tried conventional treatments, you are likely to get a prescription. You may still be a candidate if you don’t meet the above criteria, but the chances are less likely.

3. How much does an appointment cost?ANSWER: If you have a valid OHIP card, your appointment is covered by OHIP and there is no cost to you. If you are from out-of-province, there is a $100 charge for an initial assessment and a $65 charge for a follow-up. You may apply for reimbursement through your provincial health care plan..

4. How long is an appointment?ANSWER: For your initial appointment, plan for it to take up to 2 hours, as we conduct a physical examination before the cannabis assessment and provide on-site cannabis education and counselling. Follow-ups are much shorter in duration.

5. How long does it take to get an appointment?ANSWER: Provided that we get all the necessary documentation from your GP, you will usually booked for an appointment within a week of your referral. However, often we require additional documentation which may cause the booking process to take longer.

6. What if I can’t get a referral? ANSWER: If you do not have a GP or your GP refuses to give a referral, you may self-refer. However, we will require you to provide medical documentation to prove your diagnosis and treatment history.

FREQUENTLY ASKED QUESTIONS

DELIVERYGET CONTACTED (3 DAYS)

REORDERING MONTHLY

RECEIVING YOUR CANNABIS-TREATMENT IN 4 STEPS

4 LI

CENSED PRODUCT

EDUCATION/ SUPPORT

CANNABIS COUNSELLING

STRAIN/ LP SELECTION

REGISTRATION

31

MEDICAL DOCUMENT

ASSESSMENT

2SEE OUR DOCTORGET A REFERRAL

1.888.256.7043 [email protected] www.cannabisclinics.ca



How Parkinson’’s Disease Affects Couples

With Parkinson’s disease, roles may change and sex can become a thing of the past — if you let it. But with some effort, you and your partner can maintain intimacy despite this debilitating illness.

Parkinson’s disease can be tough on a committed relationship. Since Parkinson’s symptoms are often debilitating and unpredictable, couples may find that both their expectations for themselves and each other are forced to change unexpectedly. Moreover, difficulties in sexual function brought on by the disease can further compromise intimacy.

Parkinson’s Disease: Effects on a RelationshipWhen people are diagnosed with Parkinson’s disease, their partners share much of the emotional impact. Long-term concerns about possible complications of the disease, side effects of treatment, and the potential toll on finances may all rush to the forefront. As Parkinson’s symptoms worsen, the healthy partner may have to take on roles and responsibilities previously held by his or her loved one. This can lead to resentment within the relationship and can leave the person with Parkinson’s feeling as if he or she is no longer able to contribute in a meaningful way.

Sexual Effects of Parkinson’s DiseaseIn addition to the emotional effects of Parkinson’s, the disease also has a direct impact on a person’s ability to function sexually. Parkinson’s can affect sexuality by:• Limiting a person’s ability to perform physically due to tremors, weakness or muscle rigidity• Causing erectile dysfunction in men and vaginal dryness in women• Leading to symptoms of depression and anxiety that dampen libidoParkinson’s can also have significant effects on the sexuality of the healthy partner. New demands brought on by caring for a loved one with a chronic illness can lead to fatigue, poor eating habits, lack of exercise and depression, all of which may curb the desire for physical intimacy.Parkinson’s disease medications can have an impact on sexuality as well. Some Parkinson’s drugs may reduce libido and make it more difficult to achieve orgasm. Other Parkinson’s therapies, such a L-dopa, may actually rev up sexual desire to an extent which some couples find it difficult to navigate.

Parkinson’s Disease: Maintaining IntimacyCommunication is critical to overcoming the relationship obstacles created by Parkinson’s disease. Patience and sensitivity are important as well. Partners need to talk about their feelings as openly as possible to maintain and enhance their sense of trust in one another. Being able to voice concerns can also help offset resentment.

Other strategies couples can try to help restore and protect their intimacy include:• Finding innovative, non-sexual ways to express love and admiration for each other• Focusing on other intimate acts such as kissing and touching, rather than solely pursuing sexual intercourse• Thoroughly discussing the sexual effects of the patient’s Parkinson’s medications during doctor’s appointments to

learn how to better manage sexual side effects• Undergoing couples’ counselling with a therapist who specializes in sexual issues related to chronic illness. The

therapist may also be able to treat depression or other mood disorders that are compromising either partner’s sexuality.

Dealing with any chronic illness can take its toll on a relationship. Parkinson’s disease can be that much more challenging since its symptoms can worsen swiftly and without warning. Even so, with guidance from the patient’s medical team and a sense of mutual understanding and appreciation, couples can maintain, and even enhance, their bond despite this difficult diagnosis.

By Dennis Thompson, Jr. | Medically reviewed by Niya Jones, MD, MPH

Taken from: http://www.everydayhealth.com/parkinsons-disease/when-your-spouse-has-parkinsons-disease.aspx 15

Driving and Parkinson,’s disease:

Resources, Opportunities and Possibilities

Dr. Liliana Alvarez, PhD, MSc, BSc (OT) and Dr. Jeffrey Holmes, PhD, MHK, OT Reg. (Ont.)

School of Occupational Therapy, Western University, Elborn College.

Changes with driving performance are often identified as an area of concern among individuals with Parkinson’s disease. To help address this concern, researchers have investigated the best ways to determine whether a person with Parkinson’s disease is at risk, and they have explored interventions that may help drivers with Parkinson’s stay on the road longer and in a safer capacity. In this article we highlight a screening measure designed to help identify drivers who may be at risk, and summarize some of the evidence-based intervention strategies that you may consider adopting as part of a driving rehabilitation plan.

Fitness-to-Drive Screening Measure (FTDS)The Fitness-to-Drive Screening Measure was created by a research team led by Dr. Sherrilene Classen at the University of Florida and further developed and validated by researchers at Western University. The FTDS is an online tool designed for older drivers, caregivers and/or family members and friends of older drivers to help identify drivers who may be at risk. The tool is free to access online (http://www.fitnesstodrivescreening.com/ca/) and entails users identifying if the driver has difficulties performing 54 specific driving skills. After completing the screening measure, a rating profile of the driver is available which includes a classification of the driver into one of three categories (at-risk driver, routine driver or accomplished driver). Based on the specific driver category, recommendations are provided as follow-up steps.

Evidence-based Driving Interventions Occupational therapists in Ontario are optimally positioned to partner with you in assessing your fitness-to-drive and designing a driver rehabilitation plan that meets your community mobility needs. Below are some examples of intervention strategies and practical steps that you may find helpful. As some of the recommendations listed may not be appropriate for everyone, it is recommended that you consult with a Registered Occupational Therapist before implementing these strategies. When considering the adaptations and technologies presented, it is also important that you receive adequate training on how these work and how to use them appropriately.

Vehicle Specifications, Adaptations and Training: • Automatic transmission (for those previously driving with manual gear shift) decreases the amount of coordination

and cognitive resources required to operate the vehicle.• A steering knob makes it easier to spin the wheel and maintain control of the vehicle1. • Hand-control braking allows the driver to brake when the lower extremities cannot be used to perform this function

in a timely and safe manner1. • In-vehicle technologies, such as Speed Advisory or Collision Warning Systems, use radars to monitor the

environment and alert the driver when the speed limit is exceeded (e.g., more than 10 to 15% of the speed limit) or warn the driver of an imminent collision2.



Help Us Reach New Heights ... Volunteer Today!

Call 1-888-851-7376 or email [email protected] find out about volunteer opportunities in your community.

(Continued on page 17)



The semi-annual Parkinson’s Conference provides information, education and support to people living and working with Parkinson’s in the Southwestern Ontario Region. Highly regarded by both those within the Parkinson’s

community and the healthcare profession, the conference is always one of the year’s highlights. Come individually, with your spouse or partner, or make it a road trip with your local Support Group!

St. George Banquet Hall665 King Street North, Waterloo

We have a fascinating lineup of speakers:

• Smartview mirror or Panoramic rearview mirror may assist with checking blind spots.• Stander Handy Bar or Car Caddy provide a surface to push off or pull down on to assist with entering and exiting

the vehicle.• Twist Assist Swivel Cushion or a Seatbelt Grabber may enhance car mobility.• Cognitive speed of processing training (SOPT) can improve processing speed3. The SOPT-retraining program

consists of computerized software in which the individual can practise visual and auditory tasks designed to enhance speed.

Partnering with an occupational therapist to address your community mobility needs can help you maintain your independence. Therefore, if you or someone you know has concerns regarding driving, you are encouraged to talk to an occupational therapist about these and other training/rehabilitation opportunities that are available.

Editor’s Note: For further information, please visit www.driveable.com.References:1. Singh, R., Pentland, B., Hunter, J., & Provan, F. (2007). Parkinson’s disease and driving ability. Journal of Neurology Neurosurgery and Psychiatry, 78(4), 363-366. doi: 10.1136/jnnp.2006.1034402. Dotzauer, M., Caljouw, S.R., Waard, D.D., Brouwer, W.H. (2014). Longer-term effects of ADAS use on speed and headway control in drivers diagnosed with Parkinson’s disease. Traffic Injury Prevention, 16(1),

Epub. doi: 10.1080/15389588.2014.9090373. Chou, K.L., and Cronin-Golomb, A. (2013). Feeling the need for speed (of processing training) in Parkinson disease. Neurology, 81, 1-2.

Let’s do lunch!

Tickets only $20 available atall Finch Auto Group dealerships,Budweiser Gardens box office, online at www.parkinsonsociety.ca, or call (519) 652-9437.

All proceeds go to programs and services for people with Parkinson’s.

11:30-1:30 @ BUDWEISER GARDENSMONDAY, JUNE 5

Sold Out Last Y

ear!

Join us for a showcase of some of London’s bestrestaurants and catering companies and theirSignature dishes!

For only $40 receive a wash, cut & style and a milk_shake hair care gift courtesy of Hello Beautiful.

Cambridge · Kitchener · London · Waterloo

It’s Not Cheating if it’s For a Good Cause

Sunday, April 30th, 2017 | www.ahairaffair.ca

Fight Parkinson’s with Rock Steady Boxing!

Rock Steady Boxing is taught by Certified Personal Trainers who focus on overall fitness, strength training, reaction time and balance. No boxing experience is necessary and people of all ages can participate. Parkinson Society Southwestern Ontario has partnered with Rock Steady Boxing to deliver a boxing program for people living with Parkinson’s. Starting in 2017 programs will be running in Kitchener (A.R. Kaufman YMCA) and London (Boomerz Boxing Club). See page 28 for program details. To find out more about Rock Steady Boxing or to find out how you can participate, call 1-888-851-7376.

From TheResource Centre Taking Medication

Managing medication is a complex role that often falls on a caregiver. It can mean going to the pharmacy, reminding the person to take medication on time or helping the person manage the side effects and interactions with other drugs. Whether to save time, to ease the management of the medication or to prevent omissions, here are some general tips to help you with this sometimes complex aspect of your role as a caregiver:

• Always keep an updated list of medications, including natural health products. To obtain a copy of the Parkinson’s medication card please call 1-888-851-7376 or email [email protected].

• Most pharmacies offer a delivery service (often free for seniors).• You can save some time by using the phone or online renewal service.• In order to facilitate identification, you can ask that the medication labels be printed in large characters.• To prevent oversight or mistakes, Dispill® Medication Distribution System may be a good solution. It is a disposable

pill dispenser, prepared by the pharmacist where each dose is sealed individually.• If your loved one takes medication that is not in a pill form (e.g., pump, dermal patch, cream), place it near the pill

dispenser to help the person remember to take it.• If you are away from home during the day, you can program an alarm on your cell phone/alarm clock/computer

for each time a medication needs to be taken. A simple reminder call to the person you are helping will reassure you.

• Never change medications without discussing with your doctor first.• If you suspect a medication over-consumption or under-consumption problem for your loved one, talk to the

pharmacist. The pharmacist can evaluate the situation and suggest adapted solutions.• Certain medication may affect behaviour and increase confusion. It is important to know the possible side effects

for each medication.• Prepare a list of questions that you wish to ask the doctor or pharmacist regarding your loved one’s medication.

The pharmacist is the expert on medications. This professional is easily accessible and available to help you and answer your questions. He/she can give you tips on drug management or administration or more specific tips depending on the situation. For more information on medication and how to administer medication to a loved one, contact your pharmacist.

Source : L’Appui Laurentides – La prise de médicaments : Une réalité complexe (in French)Note: This article has been produced by, and reprinted with the permission of Parkinson Quebec.


Order your Aware In Care kit today.

See Page 9 for details.

Your doctor wants you to get your medications on time.

In the hospital, 3 out of 4 people with Parkinson’s don’t.

Tuesday, May 30, 2017 | West Haven Golf Club

Silent auction, door prizes, contests, lunch and dinner

For more information, please contact Shelley Rivard at (519) 652-9437 or [email protected].

8th Annual Parkinson Golf ClassicPresented by Rembrandt Homes


Spring 2017 Regional Parkinson’s ConferenceSaturday, May 13, 2017

The semi-annual Parkinson’s Conference provides information, education and support to people living and working with Parkinson’s in the Southwestern Ontario Region. Highly regarded by both those within the Parkinson’s

community and the healthcare profession, the conference is always one of the year’s highlights. Come individually, with your spouse or partner, or make it a road trip with your local Support Group!

Holiday Inn & Suites, Ambassador Bridge, Windsor1855 Huron Church Rd, Windsor

Featuring:

Registration: $50

If you are travelling and want to stay the night, remember to book your hotel room early as space is limited. We have a block of rooms reserved at $129. Call 519-966-1200 to book your accommodations. Reservations must be made by April 19, 2017 and you will need to

mention ‘Parkinson’s Conference’ at the time of reservation. Please mention any accessibility requirements when booking.

Highlights of the Fall 2016 Regional Parkinson’s ConferenceSt. George Banquet Hall, Waterloo

Thank you to all of our speakers and sponsors for making our event a success!

To register, go to www.parkinsonsociety.ca or call 1-888-851-7376.

AbbvieArya Health Living Inc.

Equitable Life of CanadaLanark Place Seniors Living

MedtronicNordixx Pole Walking Canada Inc.

NovartisYurek Home Healthcare

Bath FitterRight at Home Canada

BioPedEnagic Kangen Waterwww.youthtonic.com

Philips LifelineSchlegel Villages

Seniors for SeniorsUrban Poling

The Village of Winston ParkWarm Embrace Elder CareWatson Travel Insurance

Note: Recordings from past conferences can be found by going to http://www.parkinsonsociety.ca/videos-and-audios.html.

Premier Sponsors

Principal Sponsors

Associate Sponsors

Dr. Quincy AlmeidaDr. Barbara Connolly

Tim HagueDr. Michael RavenekDr. Kersty FranklinKatherine Serniwka

Conference Speakers

Dr. Barbara Connolly

Update in Parkinson’s ResearchDr. Siyaram PandeyBiochemistry PhD, University of Windsor

Imagining a new Parkinson’s Robert BaittieAuthor of Tremors in the Universe

Dementia in Parkinson’s Dr. Amer Burhan

Geriatric Neuropsychiatrist, St. Joseph’s Health Care London

Location

Total: $358,523

Amount Raised

Brant-Norfolk $13,983

Chatham-Kent $10,090

London & District $83,808

Orangeville $15,143

Owen Sound $ 7,750

Oxford County $ 5,517

Port Elgin $18,340

Sarnia-Lambton $38,904

South Grey Bruce & Hanover Area $42,036

Stratford & Area $30,494

Strathroy $14,663

Waterloo Region $31,039

Windsor-Essex $46,756

Thank You for Joining the Movement at

WALK-IT for Parkinson’’s

We asked you to join the movement – The 1,000,000 Step Challenge – and you did! Every step counts in the fight against Parkinson’s, so we counted every single step you took. With over 1,400 walkers participating, 4,612,734 steps were taken! We encourage you to continue the momentum by setting a daily step goal and using your pedometer to help you reach it.

Thanks to all the WALK-IT for Parkinson’s walkers, volunteers, donors and sponsors for all your support in helping to raise $358,523! Your support means that Parkinson Society Southwestern Ontario can invest funds in vital Parkinson’s programs and research to help improve the quality of life for people living with Parkinson’s in our community.

A special thanks to all our Walkers & Sponsors!


Principal: Action Health Care (Stratford and Area), AIM Professional Services (Windsor-Essex), Bill Brown Income Tax (South Grey Bruce and Hanover), Bill McConnell - RBC Dominion Securities (London and District), Chelsey Park Retirement Community (London and District), CMR Insurance (South Grey Bruce and Hanover), Colonial Motel (Port Elgin, Kincardine and Area), Egremont Optimists (South Grey Bruce and Hanover), Enbridge Pipelines Inc. (Sarnia-Lambton), FES Canada - The Energy Solutions Company (South Grey Bruce and Hanover), Gates Canada Inc. (Brant-Norfolk), General Dynamics Land Systems - Canada (London and District), Heartland Farm Mutual-Mary Ellen Garner Insurance (Oxford County), Hunter Steel and Supply Ltd. (Stratford and Area), Karn’s Roofing (South Grey Bruce and Hanover), Matchett Financial Services (Port Elgin, Kincardine and Area), Mount Forest Lion’s Club (South Grey Bruce and Hanover), Ontario Home Health & Oxygen (Orangeville and Area), Pellow Pharmasave Walkerton (South Grey Bruce and Hanover), Precision Home Medical Equipment (London and District), Rose City Ford Sales Ltd. (Windsor-Essex), Seasons Retirement Community (Owen Sound), Seasons Retirement Community (Strathroy and Area), Stoke’s Bay Bar & Grill (Sarnia-Lambton), T.A. Brown Funeral Home (Port Elgin, Kincardine and Area), The Queen’s Bar and Grill (Port Elgin, Kincardine and Area), Town & Country Mutual Insurance (Strathroy and Area), Unifor Local 88 (Oxford County), Unifor Local 88 (London and District), Viking Cives Ltd. (South Grey Bruce and Hanover), W.W. Electric (South Grey Bruce and Hanover), Walker’s Landing (South Grey Bruce and Hanover), WFS Ltd. an Acklands-Grainger Company (London and District), Your Independent Grocery Store (Port Elgin, Kincardine, and Area)

Sapphire

Emerald

Premier: Assante Wealth Management (London and District), Bruce Power (Port Elgin, Kincardine and Area), Dure Foods (Brant-Norfolk), Elmwood & District Chamber of Commerce (South Grey Bruce and Hanover), Giant Tiger London (London and District), K-W Civitan Club (Waterloo Region), Newtex Cleaners (Waterloo Region), RPA Enterprises Inc. (London and District), Steeves and Rozema (Sarnia-Lambton), Toyota Motor Manufacturing Canada (Waterloo Region), Unifor Local 444 Social Justice Fund Committee (Windsor-Essex)

Media:104.7 Heart FM, (Oxford County), 92.3 The Dock FM (Owen Sound), 98.1 Free FM (London and District), AM1380 & Jewel 92 (Brant-Norfolk), AM800/CTV (Windsor-Essex), CFBW 91.3 FM Bluewater Radio (South Grey Bruce and Hanover), Country 104 (Strathroy and Area), MyFM 95.5 Kincardine Radio Local News First (Port Elgin, Kincardine and Area), Rogers Community Television (Port Elgin, Kincardine and Area), Rogers Community Television (Owen Sound), Rogers Kitchener Radio Group - CHYM 96.7, 570 NEWS, COUNTRY 106.7 (Waterloo Region)

2016 WALK-IT for Parkinson’s Sponsors

For a list of top teams and walkers, go to www.parkinsonsociety.ca.

CommunityPartnerships


For many years, Frank and Liz Ihrig, owners of Hessenland Country Inn, organized an annual Fall Wine event with proceeds to Parkinson Society Southwestern Ontario to honour Frank’s father, Ernst Ihrig, who is living with Parkinson’s. In 2012, they changed the event to Novemberfest making it a more traditional format of ‘Oktoberfest’. The decision was based on the desire to make the event more casual and add the traditions that made Hessenland Country Inn popular in the past. To accomplish this, they brought back the Black Forest Band – an Oktoberfest Polka band that was one of the original bands to perform at the Inn back in the 80’s, as well as traditional Oktoberfest food and atmosphere. And it worked; as a result of the change Liz notes, “Ticket sales increased substantially bringing greater awareness of Parkinson Society Southwestern Ontario as well as donations.”

With food a major attraction of the event, the menu needs to be chosen very carefully. “The guests expect to be served traditional German food so we choose good old-fashioned German Oktoberfest fare - the main elements remain the same with a little variation with the soup and dessert and perhaps a speciality item added to the buffet,” explains Liz. Besides an amazing traditional dinner, guests are encouraged to participate in a silent auction. All the items are donated by local businesses that are keen to support the event because of the Ihrig’s connection to Parkinson’s disease. Liz believes it’s the support of the cause as well as the ‘Gemutlichkeit’ – which roughly translates to “good food and good friends and a good ‘ole-fashioned German celebration” – that keeps people coming back year after year. In the future, they plan to continue the event in the same format while making some fun tweaks here and there to extend the fun later into the evening and encourage more dancing. Liz and Frank believe it’s important to continue to support Parkinson Society Southwestern Ontario. “We hope that with our small contributions, we are adding to the research funds to finally find a cure as well as support those living with Parkinson’s and their caregivers,” says Liz. As for Ernst, Novemberfest is about friends and family. “It’s truly a humbling experience to see so many of our friends, family and community members, who know that I have this disease, supporting Parkinson Society Southwestern Ontario,” says Ernst. “At the same time, it’s always fun to spend the night with friends and family enjoying traditional food and music.” Note: A total of $32,800 has been raised for Parkinson Society Southwestern Ontario at events organized by the Ihrig family at Hessenland Country Inn – Thank You!

Novemberfest at Hessenland Country Inn

Champions For Parkinson’sHold Your Own Event

Become a Champion for Parkinson’s and hold your own event to raise funds for Parkinson’s programs in Southwestern Ontario.

From garage sales, birthday parties and wine tastings to sports tournaments and trivia nights, no event is too small. Take the lead, get creative, build awareness, raise funds … and don’t forget to have fun!

For more information, contact Steve Hickson at [email protected] or 1-888-851-7376.

In-service workshops to facilitate the care and treatment of people living with Parkinson’s may be arranged through Parkinson Society Southwestern Ontario.

Also, speakers may be arranged for presentation to service clubs, employee groups and other general interest groups. For more information, please call 1-888-851-7376 or email [email protected].

Public Education


CommunityPartnerships

Community PartnershipsBethlehem Chapter 126 Order of the Eastern Star (London) Bencom (Kitchener) Charity Golf TournamentChorley & Bisset (London)Forest City Road Race (London) Run ProceedsForm & Build Management Inc (London) Giant Tiger (London) FundraiserHelp Lift the Weight of Parkinson’s (Orangeville) Nelson Sleno FundraiserHeartland Farm Mutual (Waterloo)Kerwood Bethesda UCW (Kerwood) Knights of Columbus (St. Thomas)Ladies Auxilliary RCAFA Wing 404 (Waterloo)London City Hall Charity Chest Fund (London) Power of the Purse (London) ProceedsRotary Club of Meaford (Meaford) Sanfilippo Ball Tournament (Belmont) ProceedsSelectPath Benefits & Financial Inc (London) Southwestern Ontario Lawn Tractor Racing Association (Woodslee) St Bernard’s Catholic Women’s League (Waterford) Proceeds from Poinsettia BazaarThe Enns Family (Windsor) FundraiserTillsonburg Multi-Service Centre (Tillsonburg) FundraiserWaterloo Oxford Staff Fund (Waterloo) Woodstock Art Gallery (Woodstock) Fundraiser

Honouring Loved Ones Through Donations:Gerald Bennett (St. Thomas)Lesley Braun (Kitchener)Angela Clarke (London) Garage Sale in Memory of Patrick ClarkeEdna Cudney (Thamesford) CommemorativeGrand Bend Bike Club (Grand Bend)Harold Frier (Stratford)Helena Hahn (Waterloo)Garry Hickson (Strathroy) 70th BirthdayLaura Lampkin (London)Linda Moore (London)Bernard & Louise Mulcaster (Essex) 50th Wedding AnniversaryNewdon Industries (Fergus) CommemrativeMary Lou & Jim Piggott (Woodstock) 50th Wedding AnniversaryThe Meyer Family ReunionCatherine Vermue (London) Commemorative Otto Webber (Stratford)Fred Zylstra (St. Thomas)

Pledge MatchingAdidas Group (Woodbridge) Pledge Matching ProgramComark Services Inc (Mississauga) Gift Matching ProgramKPMG (London) Community Care Program for VolunteerismSifton Family Foundation (London) Pledge Matching ProgramSunLife Financial (Waterloo) Donation Matching ProgramUnion Gas Ltd, Spectra Energy Corp. (Chatham) Pledge Matching Program

FoundationsBrant Community Foundation (Brantford)Enterprise Holdings (London) Foundation GrantLondon Community Foundation (London) Grant from Kostuk Family FundUniversity Students Council (London) Walter J Blackburn Foundation (London) Foundation GrantWilliam and Mary Dorssers Foundation (London)

Volunteer Profile Kersty Franklin

Kersty Franklin met her husband John in 1999 after he had undergone DBS surgery. “John was doing so well that it was almost hard to believe that he had Parkinson’s,” recalls Kersty.

By 2003 John’s symptoms started increasing which made their lives unpredictable. “As a full-time psychotherapist, I knew that I was about to reach maximum burnout if I didn’t find a way to take care of myself. I looked for support and found an online group for caregivers of people with Parkinson’s. They suggested I reach out and find a local support group. I attended a few meetings of the Orangeville Parkinson’s Support Group and found it to be quite helpful and encouraging,” says Kersty.

After attending the Parkinson’s Support Group, Kersty began volunteering for Parkinson Society Southwestern Ontario. She started helping with the first ever Orangeville Parkinson’s walk. Then when a support group position opened up in the Orangeville community, Kersty leapt in with both feet and became the group’s facilitator, using her experience of running support groups for marginalized youth in the community.

Kersty loves the Orangeville Support Group members. She feels that they are a very caring group of people who reach out to newcomers with open arms and support each other in many ways. Kersty is so grateful for the group’s support.

Kersty remembers how “the group helped save me when I was so overwhelmed with dealing with the final stages of my husband’s life with Parkinson’s. He passed away at age 72 from complications of pneumonia, after having it three times in a few months. He lived with Parkinson’s for almost 30 years, writing two college textbooks and making a difference in the lives of others. I volunteer now in his memory.”

When asked about her future volunteer plans with Parkinson Society Southwestern Ontario, Kersty says, “I will continue to run the support group for as long as I live in Canada. Volunteering for the support group has been so rewarding, just knowing that I am helping people to stay connected and that I have found different ways of dealing with the complexities of living with Parkinson’s.”

Although Kersty came into a relationship with John knowing that it was going to be a tough road to walk, she is so grateful that she did. It turned out that John was the love of her life!


Volunteerism

Friday, June 9, 2017 | Rebel Creek, Petersburg

To register or for more information, please contactShelley Rivard at 1-888-851-7376 or [email protected]

supporting Parkinson Society SouthwesternOntario and the MS Society Grand River Chapter

CHARITY GOLF CLASSIC

Kersty and John at the Orangeville Blues and Jazz Festival. It was their final dance. John passed away less than a month later.


Fund Development A Gift of Life Insurance

There has never been a better time for private and corporate citizens to offer their support by making a charitable donation.

What is the Opportunity?Life insurance increases the size of your gift and provides you, the donor, with significant tax benefits.

How Does it Work?You have a number of choices when you give a gift of a life insurance policy. You can purchase the insurance yourself and name Parkinson Society Southwestern Ontario (PSSO) as beneficiary. Or, you can own the policy yourself and name your estate as beneficiary and provide direction in your Will to gift the funds. You may also choose to make PSSO the owner of the insurance policy outright with you paying the premiums on PSSO’s behalf. Each of these options provides PSSO with the policy’s proceeds when you pass away.

What Are the Benefits to You?Not only will you achieve peace of mind knowing your gift will make a difference, but you will also receive tax benefits. If you purchase the insurance policy and name PSSO as beneficiary or have your estate gift the insurance proceeds to PSSO, PSSO will issue a charitable receipt each year for the amount you pay. In both situations, you can use the receipt on your tax return to reduce the amount of tax you pay.

Case StudyMrs. Jones makes frequent donations. Even though she gives regularly, she would also like to give PSSO a special gift of $100,000 upon her death. Life insurance is an effective way to plan for this gift.

The Insurance Solution:Mrs. Jones’ personal information Female, 64, non-smokerInsurance product Universal Life, Yearly Renewable Term (YRT) to age 100Death benefit $100,000Personal tax rate 45%Assumed life expectancy Age 87

The cost of the life insurance is $233 per month. By paying this amount, Mrs. Jones has guaranteed PSSO will receive the $100,000 gift. If you assume 5% annual growth on the investments inside the policy, her gift will amount to $152,578.

As an alternative to insurance, Mrs. Jones could invest the $233 into a taxable investment. Assuming the investment earned the same 5% as the insurance policy each year, when she dies, the investment would be worth approximately $61,707. By using life insurance, Mrs. Jones has the potential to increase the size of the gift by over $90,871.

How to Make Your Gift LastThere are three different ways to donate a life insurance policy. The following chart summarizes the tax benefits associated with each alternative:

How to Make Your Gift Last There are three different ways to donate a life insurance policy. The following chart summarizes the tax benefits associated with each alternative: Owner of Policy Beneficiary Premium Payer Charitable Tax

Credit Derived from:

PSSO PSSO Mrs. Jones Premium Mrs. Jones PSSO Mrs. Jones Death Benefit Mrs. Jones Estate Mrs. Jones Death Benefit


Support Group News

Dunnville Parkinson’’’s Support Group

We bid a fond farewell to Kathryn Yager. Kathryn has been a facilitator of the Dunnville Parkinson’s Support Group since the spring of 2014. She became involved with the support group after attending meetings with her aunt who has Parkinson’s. Kathryn’s life has become increasingly busy, and she feels the need to let go of facilitating the group. We know this was a very difficult decision for you, Kathryn and wish you all the best.

Orangeville Parkinson’’s Support GroupRob Ecclestone and his family first became involved with Parkinson Society Southwestern Ontario at the walk in Orangeville. Rob has Parkinson’s, so he is well aware of the challenges of living with the disease. His planning skills will be a great addition to the group as he joins Kersty Franklin in the co-facilitating role.

Owen Sound Parkinson’’s Support GroupWe bid farewell to Kylie Pike who took over the position of facilitator for the Owen Sound Parkinson’s Support Group in the spring of 2012. Kylie continues to focus her energy on client healthcare and is a member of several Boards in the Grey Bruce area. We wish Kylie well and extend our appreciation to her for the many years that she has led the group.

Welcome Emma Coburn to the Owen Sound SMART Exercise team. Emma’s background is in kinesiology and occupational therapy. No doubt Emma will be a great addition to the program.

Strathroy Parkinson’’s Support GroupJim Heene has volunteered as the facilitator of the Strathroy Parkinson’s Support Group since 2015. We sincerely appreciate Jim for sharing his experiences and investing his time in the role as facilitator. All the best to you, Jim!

St. Thomas Parkinson’s Support GroupWe welcome Doug Chateauneuf as he joins Sheri Lawrence in co-facilitating the St. Thomas Parkinson’s Support Group. Doug is acquainted with the challenges of Parkinson’s since his wife is living with the disease. Welcome Doug.

Tillsonburg Parkinson’’s Support GroupWe wish Nancy Clark a fond farewell. Nancy took on the role of facilitator of the Tillsonburg Parkinson’s Support Group in 2015. Nancy is a kind and compassionate representative of VON and brought her skills to the role of facilitator. All the best, Nancy and enjoy your new adventure of motherhood!

Welcome Anne Marie Wallace-Phillips as facilitator of the Tillsonburg Parkinson’s Support Group. Anne Marie brings a wealth of experience with her in the healthcare field. Anne Marie has assessed and developed care plans, these are only a couple of the skills that she brings to her position as facilitator. Thank you for assisting the group and welcome to the role as facilitator!

Woodstock Parkinson’’s Support GroupWelcome Mary Jane Schurman to the role as facilitator of the Woodstock Parkinson’s Support Group. Mary Jane works with VON Oxford and brings her experience as Coordinator of Client Services/Community Assessor to the group.

Kathryn Yager

Individuals are encouraged to contact the Regional Office at (519) 652-9437 (London) or 1-888-851-7376 before attending their first meeting.

Brantford

Cambridge

Chatham-Kent

Dunnville

Brantford Parkinson’s Support GroupFacilitator: Bill Flintoff

Cambridge Parkinson’s Support GroupFacilitator: Susan Bridges

Cambridge YMCA Neurological WellnessExercise Programs

Chatham-Kent Parkinson’s Support GroupFacilitator: Lisa Clarke - Volunteer Co-Facilitator Required!

Dunnville Parkinson’s Support GroupFacilitator: Regional Office - Volunteer Facilitator Required!

Chatham-Kent Parkinson’s SMART Exercise Program

Chatham-Kent Parkinson’s Sharing and CaringFacilitator: Jane Haskell

2nd Wednesday of each month (excluding July & Aug.) 2:00 p.m. to 4:00 p.m.John Noble Home, 97 Mount Pleasant Rd., Brantford

2nd Thursday of each month (excluding July & Aug.) 1:00 p.m. to 2:30 p.m.Maranatha Christian Reformed Church, 94 Elgin St. S., Cambridge

3X/wk., free for YMCA members, $30 + HST/month for non-membersChaplin Family YMCA, 250 Hespeler Rd., CambridgeCall Kyla Robson, (519) 623-9622 ext. 242.

2nd Monday of every other month (from Jan. to Nov.) 6:30 p.m. to 8:30 p.m.Active Lifestyle Centre, 20 Merritt Ave., Chatham

3rd Friday of each month 1:30 p.m. to 3:00 p.m. Haldimand War Memorial Hospital (Mailloux Room), 206 John St., Dunnville

Every Tuesday & Thursday 10:00 a.m. to 11:00 a.m.Grace Christian Reformed Church, 255 Tweedsmuir Ave. W., ChathamCall Steven Bottrill or Bria Atkin (519) 352-4462 ext. 5222/5225.Note: a referral from your doctor is required.

2nd Tuesday of every other month (from Feb. to Dec.) 11:30 a.m. to 1:00 p.m.Active Lifestyle Centre, 20 Merritt Ave., Chatham

Regional Support Groups

Hanover

Goderich-Huron

Kincardine

Grand Bend

Goderich-Huron Parkinson’s Support GroupFacilitator: Carol McDonnell

Grand Bend Parkinson’s Support GroupFacilitator: Kate Mason - Volunteer Co-Facilitator Required!

Young-Onset Parkinson’s Coffee ClubFacilitators: Carol Kraft & Michelle Napper

Hanover Parkinson’s Caregiver Support GroupFacilitator: Jane Radke

Hanover Lunch GroupFacilitator: Linda Byers

1st Tuesday of each month (excluding Jan. to March) 1:30 p.m. to 3:00 p.m.MacKay Senior Centre, 10 Nelson St. E., Goderich

Last Tuesday of each month 1:30 p.m. to 3:00 p.m.Grand Bend Area Community Health Centre (Community Room),69 Main St. E., Grand Bend

Monthly evening meetings. Location changes with each meeting.For details contact Carol Kraft at (519) 901-0061 or Michelle Napper at (519) 366-2306.Caregivers/carepartners are welcome to attend.

4th Wednesday of each month 1:00 p.m. to 3:00 p.m.Tommy D’s Restaurant, 294 10th St., Hanover

1st Tuesday of the month for lunch. 12:00 noon - 1:00 p.m. Coach House restaurant at Hanover Raceway, 265 5th St., Hanover

Kincardine Parkinson’s Support GroupFacilitator: Norma Kempers

2nd Tuesday of each month (excluding Jan. and Feb.) 12:00 noon to 2:00 p.m.Malcolm Place Retirement Residence, 255 Durham St., KincardineNote: Coffee and tea are provided. Members are responsible for their own lunch.

KitchenerKitchener Parkinson’s Support GroupFacilitator: Regional Office - Volunteer Facilitator Required!

4th Tuesday of each month (excluding July and Aug.) 11:00 a.m. to 1:00 p.m.Forest Heights Long-Term Care Centre, 60 Westheights Dr., KitchenerNote: Although lunch is provided, donations are welcome to offset the cost.

Evening Kitchener Parkinson Connection Support GroupFacilitators: Deb Stanson & Pamela Helmes-Hayes

3rd Thursday of each month (excluding June, July, Aug. and Dec.) 6:30 p.m. to 8:00 p.m.Reformation Lutheran Church, 456 Krug St., Kitchener



Leamington

Meaford

Orangeville

Listowel

London

Leamington Parkinson’s Support GroupFacilitators: Laurie Stone & Bob Prince

Meaford and Area Parkinson’s Support GroupFacilitator: Cathy McDowell - Volunteer Facilitator Required!

Orangeville Parkinson’s Support GroupFacilitators: Kersty Franklin, Rob Ecclestone

Listowel Parkinson’s SMART Exercise Program

London Parkinson Connection Support GroupFacilitators: Tracey Jones & Amanda Stark

London Parkinson’s Exercise GroupsPhysiotherapist: Katharine Wanger

London Parkinson’s SMART Exercise Program

London Parkinson’s SMART Exercise Program

London Parkinson’s Carepartner Coffee ClubFacilitator: Regional Office

London Young Onset Parkinson’s Support GroupFacilitator: Regional Office

London Rock Steady Boxing

Every Tuesday 10:30 a.m. to 12:00 noonLeamington and District Half Century Club, 160 Talbot St. E., Leamington

3rd Tuesday of each month 2:00 p.m. to 4:00 p.m.Meaford United Church, 7 Boucher St. E., Meaford

2nd Wednesday of each month 7:00 p.m. to 8:30 p.m.Alzheimer Society, 25 Centennial Rd., Orangeville

Every Tuesday and Friday 2:00 p.m. to 3:00 p.m. VON Office, 975 Wallace Ave. N., Listowel Call Lindsay Wagg (519) 291-5898.

3rd Saturday of each month (excluding July and Aug.) 2:00 p.m. to 4:00 p.m.Trinity Lutheran Church, 746 Colborne St. (Oxford and Colborne), London

Several classes offered in alternate weeks (Wed. and Thurs.) 12:00 noon to 1:00 p.m. Parkwood Day Hospital, 550 Wellington Rd., LondonNote: Exercise classes are $5 per class. Call Katharine Wanger at (519) 685-4292 ext. 42451.

Every Monday and Thursday 2:00 p.m. to 3:00 p.m.Carling Heights Optimist Community Centre, 656 Elizabeth St., LondonCall Kalina Adams (519) 659-2273 ext. 3289.

Every Tuesday and Friday 1:00 p.m. to 2:00 p.m.Cherryhill Village Mall, 301 Oxford St. W., Unit 40, LondonCall Kalina Adams (519) 659-2273 ext. 3289.

4th Thursday of each month (Excluding July & August) 2:00 p.m. to 4:00 p.m.Parkinson Society Southwestern Ontario Office, 117-4500 Blakie Rd., London

4th Thursday of each month (Excluding July & August) 6:00 p.m. to 8:00 p.m.Parkinson Society Southwestern Ontario Office, 117-4500 Blakie Rd., London

3X/wk., $80/month, boxing equipment required and can be purchased at a discounted rateBoomerz Boxing Club, 333 Richmond St., LondonCall 1-888-851-7376 for more information.

Kitchener Parkinson’s SMART Exercise Program

Kitchener YMCA Neurological Wellness Exercise Programs

Every Tuesday and Thursday 1:30 p.m. to 2:30 p.m. A.R. Kaufman YMCA, 333 Carwood Ave., Kitchener. Call Community Support Connections at (519) 772-8787.

3X/wk., free for YMCA members, $30 +HST/month for non-membersA.R. Kaufman YMCA, 333 Carwood Ave., KitchenerCall Shriya Maharaj (519) 743-5201 ext. 255.

Kitchener Rock Steady Boxing 3X/wk., free for YMCA members, boxing equipment required and can be purchased at a discounted rate. Program available May 2017A.R. Kaufman YMCA, 333 Carwood Ave., KitchenerCall 1-888-851-7376 for more information.

Kitchener Young-Onset Parkinson’s Support GroupFacilitator: Carolyn Pletsch - Volunteer Co-Facilitator Required!

Location Change: 3rd or 4th Thursday of every month (excluding July and Aug.). Locations alternate with each meeting. For details contact the Regional Office at 1-888-851-7376.

Owen SoundOwen Sound Parkinson’s Support GroupFacilitator: Bevan Lougheed

Owen Sound Parkinson’s SMART Exercise Program

2nd Tuesday of each month 2:15 p.m. to 3:30 p.m.Community of Christ Church, 2555 8th Ave. W., Owen Sound

Every Tuesday and Thursday 1:00 p.m. to 2:00 p.m.First United Church, 435 21st St. W., Call Emma Coburn at (519) 376-5895 ext. 404.

Woodstock

Windsor

West Lorne

Tillsonburg

Woodstock Parkinson’s Support GroupFacilitator: Mary Jane Schurman

Windsor Parkinson’s Support GroupFacilitator: Patricia St. Pierre

West Lorne Parkinson’s Support GroupFacilitator: Betty Jo Drent

Tillsonburg Parkinson’s Support GroupFacilitator: Anne Marie Wallace-Phillips

St. Thomas Parkinson’s SMART Exercise Program

4th Monday of each month (excluding July and Aug.) 2:00 p.m. to 4:00 p.m.UNIFOR, 126 Beale St., Woodstock

4th Tuesday of each month (excluding Dec.) 7:00 p.m. to 8:30 p.m.Windsor Community Living Support Services, 7025 Enterprise Way, Windsor

4th Thursday of each month 10:30 a.m. to 12:00 noonThe Hub, 146 Munroe St., West Lorne

3rd Thursday of each month (excluding July and Aug.) 1:00 p.m. to 2:30 p.m.Tillsonburg Retirement Residence, 183 Rolph St., Tillsonburg

Every Monday and Thursday 10:00 a.m. to 11:00 a.m. VON Office, 175 Edgeware Rd., St. Thomas - Call Pam Buys at (519) 637-6408.

St. ThomasSt. Thomas Parkinson’s Support GroupFacilitators: Sheri Lawrence, Doug Chateauneuf

2nd Tuesday of each month (excluding July and Aug.) 2:00 p.m. to 4:00 p.m.Knights of Columbus Hall, 265 Wellingon St., St. Thomas

StrathroyStrathroy Parkinson’s Support GroupFacilitator: Regional Office - Volunteer Facilitator Required!

Parkinson’s SMART Exercise Group

Windsor Parkinson’s SMART Exercise Group

3rd Tuesday of each month (excluding July and Aug.) 2:00 p.m. to 4:00 p.m.Westmount Christian Reformed Church, 405 Drury Lane, Strathroy

Every Monday and Wednesday 1:00 p.m to 2:00 p.m. VON Middlesex-Elgin Office, 274 Head St. N., Strathroy Call Kalina Adams (519) 659-2273 ext. 3289.

Every Wednesday 2:00 p.m. - 3:00 p.m. Windsor VON Office, 4520 Rhodes Drive, Suite 400Call Steven Bottrill or Bria Atkin (519) 352-4462 ext. 5222/5225.

Stratford

Simcoe

Stratford Parkinson’s Support GroupFacilitator: Alan and Marg Scott

Simcoe Parkinson’s Support GroupFacilitator: Marie Claire Astles - Volunteer Co-Facilitator Required!

Stratford Gentle Yoga for Parkinson’s GroupCertified Yoga Instructor: David Querin

2nd Tuesday of each month (excluding July and Aug.) 1:30 p.m. to 3:30 p.m.Army, Navy and Air Force Veterans Centre, 151 Lorne Ave. E., Stratford

4th Thursday of each month (excluding July and Aug.) 1:00 p.m. to 3:00 p.m.Alzheimer Society of Haldimand Norfolk, 645 Norfolk St. N., Simcoe

Every Monday 10:00 a.m. to 11:00 a.m.Army, Navy and Air Force Veterans Centre, 151 Lorne Ave. E., Stratford

Vision 74 Nursing Home Parkinson’s Support GroupFacilitator: Amy Chamney

Sarnia-Lambton Parkinson’s Exercise GroupInstructors: Becky Wellington-Horner & John Scott

Monthly on Residence ScheduleVision 74 Chapel, 229 Wellington St., Sarnia

Every Thursday 11:15 a.m. to 12:15 p.m.Strangway Centre, 260 East St. N., Sarnia


Sarnia-LambtonSarnia-Lambton Parkinson’s Support GroupFacilitator: John Scott

4th Wednesday of each month (excluding June, July and Aug.) 2:00 p.m. to 4:00 p.m.Clearwater Arena Community Room, 1400 Wellington St., Sarnia

Sarnia-Lambton Parkinson’s Carepartner Support GroupFacilitator: Christie Smith

2nd Monday of each month 10:00 a.m.Grace United Church, 990 Cathcart Blvd., Sarnia

Trillium Villa Long-Term Care Parkinson’s Support GroupFacilitator: Cindy Slegers

Monthly on Residence ScheduleTrillium Villa Activity Room, 1221 Michigan Ave., Sarnia


April4 April Awareness Workshop Understanding Dementia Owen Sound; Save the Date

10 Parkwood Education Program (London)

For further information, please call Terri Lebate: (519) 685-4292 ext. 42202 Session 1 - March 31 – May 12 Session 2 - May 26 – June 30 Session 3 - September 8 – October 13 Session 4 - November 3 – December 8

11 Medical Reception (London)

Michael’s on the Thames 1 York Street (See page 4 for details)

18 April Awareness Workshop Understanding Dementia Sarnia; Save the Date

25 April Awareness Workshop Understanding Dementia

Brantford; Save the Date

29 Annual General Meeting (London) Goodwill Industries 205 Horton Street (See page 3 for details)

30 A Hair Affair for Parkinson’s

Cambridge, Kitchener, London, Waterloo (See page 17 for details)

May13 Spring 2017 Regional Parkinson’s Conference Holiday Inn & Suites 1855 Huron Church Rd, Windsor (See page 19 for details)

30 8th Annual Parkinson Golf Classic - Presented by Rembrandt Homes (London) West Haven Golf & Country Club, London (See page 18 for details)

October18 Carepartner Workshop (Windsor) Holiday Inn & Suites Ambassador Bridge; Save the Date

November11 Fall 2017 Regional Parkinson’s Conference Save the Date

December13 Communications in Parkinson’s Webinar Angela Roberts, Asst. Professor, Northwestern School of Communications

June5 5th Annual SIGNATURES – A Taste Test of London’s Best - In Partnership with Finch Auto Group Budweiser Gardens, London (See page 17 for details)

9 HollisWealth Charity Golf Classic (Waterloo Region) Rebel Creek, Petersburg (See page 24 for details)

14 Medical Marijuana Webinar Jonathan Zaid, Founder and Executive Director Canadians for Fair Access to Medical Marijuana (CFAMM)

21 Carepartner Workshop (Cambridge) Four Points by Sheraton; Save the Date

March29 Aware in Care Webinar Save the Date

September9 WALK-IT for Parkinson’s (visit www.walk-it.ca for more details)

Brant-Norfolk; Goderich; London and District; Orangeville and Area; South Grey Bruce and Hanover; Stratford and Area; Waterloo Region (see back page for details)

10 WALK-IT for Parkinson’s

Chatham-Kent; Owen Sound; Oxford County; Port Elgin, Kincardine and Area; Strathroy and Area; Windsor-Essex (see back page for details)

17 WALK-IT for Parkinson’s Sarnia-Lambton; see back page for details

20 Webinar Save the Date

2017 RegionalParkinson’’,s Event Calendar

For more information, to keep updated and to become involved

in our special events, go to www.parkinsonsociety.ca,

call 1-888-851-7376 or email [email protected].

In Memoriam We offer our sympathy to the families whose loved ones have passed away between June 1 and December 15, 2016.

We make every effort to include all members who have passed away. We sincerely apologize if any individual was inadvertently omitted from the above list. Please call and let us know if we have missed anyone and we will include their name in our next issue.

Michael AndersonWilliam ArmstrongJoseph AtkinsonGeorg BailakCharles BatchelorDavid BatchelorJoaquina BeatoMarie BeattyGrace BeinschrothPatricia BeinschrothWillard BennewiesShirley BiroJohn BiggsBetty BlackwellBarry BrownDebra BrownThelma BurtchJohn ButlerJack ButsonWilma ButsonVito CapotortoDorothy CasseltonEmilia ChavesMarilyn ConlonEdwin CornishMaria Dagri

Louis DeliWilfred DenneyAlfred DietrichDino DominatoMadeleine DozoisBob DuffyShirley EdgarAlbert EllisMary FarmerUdo FeulgenThomas FitzpatrickBea FleetwoodTracey FriestEugene GarrodRalph GilesRev Clair GirodatRobert GlendinningRobert GloverJohn GoldringMike GolinowskiRev James GrantJohn GrantJohn GriesserNorine GriffinBarbara HamblyRobert Harvey

Margaret HetheringtonWilliam Irwin Richard KochanyCliff KreuterJim HolmesYvonne HomickWilliam HorrocksGordon HortonReta HunterRonald JacksonShirley JohnsonBlanche JonesAhilya JosephJohn KerrMarjorie KilgoreMorley KimballAdrien KirchnerMatthew KnottHenry KruszynskyBernard LajoieMabel LandeNorman LansdellThomas LethbridgePeter LiermanMary LowthianMargaret Mack

Don MacKayWilliam MageeNorman MailhoutElfrieda MaksymukPauline MalesJessie MaleyFrank MarcellaCharles McAuliffeMargaret McCallumOrin McCrabbAileen McDonaldJulia McInnesVelma McIntoshElaine McKayBridget McKeonEdward McQueenAudry MillerEva MoranRonald MortonAngela MostreyPeter NaylarEdsel ParkRaymond ParkinsonTom ParkerHenry PearsonCharles Pedlar

Beryl PineMaria PuccioShirley PumfreyMarcelle RaymondRonald ReadWilliam ReesManley RiskKenneth RowlandGloria SaboAlexander SangsterSylvester SauderHubert SchilbeJoyce SchnurrVerna ShilsonGerry SlavicRaymond SlomanFrank SmeltzerHilton SmithGeorge SniderSharron St. LouisBetty StarkKenneth StemmlerDorothy Stewart Paul StumpfLaura SwartmanWilliam Switzer

Douglas TaylorLawrence TazzmanPauline TerryMary TruanEdward UrbanowiczRene Van AckerAnnie Van RaayJeffrey WaechterLarry WaterhouseSandy WaunBrian WebbDr. Stanley WeisbergIrene WelshJohn WestbrookClarence WhiteD’Arcy WiddisMarwood WigleDonald WilsonHazel WilsonAnne WiltonKen WiltshireDoug WittichGerald WoodJames Zimmerman


When you make a gift of securities, you not only benefit from the tax credit, but you also avoid paying tax on capital gains accumulated on the securities. In order to take advantage of the capital gains tax reduction, you need to donate the securities directly to PSSO rather than selling the securities and donating the proceeds of the sale.

If you own publicly traded securities or mutual funds, you may want to consider donating the securities or mutual funds directly to Parkinson Society Southwestern Ontario. For more information, please contact Shelley Rivard at 1-888-851-7376 or [email protected].

Why Give Securities or Mutual Funds?

Brittany Roberts is recruiting participants for her study who are 50 years old or older. The study involves walking while listening to music and a beat perception task. You will be given $5 per half hour for your participation and the study will take approximately two hours to complete. This research will benefit those with Parkinson’s.

Music Perception and Movement Study

If you wish to participate or want further information please contact Brittany Roberts at

[email protected] or 519-280-9593

Recycle and Create AwarenessWhen you have finished reading this newsletter, please pass it on by leaving it in libraries, waiting rooms in doctors’ offices or pass it along to a friend.

Every Step Counts!

Saturday, September 9:Brant-Norfolk – Mohawk ParkGoderich – Location TBDLondon and District – Springbank GardensOrangeville and Area – Alder Street Recreation CentreSouth Grey Bruce and Hanover Area – Hanover Town ParkStratford and Area – Upper Queen’s ParkWaterloo Region – Resurrection Catholic Secondary School

Sunday, September 10:Chatham-Kent – Kingston ParkPort Elgin, Kincardine and Area – Northshore Park, Saugeen ShoresOwen Sound – Harry Lumley Bayshore Community CentreOxford County – South Gate CentreStrathroy and Area – Strathroy Seniors CentreWindsor-Essex – Malden Park

Sunday, September 17:Sarnia-Lambton – Stoke’s Bay Grill & Bar

Register Todaywalk-it.ca

TheParkinson’s Update - Parkinson Society Southwestern ...€¦ · to support new and existing...

Documents

Transcript of TheParkinson’s Update - Parkinson Society Southwestern ...€¦ · to support new and existing...