The newspaper "New Choices" №9 June 2007
Transcript of The newspaper "New Choices" №9 June 2007
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Rehabilitation is our mutual concernPsychosocial rehabilitation implies social skills training, inde-
pendent living, self-confident behaviour, problem-solving technics
and coping with residual symptoms. Unfortunately, the total number
of sheltered workshops was considerably reduced. However, there
are other opportunities. It is important to open out-patient rehabili-
tation centers (giving attention to the provision of job opportunities
and encouraging social activity of patients). The growing role
belongs to the supported housing (e.g. hostels). One of the main
patients mistakes is associated with their readiness to reconcile
themselves with their declining social role and the lower quality of
life. Therefore the most important aim of New Choices is to
restore patients motivation to rehabilitate. Involvement of patientsin society is regarded as an important step to restore their social
positions.
Professor I.Ya. Gurovich
(the Moscow Research Institute of Psychiatry)
We believe
From the decisions of the 5th Inter-regional Conference of
New Choices (2006)
Implementation of the right to the high quality treatment: to
provide access to atypical antipsychotics for all needed patients
which will make it possible to choice optimal psychopharmacother-apy for each patient; to create frames for psychosocial rehabilitation
Green light to the home-based rehabilitation
Out-patient rehabilitation centers are absent in Moscow. Social
care is not accessible to those patients who are unable to leave their
homes. There is a need in various types of supported and supporting
housing, not only hospital-based facilities. It is not possible to leave
a mentally ill person without care. In this case out-patient group
home could be of great help. We need more clinical psychologists,
social workers and occupation therapy specialists. Young persons in
the first psychotic episode are to be given particular attention. Theyare to be identified and given the necessary treatment in each case.
A certain part of psychosocial rehabilitation is carried out by self
care organizations but they should not substitute professional care.
N.Yu. Muravyova (Moscow).
An invalids portrait in the interiorsof outpatient clinic and community centre
Up to 60% adult patients with schizophrenia are invalids. More
than one half of them are older than 50 years, but they fell ill whenthey were young and in a few years they became not able-bodied.
Every five of them would like to work. 70% have got a working pro-
fession. of invalids are in need of consultations (legal, psychi-
atric, social). One third of patients do not have an adequate liveli-
hood which is the result of their small pensions and their inability to
regulate their budget and to do housekeeping. The Center provides
various courses for its patients including housekeeping and commu-
nication with other people. Psychoeducational training helps our
patients recognize the early warning symptoms of relapse, to
improve treatment adherence. The Centre also provides patients
with free tickets to a theatre or a swimming-pool. Rehabilitation
division offers consultations of a therapeutist, neurologist andinstructor in physical training. Emergency social aid division pro-
vides material aid and consultations on legal matters.
O. Papsuyev, Moscow Research Institute of Psychiatry
New ChoicesNew ChoicesAllRussia Society of Persons
with Mental Health Disabilities (ARSP)
No. 9, June 2007
Newspaper is issued the time a quarter
If you want to be happy be happyKozma Prutkov
Moscow meeting. The Moscow branch was supplemented by the
most active patients relatives, Psychiatric Clinic (PC) No.10
Discussing rehabilitation problems
With the assistance of our readers we continue to publish thematic issues of our newspaper. Currently a psychiatric
care is mostly focused on social rehabilitation (well-being) of patients which implies independency and self-esteem,
ability to work and leisure skills. A young person with disability has to learn all this things from the blank sheet. It
is not enough just to acquire knowledge, more important is to use it to your benefit, said Goethe. And with our chil-
dren it was a hundredfold return.
Editorial board of New Choices
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Chronicles of our everyday life
Yura Tokarev and the whole century
of Stavropol district psychiatric clinic
Guests invited to attend the festival included the representa-
tives of Dolphin society of young disabilitied persons, localbranch of New Choices, Jan Nilsson, chief of the Psychiatric
Fund of Norway. Head of the hospital rehabilitation unit A.
Bagutsky and director of Rehabilitation Centre O. Buchkova told
about invalids way to the normal life. Thus, Yuri Tokarev has been
seriously ill for 14 years, his relatives made efforts to refer him to a
nursing home. For two years a multiprofessional team has been
working with Yura and his family. Today Yura is staying with his
relatives, he told about himself. After that there was a puppet show
performed by the efforts of the Rehabilitation Centre. Patients read
their poems and sang songs. It was really a joyful occasion.
O.Yu. Kuzova, N.V. Yashin (Stavropol)
Psychosocial rehabilitationin Stavropol Region
A team of professionals (i.g. psychiatrists, psychologists, social
workers, nurses) was trained for the male rehabilitation unit within
the framework of the Russian-Canadian and Norwegian pro-
grammes by the efforts of the PC staff. It was the result of the joined
efforts of a day clinic, labor workshops, community facilities,
department for labor and social welfare, medico-social expertise and
volunteers from the local branch of New Choices. Patients are
trained in recovering their social and communication skills, art-ther-
apy, group psychoeducation, family therapy and are also assisted in
finding jobs. At workshops patients are making artificial flowers
and linen. They go to the exhibitions, participate in festive occa-
sions. Their day is usually started with physical training, in particu-
lar, football playing. The unit became hostel for homeless patients.
Our unit helps to meet the actual needs of patients and their rela-
tives, to reduce rehospitalisations; most patients manage to live
independently (with social support at home) and work. This
approach is more humanistic and less expensive than typical inpa-
tient care of chronic patients.
A. Bagutsky, the Stavropol district psychiatric hospital
Treatment is a pleasurePatients of Rehabilitation Centre at Stavropol PC
about themselves
Independent patients
I came to the Centre after hospital. They gave me a warm wel-
come, listened to my troubles. I have got regular care, started to
master a computer. Now I can type texts. Here we communicate
with each other, stage puppet shows. Independent actors feel fully
satisfied.
Victor Zadorozhny
I came, saw and did not regret
When I came there I was in severe depression, having neither
strengths nor hope. The staff was very kind to me: Come again
tomorrow! I have already known that here I could find pals and
professionals. In 2-3 months I felt much better as if I were given the
aqua vitae. Now I see that my life has sense. I attend psychother-
apeutic groups. I want to live and work!
Oleg Toropov (28)
At the beginning of the road
Among the unsolved problems of invalids in Russia are com-
petition employment, housing, inadequate provision of new genera-
tion psychotropics. We have constantly brought these problems to
the attention of our municipal and federal authorities. We urge par-
ents of our mentally ill patients to look at the problem from the other
point of view: What actual steps they have to make to help their
relatives? We do not have time to wait for the problem to be
resolved in itself; we have to achieve the real results by your own
efforts. We are planning a round-table meeting with the involvement
of all public organizations of St. Petersburg dealing with the prob-
lems of invalids, to discuss our mutual problems, to formulate our
proposals and to propose alternative solutions for their incorpora-
tion in the Minutes of the general meeting and subsequent submis-
sion to the City Government. Leisure and psychological support
problems are also important but they are simpler to address. There
was also the citywide art exhibition.
K. M. Lapteva, St-Petersburg Branch
A school of life and labour
Printing circle of New Choices has been meeting weekly for
five years. A grant extended by the Embassy of Canada was used to
2 New Choices No. 9
We have won! Football team of the Rehabilitation Center is
accepting congratulations of its funs.
Psychiatric education group in St. Petersburg
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buy the necessary equipment. The circle is headed by professionals.
We managed to make all working operations within the powers of
our children. We try to involve each of them in various operations
and links of the technological process. Our circle is a source of
active communication and modest leisure.
Alexei Kulikov, Moscow
Rehabilitation in Sverdlovsk Region:not easy achievements
Timber-processing and sewing workshops at the Workshops
(LW) are working to equip our local renewed psychiatric clinic and
its hostel. It is proposed to open a Centre for Medical and Social
Rehabilitation where invalids could have a chance to earn.
Realization of privileges under the ineffective laws could contribute
to the increased LW efficiency and give a chance for invalids to find
a job. Premises for the proposed hostel are found in the Psychiatric
Clinic and other medical services. In autumn a hostel will be opened
in Yekaterinburg. It is very important to establish links between the
psychiatric services and public organizations (volunteers, anti-stig-
ma programme, supported working places). Only in the city of
Nizhny Tagil there are more than ten such organizations in the field
of mental health protection, but all of them are operating in isola-
tion. Rehabilitation is a success if medicines are good. However the
Region feels deficit even in the provision of the low-cost medicines.
A.P. Potashova (Yekaterinburg, Urals)
Giving the floor to the staff of LPW
in the city of Nizhny Tagil
I did not resign myself
After my mothers death my neighbours seized my flat and I
was taken to a nursing home. I did not submit and with the help of
a lawyer Yulia Malyeeva I managed to get out of it. She and physi-
cians recommended a rehabilitation hostel. My flat was returned to
me by the decision of a court and now I live there. I have been work-
ing at Workshop for 4 years, my salary is 1.400 rubles (40 EUR). I
can communicate with people, solve my problems and feel much
better. I am very grateful to Mrs Yulia, the hostel head Natalya
Alexeevna and other people.
Sergei Trefilov (48 )(Nizhny Tagi, Urals)
Making my life a new
I was left without my relatives and my flat. I had nowhere to
go, four years I lived in Psychiatric hospital. When a rehabilitation
hostel was opened I was glad to remove there. Comfortable environ-
ment contributed to the improvement of my mental health state. I
learned to make toys and childrens things. Then I was taken to a
day care clinic. There we had group training in everyday and com-munication skills, I learned to operate a sewing-machine. During
my three-year stay at Workshop I was sewing bedding and special
cloths. I like it very much and try to do my best, now I am going to
learn to cut out. We have a good group and instructors. My salary of
1.300 rubles is a good second helping to my pension. We also have
festive events, go to the theatres and circus. For two years I with two
other patients have been living in the rehabilitation (supported) flat.
We do cooking, cleaning and even managed to do small repair. I
want to go to school to be a dressmaker. My life is getting better,
hospital is becoming a thing of the past.
Svetlana Klipova (33)
Board of honour
I have been working at workshop for 10 years. Our workshop
was making albums, raincoats and other things. Our salary was 120-
130 rubles. The break-down of the Soviet Union was a heavy blow
for our hospital. To my regret I had to change my job. When it
became possible I returned to the furniture-making workshop. I like
my job as I was used to work hard. Before my illness I was a driv-
er and in my free time I liked to make wood articles. At workshop I
was awarded special papers of honour and gifts, my photo was put
on the board of honour. We have a remarkable group, good relationswith our instructors. My salary is 1,300 rubles but the most impor-
tant thing for me is my job.
Gennady Lebedyev.
Note of the Editorial Board: according to the sociological surveys
not more than 10% of people in Russia go to and from work with
pleasure. Among them Gennady Vasilievich
Hello, smile, we have been waiting for it
for a long time
Chronic illness is severe because you fall out of the communi-
ty. Even during their remission many patients shrink into themselves
and are unable to find their place among other people. As a result
most patients get unemployed, their contacts are limited to their
family, their activity is falling down. Our organization actively sup-
ported the idea of a rehabilitation centre and we try to do as much
as possible to help with it. Any patient or invalid could come to this
centre and will be given attention of its physicians, psychologists,
nurses and technical workers. Not all work is paid. The staff and
patients are unified thanks to their mutual efforts. There are various
circles such as knitting, fine arts, theatrical, toy-making, housekeep-
ing and planning the household budget. Psychologists and society
members provide training in special communication and psycho-educational groups, there are dancing classes. We have five-o-clock
together. The District Committee for physical training and sports
provides us with free season-tickets to swimming-poolDolphin.
After swimming we all have ice-cream. Our children try to keep
New Choices No. 9 3
Printing circle
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themselves in good order, their eyes and talks changed to becomecalm and friendly. When they go along the streets it is difficult to tell
them from healthy persons of the same age. At home they are more
communicative. It is a pleasure for them to call to each other before
they go to the swimming-pool or gather at the centre. In the plans of
our centre and organizations are excursions and rest in the country-
side.
Chairman of Nijny Novgorod (upon Volga) Branch of New
Choices N. Nosova
From the Editorial Board: Our children from Moscow Branch
look so different in the days when they visit a swimming-pool and
classes. Still very shy they try to smile and the life like a mirror gives
them its smile in return.
You wrote to us
How we sought and found a job
I would like to share with you my happiness. I managed to find
a job for my daughter. The last seven years when my daughter
worked at LPW I spent every day looking through the newspaper
ads seeking for a vacancy. But all my efforts were in vain. For 2.5
years Yulia remained unemployed. I was running in search of a job
around the city but everywhere I was refused. However, our persist-
ence was rewarded. Yulia was offered a job at the printing-house. I
was also given a table near Yulias table to control her work and to
help her, if necessary. The staff was friendly to Yulia, ready to help.
Now my daughter has her earnestly earned money.
N. Klomok, Tver (near Moscow)
From the Editorial Board: This kind of approach achieved
through Yulias and her mothers suffering that helped without pre-
liminary preparations find an ordinary job provided with the subse-
quent training and support is recognized in the world as the most
promising way to return patients to the common work. A number of
regions have special multiprofessional teams dealing with the prob-
lems of employment. Their staff has close relationships with commu-
nity occupation centres and direct contacts with employers.However, usually successful employment is a result of efforts of
patients themselves and their not indifferent relatives based on their
personal initiative. An example of Yulias work showed one more
important thing it showed that persons with mental problems
should not be neglected or paid off with a scanty welfare benrfit,
they are to be given a chance to show their worth. The staff of this
particular printing-house was able to understand it.
We arrange festivals
Our outpatient clinic has a special social and legal service. We
arrange festivals, tours around sacred places, there are also musical
and fine arts circles.T. Koskova, Voronezh Branch
Life is going on!
20 years ago I spent my time in meditations and tears. My con-
dition was getting worse and worse, I felt acute pain in my soul as
if from a knife. As a result I was hospitalised. At first my sleep was
restored, and my fears, oppressive and obsessive recollections dis-
appeared. Mental balance and perception of the worlds harmony
was restored. Today I have a job at one bank, study English. I have
got a flat and made it comfortable. I am still receiving psychiatric
and psychotherapeutic treatment because insomnia is still with me.
I am sewing and knitting for my mother. I hope that in future thereare a lot of pleasant events, meetings with people, new cities and
countries. I want to BELIEVE, WAIT AND LOVE.
Natalya from the city of Tomsk (Siberia)
My Alyosha
I wish my son could return to the social life. He is a very good
boy. He has been taking atypical antipsychotic for 10 months. Now
he is able to read every day for 10 minutes, go to the shop to buy
some milk. Unfortunately, there are problems with his memory,
though earlier he was a student of a medical college.
Marina Petrovna, Irkutsk Region (Siberia)
International exhibition Art is consolidating us is to be
opened in St. Petersburg in July 2007. Among its participants
will be three members from Moscow New Choices.
Art is consolidating us is an international exhibition of amateur
painters to take place in Smolny, St. Petersburg
In October a meeting of the Public Council to discuss the problems
of in-patient psychiatric aid is to take place there. We are going to
propose new rehabilitation programmes.
EUFAMI Congress and the city of Torun, Poland (birthplace ofastronomer and physician N. Copernicus) invite all interested per-
sons to attend this event from 14 to 16 September, 2007. We work
to improve the quality of treatment and life of mentally ill persons
and their relatives.
Andjey Varot, Chairman of the National Organisation of men-
tally ill persons and guardians in Poland POL-FAMILIA
www.eufami.org.congress2007
4 New Choices No. 9
Printed by ARSP New Choices Poteshnaya str. 3,
Moscow 107076 Russia
Tel.+74959631435, fax +74959637624
email: [email protected]: http://www.nvm.org.ru
Sponsored by pharmaceutical company Eli Lilly
Living with a song (a concert at the Rehabilitation Centre in N.
Novgorod