The newspaper "New Choices" №9 June 2007

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    Rehabilitation is our mutual concernPsychosocial rehabilitation implies social skills training, inde-

    pendent living, self-confident behaviour, problem-solving technics

    and coping with residual symptoms. Unfortunately, the total number

    of sheltered workshops was considerably reduced. However, there

    are other opportunities. It is important to open out-patient rehabili-

    tation centers (giving attention to the provision of job opportunities

    and encouraging social activity of patients). The growing role

    belongs to the supported housing (e.g. hostels). One of the main

    patients mistakes is associated with their readiness to reconcile

    themselves with their declining social role and the lower quality of

    life. Therefore the most important aim of New Choices is to

    restore patients motivation to rehabilitate. Involvement of patientsin society is regarded as an important step to restore their social

    positions.

    Professor I.Ya. Gurovich

    (the Moscow Research Institute of Psychiatry)

    We believe

    From the decisions of the 5th Inter-regional Conference of

    New Choices (2006)

    Implementation of the right to the high quality treatment: to

    provide access to atypical antipsychotics for all needed patients

    which will make it possible to choice optimal psychopharmacother-apy for each patient; to create frames for psychosocial rehabilitation

    Green light to the home-based rehabilitation

    Out-patient rehabilitation centers are absent in Moscow. Social

    care is not accessible to those patients who are unable to leave their

    homes. There is a need in various types of supported and supporting

    housing, not only hospital-based facilities. It is not possible to leave

    a mentally ill person without care. In this case out-patient group

    home could be of great help. We need more clinical psychologists,

    social workers and occupation therapy specialists. Young persons in

    the first psychotic episode are to be given particular attention. Theyare to be identified and given the necessary treatment in each case.

    A certain part of psychosocial rehabilitation is carried out by self

    care organizations but they should not substitute professional care.

    N.Yu. Muravyova (Moscow).

    An invalids portrait in the interiorsof outpatient clinic and community centre

    Up to 60% adult patients with schizophrenia are invalids. More

    than one half of them are older than 50 years, but they fell ill whenthey were young and in a few years they became not able-bodied.

    Every five of them would like to work. 70% have got a working pro-

    fession. of invalids are in need of consultations (legal, psychi-

    atric, social). One third of patients do not have an adequate liveli-

    hood which is the result of their small pensions and their inability to

    regulate their budget and to do housekeeping. The Center provides

    various courses for its patients including housekeeping and commu-

    nication with other people. Psychoeducational training helps our

    patients recognize the early warning symptoms of relapse, to

    improve treatment adherence. The Centre also provides patients

    with free tickets to a theatre or a swimming-pool. Rehabilitation

    division offers consultations of a therapeutist, neurologist andinstructor in physical training. Emergency social aid division pro-

    vides material aid and consultations on legal matters.

    O. Papsuyev, Moscow Research Institute of Psychiatry

    New ChoicesNew ChoicesAllRussia Society of Persons

    with Mental Health Disabilities (ARSP)

    No. 9, June 2007

    Newspaper is issued the time a quarter

    If you want to be happy be happyKozma Prutkov

    Moscow meeting. The Moscow branch was supplemented by the

    most active patients relatives, Psychiatric Clinic (PC) No.10

    Discussing rehabilitation problems

    With the assistance of our readers we continue to publish thematic issues of our newspaper. Currently a psychiatric

    care is mostly focused on social rehabilitation (well-being) of patients which implies independency and self-esteem,

    ability to work and leisure skills. A young person with disability has to learn all this things from the blank sheet. It

    is not enough just to acquire knowledge, more important is to use it to your benefit, said Goethe. And with our chil-

    dren it was a hundredfold return.

    Editorial board of New Choices

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    Chronicles of our everyday life

    Yura Tokarev and the whole century

    of Stavropol district psychiatric clinic

    Guests invited to attend the festival included the representa-

    tives of Dolphin society of young disabilitied persons, localbranch of New Choices, Jan Nilsson, chief of the Psychiatric

    Fund of Norway. Head of the hospital rehabilitation unit A.

    Bagutsky and director of Rehabilitation Centre O. Buchkova told

    about invalids way to the normal life. Thus, Yuri Tokarev has been

    seriously ill for 14 years, his relatives made efforts to refer him to a

    nursing home. For two years a multiprofessional team has been

    working with Yura and his family. Today Yura is staying with his

    relatives, he told about himself. After that there was a puppet show

    performed by the efforts of the Rehabilitation Centre. Patients read

    their poems and sang songs. It was really a joyful occasion.

    O.Yu. Kuzova, N.V. Yashin (Stavropol)

    Psychosocial rehabilitationin Stavropol Region

    A team of professionals (i.g. psychiatrists, psychologists, social

    workers, nurses) was trained for the male rehabilitation unit within

    the framework of the Russian-Canadian and Norwegian pro-

    grammes by the efforts of the PC staff. It was the result of the joined

    efforts of a day clinic, labor workshops, community facilities,

    department for labor and social welfare, medico-social expertise and

    volunteers from the local branch of New Choices. Patients are

    trained in recovering their social and communication skills, art-ther-

    apy, group psychoeducation, family therapy and are also assisted in

    finding jobs. At workshops patients are making artificial flowers

    and linen. They go to the exhibitions, participate in festive occa-

    sions. Their day is usually started with physical training, in particu-

    lar, football playing. The unit became hostel for homeless patients.

    Our unit helps to meet the actual needs of patients and their rela-

    tives, to reduce rehospitalisations; most patients manage to live

    independently (with social support at home) and work. This

    approach is more humanistic and less expensive than typical inpa-

    tient care of chronic patients.

    A. Bagutsky, the Stavropol district psychiatric hospital

    Treatment is a pleasurePatients of Rehabilitation Centre at Stavropol PC

    about themselves

    Independent patients

    I came to the Centre after hospital. They gave me a warm wel-

    come, listened to my troubles. I have got regular care, started to

    master a computer. Now I can type texts. Here we communicate

    with each other, stage puppet shows. Independent actors feel fully

    satisfied.

    Victor Zadorozhny

    I came, saw and did not regret

    When I came there I was in severe depression, having neither

    strengths nor hope. The staff was very kind to me: Come again

    tomorrow! I have already known that here I could find pals and

    professionals. In 2-3 months I felt much better as if I were given the

    aqua vitae. Now I see that my life has sense. I attend psychother-

    apeutic groups. I want to live and work!

    Oleg Toropov (28)

    At the beginning of the road

    Among the unsolved problems of invalids in Russia are com-

    petition employment, housing, inadequate provision of new genera-

    tion psychotropics. We have constantly brought these problems to

    the attention of our municipal and federal authorities. We urge par-

    ents of our mentally ill patients to look at the problem from the other

    point of view: What actual steps they have to make to help their

    relatives? We do not have time to wait for the problem to be

    resolved in itself; we have to achieve the real results by your own

    efforts. We are planning a round-table meeting with the involvement

    of all public organizations of St. Petersburg dealing with the prob-

    lems of invalids, to discuss our mutual problems, to formulate our

    proposals and to propose alternative solutions for their incorpora-

    tion in the Minutes of the general meeting and subsequent submis-

    sion to the City Government. Leisure and psychological support

    problems are also important but they are simpler to address. There

    was also the citywide art exhibition.

    K. M. Lapteva, St-Petersburg Branch

    A school of life and labour

    Printing circle of New Choices has been meeting weekly for

    five years. A grant extended by the Embassy of Canada was used to

    2 New Choices No. 9

    We have won! Football team of the Rehabilitation Center is

    accepting congratulations of its funs.

    Psychiatric education group in St. Petersburg

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    buy the necessary equipment. The circle is headed by professionals.

    We managed to make all working operations within the powers of

    our children. We try to involve each of them in various operations

    and links of the technological process. Our circle is a source of

    active communication and modest leisure.

    Alexei Kulikov, Moscow

    Rehabilitation in Sverdlovsk Region:not easy achievements

    Timber-processing and sewing workshops at the Workshops

    (LW) are working to equip our local renewed psychiatric clinic and

    its hostel. It is proposed to open a Centre for Medical and Social

    Rehabilitation where invalids could have a chance to earn.

    Realization of privileges under the ineffective laws could contribute

    to the increased LW efficiency and give a chance for invalids to find

    a job. Premises for the proposed hostel are found in the Psychiatric

    Clinic and other medical services. In autumn a hostel will be opened

    in Yekaterinburg. It is very important to establish links between the

    psychiatric services and public organizations (volunteers, anti-stig-

    ma programme, supported working places). Only in the city of

    Nizhny Tagil there are more than ten such organizations in the field

    of mental health protection, but all of them are operating in isola-

    tion. Rehabilitation is a success if medicines are good. However the

    Region feels deficit even in the provision of the low-cost medicines.

    A.P. Potashova (Yekaterinburg, Urals)

    Giving the floor to the staff of LPW

    in the city of Nizhny Tagil

    I did not resign myself

    After my mothers death my neighbours seized my flat and I

    was taken to a nursing home. I did not submit and with the help of

    a lawyer Yulia Malyeeva I managed to get out of it. She and physi-

    cians recommended a rehabilitation hostel. My flat was returned to

    me by the decision of a court and now I live there. I have been work-

    ing at Workshop for 4 years, my salary is 1.400 rubles (40 EUR). I

    can communicate with people, solve my problems and feel much

    better. I am very grateful to Mrs Yulia, the hostel head Natalya

    Alexeevna and other people.

    Sergei Trefilov (48 )(Nizhny Tagi, Urals)

    Making my life a new

    I was left without my relatives and my flat. I had nowhere to

    go, four years I lived in Psychiatric hospital. When a rehabilitation

    hostel was opened I was glad to remove there. Comfortable environ-

    ment contributed to the improvement of my mental health state. I

    learned to make toys and childrens things. Then I was taken to a

    day care clinic. There we had group training in everyday and com-munication skills, I learned to operate a sewing-machine. During

    my three-year stay at Workshop I was sewing bedding and special

    cloths. I like it very much and try to do my best, now I am going to

    learn to cut out. We have a good group and instructors. My salary of

    1.300 rubles is a good second helping to my pension. We also have

    festive events, go to the theatres and circus. For two years I with two

    other patients have been living in the rehabilitation (supported) flat.

    We do cooking, cleaning and even managed to do small repair. I

    want to go to school to be a dressmaker. My life is getting better,

    hospital is becoming a thing of the past.

    Svetlana Klipova (33)

    Board of honour

    I have been working at workshop for 10 years. Our workshop

    was making albums, raincoats and other things. Our salary was 120-

    130 rubles. The break-down of the Soviet Union was a heavy blow

    for our hospital. To my regret I had to change my job. When it

    became possible I returned to the furniture-making workshop. I like

    my job as I was used to work hard. Before my illness I was a driv-

    er and in my free time I liked to make wood articles. At workshop I

    was awarded special papers of honour and gifts, my photo was put

    on the board of honour. We have a remarkable group, good relationswith our instructors. My salary is 1,300 rubles but the most impor-

    tant thing for me is my job.

    Gennady Lebedyev.

    Note of the Editorial Board: according to the sociological surveys

    not more than 10% of people in Russia go to and from work with

    pleasure. Among them Gennady Vasilievich

    Hello, smile, we have been waiting for it

    for a long time

    Chronic illness is severe because you fall out of the communi-

    ty. Even during their remission many patients shrink into themselves

    and are unable to find their place among other people. As a result

    most patients get unemployed, their contacts are limited to their

    family, their activity is falling down. Our organization actively sup-

    ported the idea of a rehabilitation centre and we try to do as much

    as possible to help with it. Any patient or invalid could come to this

    centre and will be given attention of its physicians, psychologists,

    nurses and technical workers. Not all work is paid. The staff and

    patients are unified thanks to their mutual efforts. There are various

    circles such as knitting, fine arts, theatrical, toy-making, housekeep-

    ing and planning the household budget. Psychologists and society

    members provide training in special communication and psycho-educational groups, there are dancing classes. We have five-o-clock

    together. The District Committee for physical training and sports

    provides us with free season-tickets to swimming-poolDolphin.

    After swimming we all have ice-cream. Our children try to keep

    New Choices No. 9 3

    Printing circle

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    themselves in good order, their eyes and talks changed to becomecalm and friendly. When they go along the streets it is difficult to tell

    them from healthy persons of the same age. At home they are more

    communicative. It is a pleasure for them to call to each other before

    they go to the swimming-pool or gather at the centre. In the plans of

    our centre and organizations are excursions and rest in the country-

    side.

    Chairman of Nijny Novgorod (upon Volga) Branch of New

    Choices N. Nosova

    From the Editorial Board: Our children from Moscow Branch

    look so different in the days when they visit a swimming-pool and

    classes. Still very shy they try to smile and the life like a mirror gives

    them its smile in return.

    You wrote to us

    How we sought and found a job

    I would like to share with you my happiness. I managed to find

    a job for my daughter. The last seven years when my daughter

    worked at LPW I spent every day looking through the newspaper

    ads seeking for a vacancy. But all my efforts were in vain. For 2.5

    years Yulia remained unemployed. I was running in search of a job

    around the city but everywhere I was refused. However, our persist-

    ence was rewarded. Yulia was offered a job at the printing-house. I

    was also given a table near Yulias table to control her work and to

    help her, if necessary. The staff was friendly to Yulia, ready to help.

    Now my daughter has her earnestly earned money.

    N. Klomok, Tver (near Moscow)

    From the Editorial Board: This kind of approach achieved

    through Yulias and her mothers suffering that helped without pre-

    liminary preparations find an ordinary job provided with the subse-

    quent training and support is recognized in the world as the most

    promising way to return patients to the common work. A number of

    regions have special multiprofessional teams dealing with the prob-

    lems of employment. Their staff has close relationships with commu-

    nity occupation centres and direct contacts with employers.However, usually successful employment is a result of efforts of

    patients themselves and their not indifferent relatives based on their

    personal initiative. An example of Yulias work showed one more

    important thing it showed that persons with mental problems

    should not be neglected or paid off with a scanty welfare benrfit,

    they are to be given a chance to show their worth. The staff of this

    particular printing-house was able to understand it.

    We arrange festivals

    Our outpatient clinic has a special social and legal service. We

    arrange festivals, tours around sacred places, there are also musical

    and fine arts circles.T. Koskova, Voronezh Branch

    Life is going on!

    20 years ago I spent my time in meditations and tears. My con-

    dition was getting worse and worse, I felt acute pain in my soul as

    if from a knife. As a result I was hospitalised. At first my sleep was

    restored, and my fears, oppressive and obsessive recollections dis-

    appeared. Mental balance and perception of the worlds harmony

    was restored. Today I have a job at one bank, study English. I have

    got a flat and made it comfortable. I am still receiving psychiatric

    and psychotherapeutic treatment because insomnia is still with me.

    I am sewing and knitting for my mother. I hope that in future thereare a lot of pleasant events, meetings with people, new cities and

    countries. I want to BELIEVE, WAIT AND LOVE.

    Natalya from the city of Tomsk (Siberia)

    My Alyosha

    I wish my son could return to the social life. He is a very good

    boy. He has been taking atypical antipsychotic for 10 months. Now

    he is able to read every day for 10 minutes, go to the shop to buy

    some milk. Unfortunately, there are problems with his memory,

    though earlier he was a student of a medical college.

    Marina Petrovna, Irkutsk Region (Siberia)

    International exhibition Art is consolidating us is to be

    opened in St. Petersburg in July 2007. Among its participants

    will be three members from Moscow New Choices.

    Art is consolidating us is an international exhibition of amateur

    painters to take place in Smolny, St. Petersburg

    In October a meeting of the Public Council to discuss the problems

    of in-patient psychiatric aid is to take place there. We are going to

    propose new rehabilitation programmes.

    EUFAMI Congress and the city of Torun, Poland (birthplace ofastronomer and physician N. Copernicus) invite all interested per-

    sons to attend this event from 14 to 16 September, 2007. We work

    to improve the quality of treatment and life of mentally ill persons

    and their relatives.

    Andjey Varot, Chairman of the National Organisation of men-

    tally ill persons and guardians in Poland POL-FAMILIA

    www.eufami.org.congress2007

    4 New Choices No. 9

    Printed by ARSP New Choices Poteshnaya str. 3,

    Moscow 107076 Russia

    Tel.+74959631435, fax +74959637624

    email: [email protected]: http://www.nvm.org.ru

    Sponsored by pharmaceutical company Eli Lilly

    Living with a song (a concert at the Rehabilitation Centre in N.

    Novgorod