THE MANY FACES OF DEAF-BLINDNESS The Many Faces of DeafBlindness.
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Transcript of THE MANY FACES OF DEAF-BLINDNESS The Many Faces of DeafBlindness.
THE MANY FACES OF DEAF-BLINDNESS
The Many Faces of The Many Faces of DeafBlindnessDeafBlindness
DeafBlindness: The Big Picture
National and State DeafBlind Program The DeafBlind Census Etiologies related to DeafBlindness DeafBlindness & Communication DeafBlindness & the Family Social implication of DeafBlindness
What We Want to Accomplish
Increase your understanding of:
• National and state resources related to DeafBlindness
• The diversity within the population
• The major etiologies of DeafBlindness
• The impact of DeafBlindness on communication and social development
• The impact of DeafBlindness on quality of life
The DeafBlind Program
Families
NFADB
AADB
Hilton-PerkinsProgram
Nat’l Coalition on
DB
DeafBlind Central
NCDB – TA & Information Services
HKNC
US Dept of EducationOffice of Special Education
Programs (OSEP)
From
Birth
To 22 years
Birth to 3
Programs
School Program
s
Young Adult
Programs
Who We Are & What We DoNCDB
• Technical assistance & training to deaf-blind projects, states and families
• Develop and distribute information
• Connect national, state and local resources to improve services
• Coordinate activities between universities that are training teachers
DB Central• Training & technical assistance
to families, schools and agencies to promote best practices
• Disseminate information related to best practices in the field of DeafBlindness
• Support families by connecting them to resources and other families of children who are DeafBlind
National Definition ofDeafBlindness
Deaf-blindness means concomitant hearing and
visual impairments, the combination of which
causes such severe communication and other
developmental and educational needs that they
cannot be accommodated in special education
programs solely for children with deafness or
children with blindness. 34 CFR 300.8 (c) (2)
Michigan Definition of DeafBlindness
The State of Michigan’s definition of a child who is DeafBlind is as follows:
R 340.1717 DeafBlindness defined; determination. Rule 17. • (1) DeafBlindness means concomitant hearing impairment and
visual impairment, the combination of which causes severe communication and other developmental and educational needs that cannot be accommodated in special education programs without additional supports to address the unique needs specific to DeafBlindness. DeafBlindness also means both of the following:
• (a) Documented hearing and visual losses that, if considered individually, may not meet the requirements for visual impairment or hearing impairment, but the combination of the losses affects educational performance.
• (b) Such students function as if they have both a hearing and visual loss, based upon responses to auditory and visual stimuli in the environment, or during vision and hearing evaluations.
Etiologies Related toDeafBlindness
eti·ol·o·gy“the cause of a medical or disability condition”
• Tell Us About Your Child
• Top Etiologies Nationally and in Michigan
• Finding Information about Etiologies
12.5
%
24.5
%
17.4
%
7.3%
7.5%
2.8% 3.4%
2.5%
6.3%
2.1% 2.
8%
2.5% 3.
4%
12.5
%
22.7
%
15.7
%
5.8%
11.0
%
2.3% 4.
0%
1.5%
7.6%
2.0% 2.3%
0.6%
3.8%
0%
5%
10%
15%
20%
25%
30%
2008 Top Etiologies - National and MichiganNational Michigan
AboutMichigan
0
50
100
150
200
250
300
350
Total 343
Hereditary/Chromosomal Disorders 143
PrenatalCongenitalComplications 60
Post NatalComplications 43
Prematurity 44
Unknown 53
Michigan Etiologies - Major Categories
Michigan Etiologies - Chromosomal Disorders
0
10
20
30
40
50
60
70
80
1st Qtr
CHARGE
Cornelia DeLange
Down
Goldenhar
Stickler
Trisomy 13
Usher I
Usher II
Other
Michigan Etiologies - Pre-natal Causes
0
2
4
6
8
10
12
14
16
18
20 Cytomegalovirus
Hydrocephaly
Microcephaly
Rubella
Toxoplasmosis
Fetal Alcohol
Other
Michigan Etiologies - Post-natal Causes
0
5
10
15
20
25
30Asphyxia
Encephalitis
Hypoxic IschemicEncephalopathyMeningitis
Severe HeadInjuryOther
Age ranges
0
10
2030
40
50
60
7080
90
100 Birth to 2
3 to 5
6 to 11
12 to 14
15 to 18
19 to 22
23 to 26
There are 83 counties in the state of Michigan
56 Michigan Counties currently have students registered with DB Central
Etiology Activity(20 minutes)
1. Pair up with another participant and choose one etiology to explore.
2. Use the Internet to research and answer some or all of the following questions about the etiology:
• What are some of the unique characteristics of the etiology: vision, hearing, physical, cognitive, other
• Are their online or face-to-face supports available for family members? What are these?
• Is there medical and education information available on the Internet?
3. Share what you find out with the group.
Points to Consider About Etiologies
• To know an individual’s etiology is NOT to say that you know the individual
• Absence of a diagnosis can be a nagging mystery or fear
• Possible etiologies should not be casually mentioned
• Pay attention to the source and publication date of print and Internet resources
• Connecting with another person or family who shares the diagnosis can be invaluable
Thanks to California Deaf-Blind Services, Fact Sheet #33
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