THE MANY FACES OF DEAF-BLINDNESS The Many Faces of DeafBlindness.

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THE MANY FACES OF DEAF-BLINDNESS The Many Faces of The Many Faces of DeafBlindness DeafBlindness

Transcript of THE MANY FACES OF DEAF-BLINDNESS The Many Faces of DeafBlindness.

Page 1: THE MANY FACES OF DEAF-BLINDNESS The Many Faces of DeafBlindness.

THE MANY FACES OF DEAF-BLINDNESS

The Many Faces of The Many Faces of DeafBlindnessDeafBlindness

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DeafBlindness: The Big Picture

National and State DeafBlind Program The DeafBlind Census Etiologies related to DeafBlindness DeafBlindness & Communication DeafBlindness & the Family Social implication of DeafBlindness

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What We Want to Accomplish

Increase your understanding of:

• National and state resources related to DeafBlindness

• The diversity within the population

• The major etiologies of DeafBlindness

• The impact of DeafBlindness on communication and social development

• The impact of DeafBlindness on quality of life

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The DeafBlind Program

Families

NFADB

AADB

Hilton-PerkinsProgram

Nat’l Coalition on

DB

DeafBlind Central

NCDB – TA & Information Services

HKNC

US Dept of EducationOffice of Special Education

Programs (OSEP)

From

Birth

To 22 years

Birth to 3

Programs

School Program

s

Young Adult

Programs

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Who We Are & What We DoNCDB

• Technical assistance & training to deaf-blind projects, states and families

• Develop and distribute information

• Connect national, state and local resources to improve services

• Coordinate activities between universities that are training teachers

DB Central• Training & technical assistance

to families, schools and agencies to promote best practices

• Disseminate information related to best practices in the field of DeafBlindness

• Support families by connecting them to resources and other families of children who are DeafBlind

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National Definition ofDeafBlindness

Deaf-blindness means concomitant hearing and

visual impairments, the combination of which

causes such severe communication and other

developmental and educational needs that they

cannot be accommodated in special education

programs solely for children with deafness or

children with blindness. 34 CFR 300.8 (c) (2)

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Michigan Definition of DeafBlindness

The State of Michigan’s definition of a child who is DeafBlind is as follows: 

R 340.1717 DeafBlindness defined; determination. Rule 17. • (1) DeafBlindness means concomitant hearing impairment and

visual impairment, the combination of which causes severe communication and other developmental and educational needs that cannot be accommodated in special education programs without additional supports to address the unique needs specific to DeafBlindness. DeafBlindness also means both of the following:

• (a) Documented hearing and visual losses that, if considered individually, may not meet the requirements for visual impairment or hearing impairment, but the combination of the losses affects educational performance.

• (b) Such students function as if they have both a hearing and visual loss, based upon responses to auditory and visual stimuli in the environment, or during vision and hearing evaluations.

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Etiologies Related toDeafBlindness

eti·ol·o·gy“the cause of a medical or disability condition”

• Tell Us About Your Child

• Top Etiologies Nationally and in Michigan

• Finding Information about Etiologies

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12.5

%

24.5

%

17.4

%

7.3%

7.5%

2.8% 3.4%

2.5%

6.3%

2.1% 2.

8%

2.5% 3.

4%

12.5

%

22.7

%

15.7

%

5.8%

11.0

%

2.3% 4.

0%

1.5%

7.6%

2.0% 2.3%

0.6%

3.8%

0%

5%

10%

15%

20%

25%

30%

2008 Top Etiologies - National and MichiganNational Michigan

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AboutMichigan

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0

50

100

150

200

250

300

350

Total 343

Hereditary/Chromosomal Disorders 143

PrenatalCongenitalComplications 60

Post NatalComplications 43

Prematurity 44

Unknown 53

Michigan Etiologies - Major Categories

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Michigan Etiologies - Chromosomal Disorders

0

10

20

30

40

50

60

70

80

1st Qtr

CHARGE

Cornelia DeLange

Down

Goldenhar

Stickler

Trisomy 13

Usher I

Usher II

Other

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Michigan Etiologies - Pre-natal Causes

0

2

4

6

8

10

12

14

16

18

20 Cytomegalovirus

Hydrocephaly

Microcephaly

Rubella

Toxoplasmosis

Fetal Alcohol

Other

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Michigan Etiologies - Post-natal Causes

0

5

10

15

20

25

30Asphyxia

Encephalitis

Hypoxic IschemicEncephalopathyMeningitis

Severe HeadInjuryOther

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Age ranges

0

10

2030

40

50

60

7080

90

100 Birth to 2

3 to 5

6 to 11

12 to 14

15 to 18

19 to 22

23 to 26

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There are 83 counties in the state of Michigan

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56 Michigan Counties currently have students registered with DB Central

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Etiology Activity(20 minutes)

1. Pair up with another participant and choose one etiology to explore.

2. Use the Internet to research and answer some or all of the following questions about the etiology:

• What are some of the unique characteristics of the etiology: vision, hearing, physical, cognitive, other

• Are their online or face-to-face supports available for family members? What are these?

• Is there medical and education information available on the Internet?

3. Share what you find out with the group.

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Points to Consider About Etiologies

• To know an individual’s etiology is NOT to say that you know the individual

• Absence of a diagnosis can be a nagging mystery or fear

• Possible etiologies should not be casually mentioned

• Pay attention to the source and publication date of print and Internet resources

• Connecting with another person or family who shares the diagnosis can be invaluable

Thanks to California Deaf-Blind Services, Fact Sheet #33

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