The Health Datapalooza Story: Health Data Initiative
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Transcript of The Health Datapalooza Story: Health Data Initiative
Mobilizing Communities for Health: the Health Data Initiative
Aman Bhandari, HHS [email protected] / @GHideas
Context: HHS Health Data
Policy + Platform: Open Gov
Case Study: Health Data Palooza
• Prescription drug recall info • Hospital comparisons • Clinic and facility location • Use of preventive services • Summary measures of health • Risk factors and access to care • Measures of birth and death • Food atlases • Community health indicators • Scientific publications
HHS Data: 80K Employees, $1B
+ Problem: Large amounts of data but little use or creative application
Open Gov: unprecedented initiative reflecting the President’s vision
Apps for Development Contest (data.worldbank.org)
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Harnessing the power of (health) data
Opportunity: Build innovative data driven applications, democratize data access & mobilize a community of users outside of government Supply Downloadable Data to the Market (NOAA of health data): http://www.cdc.gov/nchs/data_access/chdi.htm
Problem: Large amounts of data but with little use or creative application
Opportunity: Build innovative data driven applications & a community of users
1. Publish brand new HHS data for public access – while rigorously protec0ng privacy and confiden0ality
2. Make exis=ng HHS data much more accessible -‐-‐ “machine-‐readable,” accessible via applica0on programming interfaces (APIs), free, much easier to find
3. Energe=cally publicize our data to innovators -‐-‐ who can use it as raw material to develop applica0ons and services that help improve health and health care
Health Data Initiative core activities: liberate data and catalyze innovation
@Steven_InSites #cm48
Buzz volume
Brainstorming: Harnessing the Power of Data to Improve Health
One Day: 50 health policy & tech developer experts !brainstorm, be inspired and drive action: • Brainstorm most powerful and innovative ideas • Form teams & commit to activating the best ideas within 90 days • What started as a 1 day event has turned into a much broader effort
Health Policy Experts Tech Developers & Innovators
+
Mission: Harness the power of community health data for the benefit of all Americans”. CHDI was launched on March 11th as an experiment in understanding how people might use the data being released.
HealthData.gov, the one-stop place to get all of our free, publicly available data, launched 2/2011
brainstorm ! commit ! implement & build
Examples of innovative applications developed in 90 days
How do you bring data to the fingertips of consumers?
Microsoft Bing announced its latest effort to bring CHDI to the public by incorporating Hospital Compare data into its search functionality
Challenge Example: How do you make raw data useful?
• Winner of Blue Button challenge (www.health2challenge.org) • Contest funded through partnership between RWJF and Markle Foundation
@Steven_InSites #cm48
Buzz volume
• “Making community health info as useful as weather data” • “Making Health Data Sing” • Over 15 new or enhanced apps; 400 people in person, 300 online • Cross sector teams formed; Innovation Expo
Product Launch: June 2nd HHS + IOM “Here Come the Health Apps!”
Showcased best “apps” with a tremendous response:
The goal: a self-propelled, open “ecosystem of innovation” using data to improve health
• Help consumers take control of their health and health care
• Help employers promote health and wellness
• Help care providers deliver beEer care
• Help journalists shed light • Help local leaders make beEer-‐informed decisions
• Support all of the above through “data intermediary” services
• And much more
A Rapidly Growing Array of Innova=ve Products and Services That:
Health-Related Data from
FUELS
Publicizing our data to innovators across America
• Challenges and “code-‐a-‐thons” (health2challenge.org) • Many innovator “meetups” and conferences
• Annual “health datapaloozas”
Health Issues + Developers + Designers + Experts + 8 hours = Awesome
Form Teams ! Active Coding ! Prototype
HHS Team
Greg Downing Todd Park (@todd_park)
Aman Bhandari (@GHideas)
Additional Slides
@Steven_InSites #cm48
Buzz volume
How and where do you build community?
Launching an External Innovation Platform: www.health2challenge.org
• Partnered with Health 2.0 to launch a website to host challenges, innovation gallery and more
• Launched with over 12 challenges sponsored by: the Robert Wood Johnson Foundation, Markle Foundation, California Health Care Foundation, HHS, Practice Fusion, West Wireless Health Institute and others.
• Leverages power of prizes and challenges and team competitions
• Creates a “home” for a network of developers, government agencies, community organizations, foundations, and companies
• Creates an environment where events become “results engines”
• Over 12 challenges launched, 83 teams
• 5 in person code-a-thons with average of 120+ people, dozens of teams formed
• Release Data: HHS, USG, Private Sector (Gallup, First DataBank)
• Brainstorming (March 11th, 2010): Prestigious host: Institute of Medicine (IOM) Teams: mixture of start-ups, major companies, non-profits, individual innovators
• Build Applications (June 2nd, 2010): IOM as host, HHS and White House as convener
• Catalyze & Build Community: PPP with Health 2.0, IOM. Health 2.0 Developer Challenge launched 12 challenges with many partners; Code-a-thon partners include Google, HealthTap, Georgetown, Microsoft NERD, Make Magazine, others.
Design Framework (partnerships key to success):
Essential Ingredients of Success • Team:
– Dedicated team of 3 people with senior leadership support and vision
– Strong project management skills and ability to connect across sectors
• Brainstorming: – Partnerships from the beginning with outside non-profits to help convene, network and create a
lightweight consortium and get people vested from the start – Create mashups of experts and non-traditionalists who can build something
– Open Framework: ask people to make a commitment and contribution to the public good
• Building the Ecosystem and Community: – Welcome everyone (the small guy: start-ups, non-profits, solo entrepreneurs) – Provide a “home”: hhs.gov/open AND health2challenge.org
– Use “Prizes and Challenges” to drive results and action and give new partners a channel to do something concrete (health2challenge.org)
– Find a nimble/agile external group with a strong network (e.g. Health 2.0)
– Use events to engage people (health innovation week, conferences) and create results (code-a-thons)
– Find champions and create ambassadors (data and community ambassadors)
– Tap into social media (twitter) and blogger/journalist leaders
What was the timeline?
CHDI data landing page March 2010 Brainstorming session (experts + innovators) March 2010 Product launch June 2010 Health2challenge.org July 2010 Code-a-thon at HealthTap Sept 2010 Code-a-thon at Google Oct 2010 Health Innovation Week: Announce challenge winners Oct 2010 HealthData.gov launch Jan 2011 Code-a-thon at Georgetown Feb 2011
What did we accomplish? • Created dozens of health applications • Created a diverse community of data suppliers & data users
– Private sector has come forward to contribute data
• Created partnerships – HHS and Institute of Medicine (IOM) – HHS and Health 2.0 – Foundations and private sector companies and Health 2.0
• Created Challenge Platform (with Health 2.0): www.health2challenge.org – Platform to launch online challenges (over 12 challenges including Blue Button) – Network of developers – Network of funders, teams, innovators – In person code-a-thons
• Created www.HealthData.gov
How did CHDI work?
Community Building
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Product Launch
3
2 1
Challenge: Agencies are putting out large amounts of data. How to translate this raw information into useful knowledge and tools?
Solution: Convene the data-savvy community with passion for the topic.
Elements of CHDI • STEP 1: Publish raw data online in one place • STEP 2: Convene subject matter and data rock stars along with technology
experts and innovators to brainstorm creative uses • STEP 3: Commit to a major event (in front of the Secretary) to showcase the
tools built using the data • STEP 4: Partner from the beginning, build an external platform, host smaller
future events (code-a-thons) to build a movement