https://learn.extension.org/events/2490

This material is based upon work supported by the National Institute of Food and Agriculture, U.S. Department of Agriculture, and the Office of Family Readiness Policy, U.S. Department of Defense under Award Numbers 2014-48770-22587 and 2015-48770-24368.

Test Your Caregiver IQ

Connecting military family service providers to research and to each other

through innovative online programming

www.extension.org/militaryfamilies

MFLN Intro

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Connecting military family service providers to research and to each other

through innovative online programming

MFLN Intro

Join the Conversation Online!

Join the Conversation Online!

MFLN Military Caregiving

MFLN Military Caregiving @MFLNMC

MFLN Group https://www.linkedin.com/groups/8409844

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Military Families Learning Network

Asking Questions:

• When using APAN, type all questions and comments into the chat box on the left-hand side of the screen.

• If you are unable to use the APAN system, you can Tweet us your questions at @MFLNMC

• Questions can be submitted at any time during the presentation.

• We will try to answer questions in real-time or at the end of the presentation, in the order they are received.

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+Meet Mary!

• Owner of MBP Consulting, LLC• Professor Emeritus University

of Wisconsin-Extension• Over 25 years as an educator

of family caregivers • Personal and professional

caregiving experiences

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+

What’s your Military Caregiver IQ?Presented by: Mary Brintnall-Peterson, Ph.D.09 March 2016

+Webinar Objectives

• Develop a boarder understanding of caregivers.

• Understand why caregiver research is confusing.

• Recognize impacts on caregivers.• Name three types of caregiver stress.• Identify caregiver support systems.

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+Determining Your Caregiver IQ

• Answer each question • Keep track of your

correct answers• At the end of the

program—identify your IQ

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+Caregiving Numbers

• 43.5 million family caregivers, 34.2 million caring for someone over 50• 3.7 million caring for a child• 33.3 million caring for adult• 6.5 million for both child & adult

• 21.9 million caregiver households (9% of adult population)• 16.9 million are civilian caregivers• 4.4 million are pre-9/11 military caregivers• 1.1 million are post 9/11 military caregivers

Source: National Alliance for Caregiving and AARP Public Policy Institute , Caregiving in the U.S. 2015.10

+Polling Question #1: Research on Family Caregivers…A. Is consistent in findings.B. Provides specific recommendations on how to

support family caregivers.C. Is perplexing as caregiver definitions are

different, often disease or condition specific, and can’t be compared.

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+Answer: C

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+Caregiver Research

• Uses different caregiver definitions

• Often caregiver type specific

• Funding requirements• Difficult to compare• Thus… look for

commonalities and uniqueness

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+Practice Implications

• Check research sources• Do they have a bias?• Is it caregiver type specific?• How many caregivers in study?• What is reputation of research source?

• Look for similarities and differences

+Polling Question #2: What Factors Influence Caregiving?

A. Condition/illness of care receiverB. Where caregiver lives (with, close by or long

distance)C. Urban versus rural settingsD. CultureE. Relationship between caregiver and care

receiverF. EmploymentG. All of above 15

+Answer: G

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+Factors Which Impact CaregivingA. Condition/illness of care receiverB. Where caregiver lives (with, close by or long

distance)C. Urban versus rural settingsD. CultureE. Relationship between caregiver and care

receiverF. EmploymentG. Other factors—age, sex, hours of care per

week, length of being caregiver, etc. 17

+Caregiving Impacts on Caregivers

Source: Ramchand, R., Tanielian, T., Fischer, M.P., Vaughan, C. A. , Tail, T.E., Epley, C, Voorhies, P, Robbins, M.W., Robinson, E, Ghosh-Dastidar, B. , Hidden Heroes: American Military Caregivers, RAND Corporation, 2014.

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+Practice Implications

• Ask questions. • Listen carefully.• Determine if caregiver is unique or similar to

other caregivers.• Find out what they as a caregiver needs.• Discuss options of how caregiver needs can

be met.

+Sources of Caregiver StressA. Caregiver healthB. Lack of moneyC. Lack of support or helpD. Complex medical systemsE. Relationship changesF. Employment issues

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+Polling Question #3: Are There Different Types of Caregiver Stress?A. YesB. No

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+Answer: A

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+Three Types of Caregiver Stress

1. Relationship Stress2. Workload Stress3. Emotional Stress

Montgomery, R.J. V. & Kwak. J., 2008, Montgomery, R.J. V. & Kosloski, K., 2009; Savundranayagam, M.Y., & Montgomery, R.J.V. 2010

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+Relationship Stress

• Definition: Stress between caregiver and care receiver, due to caregiving.

Montgomery, R.J. V. & Kwak. J., 2008, Montgomery, R.J. V. & Kosloski, K., 2009; Savundranayagam, M.Y., & Montgomery, R.J.V. 201024

+Relationship Stress

• Examples:• “He just doesn’t appreciate everything I do for

him.”• “He expects so much of me and sometimes I

think he could do the task himself.”• “She gets angry when I handle the finances as

she used to do that and can’t now.”• “We just don’t talk or share with each other any

more.”

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+Workload Stress

• Definition: When the demands of caregiving interferes with the caregiver’s other relationships

Montgomery, R.J. V. & Kwak. J., 2008, Montgomery, R.J. V. & Kosloski, K., 2009; Savundranayagam, M.Y., & Montgomery, R.J.V. 2010

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+Workload Stress

• Examples:• “I don’t have enough time for myself, my friends

and my family because I’m always taking care of Tom.”

• “Caregiving is making it difficult for me to work.”• “I feel so guilty as I never seem to have time to

be with my children and husband because mom requires all my attention.”

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+Emotional Stress

• Definition: Occurs when caregiving makes the caregiver anxious, worried, fretting or upset.

Montgomery, R.J. V. & Kwak. J., 2008, Montgomery, R.J. V. & Kosloski, K., 2009; Savundranayagam, M.Y., & Montgomery, R.J.V. 201028

+Emotional Stress

• Examples:• “I’m just so uncertain about our future and how

we will survive financially.”• “I worry about Tom being home alone.”• “I find myself thinking I there has to be

something else I can do. “

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+Practice Implications

• Supports depend on the type of stress.• Workload stress—counseling or in-home help?• Relationship stress—respite or support group?

• Help caregiver understand how support will address their stress.

• Realize what works for one caregiver may or may not work for another caregiver.

• Provide options for caregiver so they can select.

+Depression

Source: Ramchand, R., Tanielian, T., Fischer, M.P., Vaughan, C. A. , Tail, T.E., Epley, C, Voorhies, P, Robbins, M.W., Robinson, E,

Ghosh-Dastidar, B. , Hidden Heroes: American Military Caregivers, RAND Corporation, 2014. 31

+Polling Question #4: Can Caregivers Experience Joy?A. YesB. No

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+Answer: A

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+Caregiver Joys• Caregivers

experience:• Being reconnected • Satisfaction• Joy• Meaning & purpose• Grow closer to care

receiver• Enjoy spending time

care receiver• Give back to care

receiver

Source: Bearon, L. B. (2013). The Burdens and Blessings of Family Caregiving. Raleigh: North Carolina Cooperative Extension Service. 34

+Practice Implications

• Share examples of how caregiving is a “joy” to some individuals.

• Look for “joys” when talking with caregivers.• Help caregivers recognize their own “joys.”

+ Polling Question #5: Which Support Services do Caregivers Use Most Often?A. Respite services F. Religious supportB. Advocate supports G. EducationC. Helping hand H. Financial supportsD. Support groupE. Wellness activities

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+Answer: F

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+Where Caregivers Get Support

Source: Ramchand, R., Tanielian, T., Fischer, M.P., Vaughan, C. A. , Tail, T.E., Epley, C, Voorhies, P, Robbins, M.W., Robinson, E, Ghosh-Dastidar, B. , Hidden Heroes: American Military Caregivers, RAND Corporation, 2014.

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+Practice Implications• Provide options for caregiver.• Make sure stress type & support options match up.• Discuss how some options may not work for them & that’s ok. • Encourage the use of multiple supports.• Encourage them to do what they “want” to do versus “what” they

have to do.• Provide details about support (phone, contact person, hours,

flyers, etc.).• Create a plan together:

• What they will do?• When they will do it?• What is goal of support?• When can you connect to see how the support is going?

+Summary• Caregiver research can be confusing.• Caregiving impacts caregivers differently yet

there are similarities between them.• There are three types of caregiver stress.• Caregiving can provide joy, satisfaction, &

meaning. • Professionals should discuss with caregivers

what they need.• Caregivers need to be involved in selecting

supports and resources to assist them.40

+Additional Information• Caregiver Learning Lessons-

http://articles.extension.org/pages/70342• National Alliance for Caregiving-

http://www.caregiving.org/• Caregiving in the U.S.-2015 report-http

://www.caregiving.org/caregiving2015/• Hidden Heroes: America’s Military Caregivers-

http://www.rand.org/pubs/research_reports/RR499.html

• Special Needs, Military OneSource- http://www.militaryonesource.mil/family-and-relationships/special-needs

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+Polling Questions: So What’s Your Caregiver IQ?• 5 correct—Genius• 4--Knowledgeable• 3—Novice• 2 or less – BeginnerCheck out MFLN Caregiver’s archived webinars/online courses at: https://extensiononline.tamu.edu/courses/military_caregiving.php

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+References• Bearon, L. B. (2013). The Burdens and Blessings of Family Caregiving. Raleigh:

North Carolina Cooperative Extension Service. http://content.ces.ncsu.edu/the-burdens-and-blessings-of-family-caregiving

• National Alliance for Caregiving and AARP Public Policy Institute , Caregiving in the U.S. 2015.

• Montgomery, R.J. V. & Kwak. J. (2008). Tailored Caregiver Assessment and Referral (TCARE) process: An evidence-based model for effectively supporting caregivers. American Journal of Nursing, 108. 54-57.

• Montgomery, R.J. V. & Kosloski, K. (2009). Caregiving as a Process of Changing Identity: Implications for Caregiver Support. Generations, 33, 47-52.

• Savundranayagam, M.Y., & Montgomery, R.J.V. (2010). Impact of role discrepancies on caregiver burden among spouses. Research on Aging, 32, 175-199.

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What is one significant thing you learned today?

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Evaluation and Certificate of Completion

MFLN Military Caregiving is offering a certificate of completion for today’s webinar.

To receive a certificate of completion, please complete the evaluation and post-test at: https://vte.co1.qualtrics.com/SE/?SID=SV_bwuEVORexTEeMlv

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Military Caregiving Upcoming Event

ADHD, Anxiety, and Autism: Practical Approaches to Child Psychiatry

• Date: April 27, 2016• Time: 11:00 AM Eastern• Location: https://learn.extension.org/events/2492

For more information on MFLN Military Caregiving go to: https://blogs.extension.org/militaryfamilies/military-caregiving/

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www.extension.org/62581

47This material is based upon work supported by the National Institute of Food and Agriculture, U.S. Department of Agriculture, and the Office of Family Readiness Policy, U.S. Department of Defense under Award Numbers 2014-48770-22587 and 2015-48770-24368.