Tash2011 Creating User Friendly Materials With Self Advocates
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Transcript of Tash2011 Creating User Friendly Materials With Self Advocates
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Creating User-Friendly Materials With Self Advocates:
Partnerships And Processes
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introductions
• Susan Stanfield, Director, Quality Assurance and Communications, [email protected]
• Shirlane Colban, [email protected]
– With Lanni Sulje, [email protected]
• Shelley Nessman, Consultant, Strategic Initiatives, Spectrum, [email protected]
• Aaron Johannes, Director, Research, Training and Devlepment, [email protected]
• Jule Hopkins, Community Living BC, Safeguards & Service Accountability [email protected] (sends her regrets and best wishes)
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Introduction: CLBC, Safeguards Project and “Start with Hi” campaign
• Jule’s work in context
• The idea of Safeguards
• “Start with Hi” campaign
– Newspapers
– Website
– FB
– Website
• “icanbesafeonline”
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tweet tweet & youtube
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Our introduction to safeguards
• Provincial project
• Our interest in community based research
– In growing an alternative voice about possibilities
• Our Personal Support Networks report
– Developed curriculum
• Mixed groups
• Parents
• self advocates
• Staff, out of which came new presentation “the changing role of community supports”
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Final report
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Working in partnerships
Partners
• With government (Community Living B.C.)
• With self advocates
• With self advocate groups
• With families
• With other agencies
• With other leaders
• With other organizations outside “disabilty” services
Jule, Lorie President PFBC, Aaron
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Translation into plain language and graphics with self advocates
• Text heavy documents
• Need for self advocate materials
– Also, if interdependence is the goal, materials that are accessible to new immigrants, people with lower literacy, people who think better with graphics
• People we might want to meet
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Little Green Booklet: Met with three groups
• Focus group in Vancouver– worksheets
• Large group in Victoria (100 self advocates) – Small group work
• Provincial focus group– Feedback on last draft– Co-facilitated by David
Pitionyak• Learning how to be an
ambassador for the booklet
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Ideas workgroup: Victoria
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Focus Group: Vancouver
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Rejected Drafts
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Feedback Group (Ambassadors): from all around the province
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Result: plain language, graphics, coil bound, pocket sized workbook
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Shirlane Colban
• Introduction
• Involved in focus group
• Leader in her own life
• Teacher for us in how she’s developed her own network: an authority
• Arts background
• Honest thoughtful feedback
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Shirlane: art
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Shirlane: focus group
• How did you feel when you were asked to help out with this project?
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shirlane
• One of the important reasons to have you in the first group is that you are known for having such a strong network. You had a lot to teach and share. Why is it important for you to have a network of friends and family?
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Why do you think it was imporant to the group to make a book people could write in?
A workbook to write in
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Why did the group want to have one person to focus on?
Focus on ONE person’s story
Buddy had already appeared in the original document
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What Buddy did and who he did it with was a big discussion…
Network includes everyoneBuddy isn’t just acted on; he takes action
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What about “We’re not just going bowling anymore!”?
Works in a bar Plays beach volleyball
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www.shirlanecolban.com
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Shelley: http://www.communitylivingbc.ca/policies-publications/publications/safeguards-publications/
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Family stories about informal safeguards
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Family stories about informal safeguards
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www.icanbesafeonline.com
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youtube
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“Start with Hi” Self advocate FB conversations
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Building Personal Support Networks: Barbarah and Zackery's Story
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Building Personal Support Networks: Barbarah and Zackery's Story
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Building Personal Support Networks: Barbarah and Zackery's Story
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capacity collection site
• Came out of “Sharing the Power of Stories” workshops around the province
• Stories were being shared for the first time
• Stories were being lost
• People valued their stories
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Aaron: Next steps for Spectrum Research Training and Development
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Return to groups we’d met with to show them what we’d made together
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Return to groups we’d met with to show them what we’d made together
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Next steps for Spectrum Research, Training and Development
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www.spectrumpress.com
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“books and products by, with and for people with disabilities and those who care about them”
• A “social enterprise”
• Triple bottom line
– Use the strengths of those we support to strengthen our mission
– Make a profit
• Employ those we support
– Build the community(ies) we’re part of
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The Goode Life: Memoirs of Disability Rights Activist Barb Goode
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New poster set
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Adventure stories by People You care About
• Problem solving
– Literacy support
– Emotional support
• Surprises
–People don’t think they’ve had adventures
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New project
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Inclusive research is happening all over the world
• CHECKING UP ON DES
An investigation into Implementation of Annual Health Checks for people with learning disabilities in Oxfordshire
• Jan Walmsley Associates Ltd with My Life My Choice
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www.inclusiveresearch.net
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Inclusive research
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(Dr. Walmsley) http://janwalmsleyassociates.com/(Trinity College) www.tcd.ie/niid/research/irn/
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Questions?
• To download a copy of this presentation go to www.spectrumpress.ca