We depend on voluntary contributions to keep

our support going. Over 42,000 people in the UK

have been diagnosed with young onset

dementia, many more are living undiagnosed

with the condition.

With your help we can reach out to more

people. For information about how to help us,

please visit our website.

PO Box 315

Witney

Oxfordshire

OX28 1ZN

Tel 01993 776295

www.youngdementiauk.org

Email mail@youngdementiauk.org

Follow us on Twitter & Facebook

Registered charity no 1085595

YoungDementia UK has won a number of

awards for its work including GlaxoSmithKline’s

IMPACT Award and the European Foundations’

Initiative on Dementia award.

Our services are shaped by our members and

we constantly review them to make sure we are

providing the support people need and want.

Listening and sharing We listen closely to young people with

dementia and work with them to ensure their

views are represented.

Working alongside others with a personal or

professional interest in young onset, we are

building a National Young Onset Dementia

Network which aims to raise understanding,

ease the route to a timely diagnosis and ensure

age appropriate support is available to all.

We share our knowledge and experience with

others to promote support that focuses on

people as individuals and enables them to live

well and fully.

Supporting younger people

and their families to live well

with dementia

04/2015

Award winning support How you can help us

We are dedicated to ensuring people

affected by young onset dementia have the

best opportunity to live well.

The charity is based in Oxfordshire and

provides face-to-face support for younger

people and their families in the area.

Accessing specialist young onset services in

other parts of the UK can be difficult and

many people have little or no support. We

intend improving and increasing the level of

support available to people living with young

onset nationally.

Our website, newsletter and social media

activity are comprehensive sources of

information about young onset and support

nationwide.

Young onset dementia Dementia is termed ‘young onset’ when it

affects people before the age of 65.

People with dementia experience a

progressive decline in their ability to think,

reason, communicate and remember. A

person’s personality, behaviour, vision and

mood can also be affected.

The condition occurs at a time in people’s

lives when they are likely to still be working,

have financial responsibilities, be physically fit

and have children or parents to care for.

Younger people are more likely to be

diagnosed with rarer forms of dementia. They

are also more likely to be diagnosed with a

genetically inherited form of dementia.

The impact of young onset dementia is felt by

the whole family.

Each person is partnered with a trained team

member to provide consistent one-to-one

support that helps them to adapt to the changes

in life they are experiencing.

People choose how they would like to spend

their time during the regular sessions, from long

walks to rounds of golf, organising personal

paperwork to a visit to a museum.

Our support helps people to continue their

hobbies, maintain their skills and improves their

confidence and self-esteem. The service also

creates reliable, frequent breaks for partners and

family members.

We support the whole family and help

partners, children and parents to adapt to

living with a family member with young

onset dementia.

The team provides dedicated, practical and

emotional support through home visits, regular

phone and email contact.

There are also regular group get-togethers

over coffee and leisurely walks for people to

meet others and share their experiences.

‘My support workers are people I can rely on and

trust and I’ve never had that before. It really is

the highlight of my week.’

Nic, with his One to One support worker Jenny

‘When I am exhausted she is there and I can

pick myself back up and carry on. I really

don’t think I could have got this far so easily

without the knowledge that she and YDUK

are there.’

Elaine, with Family support worker Emeline

The Café and social events Living with dementia can be very isolating.

Our monthly evening Café gives members a

great night out with good food, live music and

a chance to socialise and make new friends.

We also hold social events throughout the

year so people can enjoy a day out with the

support of our team.

‘Like Minds is brilliant because people there have

an understanding that no one else can have.’

Jenny

About us Active support Supporting the family

Our regular groups such as Like Minds and

Creative Minds are specifically for people who

have young onset dementia.

They provide informal opportunities for

conversation, creativity and mutual support.