Summary measures of population health,Report of findings of methodologic and data issues

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Transcript of Summary measures of population health,Report of findings of methodologic and data issues

  • 8/8/2019 Summary measures of population health,Report of findings of methodologic and data issues

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    Contents

    1. SummaryMeasuresofPopulationHealth. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 11.1 Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 11.2 Overview of the Role of Summary Measures in Health. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 2

    1.2.1 The process of population health change . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 21.2.2 Past use of summary measures . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 3

    1.3PotentialSummaryMeasuresSuggestedforHealthyPeople2010 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 51.4 Availability of Data for Estimating the Proposed Measures . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 6References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 7

    2. MethodsforCalculatingHealthyLifeExpectancy. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 82.1 Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 82.2 The Life Table Technique. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 8

    2.2.1 Estimating the average expectation of life . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 82.2.2 Estimating healthy life expectancy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 92.2.3 Standard errors of healthy life expectancy . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 11

    References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 113. ExpectedYearsofHealthyLifeUnderVariousDefinitionsofHealth . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 13

    3.1 Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 133.2 Expected Years of Healthy Life for Males and Females. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 13

    3.2.1 Expected years in good or better health . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 133.2.2 Expected years without activity limitation . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 143.2.3 Expected years without work limitation . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 153.2.4 Expected years without functional dependency . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 153.2.5 Expected years without diseases or chronic conditions . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 173.2.6Expectedyearswithbodymass index(BMI) less than25andyearswithBMI lessthan30 . . . . . . . . . 18

    3.3 Expected Years of Healthy Life for the White and Black Populations . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 203.3.1Expectedyearsingoodorbetterhealthfor thewhiteandblackpopulations . . . . . . . . . . . . . . . . . . . . . . 203.3.2Expectedyearswithoutanyactivitylimitationforthewhiteandblackpopulations. . . . . . . . . . . . . . . . . 213.3.3ExpectedyearswithoutADLorIADLlimitationforthewhiteandblackpopulations. . . . . . . . . . . . . . . 223.3.4 Expected years with BMI less than 30 for the white and black populations . . . . . . . . . . . . . . . . . . . . . . 22

    3.4 Comparison of Results from the Various Measures of Health . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 243.4.1 Comparison across measures at 30 and 65 years of age . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 253.4.2 Comparison across measures for males and females at 65 years of age. . . . . . . . . . . . . . . . . . . . . . . . . . . 253.4.3Comparisonacrossmeasuresforthewhiteandblackpopulationsat65yearsofage . . . . . . . . . . . . . . . 273.4.4 Comparison across measures by age, sex, and race . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 27

    References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 28

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    4. TrendsinLifeFreeofActivityLimitation:UnitedStates,198595. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 424.1 Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 424.2Age-AdjustedDeathandActivityLimitationRates:UnitedStates,198595. . . . . . . . . . . . . . . . . . . . . . . . . . . 424.3Age-SpecificDeathandActivityLimitationRates:UnitedStates,1985and1995 . . . . . . . . . . . . . . . . . . . . . . 434.4 Years Free of Activity Limitation: United States, 198595 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 444.5GainsinLifeExpectancyandExpectedLimitation-FreeYears:UnitedStates,198595. . . . . . . . . . . . . . . . . . 454.6 Summary . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 46References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 47

    5. TheImpactofIncompleteDataonHealthyLifeExpectancyEstimates . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 525.1 Introduction . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 525.2The1995NoninstitutionalizedCivilianandInstitutionalizedPopulations. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 53

    5.2.1 The noninstitutionalized civilian population. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 545.2.2 The 1995 nursing home population. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 54

    5.3 Functional Limitation: The Community and Nursing Home Populations . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 545.3.1 Functional limitation: The population 5 years of age and over. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 555.3.2 Functional limitation: The population 65 years of age and over . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 56

    5.4 Effect on Healthy Life Expectancy Estimates for the Older Population . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .

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    References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 586. SummaryandConclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 62

    References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 64

    Figures1.1 Population health change . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 21.2 Potential health changes for individuals . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 31.3 Health care and public health intervention opportunities . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 42.1 A schematic presentation of the model . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 92.2 Aschematicframeworkforestimatinghealthylifeexpectancyat thenationallevelusingrespondent

    assessed health status as an example . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 102.3 Example of attributes for health classification system . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 103.1 Percentageofpersonsreportinggoodorbetterhealth,byageandsex:UnitedStates,1995 . . . . . . . . . . . . . . . 143.2 Percentageofexpected lifeingoodorbetterhealthatbirth,20,and65yearsofage,bysex:

    United States, 1995. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 143.3 Percentage free of activity limitation, by age and sex: United States, 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . 153.4 Percentageof lifeexpectancyfreeofanyactivity limitationatbirth,20,and65yearsofage,bysex:

    United States, 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 163.5 Percentageabletoperformpersonalcareneedsornot limited inotherroutineneeds,byageandsex:

    United States, 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 163.6 Percentageof lifeexpectancyable toperformpersonalcareneedsornotlimitedinotherroutineneeds at 45, 65, and 75 years of age, by sex: United States, 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 173.7 Percentageof lifeexpectancyfreeofchronicarthritisat30,65,and75yearsofage,bysex:

    United States, 199496 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 183.8 Percentageof lifeexpectancyfreeofchronicheartdiseasesat30,65,and75yearsofage,bysex:

    United States, 199496 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 18

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    3.9 Percentageof lifeexpectancyfreeofchronichypertensionat30,65,and75yearsofage,bysex:United States, 199496 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 18

    3.10 Percentage not obese, by age and sex: United States, 199496 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 193.11 Percentage in good or better health, by age and race: United States, 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 213.12 Percentagefreeofanytypeofactivitylimitation,byageandrace:UnitedStates,1995 . . . . . . . . . . . . . . . . . . 223.13 Percentageabletoperformpersonalcareneedsornot limited inotherroutine

    needs, by age and race: United States, 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 233.14 Percentage not obese, by age and race: United States, 199496 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 233.15 Lifeexpectancyandexpectedyearsofhealthylifeunderdifferentdefinitionsofhealthat30yearsof

    age, both sexes: United States, 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 243.16 Lifeexpectancyandexpectedyearsofhealthylifeunderdifferentdefinitionsofhealthat65yearsof

    age, both sexes: United States, 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 253.17 Lifeexpectancyandexpectedyearsofhealthylifeformalesunderdifferentdefinitionsofhealthat

    65 years of age: United States, 1995. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 263.18 Lifeexpectancyandexpectedyearsofhealthylifeforfemalesunderdifferentdefinitionsofhealthat

    65 years of age: United States, 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 263.19 Lifeexpectancyandexpectedyearsofhealthylifefor thewhitepopulationunderdifferentdefinitionsof

    health at 65 years of age: United States, 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 273.20 Lifeexpectancyandexpectedyearsofhealthylifefor theblackpopulationunderdifferentdefinitionsof

    health at 65 years of age: United States, 1995

    . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .

    27

    3.21 Sexdisparities inhealthundervariousdefinitionsofhealthstatus,byage:UnitedStates,1995 . . . . . . . . . . . 283.22 Racialdisparitiesinhealthbetweenwhiteandblackpopulationsundervariousdefinitionsofhealthstatus,

    by age: United States, 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 294.1 Number of deaths per 1,000 for white males, by age: United States, 1985 and 1995 . . . . . . . . . . . . . . . . . . . . . 434.2 Numberofdeathsper1,000forwhitefemales,byage:UnitedStates,1985and1995 . . . . . . . . . . . . . . . . . . . 434.3 Number of deaths per 1,000 for black males, by age: United States, 1985 and 1995 . . . . . . . . . . . . . . . . . . . . . 444.4 Numberofdeathsper1,000forblackfemales,byage:UnitedStates,1985and1995 . . . . . . . . . . . . . . . . . . . 444.5 Percentageofwhitemaleswithactivitylimitationfromanycause,byage:UnitedStates,1985

    and 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 444.6 Percentageofwhitefemaleswithactivitylimitationfromanycause,byage:UnitedStates,1985

    and 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 454.7 Percentageofblackmaleswithactivity limitationfromanycause,byage:UnitedStates,1985

    and 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 454.8 Percentageofblackfemaleswithactivitylimitationfromanycause,byage:UnitedStates,1985

    and 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 464.9 Expectedyearsfreeofactivitylimitationaspercentageoflifeexpectancy,whitemales:UnitedStates,

    1985 and 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 464.10 Expectedyearsfreeofactivitylimitationaspercentageoflifeexpectancy,whitefemales:UnitedStates,

    1985 and 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 464.11 Expectedyearsfreeofactivitylimitationaspercentageoflifeexpectancy,blackmales:UnitedStates,

    1985 and 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 474.12 Expectedyearsfreeofactivitylimitationaspercentageoflifeexpectancy,blackfemales:UnitedStates,

    1985 and 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 475.1 Percentageof thefemalepopulation65yearsofageandoverwhoneedhelpwithat leastoneactivityof

    daily living, by age and residence: United States, 1995. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 545.2 Percentageof thefemalepopulation65yearsofageandoverwhoneedhelpwithat leastone

    instrumentalactivityofdaily living,byageandresidence:UnitedStates,1995 . . . . . . . . . . . . . . . . . . . . . . . . 555.3 Percentageof thefemalepopulation65yearsofageandoverwhoneedhelpwithat leastoneactivity

    of daily living, by age and residence: United States, 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 565.4 Percentageof thefemalepopulation65yearsofageandoverwhoneedhelpwithat leastoneactivity

    ofdailylivingorinstrumentalactivityofdaily living,byageandresidence:UnitedStates,1995 . . . . . . . . . . 57

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    TextTablesA. Ratesperthousandwithchroniccondition,bytypeofconditionandsexatselectedages:UnitedStates,

    199496. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 17B. Classificationofoverweightandobesitybybodymass index(BMI):Adults,18yearsofageandover . . . . . 19C. Thecommunityandinstitutionalizedpopulation,bysex:UnitedStates,1990 . . . . . . . . . . . . . . . . . . . . . . . . . . 52D. Percentagedistributionof thenoninstitutionalizedandinstitutionalizedpopulation,bybroadagegroup:

    United States, 1990 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 53E. Percentagedistributionandsexratioofcommunitydwellersand thenursinghomepopulation,bybroadage

    group: United States, 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 53

    DetailedTables3.1. Lifeexpectanciesandexpectedyearsingoodorbetterhealthandexcellenthealthforselectedages,

    by sex: United States, 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 303.2. Lifeexpectanciesandexpectedyearswithout limitationinactivityforselectedages,bysexandtypeof

    activity: United States, 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 313.3. Lifeexpectanciesandexpectedyearswithoutworklimitationforselectedages,bysex:

    United States, 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 323.4. Lifeexpectanciesandexpectedyearswithoutfunctionaldependencyforselectedyears,bysex:

    United States, 1995. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 333.5. Lifeexpectanciesandexpectedyearswithoutchronicarthritisandchronicheartdiseasesforselectedages,

    by sex: United States, 199496 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 343.6. Lifeexpectanciesandexpectedyearswithoutchronichypertensionandchronicdiabetesforselectedages,

    by sex: United States, 199496 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 353.7. Lifeexpectanciesandexpectedyearswithbodymass index lessthan25andyearswithbodymass index

    less than 30 for selected ages, by sex: United States, 199496. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 363.8. Lifeexpectanciesandexpectedyearsingoodorbetterhealthforselectedagesof thewhiteandblack

    populations, by sex: United States, 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 373.9. Lifeexpectanciesandexpectedyearswithoutanytypeofactivitylimitationforselectedagesofthe

    white and black populations, by sex: United States, 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 383.10. Lifeexpectanciesandexpectedyearswithout limitationinpersonalcareorotherroutineneedsfor

    selected ages of the white and black populations, by sex: United States, 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . 393.11. Lifeexpectanciesandexpectedyearswithbodymass indexlessthan30forselectedagesof thewhite

    and black populations, by sex: United States, 199496 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 403.12. Expectedyearsatage30and65estimatedusingdifferentdefinitionsofhealth,byhealthstatus:

    United States, 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 403.13. Expectedyearsatage65estimatedusingdifferentdefinitionsofhealth,byhealthstatusandsex:

    United States, 1995. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 413.14. Expectedyearsatage65estimatedusingdifferentdefinitionsofhealth,byhealthstatusandrace:

    United States, 1995. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 414.1. Age-adjusted death rates for all ages, by race and sex: United States, 198595 . . . . . . . . . . . . . . . . . . . . . . . . . 484.2. Age-adjustedactivity limitationratesfromanycauseforallages,byraceandsex:

    United States, 198595. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 484.3. Numberofdeathsfromallcausesfor thewhiteandblackpopulations,bysex:UnitedStates,1985and 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 49

    4.4. Limitationofactivityfromanycauseforthewhiteandblackpopulations,bysex:UnitedStates,1985and 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 49

    4.5. Lifeexpectancyandexpectedyearsfreeofanyactivity limitationformalesatbirth,byrace:United States, 198595. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 50

    4.6. Lifeexpectancyandexpectedyearsfreeofanyactivity limitationforfemalesatbirth,byrace:UnitedStates,198595. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 50

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    4.7. Lifeexpectancyandexpectedyearsfreeofany limitationatbirth,age20,andage65for thewhiteandblackpopulations, by sex: United States, 1985 and 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 51

    5.1. Numberandpercentagedistributionofcommunityresidentsbysexandbyrace,according toageatinterview: United States, 1995. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 59

    5.2. Numberandpercentagedistributionofnursinghomeresidentsbysexandbyrace,accordingtoageatinterview: United States, 1995. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 59

    5.3. Percentageofpopulationneedinghelpwithatleastoneactivityofdailylivingandneedinghelpwithatleastoneactivityofdailylivingorinstrumentalactivityofdaily living,bybroadagegroup,sex,andplaceof residence: United States, 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 60

    5.4. Percentageofpopulationneedinghelpwithatleastoneactivityofdailyliving,byage,sex,andplaceof residence: United States, 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 60

    5.5. Percentageofpopulationneedinghelpwithatleastoneactivityofdailylivingorinstrumentalactivityof daily living, by age, sex, and place of residence: United States, 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 61

    5.6. Expectedyearsof lifeandhealthyyearsoffemalecommunitydwellersandnursinghomeresidentsatselected ages: United States, 1995. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 61

    6.1. Absoluteandrelativedifferences inmaleandfemalehealthy lifeexpectancyat30and65yearsofage:United States, 1995. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 65

    6.2. Absoluteandrelativedifferences inmaleandfemalehealthy lifeexpectancyfor thewhiteandblackpopulations at 30 and 65 years of age: United States, 1995 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 66

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    1. SummaryMeasuresofPopulationHealth1.1 Introduction

    Theconceptofhealthexpectancywasintroducedinthe

    1960s(1)andfurtherdevelopedin the1970s(24).Inmore

    recentyears,bothpolicymakersandmembersofthe

    researchcommunityhavebeenincreasinglyinterestedinthe

    estimationofhealthylifeexpectancy.Thisinterestarises

    fromthefactthatmeasuresofhealthylifeexpectancy

    potentiallyoffereasilycomprehensiblemeasuresofboththe

    levelof,andchangein,thewell-beingofapopulation.

    Becausethesemeasuresincorporatebothmortalityand

    morbidity,theyseemhighlyappropriateassummary

    measuresofhealthintheolderpopulation,wheretherehas

    beenconsiderablemortalitydecline,butwherethereis

    concernthattheextensionoflifemaynotbeequivalentto

    theextensionofhealthylife.Therelationshipbetweenchangesinmortalityand

    morbidityandtherelativelygreaterburdenofmorbidityin

    theolderagesgainedinterestin the1980s.Debatecentered

    onwhetherthefactorsresponsibleforthereductionsin

    mortalitywouldhaveasimilareffectonmorbidity.Some

    arguedthatmostoftheyearsoflifethattheelderlygained

    duetothedeclineofmortalitywerehealthyyearseither

    becausetheincidenceofchronicconditionswasbeing

    pushedtothelastfewyearsoflife,thatis,thecompression

    ofmorbidity(5,6)orbecausethelossoffunctioningor

    disabilityfromchronicconditionshadsloweddown(7).

    Othersarguedthat themedicalcareimprovementsthatsaved

    liveswerenotaccompaniedbyeitherdiseasepreventionthatwouldmaintainhealthystatesorhealthcarethatwould

    delayfunctionalconsequencesofdisease(8).

    Healthylifeexpectancyisalsoperceivedasausefultool

    forhealthplanningandmakinghealth-relatedpolicy

    decisions.Anindicationoftheperceivedusefulnessfor

    policymakersoftheconceptofhealthylifeexpectancyis

    thefactthatyearsofactivelifearenowincludedamong

    nationalandinternationalhealthgoals.Fortheyear2000,

    theU.S.goalwas65yearsofactivelifeexpectancyatbirth

    forthetotalpopulation(9).Thetwooverarchingnational

    healthgoalsidentifiedforHealthyPeople2010areto:+

    Increasethequalityandyearsofhealthylifeand+ Eliminatehealthdisparities(10).

    Thegoalsandobjectivesoutlinedforthedecadein

    HealthyPeoplehavebecomecentraltobothmonitoringthe

    Nationshealthandplanninganagendatopromotehealth

    andpreventill-health.Monitoringthegoalsandobjectives

    fortheyear2010will,inpart,beachievedthroughLeading

    HealthIndicators,asmallnumberofmeasuresthataddress

    majordeterminantsofhealth.TheseLeadingHealth

    Indicatorsprovideawayofunderstandinghealthinthe

    future,buttherealsohasbeenaneedtodescribe,ina

    summaryway,thecurrenthealthof thepopulation.Somesummarymeasurescombineboththequalityand

    quantityoflifetoreflectyearsofhealthandcanbeusedto

    monitorprogresstowardthe firstof theoverarchinggoals.

    Becausetheyarecomparableacrosspopulationswith

    differentagestructures,thesemeasuresalsocanbeuseful

    formonitoringprogresstowardthesecondgoalof

    eliminatinghealthdisparities.Morespecifically,summary

    measuresofpopulationhealthcombineage-specific

    schedulesofhealthandmortalitytoderiveglobalmeasures

    ofpopulationhealththatreflectbothmortalityand

    morbidity;inthisway,expectedyearsoflifecanbedivided

    intohealthyandunhealthylife.Theyhavebeenproposedas

    themostcomprehensivemeasuresforevaluatingoveralltrendsanddifferencesinpopulationhealth.

    Asaninitialeffortinthedevelopmentofsummary

    measuresofhealth,theNationalCenterforHealthStatistics

    (NCHS),CentersforDiseaseControlandPrevention,

    sponsoredaworkshopentitledIdentifyingSummary

    MeasuresforHealthyPeople2010onSeptember1718,1998,attheUniversityofMarylandsUniversityCollege

    ConferenceCenter.Thepurposeofthisworkshopwasto

    identifyasetofsummarymeasuresthatcouldbeusedto

    evaluateprogresstowardtheoverallgoalsofHealthyPeople2010.

    Thecentralquestionaddressedat thisworkshopwashow

    tobestcharacterizetheprocessofhealthchangeanddifferentialsinasetof summarymeasuresthatcouldbe

    estimatedreliablyandpotentiallyusedbyFederalandState

    governmentstodeterminetrendsaswellasdifferencesin

    healthbyage,gender,raceorethnicity,andgeographicarea.

    Theobjectivesoftheworkshopwereto:

    + ProvideabriefoverviewoftheroleofsummarymeasuresinHealthyPeople2000/2010, includingreportingrequirementsanddataconstraints;

    + Identifyasetofpotentialsummarymeasuresthatshouldbeconsideredformonitoringprogresstowardthefirst

    goalofHealthyPeople2010;+ Specifyabilitytocomputethepotentialmeasureswith

    existingdatacollectionsystemsorcost-effective

    modificationstoexistingdatathatwouldallowthe

    computationofmeasures;and

    + Specifya researchagendaforthenextdecadetoevaluatepotentialsummarymeasures.

    Thisreportpresentsthefindingsofresearchthatwas

    initiatedinresponsetotheworkshoprecommendations.The

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    workfocusesonmethodologicanddataissues.Thereport

    providesdefinitionsofconceptsandmethodsforcalculatingthe

    recommendedsummarymeasures;evaluatesanumberof

    possiblemeasuresofmorbidity;reviewsthetrendsovera

    decadeforonemeasureofhealthylifeexpectancy;and

    examinestheeffectofcombiningdatafromdifferentsources.

    1.2Overviewof theRoleofSummaryMeasures inHealth

    Thischaptersummarizesconceptualmaterialabout

    healthandmortalitythatisidentified,summarized,

    measured,andtrackedwithsummarymeasures.Inorderto

    identifytheprospectivesummarymeasuresthatbestmonitor

    thequalityandyearsofhealthylife(i.e.,oneofthe

    overarchinggoalsofHealthyPeople2010) it isnecessarytofirstclarifythedimensionsofpopulationhealthandshow

    howtheyarerelatedtohealthbehaviorsandpotential

    interventions.

    Mortalityoftenhasbeenusedasabasicindicatorof

    health.Lifeexpectancyisthemostfrequentlyusedsummarymeasureofmortalityconditionsbecauseitsummarizes

    mortalityratesacrosstheentireagerange. Two

    characteristicsoflifeexpectancymakeita valuablemeasure

    forportrayingmortalityconditionstoaudiencesthatinclude

    thegeneralpublicandpolicymakers.First, itisnotaffected

    bypopulationage-structure.Thismeansthatvaluescanbe

    comparedfordifferentsubgroupsofthepopulationatone

    pointintimeorforthesamegroupsatdifferentpointsin

    time.Inaddition,becauselifeexpectancyisexpressedin

    yearsoflife,itiseasilyinterpretedbybothpolicymakers

    andthepublic.Bothofthesecharacteristicsmakelife

    expectancyanessentialtoolformonitoringbothtrendsand

    differencesinmortalityforthepopulationandsubgroupsofthepopulation.Consequently,extendingthisstatistical

    concepttoincorporatevariousstatesofhealthmaygenerate

    acceptableandunderstandablestatistics.

    Theextensionofthebasiclifetablemodeltoinclude

    measuresofhealthcanbeusedtocreatesummarymeasures

    ofpopulationhealththatdivideexpectedlifeintohealthy

    andunhealthyyears(11,12).Whenhealthstatusisdominated

    bychronicconditionsatolderagesratherthaninfectious

    diseasesatyoungerages,itispossibletohavebothlonger

    lifeanddeterioratingpopulationhealth(13).Forinstance,if

    increasedtreatmentofheartdiseaseresultsinmortality

    decline,peoplewill livelongerwiththedisease; this,in

    turn,willresultinincreasedheartdiseaseprevalence,

    especiallyifnewcasesarenotprevented.Iftheyearsoflife

    livedwithheartdiseasecontinuetobecharacterizedby

    diminishedfunctioning,overallpopulationhealthwill

    deteriorateaslifeexpectancyincreases.

    Theassociationbetweenmortalitychangeandhealth

    changeisweakenedfurtherbecausemanycausesof

    morbidityarenotfatalconditions.Forinstance,osteoarthritis

    isamongtheleadingcausesofdisabilityamongolder

    people,butitisnotalikelycauseofdeath.Asmortality

    fromothercausesdeclines,osteoarthritisprevalencecould

    increase.Summarymeasuresthatcombinemortalityand

    morbidityattemptto capturetheseaspectsofhealthstatus.

    1.2.1TheprocessofpopulationhealthchangeThekeyissueindevelopingsummarymeasuresis

    definingandmeasuringhealthandhealthchange.Individual

    researchersandinternationalgroupshavedonesignificant

    workindefiningthedimensionsofhealthandclarifyingthe

    processofpopulationhealthchange(14,15). Aconceptual

    outlineofthedimensionsofhealthandtheprocessof

    changeinpopulationhealthisshowninfigure1.1(16).Any

    orallofthedimensionsofhealthcouldbecapturedin

    summarymeasures.

    Diseases,conditions,andimpairments(e.g.,heart

    disease,arthritis,andvisualimpairment)occurbeforethere

    isalossinfunctioningortheabilitytoperformcertain

    actions(e.g.,walkingablock,climbinga specificnumberof

    stairs,orsittingforanallottedtime).Functioninglosscan

    thenresultindisabilityoran inabilitytoperforman

    expectedsocialrole,oftendefinedasworkforthe

    middle-agedandself-careor independentlivingforanolder

    population.Deathistheendoftheprocess.Overtime,

    changecanoccurinsomeorallofthesedimensions,thatis,

    gettingorlivingwithdiseases,experiencingfunctioningloss,

    anddying(17).

    Disabilityin thiscontextreferstothesituationinwhich

    anindividualsabilitiesorlimitationsaredeterminedbythe

    interactionoftheirphysical,mental,orcognitivestatuswith

    theenvironmentinwhichtheywouldperformsocialroles.

    Thedegreeof limitationordisabilityisdependentonhow

    Figure1.1.PopulationhealthchangeSOURCE:VerbruggeandJette. TheDisablementProcess.SocialSciencesandMedicine,1994.

    2 SummaryMeasuresofPopulationHealth

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    wellthepersonalenvironmentaccommodatesthelossin

    functioning.Thisdefinitionisequivalenttothatdevelopedin

    theInstituteofMedicalModel(18)andsimilartothe

    participationdimensionoftheInternationalClassificationof

    Functioning,DisabilityandHealth.Inothercontexts,

    disabilityisusedtorefertothephysical,mental,or

    cognitivestatusoftheindividual.Althoughconsiderable

    workhasbeendoneoverthelastfewyearstoward

    clarifyingthemeaningofdisability,thereisstillsomeconfusioninvolvingterminology.However,researchersare

    comingtomoreofaconsensusthatdisabilityisacomplex

    phenomenonandthatneitherofthedefinitionsoutlined

    aboveadequatelydescribesallthecharacteristicsofthe

    phenomenon.

    Thisschemeisonlyappropriateforpopulationhealth

    change,notindividuallifecyclechange.Thecomplexityof

    changeattheindividuallevelisshowninfigure1.2.Each

    arrowrepresentsapotentialhealthchangeforanindividual.

    Thesumofthesechangesacrossallindividualsis,of

    course,whatproduceschangeinthepopulation.Any

    individualcanskipstagesandmaynotnecessarily

    experienceanystageotherthandeath.Individualscanalsoexperiencechangeinbothdirections,thatis,theymay

    becomeimpairedandmayregainfunctioning.For

    populations,however,theorderofhealthchangein

    figure1.1isappropriate;onaverage,diseaseoccursfirst,

    followedbyfunctioninglossanddisability,andfinally,

    death.Thedifferencebetweenindividualsandpopulationsis

    important inevaluatingthetypeofdataandmethodsused

    forsummarymeasures.Informationontheindividual

    processesrequireslongitudinaldataandmethods;

    informationonthepopulationmaybecollectedas

    cross-sectionalinformation.

    1.2.2PastuseofsummarymeasuresSummarymeasuresofpopulationhealthcanbe

    categorizedintotwomajorgroups.Thefirstmajorgroupof

    measuresiscalledhealthexpectancy(HE),andincludes

    measuressuchasdisability-freelifeexpectancy(DFLE)and

    healthylifeexpectancy(HLE).Thesecondmajorgroup,

    whichmeasureshealthgaps,includeshealthmeasuressuch

    asdisability-adjustedlifeexpectancy(DALY)(19).Although

    thesummarymeasuresthatindicateyearsofhealthyand

    non-healthylifederivedfromthesetwogeneralapproaches

    (andtheirmyriadvariations)maylooksimilar tothe

    consumeroftheresearchfindings,summarymeasures

    currentlyinusearebasedonavarietyofhealthoutcomes,

    assumptions,andmethods.Thesedifferencesareimportantbecausetheyrelatetothevalidityandreliabilityofthe

    measures.Becausetheoutcomesofallmeasuresappear

    similarandareexpressedinyearsoflife,theymayallbe

    equallyacceptabletothegeneralpublic;however,

    researchersevaluatethepotentialusesoftheindicesquite

    differently.Summarizinghealthismadeconsiderablymore

    complexbytheneedformultiplemeasuresandtheneedto

    lookathealthylifeasmeasuredinbothyearsandasa

    percentageofremaininglifespentinthehealthystate.This

    evidencesupportstheconclusionthattherearenosimple

    measuresofhealth.

    Healthylifeexpectancy(HLE)Thissummarymeasurethatlinkshealthdimensionsandmortalitywasproposedmorethan30yearsago(1,3).Themethodsdevelopedby

    Sullivan,atNCHS,havebeenadoptedworldwideandare

    thebasisfortheHLEfamilyofmeasures(20).(Seechapter

    2fordetailsofthemethodology.) Asubstantialbodyof

    workusingSullivansproposedsummarymeasuresandwith

    modificationstofitavailabledatahasbeendevelopedover

    thelast10years.Modificationstotheoriginalformulation

    areduetothespecificdimensionofhealthusedindefining

    healthylife.Oftenapplicationsofthismethodhavebeen

    determinedbyavailabledatamorethananyclear theoretical

    ideaofwhataspectofhealthisappropriate.Mostofthis

    researchhasfocusedoncomparinglengthoflifeindifferent

    healthstatesatvariouspointsintimeandacrosspopulationgroupsatonepointintime.

    Theoriginallyproposedmeasurelinkedmortalityto

    measuresoflong- andshort-termdisabilitytoestimatelife

    withandwithoutdisabilityusingdatafromtheNational

    Figure1.2.PotentialhealthchangesforindividualsSummaryMeasuresofPopulationHealth 3

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    HealthInterviewSurvey(NHIS)(3). Yearslivedwith

    disabilitycouldbefurtherdividedintosevereormoderate

    disabilityandyearsoflifeinan institution.

    Inthelast10years,anumberofadditionalapproaches

    tomeasuringhealthylifeexpectancyusingdifferent

    generalizationsofdisabilityorhealthhavebeendeveloped.

    Forinstance,intheolderpopulation,disabilityhasoften

    beenindicatedbytheinabilitytoperformActivitiesofDaily

    Living(ADL)orInstrumentalActivitiesofDailyLiving(IADL),taskswhichreflectaninabilityto live

    independently.Otherestimatesofhealthylifeexpectancy

    havebeenbasedonmeasuresthatcategorizeyearsoflife

    usingdiseasestatesor lossof cognitivefunctioningas

    measuresofhealthstate.Forexample,healthylifeis

    estimatedasyearswithoutheartdiseaseoryearswithout

    impairedcognitivefunctioningordementia.

    Measuresofhealthylifeexpectancyhavebeenusedto

    trackandexplainchangesinpopulationhealth.Forexample,

    researchbyCrimminsandassociateshasshownthatthe

    1980swereaperiodwhenincreasesinlifeexpectancywere

    concentratedinyearswithoutdisability; incontrast,gainsin

    lifeexpectancyduringthe1970swereindisabledyears.Thisapproachhasalsobeenimportantindeterminingage,

    socioeconomic,andracialdifferentials(21,22).Hayward

    andHeron(1999)havelookedattherelationshipbetween

    disabilityandlifeexpectancyforethnicgroupsinthe

    UnitedStates;theirresearchhasshownthatsomeethnic

    groupshavelongerlifebutworsehealth(Native

    Americans)thanthenon-Hispanicwhitepopulation,while

    othershavelongerlifeandbetterhealth(Asian

    Americans)(23).

    Thehealthylifeexpectancymeasuresdescribedabove

    incorporatenominallydefinedstatesofhealth,andthey

    estimatelifewithandwithouthealthinthesenominally

    definedstates.Inordertoexpandtherangeofhealthincludedinthedefinitionofhealthylife,someresearchers

    haveweightedstatesofhealthaccordingtoanindexof

    healthproblemseverity.Measuresofhealthylifedeveloped

    inthismannermayweightstatesthatcharacterizeone

    dimensionofhealthorcombinehealthdimensionsintostates

    whichareweightedtoproduceamultidimensionalindexof

    healthylifeexpectancy.Thesemeasures,oftencalled

    Health-AdjustedLifeExpectancies(HALE)or

    Health-AdjustedLife Years(HALY),canuse awidevariety

    ofdimensionstodefineasetofhealthstatestowhichthe

    weightingschemeis thenapplied.Theseincludesocial

    functioning,cognitivefunctioning,socialactivities,

    psychologicalfunction,painandsymptoms,aswellasloss

    infunctionanddisability.Theweightingschemesprovidea

    numberrangingfrom 0 to 1 toreflectthequality oflifeor

    thesocialutilityof thehealthstateindividuals

    experience(24).Optimalhealthisvaluedat1;deathisvaluedat0.Thesemeasuresarethenintegratedwithlife

    tablestoproducehealth-adjustedlifeexpectancy.Because

    theweightsaresoimportantindeterminingtheoutcome,

    andbecausetheyhavegreatsocialsignificance,mucheffort,

    discussion,andevaluationhasgoneintoproducingthe

    weightingschemesforuseinthesemeasures.Agreementhas

    notbeenreached,however,on thevalidityofthevarious

    schemes.

    Insummary,measuresreflectinghealthylifeexpectancy

    canbebasedonavarietyofdefinitionsofhealthandcan

    utilizeavarietyofmethods.Nosinglemeasurehasbeen

    agreeduponasthebestapproach.Theappropriatenessof

    measuresdependsonthedimensionsofhealthofprimaryinterest(e.g.,disabilityordisease).If thereisadesireto link

    thesemeasurestohealthpoliciesandprogramsandto

    individualhealthbehaviors,thepointsof interventioninthe

    healthprocessshouldbeconsidered (figure1.3).Observed

    changesinthesemeasurescanreflectarangeof factors.

    Healthylifeexpectancycanbebroughtaboutbychangesin

    risk-relatedhealthbehaviors(becauseoftechnologicalor

    medicaladvancementaffectingthediagnosis,treatment,and

    progressionofdiseases)orbecausedisabilityhasbeen

    reduced(bybetterintrinsichealthorbecausetheextrinsic

    environmentbecomesmoreadaptedtopersonswith

    functioningproblems).Consequently,careandadditional

    dataarerequiredtointerprettheanalysesunderlyingthesestatistics.

    Disability-AdjustedLifeYears(DALYs)The WorldBankand WorldHealth Organizationhavesupported a

    projecttodevelopmethodstoevaluatethedistributionof

    scarcehealthresourcesindevelopingcountries.Asaresult,

    thereisnowagrowinginterestinanotherapproachto

    summarymeasuresDisability-AdjustedLife

    YearsDALYs(2532).DALYsrepresentanalternative

    Figure1.3.Healthcareandpublichealth interventionopportunities4 SummaryMeasuresofPopulationHealth

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    approachtosummarymeasureconstructionthatlinks

    disease,disability,anddeath.Thisapproachestimatesyears

    oflifelostfromdeathswhichoccurbeforesome

    theoreticallyachievableage(e.g.,internationalreportsuse80

    yearsformenand82.5yearsforwomen)andattributingthis

    losstodeathrates.Next,yearslosttononfataldiseasesare

    calculatedbylinkingtheincidenceofdiseasestodisability

    levelsandlengthoftimewithdisability.DALYsdifferfrom

    othermeasuresdescribedbecausetheyreflectyearslosttoill-healthinsteadofyearslivedwithill-health;another

    differenceis that theylinktwomajordimensionsofhealth:

    diseaseanddisability.

    DALYsalsoincorporateweightstoreflecttheseverityof

    disability,and,becauseoftheemphasisonhealthpolicyin

    theinternationalapplications,DALYsincorporatean

    additionaleconomicapproachtoweightingyearsof life.

    Thisapproachgivescurrentyearsoflifehigherweightsthan

    futureyearsoflife,andlifeintheproductiveyearsor

    workingagesisgivenhigherweightsthanlifein

    nonproductiveyears.Theseweightingschemesdramatically

    affecthowyearsofhealthylifearecalculatedforpeopleof

    differentagesaswellasforpeoplewithdifferentdisabilities.

    Incontrasttothecross-sectionalSullivanapproachto

    estimatinghealthylifeexpectancy,DALYshavebeen

    developedasanincidence-basedmeasure,thatis,onethatis

    basedon thetransitionintodiseaseordisability.Incidenceis

    aflowmeasure,whereasprevalenceisa stockmeasure.

    Researchershavelongrecognizedthatincidenceratesare

    theoreticallypreferabletoprevalencedataforindicating

    healthchange:incidenceratesreflectonlyrecentevents,

    whileprevalencedatareflecteventsthatoccurredearlierina

    personslifetime.Incidencerates,however,require

    longitudinaldatafromlargesamples,andtheyusuallyare

    notavailableformostconditionsorfornationallyrepresentativepopulationsofmostages.

    Becausetheincidencedatarequiredforinputto the

    DALYsdonotexist,theyhavebeenestimatedfrom

    whateverepidemiologicalinformationcanbepieced

    together.Forexample,community-basedsurveyslikethe

    FraminghamStudyprovideasourceofinformationon

    diseaseonset.Disabilitylevelsrelatedtodiseaseonsetwere

    thendeterminedusingexpertopinions. Weightsfor the

    valueof lifespentindisease-disabilitylevelswerethen

    developedinaseriesofworkshopswithavarietyof

    experts.

    1.3PotentialSummaryMeasuresSuggestedforHealthyPeople2010

    Afterdiscussingbothgeneralapproachestoestimating

    summarymeasuresanda largenumberofspecific

    approachestothesemeasures,workshopattendeeswere

    askedtorecommendsummarymeasuresforconsideration

    fortheHealthyPeople2010,keepingdataavailabilityinmind.Themostimportantrecommendationresultingfrom

    thismeetingwasthat:

    Nosinglemeasurecanadequatelyincorporateallaspectsof health and mortality. A set of summary measuresincludingbothmortalityandvariousaspectsofmorbidityor health that canbecalculatedfromexisting orcollect-abledatashouldbeproposedforHealthyPeople2010.Usingasetofmeasuresratherthanasinglemeasurewill

    makeitpossibletotraceavarietyofhealthylifedimensions

    andtonotedifferencesinvariousaspectsofhealth.Itwill

    alsobepossibleto identifyprogressinsomedomainsofhealththathaveledtowhatappearstobedeteriorationin

    otheraspectsofhealth.For instance,progressmadein

    prolongingthelivesofpersonswithAIDS(broughtabout

    byavarietyofpharmaceuticaldevelopments)may

    lengthenaveragelife,increasethenumberofyearslived

    withAIDS,leadtoanincreaseinthenumberofpeople

    withAIDSinthepopulation,andchangethehealthstatus

    ofthoselivingwithAIDS.Usingasetofsummary

    measuresinsteadofasinglemeasurewillhelpclarifythe

    meaningofchangeinthemostgeneralmeasuresand

    disentangleeitherprogrammaticormedicalinfluences;

    thus,progresstowardreachingHealthyPeople2010goalscanbebettermonitored.

    Although the two types of measures,HLE andDALYs,were discussed,HLE measures were recommendedforHealthyPeople2010.Inaddition,allsuggestedmeasureswerebasedoncross-sectional data.Further investigationofthepropertiesofincidence-basedmeasuresneedstobecompletedbeforeusingthemforhealthmonitoring.Thesetofmeasuresrecommendedformonitoringthe

    firstgoalofHealthyPeople2010includethefollowing:Yearsofhealthy lifedefinedaslifewithoutdisability:

    Thisrepresentsoneofthemostgeneralsummarymeasures

    asdisabilityisalatestageinfigure1.1andreflectspopulationhealthstatesofallthepriorhealthdimensions.

    Becausedisabilityreferstotheinabilitytoperformexpected

    tasks,thisdefinitionofyearsofhealthylifemayreflectthe

    overallimpactofhealthproblems.Healthylifecanbe

    definedaslifelivedwithoutanyhealthlimitationthat

    preventsnormalactivity.Lifewithdisabilitycanbe

    subdividedintolifewithsevereandmoderatedisabilityas

    wellaslifewithlimitationinpersonalcare,work,or

    school.Thistypeofmeasurecanclearlydefineand

    characterizeahealthyyearoflife,thatis,ayearwithout

    disability.

    YearsofHealthyLife(asusedforHealthyPeople2000):ThesummarymeasurethatwasdevelopedforHealthyPeople2000representsmultipledimensionsofhealth(33).Itincludesbothdisabilityandtheindividualsassessmentofall

    aspectsofhealth.Itshouldcontinuetobe includedamong

    theHealthyPeople2010measuresforcomparisonovertimeandwithothermeasures.Thismeasureusesaweighting

    scheme;thatis,itincludesseverityofhealthproblemsinthe

    calculation.Itismoredifficulttodefinethemeaningofa

    yearofhealthylifewiththismeasurebecauseitincorporates

    multipleaspectsofhealth.

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    Inadditiontothetwomeasuresabove,morenarrowly

    definedmeasuresofhealthalsocanbethebasisofsummary

    measuresthatarecomparableovertimeandacross

    populationsubgroups.Measuresbasedonhealth-related

    behaviors,functioning,disease,andself-assessedhealth,

    coupledwithmortality,weresuggested.Theseadditional

    measureshavethepotentialtoclarifywhichdimensionsof

    healtharechangingandthuscanbelinkedtoprogramsand

    policiesthatmightbecausinghealthchange.Suchmeasurescaninclude:

    Yearsof lifewithoutfunctioningproblems:Summarymeasuresbasedon functioningcouldbedefinedbyabilityto

    performcertainfunctions,suchaswalking,lifting,picking

    upobjects,etc.For thispurpose,bothphysicalandmental

    functioningshouldbeconsidered.

    Yearsof lifewithoutspecifieddiseases:Summarymeasurescouldincludeyearswithoutavarietyofmajor

    diseasesandconditions;theconverse,yearswithconditions,

    couldalsobeestimated.

    Yearsof life inexcellentorverygoodhealth:Self-perceivedhealthcanbeusedaloneina summary

    measuretoreflectchangeinpeoplesassessmentof theirhealth.Lengthoflifeinexcellenthealthorinverygoodor

    excellenthealthcanbeasummarymeasureascanyears

    spentinpoorhealthorfairorpoorhealth.

    Yearsof life livedwithgoodhealthbehavior:Thismeasurecanserveasasummarymeasureofyearsspent

    withriskfactorsforsomeoftheotherhealthoutcomes.For

    instance,theaverageyearswithnoriskyhealthbehavior

    (e.g.,smoking,drinking,obesity,andnohealthcare)canbe

    estimated.Estimatescanbebasedonsinglebehaviorsor

    groupsofbehaviors. Yearswithoutanyriskbehaviorscan

    alsobeestimated.

    Alloftheproposedsummarymeasurescanbeconstructedwithavailabledataandshouldbeavailablefor

    majorsubgroupsof thepopulation.Somecanbeconstructed

    forsub-nationalgeographicalareassuchasStates.Allthe

    recommendedmeasurescanbeusedtoreflectprogress

    towardbothgoalsofincreasingthequalityandyearsof

    healthylifeanddecreasinghealthdisparitiesastheycanbe

    estimatedforgenderandmajorracialandethnicgroups.

    1.4AvailabilityofDataforEstimating theProposedMeasures

    Thesuggestedmeasurescanbeestimatedforanumber

    ofyearsinthe1990susingavailabledatafromNHIS.

    However,the1997redesignoftheNHISsurveywillmakeit

    difficulttohavealengthyseriesforsomeof themeasures.

    Forsubgroupsofthepopulation,itmaybenecessaryto

    combineyearstoproducereliableestimatesforsomeage,

    racial,andethnicgroups.Onenecessarycomponentofthe

    measuresistheannuallifetableforthepopulationalong

    withthelifetablesfor thesubgroupsofinterest.Lifetables

    bysocioeconomicstatus(SES)arenotregularlyproduced

    butcouldbeproducedusingdatasuchasthemortality

    followupforNHIS.Considerationshouldbegiventothe

    reliabilityofannualchangesofmortalityaswellashealth

    data.

    Itwillbeimportanttoapplythesemeasuresacross

    variousgeographicandpoliticallevels,includingStatesand

    municipalities.Manyofthesemeasurescanbeestimatedfor

    States.Thepossibilityofestimatingthesestatisticsfor

    smallergeographicareasneedstobeinvestigated.Estimates

    fortheinstitutionalpopulationneedtobeincludedinthesummarymeasures.Estimatesofthesizeandcompositionof

    therelevantinstitutionalpopulationaredifficulttoobtainbut

    needtobepartofthemeasuresiftheyaretodescribethe

    entirepopulation.Issuesofdataavailabilityforthe

    institutionalpopulationneedtobeaddressed.

    Thisreportpresentstheresultsofresearchconductedto

    investigatevariousissuesofimmediateinterestfor

    monitoringprogresstowardtheHealthyPeople2010goals.Healthylifeexpectancieswereestimatedusingdifferent

    definitionsofhealth.Selectedestimatesforvarious

    populationsubgroupsarepresentedin chapter 3.Allofthe

    estimatespresentedinthechapterarecalculatedbasedon

    healthdatafromNHIS.SinceNHISdoesnotincludetheinstitutionalpopulation,theestimatesin chapter 3mightbe

    atvariancewithestimatesmadeincludingtheinstitutional

    population.Thepossibleimpactofnotincludingthe

    institutionalpopulationinestimatinghealthylife

    expectanciesisdiscussedin chapter 5. Twootherimportant

    pointsshouldbekeptinmindinreadingtheestimated

    healthylifeexpectanciesin thisreport.First, theexpected

    yearsofhealthylifepresentedinthisreportaredifferent

    fromthe YearsofHealthyLife(YHL)usedinHealthyPeople2000 inboththeinterpretationoftheresultsaswellasinthemethodofcalculation.(Themethodofcalculation

    andinterpretationofYHLusedinHealthyPeople2000isdescribedinStatisticalNotesno 7(33).)Second, thesurveyinstrumentsandmethodofdatacollectionofNHISwere

    revisedin1997.However,sinceallNHISdatausedinthis

    reportarefromsurveysconductedpriorto1997,the1997

    revisionofNHISdoesnotaffecttheresultsofthisreport.

    DatausedforthisreportaremainlyfromtheNCHSand

    theU.S.CensusBureau.Themethodthatiswidelyusedfor

    calculatinghealthylifeexpectationusingcross-sectiondata

    isexplainedsuccinctlyfollowingthisintroductorychapter.

    Expectedyearsofhealthylifeundervariousdefinitionsof

    healthandvariationofresultsbymeasurearediscussedin

    chapter 3.Chapter 4summarizestrendsinyearsfreeof

    activitylimitationfortheperiod198595.Inadditionto

    estimatinghealthylifeexpectancyunderdifferentattributes

    ofhealthandlookingat trendsinlimitation-freelife,the

    reportincludesatestoftheeffectofincludingdatafrom

    differentsourcesonestimatedhealthyorlimitation-free

    years.Anillustrationofthis impactanalysisispresentedin

    chapter 5.Theoverallsummaryofthereportand

    recommendationsforthelongertermendeavorofsolving

    problemsofdataconstraintsandtheconstructionofmore

    comprehensivemodelsofsummarymeasuresofhealthare

    highlightedinthelastchapter.

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    15. WorldHealthOrganization.Internationalclassificationof

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    16. VerbruggeLM,JetteAM.Thedisablementprocess.SocSci

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    17. CrimminsE,HaywardMD,Saito Y.Differentialsinactivelife

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    19. MathersE.Healthexpectancies:anoverviewandcritical

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    amongadultAmericans.Demography36(1):7791.1999.24. FrybackD.Methodologicalissuesinmeasuringhealthstatus

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    2. MethodsforCalculatingHealthyLifeExpectancy2.1 Introduction

    Healthylifeexpectanciesarecalculatedusingmodelsthatincorporatemeasuresofmortalityandmorbidityas

    schematicallypresentedin figure2.1(1).

    Age-specificdeathratesaccountforthemortality

    component.Age-specificratesofpopulationmorbidity,

    disability,or someotheraspectofhealthaccountforthe

    morbiditycomponent.Thesetwocomponentsarecombined

    usinga mathematicalfunctionthattransformsthetwosetsof

    partialmeasuresintoasinglecompositemeasureusinga life

    tablemethodology.Figure2.2displaystheframeworkofthis

    calculation,includingthetypeofdataneededandthe

    techniquesusedtoestimatethetwocomponentsofthe

    measureatthenationallevel.

    NationalmortalitydataareobtainedfromtheNationalVitalStatisticsSystemofNCHS.Mortalitydataarecollected

    byeachStateandtheDistrictofColumbiaandcompiledat

    thenationallevelbyNCHS.Mid-yearpopulationestimates

    arefromtheU.S.CensusBureau.

    Healthdatacancomefromanumberofdifferent

    sources,dependingonthetypeofhealthmeasureandthe

    populationbeingconsidered.Therangeofitemsthatcould

    beusedtocharacterizehealthisillustratedbyahealthstate

    classificationsystemdeveloped byBoyleand Torrance

    (displayed,inpart,infigure2.3) (2).Theclassification

    systemofBoyleand Torranceconceptualizesthe

    interrelationshipofhealthattributesashierarchal,basedon

    breadthandoncoverageofdifferentaspectsofhealth.Forexample,physicalfunction,whichisoneoftheprimary

    healthattributes,hasfoursecondaryattributes,oneofwhich

    isself-care.Self-caremay, inturn,bedisaggregatedinto

    morespecifichealthattributes,shownasthethirdlevelof

    classificationinfigure2.3.

    Theestimationofhealthylifeexpectancybeginswiththe

    calculationoflifetablevaluesfollowedbythecalculationof

    age-specificprevalenceratesofbeinghealthyandnotbeing

    healthy.Theformulasneededtocalculatethelifetable

    valuesforanabridgedlifetablearesummarizedinsection

    2.2.1. Tocalculatetheage-specificprevalenceratesofbeing

    healthy,firstcalculatetheratesofreportingfairorpoor

    health (nx).Theratesofbeinghealthy,thatis,reporting

    goodorbetterhealthisthen(1nx).Thenforeachage

    interval (x,x+n),theratesofbeinghealthy(1nx)aremultipliedbythetotalnumberofyearslivedwithinthe

    sameageinterval (nL

    x).Thiscalculationprovidesan

    estimateofthetotalnumberofyearsagroupofpersonsare

    expectedtoliveinahealthystateduringtheinterval.The

    ageinterval (n,n+x)equals 1forsingle-yearagegroups;itequals 5 ifdatausedarein5-yearagegroupsand10for

    10-yearagegroups.ThemodelusedtoestimateHLE(i.e.,

    theexpectednumberofyearsingoodorbetterhealth)is

    summarizedinsection2.2.2.

    Healthylifeexpectancycouldbeestimatedusingavarietyofhealthattributes.Forinstance,themodelmaybe

    usedtoestimatedisability-freelifeexpectancyorlife

    withoutactivitylimitation,alsoreferredtoasexpectedyears

    ofactivelife.Regardlessofthehealthattributechosen,the

    modelusestwoseparateandindependentpartialhealth

    measures:(1nx)forthemorbiditycomponentandlx and

    nLx forthemortalitycomponent.

    2.2TheLifeTableTechniqueThelifetable,alsoknownasthemortalitytable,isused

    topresentthemostcompletestatisticaldescriptionof

    mortality(3).Thelifetablealsohasbeenanimportanttoolfordemographerswhoareinterestedinestimatingthe

    probabilityofmarriageandremarriage,widowhood,

    orphanhood,andinmigrationandpopulationprojections(4).

    Abriefsummaryofthemethodcommonlyusedtoestimate

    lifetablevalues,healthylifeexpectancy,andthestandard

    errorsofHLEwillbepresentedintheremainingpartsof

    thischapter.Foramoredetailedexplanationofthemethod

    withillustrativeexamplesandtheassociatedsensitivity

    analysis,refertoHealthyPeople2010StatisticalNotes,No.21andNo.22(5,6).

    2.2.1Estimatingtheaverageexpectationof lifeTheobjectiveofthelifetableistocalculatetheexpected

    numberofyearslived,ifagroupofpeople,currentlyagex,

    livedtherestof theirlivesexperiencingalltheage-specific

    mortalityratesobservedforthepopulationataspecifictime.

    Theestimationof lifetablevalues,suchastheexpectation

    oflife,beginswiththecomputationofage-specificdeath

    rates.Thetwosetsofdatarequiredtoconstructalifetable

    arethemid-yearpopulationandthenumberofdeathsinthat

    year.Thesedatacouldbeanalyzedinsingleyearsofageor

    5- or10-yearagegroups.(Methodsforconstructinga

    completeannuallifetablearediscussedinNCHS Vitaland

    HealthStatistics,no.129.)(7)Theprocesscouldbeapplied

    totheconstructionofalifetablefornational,State,orlocalpopulations.

    TheestimationbeginswithcountsforthepopulationnPx

    anddeathsnDx foreachagegroup.Populationcountsare

    basedonmid-yearestimates.Deathsarefortheentireyear.

    Theseareusedtocomputetheaveragedeathrateofeach

    agegroupfortheyear (nM

    x,wheren,thenumberofyearsin

    theagegroup,can be 5 or 10years),as

    nMx = nDx /nPx . [1]

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    Thecomputedage-specificdeathratesneedtobechecked

    forstability.Age-specificdeathratesareconsideredtobe

    stableiftheyarebasedon20ormoredeaths.Ratesbased

    onfewerthan20deathshavea relativestandarderrorof

    23percentormoreandthereforeareconsideredhighly

    variable.(8)

    Theconditionalprobabilityofdyingwithinagivenage

    groupnqx istheproportionofpeopleintheagegroupaliveatthebeginningoftheageintervalwhodiebeforereachingthenextagegroup.Whereas

    nM

    x isanannualdeathrate,nqxisaconditionalprobabilityofdying.Thisprobabilityis

    estimatedas:

    nqx= [nnMx] / [1 + n(1ax) nMx] , [2]wherea

    x istheaverageproportionofyearslivedbythosewhodiedinthisageinterval.Theconditionalprobabilityof

    dyingisassumedtobe1.0fortheopen,oldestageinterval.

    Intheexamplepresentedhere,n is 5years,sotheprobabilitybecomes:

    5qx = [55Mx] / [1 +5(1ax) 5Mx] .

    Thevaluesforax areconstantsderivedfromthecompletelifetables(9).Forsingle-yearlifetablevaluecalculations, axmaybeassumedtobe.

    Havingcalculatedtheconditionalprobabilityofdying,

    onecannowcalculatetheprobabilityofsurvivingtoan

    exactagemarkingthebeginningofaninterval.Inthelife

    table,thisisexpressedasthenumberofpersonssurvivingto

    anexactage(ortheexactageatthebeginningofanage

    intervalwhengroupdataareused),startingwithanassumed

    cohortpopulation (l0)frequentlyexpressedas100,000at

    birth.Foranyotheragex,thenumberofsurvivorsatthat

    agelx canbecalculated.Hence,thenumberaliveatexact

    agex+n (lx+n) iscalculated bymultiplyingthenumber of

    survivorsatexactagex (lx) bytheprobabilityofsurviving

    fromagex toagex+n(1nqx)or:lx+n=lx(1nqx) . [3]

    Thetotalnumberofperson-yearslivedfor thosepeoplewho

    werealiveatthebeginningoftheageintervalx tox+n isthenthesumofthetotalnumberofyearslivedby

    individualssurvivingtotheendoftheageintervalplusthe

    totalnumberofyearslivedbythosewhodiedintheage

    interval.Thisbecomes:

    nLx=n {lx+n +ax (lxlx+n)}. [4]Intheexamplepresentedhere,n= 5so,

    5Lx = 5{lx+5 + ax (lx lx+5)} .Theperson-yearsremainingforthepopulation,thatis,

    Tx, issimplythe totalofalltheperson-yearsforagexand

    allsubsequentagegroups,or:

    Tx= nLifori=x,x+n,...,oldestagegroup. [5]Theaverageexpectedyearsperpersonisthenthetotal

    person-yearsdividedbythenumberofpersonssurvivingto

    thebeginningoftheageintervalx,or:

    ex= Tx / lx . [6]2.2.2Estimatinghealthy lifeexpectancy

    Thelifetabletechniqueis apowerful toolforestimating

    theremainingyearsoflifethatagroupofpersonswould

    Figure2.1.Aschematicpresentation ofthemodelSOURCE:AdaptedfromamodelbytheInstituteofMedicine,NationalAcademyofSciences,1998.

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    Figure2.2.Aschematicframeworkforestimatinghealthylifeexpectancyatthenational levelusingrespondent-assessedhealthstatusasanexample

    Figure2.3.ExampleofattributesforhealthclassificationsystemSOURCE:BoyleandTorrance. Developing Multi-attributeHealthIndexes. MedicalCare,1984.

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    expect toliveoncetheyhadreachedacertainage.Regardlessoftheirage,theremainingyearsof lifemightbelived ingoodhealthorin lessoptimalhealthstatesorsomecombinationofboth.Thetraditionallife table techniquedoesnotdistinguishbetweenremaininghealthyyearsandunhealthyyears.Additionaldataareneeded todisaggregatethe totalnumberofyearsintoexpectedyearsofhealthyandofunhealthy life.

    Thetotal

    number

    of

    expected

    years

    of

    life

    are

    partitioned

    intohealthyandunhealthyyearsusinghealthdata(figure2.2).Ingeneral,healthdata,collectedthroughhealthsurveysorfromclinicalobservations,areused toestimatetheprevalenceofdifferenthealthstates.Thepopulation isthenpartitionedintoproportions thatareexperiencingvaryingstatesofhealth.Thepartitionmaybeassimpleasdividing thepopulationintothosewhoarehealthyand thosewhoareunhealthy.Or,thepopulationmaybepartitionedintomore than twopopulationsubgroups,accordingtovaryingdegreesofhealth,usingmultidimensionalscaling todescribehealthstates.

    TocalculateHLE,thepopulationofeachageintervalinthe lifetable ispartitionedintotheproportionexperiencinganunhealthycondition(5x)andthosethatareconsideredhealthy(1

    nx).SincenLx isthe totalnumberofperson-yearslivedforthepopulation inage intervalxtox+n(equation5), theproportionof theseyears livedinahealthystate(

    nL

    x) isthen:

    xLx=(1nx)nLx. [7]

    Oneofthefollowing twoequationscanbeused todetermineHLE:

    w1

    e x=lx nLx.i =x [8]

    orw

    1e x=lx (1ni)nLi

    i =x [9]where

    ex isHLEatagex,orthenumberofremainingyears

    ofhealthy lifeforpersonswhohavereachedagex;lx isthenumberofsurvivorsatagex;(1nx) represents theage-specificrateofbeinghealthy;nLx isthe totalnumberofyearslivedbyacohort intheageinterval(x,x+n);andw istheoldestagecategory.

    Theexpectedyearsofunhealthylife isexex.However,

    ifmultiplestatesofhealthstatusaredescribed,theprevalenceforeachofthosestatesforeachage intervalmustbecalculated.Equationssimilarto[8]and[9]areusedtoestimateseparatelytheexpectedyearsof lifein thosehealthstates.

    2.2.3Standarderrorsofhealthy lifeexpectancyTheestimatesforage-specificprevalenceofhealthyand

    unhealthystatesarederivedfromsurveysorsamples.Consequently,theseestimateshaveassociatedsamplingerror.Calculating thestandarderrorof theresultingestimatedHLEisespecially importantwhencomparingpopulationsubgroups.Thissectiondiscusses themethodofestimating thestandarderrorsofHLE,withandwithoutinformationonthesurveysampledesign.Standarderrorsfortheother lifetablevaluescanbecalculatedseparatelywhenneeded.SeeChiangandKeyfitzfordetails(10,11).

    Eachage-specificvalueof theprevalenceof thepopulationexperiencinghealthylife,(1

    nx), isanestimated

    proportionwithanassociatedvarianceandstandarderror.Thevariancesoftheseproportionsandtheirstandarderrorsmaybeestimatedusingroutinestatisticalmethods.Consequently,thevariance(S2) isgivenbythebinomialvarianceof:

    S2(nx) = [nx(1nx)]/nNx, [10]wherenNx is thenumberofpersonsin theage interval(x,x+n)ofthesamplefromwhichtheprevalencerateswerecomputed.

    Thevariancesof theprevalenceratesfromequation10canbeusedtoestimate theoverallvarianceofex usingthe

    followingformula:w

    1VAR(ex) = 2 [nLi2S2(1ni)].lx

    i =x [11]IllustrativeapplicationsofthevarianceofHLEusing1995U.S.populationdataarepresentedinHealthyPeople2010Statistical

    Note

    No.

    21

    (5).

    References1. FieldMJ.GoldMR.(eds).Summarizingpopulationhealth:

    Directionforthedevelopmentandapplicationofpopulationmetrics.InstituteofMedicine.Washington,D.C.:NationalAcademyPress.1998.

    2. BoyleMH,TorranceGW.Developingmulti-attributehealthindexes.MedCare22(11):104557.1984.

    3. PressatR.Demographicanalysis.NewYork:AldinePublishing.1961.

    4. SpiegelmanM.Theversatilityofthelifetable.AmJPublicHealth47:297304.1957.

    5. MollaMT,WagenerDK,MadansJH.Summarymeasuresofpopulationhealth:Methodsforcalculatinghealthylifeexpectancy.StatisticalNotes,no21.Hyattsville,Maryland:NationalCenterforHealthStatistics.August2001.

    6. WagenerDK,MollaMT,CrimminsEM,PamukE,MadansJH.Summarymeasuresofpopulationhealth:AddressingthefirstgoalofHealthyPeople2010,improvinghealthexpectancy.StatisticalNotes,no22.Hyattsville,Maryland:NationalCenterforHealthStatistics.September2001.

    Methods forCalculatingHealthyLifeExpectancy 11

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    7. AndersonRN.MethodsforconstructingcompleteannualU.S.lifetables.NationalCenterforHealthStatistics.VitalHealthStat2(129).1999.

    8. NationalCenterforHealthStatistics.VitalstatisticsoftheUnitedStates,1992,volII,mortality,partA.Washington:PublicHealthService.1996.

    9. SirkenMG.Comparisonoftwomethodsofconstructingabridgedlifetablesbyreferencetoastandardtable.NationalCenterforHealthStatistics.VitalHealthStat2(4).1966.10. ChiangCL.Astochasticstudyofthelifetableanditsapplication:II.Samplevarianceoftheobservedexpectationof lifeandotherbiometricfunctions.HumBiol32:22138.1960.

    11. KeyfitzN.Introductiontothemathematicsofpopulationwithrevisions.Cambridge,MA:AddisonWesley.1968.

    12 Methods forCalculatingHealthyLifeExpectancy

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    3. Expected Years of Healthy Life Under Various Definitions of Health

    3.1 Introduction

    Nosingledefinitionofthecomponentofhealthy lifeexpectancymeasures thenonfatalhealthoutcome.Prevalenceorincidenceofhealth-relatedoccurrencesarenumerousandmeasuredifferentaspectsofhealth.Theseincludeself-ratedhealthormeasuresofwork,activity,orfunctional limitations.Theycouldalsobeobservedratesorprobabilitiesoftheoccurrenceofbadphysicalormentalhealth,acuteorchronicconditions,health-relatedbehaviors,orevenhealthserviceutilization.Inthischapter,thepracticalapplicationof thecompositemeasureisillustratedbycombiningvariousnonfatalhealthoutcomemeasureswith lifetablevalues;thesecombinationsareusedtoestimateavarietyofhealthylifemeasuressuchasexpectedlife

    in

    good

    or

    better

    health,

    free

    of

    activity

    limitation,

    or

    withoutneedinghelp inADLorIADL.

    Healthy lifeexpectancywillbeestimatedfirstasexpectedyearswithouthealth-related limitation.That is,theprevalenceofactivity,work,andfunctional limitationswillbeusedasthenonfatalmeasure.Second,healthylifeexpectancyfrom theperspectiveofdiseasesorchronicconditionswillbediscussedusingtheprevalenceofchronicarthritis,heartdiseases,hypertension,anddiabetes.Prevalenceofoverweightandobesityamongadultswillbeused todiscusshealthylifeexpectancyasameasureofhealth-relatedbehavior.

    Healthy lifeexpectanciesareestimatedby5-yearagegroupandsex.Estimatesarealsopresentedbyracewheneverdatabyraceareconsideredreliable.Datafromvarioussourcesareusedfortheestimates.Lifeexpectanciesby5-yearagegroup,sex,andraceareestimatedusingdatafromNCHSand theU.S.CensusBureauasdescribedinchapter2.Prevalenceratesof thevarioushealthstatesarecalculatedfromthepersonandconditionfilesofNHISfortheyears198596.3.2 Expected Years of Healthy Life for Malesand Females

    Asnumerousstudieshaveshown thathealthylifeexpectanciesvaryconsiderablybothbyageandsex(14),disparitiesinhealthy lifeexpectancieswillbediscussedforsubgroupsdefinedbythesefactors.Measuresusedforthediscussionincludeexpectedyears ingoodorbetterhealth,years inexcellenthealth,yearswithoutactivitylimitation,yearswithoutwork limitation,yearswithoutlimitation inADLorIADL,andyearswithoutdiseaseorchronicconditions.

    3.2.1 Expected years in good or better health

    Expectedyears

    of

    life

    is

    first

    measured

    using

    expected

    yearsingoodorbetterhealth.First,respondentswhostatedthat theywere ingood,verygood,orexcellenthealthwereclassifiedaspersonsingoodorbetterhealth;respondentswhoassessedtheirhealthasfairorpoorwereconsideredpersonsinpoorhealth.Expectedyearsofhealthylifecanalsobeestimatedusingexpectedyears inexcellenthealth.Toestimateexpectedyears inexcellenthealth,respondentswereclassifieddependingonwhethertheirself-assessedhealthwasexcellent.Figure3.1presentsthedistributionofthosereportinggoodorbetterhealthby5-yearagegroupandsex.Thepercentageofthosewhowere ingoodorbetterhealthdeclineswithage,slowlyforyoungeradults,butrelativelyfasterforolderadults.Theestimatedyearsingoodorbetterhealthandinexcellenthealthforselectedagesbysexarepresentedalso intable3.1.

    The tableindicatesthat in1995,anewbornbabywouldexpectto live75.8years(72.8yearsformalesand78.8yearsforfemales).Of thistotalexpectedlifespan,66.5years(87.7percent)wereexpectedtobeingoodorbetterhealth,whereasonly26.4years(34.8percent)wereexpectedtobeinexcellenthealth.Expectedyearsofhealthy life,measured inyearsaswellasapercentageof total lifeexpectancy,variesbyage.Asonegetsolder,years ingoodorbetterhealthdecreaseinbothabsoluteandrelativeterms.In1995,forexample,apersonatage20wouldexpecttospend84.3percentofhisorherfuture lifeingoodorbetterhealthandonlyabout29.0percent inexcellenthealth.Atage65, thesepercentagesdeclinedto71.0percentand14.9,respectively.

    Expectedyears ingoodorbetterhealthandinexcellenthealthalsovariedbysex.Femalescouldexpect tolivemoreyearsingoodorbetterhealththan theirmalecounterparts.Ontheotherhand,malescouldexpectarelativelyhigherproportionoftheirfuture lifeingoodorbetterhealthat theyoungerageswhereasfemalesseemslightlybetteroffafterage65(figure3.2).Whenhealthy lifeismeasured in termsofexpectedyears inexcellenthealth,malesatyoungerageswouldexpecttospendmoreyearsandahigherproportionoftheir livesinexcellenthealth thanfemales.Theoppositewas trueafterage75.Thetablealsoindicatesthatas thepopulationages,thedifference inhealthylifebetweenmalesandfemalesdeclinesslightly,especiallywhenhealthy lifeismeasured inyearsratherthanasapercentof lifeexpectancy.Thedifferencebetweenexpectedyears ingoodorbetterhealthformalesandfemales isstatisticallysignificant(p

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    Figure3.1.Percentageofpersonsreportinggoodorbetterhealth,byageandsex:UnitedStates,1995

    3.2.2 Expected years without activity limitation

    Inthe1995NHIS,respondentswereaskedaboutactivitylimitation.Respondentswerecategorizedintooneofthefollowinggroups:notlimitedinanyway;unabletoperformtheirmajoractivity;limitedeither inkind/amountof theirmajoractivity;andlimitedinactivitiesother than theoneidentifiedasthemajoractivity.Respondentswithunknownactivitylimitationstatuswereassumed tobenot limited(5).Expectedyearsofhealthy lifedefinedasdisability-free lifeexpectancy(DFLE)wereestimatedbasedontheprevalenceofmajoractivitylimitationonlyandonanytypeofactivitylimitation.Thedistributionofthosefreeofanyactivitylimitationby5-yearagegroupandsex ispresented infigure3.3.Thefigure indicatesthatactivitylimitation isafunctionofage.Thepercentageofmalesandfemaleswithoutanyactivitylimitationdeclineswithageataslowerrateat theyoungeragesandarelativelyfasterrateat theolderages.

    Theexpectedyearswithoutmajoractivitylimitationandyearswithoutany limitationforselectedagesbysexispresented intable3.2andfigure3.4.Onaverage,individualsofallagescouldexpecttospendmore than4ofevery5yearswithoutlimitation intheirmajoractivity.Ababybornin1995wouldbeexpected tospendmore than94percent(94.1formalesand94.7percentforfemales)ofhisorhertotal lifeexpectancywithoutlimitation inmajoractivity.Atage65,thispercentagedroppedonlybyabout5percentagepoints to89.1percent(88.6formalesand89.5percentfor

    females).Ontheotherhand,when thebroaderdefinitionofthemeasureanyactivity limitationisused, thepercentageoflifeexpected tobewithout limitationdeclinedfrom94.4to82.5percentatbirth(from94.1to83.2percentformalesandfrom94.7to81.9percentforfemales)andfrom89.1 to61.3percentatage65.

    Femalescouldexpect to livemoreyearswithoutmajororanyother typeofactivity limitation.Thedifferencebetweenmalesandfemalesinexpectedyearswithoutmajor

    Figure3.2.Percentageofexpected life ingoodorbetterhealthatbirth,20,and65yearsofage,bysex:UnitedStates,1995

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    Figure3.3.Percentagefreeofactivity limitation,byageandsex:UnitedStates,1995

    activitylimitation isstatisticallysignificant(p

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    Figure3.4.Percentageof lifeexpectancyfreeofanyactivitylimitationatbirth,20,and65yearsofage,bysex:UnitedStates,

    food;shoppingforpersonal items;managingmoney;usingthe telephone;anddoingheavyworkaroundthehouse(5).Therecodedresponsecategorieswerepersonswhoneedthehelpofotherpersonstoperformpersonalcareneeds,thosewhoneedthehelpofotherpersonstoperformotherroutineneeds,andthosewhoarenotlimitedinperformingpersonalorroutineneeds.Thosewithunknownlimitationstatuswereassumed tobenot limited inperformingpersonalcareorotherroutineneeds.Figure3.5

    presentsthepercentagedistributionof thosewhowereabletoperformpersonalcareneedsorwhowerenot limited inotherroutineneedsofdailylivingby5-yearagegroupandsex.Thedistribution indicates thatlimitation inpersonalcareorotherroutineneedsofdailylivingwasahealthproblemmostlyassociatedwitholdage.Expectedyearswithoutfunctionaldependencywerecalculated,andtheresultsforsomeselectedagesbysexarepresented in table3.4.

    Accordingto

    the

    results

    of

    the

    1995

    NHIS

    data,

    those

    whowereyounger thanage75couldexpect tolivemorethan90percentoftheirremaininglifewithoutfunctionaldependency.A75-year-oldmalewouldexpect toliveabout90.2percentofhis totalexpectationoflifewithoutfunctionaldependency.Thepercentagedeclined toonly88.1percentatage80.Atage75,onaverage,adultfemaleswouldexpecttolivenearly88percentof theremainderoftheirlivesfreeoffunctionaldependency.Onaverage,an80-year-oldfemalewouldexpectto live83.4percentofherlifeexpectationfreeoffunctionaldependency.

    Whenyearswithout limitationweremeasuredin termsoffunctionaldependencyduetolimitationsinADLorotherroutineneeds(IADL),adultsyoungerthan65yearsofagecouldexpectto livemorethan80percentof theirexpectedlivesfreeof limitation(morethan86.5percentformalesand80.1percentforfemale).Atanygivenage,femaleswouldexpectto livemoreyearswithoutfunctionaldependencybecauseofADLorIADLlimitation.Thedifferencebetweenmalesandfemales inexpectedyearswithoutADLorIADL

    Figure3.5.Percentageabletoperformpersonalcareneedsornotlimitedinotherroutineneeds,byageandsex:UnitedStates,199516 ExpectedYearsofHealthyLifeUnderVariousDefinitionsofHealth

    1995

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    Figure3.6.Percentageof lifeexpectancyabletoperformpersonalcareneedsornot limited inotherroutineneedsat45,65,and75yearsofage,bysex:UnitedStates,1995

    limitation isstatisticallysignificant(p

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    weight in thecalculationofBMIsresultsin theover-estimationofexpected lifewithBMI less than25andwithBMI lessthan30.

    Thepercentageofadult lifeexpectancyexpectedtobespentwithBMI lessthan25decreasedcontinuouslywithageforyoungeradultsandthenroseat theolderages.Byage65,thepercentagewas50.4,andbyage80,itwas63.6percent.Ateachage,adultfemalesexpectedtospendalarger

    share

    of

    their

    future

    years

    with

    aBMI

    less

    than

    25

    thandidadultmales.Atage20,forexample,whileadultfemalescouldexpect tospend57.2percentoftheiraveragelifeexpectancywithaBMI less than25;theshareofaveragelifeexpectancyforadultmalesof thesameagewasonly40percent.Atage65, thepercentageof lifeexpectancytobespentwithaBMIlessthan25rosetoabout54percentforadultfemalesbutwasexpectedtobeonly50percentforadultmales.

    Thetablealsoshowsthat,onaverage,adultsaged20yearsandovercouldexpecttospendmorethanfourfifthsoftheirliveswithoutbeingobese(BMIlessthan30);theyalsocouldexpectthepercentageofremaininglifeexpectedtobespentwithoutbeingobesewouldrisewithage,forbothadultmalesandfemales.Atage20,onaverage,adultfemalescouldexpect tospend83.4percentoftheirexpectedliveswithBMIlessthan30,whileadultmalescouldexpecttospend84percentof theirremainingliveswithanaverageBMI lessthan30.Atage65, theaveragepercentageofremaining lifeexpectedtobespentwithaBMIof less than30was84.2forfemalesand88formales.Becauseoftheirhigher lifeexpectanciescompared tomalesofthesameage,adultfemalesexpected tospendmoreof theirremainingyearswithaBMIoflessthan25aswellasaBMIoflessthan30.ThedifferencebetweenmaleandfemaleexpectedyearswithBMI lessthan25andBMIlessthan30issignificant(p

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    Figure3.11.Percentageingoodorbetterhealth,byageandrace:UnitedStates,1995

    expectancyforawhitemale;yet,itwasonly60.1percentfora65-year-oldblackmale.

    Thelasttwocolumnsofthe tableshow theracialdifferencesbothinlifeexpectancyandexpectedyears ingoodorbetterhealth.Formalesaswellasfemales, thedifferenceinyears ingoodorbetterhealth islargerthanthedifferencein