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State­at­a­Glance Coverage and Financing ChartsBy State: California

DEMOGRAPHICS

Child Population California US

Number of children 9,709,700 78,118,600

Children as a percentage of the total population 25% 25%Source: The Kaiser Family Foundation, Population Distribution by Age, states (2014). Kaiser Family Foundation estimates based onthe Census Bureau's March 2015 Current Population Survey (CPS: Annual Social and Economic Supplement). Retrieved onDecember 1, 2015 from http://kff.org/other/state­indicator/distribution­by­age/

Race/Ethnicity California US

Percentage of children, by race/ethnicity

White alone 27.4% 53.5%

Black/African American alone 5.6% 14.0%

Hispanic/Latino alone 51.2% 26.9%

American Indian/Alaska Native alone 0.4% 0.9%

Asian alone 10.4% 4.3%

Native Hawaiian/Other Pacific Islander alone 0.3% 0.2%

Another race/ethnicity alone 0.3% 0.3%

2 or more races/ethnicities 4.4% 3.8%Source: Derived from Census data by subtracting the population 18 years and older from the population of all ages, then dividingby the population of all ages, for each race/ethnicity. U.S. Census Bureau (2010). American FactFinder, 2010 Census RedistrictingData (Public Law 94­171), Summary File, Table P2 Hispanic or Latino, and Not Hispanic or Latino by Race, Universe: TotalPopulation and Table P4 Hispanic or Latino, and Not Hispanic or Latino by Race for the Population 18 years and over, Universe:Total Population 18 years and over. Retrieved April 3, 2013 fromhttp://factfinder2.census.gov/faces/tableservices/jsf/pages/productview.xhtml?pid=DEC_10_SF1_QTP3&prodType=table

Household California US

Among households with children, percentage of households with one, two, or three or more adults

1 adult 9.6% 14.9 %

2 adults 62.6% 63.4 %

3 or more adults 27.8% 21.7%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 3, 2013from http://childhealthdata.org/browse/survey/results?q=1839&r=1

Urban/Rural California US

Percentage of population living in urban areas 98% 85%Source: The Kaiser Family Foundation, Population Distribution by Metropolitan Status, states (2012­2013), U.S. (2013). DataSource: Urban Institute and Kaiser Commission on Medicaid and the Uninsured estimates based on the Census Bureau's March2013 and 2014 Current Population Survey (CPS: Annual Social and Economic Supplements). Retrieved on March 23, 2015 fromhttp://kff.org/other/state­indicator/metropolitan­distribution/#

Special Health Care Needs California US

Percentage of children with reported special health care needs, by age group

0­5 6.3% 9.3%

6­11 12.5% 17.7%

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12­17 13.1% 18.4%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 3, 2013from http://childhealthdata.org/browse/survey/results?q=1792&r=1&g=376

Percentage of children with reported special health care needs, by sex

Male 12.9% 17.4%

Female 8.2% 12.7%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1792&a=3014&g=377

Percentage of children with reported special health care needs, by race/ethnicity

Hispanic 9.2% 11.2%

White, non­Hispanic 12.8% 16.3%

Black, non­Hispanic 15.0% 17.5%

Other, non­Hispanic 9.1% 13.6%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1792&a=3014&g=378

Percentage of children with reported special health care needs, by primary household language

Hispanic child/ Spanish language household 7.6% 8.2%

Hispanic child/ English language household 11.0% 14.4%

Non­Hispanic child 12.0% 16.2%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1792&a=3014&g=379

Percentage of children with reported special health care needs, by household income

0­99% FPL 8.6% 16.0%

100­199% FPL 8.4% 15.4%

200­399% FPL 12.5% 14.5%

400% or more FPL 12.0% 14.7%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1792&a=3014&g=380

Percentage of households with one or more children with special health careneeds 17.8% 23.0%

Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 3, 2013from http://childhealthdata.org/browse/survey/results?q=1813&r=1

Tip: *Estimates based on sample sizes too small to meet standards for reliability or precision.

Low Birth Weight California US

Percentage of live births that are low birth weight 6.7% 8.0%Source: National Vital Statistics Reports, Vol. 64, No. 12, December 23, 2015. Table I–9. Low birthweight births, by race andHispanic origin of mother: United States, each state and territory, 2014. Retrieved May 24, 2016 fromhttp://www.cdc.gov/nchs/data/nvsr/nvsr64/nvsr64_12_tables.pdf

Special Education California US

Percentage of public school students enrolled in Special Education 10.7 12.9Source: U.S. Department of Education, The National Center for Education Statistics, Digest of Education Statistics (2013). Table204.70. Number and percent of children served under Individuals with Disabilities Education Act, Part B, by age group and state orjurisdiction: Selected years, 1990­91 to 2011­2012. Retrieved May 17, 2016 fromhttps://nces.ed.gov/programs/digest/d13/tables/dt13_204.70.asp

ECONOMICS

Income California US

Median annual household income $60,487 $53,657Source: The Kaiser Family Foundation, Median Annual Household Income 2014. Data Source: U.S. Census Bureau, 2014 CurrentPopulation Survey, Annual Social and Economic Supplements. Median Household Income by State­ Single Year available athttp://www.census.gov/hhes/www/income/data/statemedian/index.html. Retrieved August 5, 2016 fromhttp://kff.org/other/state­indicator/median­annual­income/.

Percentage of children in families with income below 200% of the federalpoverty level 43.5% 42.4%

Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 3, 2013from http://childhealthdata.org/browse/survey/results?q=2152&r=1

Percentage of CSHCN in families with income below 200% of the federal 34.9% 44.3%

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poverty levelSource: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 3, 2013from http://childhealthdata.org/browse/survey/results?q=2152&r=1&g=388

Unemployment California US

Unemployment rate 7.3% 5.9%Source: The Kaiser Family Foundation, Unemployment Rate (Seasonally Adjusted), 2013­2014. Data Source: State and territoryfigures from the Table 3, Regional and State Employment and Unemployment: October 2014, and Unemployment rates by State,seasonally adjusted: October 2013 and 2014, Bureau of Labor Statistics, available athttp://www.bls.gov/news.release/laus.t03.htm U.S. figures from Bureau of Labor Statistics, available at http://data.bls.gov/cgi­bin/surveymost?bls. Retrieved on March 23, 2015 from http://kff.org/other/state­indicator/unemployment­rate/.

Financial Impact of Caregiving California US

Percentage of families who report they have reduced work hours or stoppedworking to care for their CYSHCN 29.4% 25.0%

Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 3, 2013from http://childhealthdata.org/browse/survey/results?q=1634&r=1

Employer Size California US

Distribution of employers, by number of employees

<20 88.8% 89.5%

20­99 8.7% 8.7%

100+ 2.6% 1.8%Source: Calculated by Catalyst Center staff by dividing the number of firms in each size category by the total number of firms.U.S. Census Bureau, Statistics of U.S. Businesses (SUSB). Data Source: 2013 U.S. and state industry totals. Data ReleasedFebruary 9, 2016. Retrieved on July 27, 2016 from http://www.census.gov/econ/susb/.

Employer­Sponsored Health Insurance California US

Percentage of private sector employers offering health insurance 51.4 49.9Source: The Kaiser Family Foundation, Percent of Private Sector Establishments That Offer Health Insurance to Employees, 2013.Data Source: Agency for Healthcare Research and Quality, Center for Cost and Financing Studies. 2013 Medical ExpenditurePanel Survey ­ Insurance Component. Table II.A.2. Retrieved on July 15, 2016 from http://kff.org/other/state­indicator/percent­of­firms­offering­coverage/

Percentage of private sector employers offering health insurance, by number of employees

<50 39.6% 34.8%

50+ 93.7% 95.7%Source: The Kaiser Family Foundation, Percent of Private Sector Establishments That Offer Health Insurance to Employees, byFirm Size, 2013. Data Source: Agency for Healthcare Research and Quality, Center for Cost and Financing Studies. 2013 MedicalExpenditure Panel Survey ­ Insurance Component. Table II.A.2. Retrieved on July 15, 2016 from http://kff.org/other/state­indicator/firms­offering­coverage­by­size/#

Medicaid Eligibility California US

Maximum allowed income for Medicaid enrollment, as a percentage of the federal poverty level, compared tothe federal minimum requirement

Pregnant women 213%Requiredminimum:185%

Children, aged 0­1 266%Requiredminimum:138%

Children, aged 1­5 266%Requiredminimum:138%

Children, aged 6­18 266%Requiredminimum:138%

Source: For pregnant women,The Kaiser Family Foundation, Medicaid and CHIP Income Eligibility Limits for Pregnant Women atApplication, Effective January 1, 2016 (as a Percent of Federal Poverty Level (FPL)). Data Source: Based on data from theCenters for Medicare and Medicaid Services (CMS), State Medicaid and CHIP Income Eligibility Standards Effective January 1,2016; accessed July 15, 2016. Retrieved on July 15, 2016 from http://kff.org/health­reform/state­indicator/medicaid­and­chip­income­eligibility­limits­for­children­as­a­percent­of­the­federal­poverty­level/.

Tip: Children's Medicaid eligibility includes Title XXI CHIP funding for states that expanded Medicaid with CHIP funds.

Federal Match for Medicaid California US

Federal Medical Assistance Percentage (FMAP) 50.00% 50.00%Source: The Kaiser Family Foundation, Federal Medical Assistance Percentage (FMAP) for Medicaid and Multiplier. Data Source:FY2017:Federal Register, December 2, 2014 (Vol 79, No. 231), pp 71426­71428, at http://www.gpo.gov/fdsys/pkg/FR­2011­11­30/pdf/2011­30860.pdf. Retrieved July 27, 2016 from http://kff.org/medicaid/state­indicator/federal­matching­rate­and­multiplier/.

Tip: The Kaiser Family Foundation website defaults to the FY 2017 FMAP. Use the drop down box under TIMEFRAME to select FY2016 FMAP.

Education Expenditures California US

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Combined local, state and federal per pupil education expenditures $9,530 $11,339Source: U.S. Department of Education, National Center for Education Statistics, Statistics of State School Systems, 1969­70;Revenues and Expenditures for Public Elementary and Secondary Education, 1979­80; and Common Core of Data (CCD), "NationalPublic Education Financial Survey," 1989­90 through 2008­09. Retrieved April 3, 2013 fromhttp://nces.ed.gov/programs/digest/d11/tables/dt11_195.asp

Federal per pupil IDEA expenditures for children aged 3­21 in Special Education $1,809 $1,774Source: Calculated by Catalyst Center Staff using the total state grant award for special education divided by number of childrenserved under the Individual with Disabilities Education Act (IDEA), Part B. Source for total state grant award for special education:U.S. Department of Education, Rehabilitation Services Administration (RSA). Fiscal Year 2009­FY2011 President’s Budget StateTables for the U.S. Department of Education. Retrieved May 8, 2013 fromhttp://www2.ed.gov/about/overview/budget/statetables/11stbyprogram.pdf. Source for total number of children served underIDEA, Part B: U.S. Department of Education, The National Center for Education Statistics, Digest of Education Statistics (2011).Table 48. Number and percent of children served under Individuals with Disabilities Education Act, Part B, by age group and stateor jurisdiction: Selected years, 1990­91 to 2009­10. Retrieved July, 3, 2013 fromhttp://nces.ed.gov/programs/digest/d11/tables/dt11_048.asp

CHILD HEALTH SERVICES

Health Care California US

Number of children’s hospitals 20 250Source: Children's Hospital Association. Children's Hospital Directory: United States. Retrieved on July 27, 2016 fromhttps://www.childrenshospitals.org/.

Number of pediatricians per 1,000 children 1.05 1.14Source: Calculated by Catalyst Center staff using the number of pediatricians in each state divided by the total number of childrenper 1,000. Source for the number of pediatricians per state: American Board of Medical Specialties, 2004­2013 ABMS CertificateStatistics, Table 3D: Geographic Distribution of ABMS Member Board Diplomats by General Certificate. Retrieved on April 8, 2015from http://www.abms.org/media/84770/2013_2014_abmscertreport.pdf. Source for the number of children per state: KaiserFamily Foundation estimates based on the Census Bureau's March 2015 Current Population Survey (CPS: Annual Social andEconomic Supplement). Retrieved on December 8, 2015 from http://kff.org/other/state­indicator/distribution­by­age/#.

Number of family practitioners 9,488 85,279Source: FULL SOURCE: American Board of Medical Specialties, 2013­2014 ABMS Certificate Statistics, Table 3D: GeographicDistribution of ABMS Member Board Diplomats by General Certificate. Retrieved on April 8, 2015 from American Board of MedicalSpecialties, 2012 ABMS Certificate Statistics, Table 3C: Geographic Distribution of ABMS Member Board Diplomats by GeneralCertificate (as of October 9, 2012).

Number of child and adolescent psychiatrists per 1,000 children 0.07 0.075Source: Calculated by Catalyst Center staff using the number of child and adolescent psychiatrists in each state divided by thetotal number of children per 1,000. Source for the number of pediatricians per state: American Board of Medical Specialties, 2004­2013 ABMS Certificate Statistics, Table 3D: Geographic Distribution of ABMS Member Board Diplomats by General Certificate.Retrieved on April 8, 2015 from http://www.abms.org/media/84770/2013_2014_abmscertreport.pdf. Source for the number ofchildren per state: Population and demographic data on are based on analysis of the Census Bureau’s March 2015 CurrentPopulation Survey (CPS; Annual Social and Economic Supplement) and may differ from other population estimates publishedyearly by the Census Bureau. U.S. and state population data displayed on this site are restricted to the non­institutionalizedpopulation. Retrieved on December 8, 2015 from http://kff.org/other/state­indicator/distribution­by­age/.

Early Intervention Eligibility California US

Eligibility for Early Intervention services includes infants and toddlers “at risk” ofdevelopmental delay No Yes=5

Source: States’ and territories’ definitions of/criteria for IDEA Part C Eligibility. Retrieved March 20, 2015 fromhttp://www.nectac.org/~pdfs/topics/earlyid/partc_elig_table.pdf

Mental Health California US

Percentage of children served by the state mental health agency

Aged 0­12 19.1% 15.4%

Aged 13­17 15.1% 11.9%

Aged 18­20 5.1% 4.6%Source: SAMHSA National Mental Health Information Center (2014). 2014 CMHS Uniform Reporting System Output Tables.Retrieved September 25, 2015 from http://www.samhsa.gov/data/us_map. http://www.samhsa.gov/data/us_map.

Percentage of CSHCN with emotional, behavioral or developmental issueswhose families have adequate private and/or public insurance to pay for theservices they need

52.90% 59.10%

Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved December 10,2015 from http://childhealthdata.org/browse/allstates?q=1630&g=370&a=3043.

Oral Health California US

Percentage of children receiving preventive dental care in the past year 75.3% 77.2%Source: National Survey of Children's Health. NSCH 2011/12. Data query from the Child and Adolescent Health MeasurementInitiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 5, 2013 fromhttp://childhealthdata.org/browse/survey/results?q=2500&r=1

Percentage of CSHCN receiving preventive dental care in the past year 81.0% 83.1%Source: National Survey of Children's Health. NSCH 2011/12. Data query from the Child and Adolescent Health MeasurementInitiative, Data Resource Center for Child and Adolescent Health website. Retrieved July 3, 2013 fromhttp://childhealthdata.org/browse/survey/results?q=2500&r=1&g=461

Percentage of children with teeth in excellent or very good condition 64.2% 71.3%Source: National Survey of Children's Health. NSCH 2011/12. Data query from the Child and Adolescent Health MeasurementInitiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 5, 2013 fromhttp://childhealthdata.org/browse/survey/results?q=2458&r=1

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Percentage of CSHCN with teeth in excellent or very good condition 60.3% 64.9%Source: National Survey of Children's Health. NSCH 2011/12. Data query from the Child and Adolescent Health MeasurementInitiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 5, 2013 fromhttp://childhealthdata.org/browse/survey/results?q=2458&r=1&g=461

Foster Care California US

Number of children in foster care 56,771 415,129Source: U.S. Department of Health and Human services, Administration for Children and Families, Children's Bureau, Adoption andFoster Care Analysis and Reporting System (AFCARS) (July 2015). Numbers of Children In Foster Care on September 30th, byState FY 2005–FY 2014. Retrieved on June 2, 2016 fromhttp://www.acf.hhs.gov/sites/default/files/cb/children_in_care_2014.pdf

Percentage of children in foster care 0.6% 0.5%Source: Calculated by Catalyst Center staff using the number of children in foster care in each state (as of September 30th 2014)divided by the total number of children in each state. Source for the number of children in foster care per state: Adoption andFoster Care Analysis and Reporting System (AFCARS) (July 2015). Numbers of Children In Foster Care on September 30th, byState FY 2005–FY 2014. Retrieved on June 2, 2016. fromhttp://www.acf.hhs.gov/sites/default/files/cb/children_in_care_2014.pdf. Source for the number of children per state: PopulationDistribution by Age, states (2014). Kaiser Family Foundation estimates based on the Census Bureau's March 2015 CurrentPopulation Survey (CPS: Annual Social and Economic Supplement). Retrieved on December 1, 2015 fromhttp://kff.org/other/state­indicator/distribution­by­age/.

FACTORS INFLUENCING HEALTH INSURANCE COVERAGE

Uninsured California US

Percentage of children without health insurance at some point in the past year 12.9% 11.3%Source: National Survey of Children's Health. NSCH 2011/12. Data query from the Child and Adolescent Health MeasurementInitiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 5, 2013 fromhttp://childhealthdata.org/browse/survey/results?q=2198&r=1

Percentage of CYSHCN without health insurance at some point in the past year, by age groups

0­5 years 13.1% 9.1%

6­11 years 6.2% 9.2%

12­17 years 7.7% 9.4%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=2015&g=86&a=2986

Percentage of CYSHCN without health insurance at some point in the past year, by sex

Male 8.4% 9.5%

Female 8.2% 8.9%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=2015&a=2986&g=89

Percentage of CYSHCN without health insurance at some point in the past year, by race/ethnicity

Hispanic 11.7% 15.9%

White non­Hispanic 6.0% 7.3%

Black non­Hispanic 4.4% 9.9%

Other non­Hispanic 5.9% 9.4%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=2015&a=2986&g=88

Percentage of CYSHCN without health insurance at some point in the past year, by primary householdlanguage

Hispanic child/Spanish language household 17.1% 22.2%

Hispanic child/English language household 7.7% 12.6%

Non­Hispanic child 5.8% 8.0%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=2015&a=2986&g=365

Percentage of CYSHCN without health insurance at some point in the past year, by household income

0­99% FPL 18.1% 14.2%

100­199% FPL 13.1% 14.1%

200­399% FPL 8.0% 8.5%

400% or more FPL 2.2% 2.3%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=2015&a=2986&g=372

Percentage of CYSHCN without health insurance at some point in the past year, by number of functional

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difficulties

No difficulties 4.2% 4.4%

1 difficulty 6.7% 5.9%

2 difficulties 10.7% 9.0%

3 difficulties 12.1% 9.9%

4 or more difficulties 8.0% 11.7%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=2015&a=2986&g=440

Percentage of CYSHCN without health insurance at some point in the past year 8.3% 9.3%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 5, 2013from http://childhealthdata.org/browse/survey/results?q=1629&r=1

Tip: *Estimates based on sample sizes too small to meet standards for reliability or precision.

Underinsured California US

Percentage of children with inadequate health care coverage 25.6% 23.5%Source: National Survey of Children's Health. NSCH 2011/12. Data query from the Child and Adolescent Health MeasurementInitiative, Data Resource Center for Child and Adolescent Health website. Retrieved June 26, 2013 fromhttp://childhealthdata.org/browse/survey/results?q=2491&r=1

Percentage of CYSHCN with inadequate health care coverage, by age groups

0­5 years 29.9% 31.6%

6­11 years 39.5% 34.6%

12­17 years 38.8% 35.5%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1630&g=86

Percentage of CYSHCN with inadequate health care coverage, by sex

Male 38.2% 34.5%

Female 35.4% 34.1%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1630&g=89

Percentage of CYSHCN with inadequate health care coverage, by race/ethnicity

Hispanic 38.8% 37.9%

White non­Hispanic 34.4% 33.0%

Black non­Hispanic 47.8% 35.9%

Other non­Hispanic 33.6% 33.9%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1630&g=88

Percentage of CYSHCN with inadequate health care coverage, by primary household language

Hispanic child/Spanish language household 46.5% 39.9%

Hispanic child/English language household 33.1% 37.0%

Non­Hispanic child 36.0% 33.6%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1630&g=365

Percentage of CYSHCN with inadequate health care coverage, by household income

0­99% FPL 44.6% 34.3%

100­199% FPL 40.5% 34.3%

200­399% FPL 35.5% 36.9%

400% or more FPL 34.2% 31.9%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1630&g=372

Percentage of CYSHCN with inadequate health care coverage, by number of functional difficulties

No difficulties 22.0% 23.2%

1 difficulty 31.3% 26.5%

2 difficulties 31.4% 30.7%

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3 difficulties 36.1% 32.6%

4 or more difficulties 44.6% 41.6%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1630&g=440

Percentage of CYSHCN with inadequate health care coverage 37.2% 34.3%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 5, 2013from http://childhealthdata.org/browse/survey/results?q=1630&r=1

Tip: Relatively few CYSHCN lack insurance completely. However, private coverage is often too limited to meet their health needs,Thus, in many states, underinsurance is the major financial barrier to health care access for CYSHCN.

*Estimates based on sample sizes too small to meet standards for reliability or precision.

Private Insurance Coverage California US

Percentage of children with private health insurance coverage 54.1% 57.4%Source: National Survey of Children's Health. NSCH 2011/12. Data query from the Child and Adolescent Health MeasurementInitiative, Data Resource Center for Child and Adolescent Health website. Retrieved June 26, 2013 fromhttp://childhealthdata.org/browse/survey/results?q=2490&r=1

Percentage of CYSHCN with private health insurance coverage, by age groups

0­5 years 51.5% 46.1%

6­11 years 60.2% 51.4%

12­17 years 64.1% 56.6%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1810&g=86

Percentage of CYSHCN with private health insurance coverage, by sex

Male 56.4% 51.9%

Female 65.9% 53.0%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1810&g=89

Percentage of CYSHCN with private health insurance coverage, by race/ethnicity

Hispanic 41.3% 35.7%

White non­Hispanic 86.1% 63.4%

Black non­Hispanic 46.6% 30.6%

Other non­Hispanic 59.5% 49.8%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1810&g=88

Percentage of CYSHCN with private health insurance coverage, by primary household language

Hispanic child/Spanish language household 21.9% 15.9%

Hispanic child/English language household 55.5% 46.1%

Non­Hispanic child 75.0% 55.7%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1810&g=365

Percentage of CYSHCN with private health insurance coverage, by household income

0­99% FPL 10.8% 5.9%

100­199% FPL 31.3% 27.7%

200­399% FPL 69.2% 71.8%

400% or more FPL 88.4% 90.2%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1810&g=372

Percentage of CYSHCN with private health insurance coverage, by number of functional difficulties

No difficulties 89.4% 74.7%

1 difficulty 75.6% 68.9%

2 difficulties 67.8% 61.6%

3 difficulties 60.9% 52.2%

4 or more difficulties 45.5% 38.2%

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Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1810&g=440

Percentage of CYSHCN with private health insurance coverage 60.0% 52.4%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 5, 2013from http://childhealthdata.org/browse/survey/results?q=1810&r=1

Tip: *Estimates based on sample sizes too small to meet standards for reliability or precision.

Public Coverage: Medicaid, CHIP and SSI California US

Number of children enrolled in Medicaid 4,659,100 32,931,900Tip: Because 2011 data were unavailable, 2010 data was used for Florida, Kansas, Maine, Maryland, Montana, New Mexico, NewJersey, Oklahoma, Texas, and Utah.

Percentage of Medicaid enrollees who are children 40% 48%Source: The Kaiser Family Foundation, Distribution of Medicaid Enrollees by Enrollment Group, FY2011. Data Source: KaiserCommission on Medicaid and the Uninsured and Urban Institute estimates based on data from Medicaid Statistical InformationSystem (MSIS) reports from the Centers for Medicare and Medicaid Services (CMS), 2012. Retrieved March 23, 2015 fromhttp://kff.org/medicaid/state­indicator/distribution­of­medicaid­enrollees­by­enrollment­group/.

Percentage of children enrolled in Medicaid or CHIP 39.5% 37.1%Source: National Survey of Children's Health. NSCH 2011/12. Data query from the Child and Adolescent Health MeasurementInitiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 5, 2013 fromhttp://childhealthdata.org/browse/survey/results?q=2490&r=1

Percentage of CYSHCN enrolled in Medicaid or CHIP, by age groups

0­5 years 33.5% 41.2%

6­11 years 26.0% 36.9%

12­17 years 27.2% 32.1%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1810&a=3048&g=86

Percentage of CYSHCN enrolled in Medicaid or CHIP, by sex

Male 31.4% 36.1%

Female 22.6% 35.5%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1810&a=3048&g=89

Percentage of CYSHCN enrolled in Medicaid or CHIP, by race/ethnicity

Hispanic 42.7% 46.4%

White non­Hispanic 7.7% 27.0%

Black non­Hispanic 43.1% 56.0%

Other non­Hispanic 25.8% 37.8%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1810&a=3048&g=88

Percentage of CYSHCN enrolled in Medicaid or CHIP, by primary household language

Hispanic child/English language household 32.9% 40.6%

Non­Hispanic child 16.3% 33.7%

Hispanic child/Spanish language household 55.9% 57.5%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1810&a=3048&g=365

Percentage of CYSHCN enrolled in Medicaid or CHIP, by household income

0­99% FPL 66.1% 77.9%

100­199% FPL 49.6% 55.9%

200­399% FPL 22.0% 17.2%

400% or more FPL 5.6%* 4.5%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1810&a=3048&g=372

Percentage of CYSHCN enrolled in Medicaid or CHIP, by number of functional difficulties

No difficulties 7.1%* 19.5%

1 difficulty 20.6% 24.0%

2 difficulties 22.2% 29.0%*

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3 difficulties 31.5% 36.6%

4 or more difficulties 35.6% 45.9%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1810&g=440&a=3048

Percentage of CYSHCN enrolled in Medicaid or CHIP 16.6% 10.4%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 5, 2013from http://childhealthdata.org/browse/survey/results?q=1810&r=1Tip: *Estimates based on sample sizes too small to meet standards for reliability or precision.

Maximum allowed income for CHIP eligibility as a percentage of the FPL 266% N/ASource: The Kaiser Family Foundation, Medicaid and CHIP Income Eligibility Limits for Children at Application, Effective January 1,2016 (as a Percent of Federal Poverty Level (FPL)). Data source: Based on data from the Centers for Medicare and MedicaidServices (CMS), State Medicaid and CHIP Income Eligibility Standards Effective January 1, 2016. Retrieved on July 15, 2016 fromhttp://kff.org/health­reform/state­indicator/medicaid­and­chip­income­eligibility­limits­for­children­as­a­percent­of­the­federal­poverty­level/.Tip: MAGI Adjusted

Number of children enrolled in CHIP 1,874,939 8,129,426Source: The Kaiser Family Foundation, Number of Children Ever Enrolled in the Children’s Health Insurance Program (CHIP), FiscalYear 2014. Data source: Medicaid.gov, FY2014 Number of Children Ever Enrolled in Medicaid and CHIP. Retreived from: RetrievedOctober 6, 2015 from http://kff.org/other/state­indicator/annual­chip­enrollment/#.Tip: Accounts for churn

Percentage of children enrolled in CHIP 19.3% 10.4%Source: Calculated by Catalyst Center staff using the number of children enrolled in CHIP in each state divided by the totalnumber of children in each state. Source for the number of children enrolled in CHIP per state: Kaiser Family Foundation, Numberof Children Ever Enrolled in the Children’s Health Insurance Program (CHIP), Fiscal Year 2014. Data source: Medicaid.gov, FY2014Number of Children Ever Enrolled in Medicaid and CHIP. Retrieved on December 10, 2015 from http://kff.org/other/state­indicator/annual­chip­enrollment/#. Source for the number of children per state : The Kaiser Family Foundation, PopulationDistribution by Age, states (2014). Kaiser Family Foundation estimates based on the Census Bureau's March 2015 CurrentPopulation Survey (CPS: Annual Social and Economic Supplement). Retrieved on August 4, 2016 from hhttp://kff.org/other/state­indicator/distribution­by­age/.

Number of children enrolled in Supplemental Security Income (SSI) 119,001 1,299,761Source: The Kaiser Family Foundation, Distribution of Supplemental Security Income (SSI) Beneficiaries by Age, 2014. DataSource: , SSI Annual Statistical Report, 2014, Table 10 Recipients, by state or other area, eligibility category, and age, December2014. , Social Security Administration, Office of Retirement and Disability Policy. Available at:https://www.ssa.gov/policy/docs/statcomps/ssi_asr/2014/ssi_asr14.pdf. Retrieved June 2, 2016 fromhttp://kff.org/medicaid/state­indicator/distribution­of­total­ssi­by­age/.

Percentage of children enrolled in Supplemental Security Income (SSI) 1.2% 1.7%Source: Calculated by Catalyst Center staff using the number of children enrolled in Supplemental Security Income in each statedivided by the total number of children in each state. Source for the number of children enrolled in Supplemental Security Income:SSI Annual Statistical Report, 2014, Table 10 Recipients, by state or other area, eligibility category, and age, December 2014.Retrieved June 2, 2016 from http://kff.org/medicaid/state­indicator/distribution­of­total­ssi­by­age/. Source for the number ofchildren per state: http://kff.org/other/state­indicator/distribution­by­age/.

TEFRA Medicaid state plan option/Katie Beckett waiver for children No Yes=23Source: TEFRA information from "Modernizing Medicaid Eligibility Criteria for Children with Significant Disabilities: Moving from aDisabling to an Enabling Paradigm," by MaryBeth Musumeci. American Journal of Law and Medicine, 37(2011): 81­127. KatieBeckett waiver information from Catalyst Center staff review of state Medicaid waivers. Retrieved Sept. 24, 2012 fromhttp://www.Medicaid.gov.

Premium Assistance Programs No Yes= 37Source: U.S. Department of Labor, Employee Benefits Security Administration, Premium Assistance under Medicaid and theChildren's Health Insurance Program (CHIP) OMB Control Number 1210­0137 (expires 10/31/2016) (current as of January 31,2016). Retrieved June 2, 2016 from http://www.dol.gov/ebsa/pdf/chipmodelnotice.pdf.

Dual Public and Private Coverage California US

Percentage of CYSHCN with a combination of public and private health insurance, by sex

Male 9.3% 8.4%

Female 6.8%* 7.8%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1810&a=3049&g=89

Percentage of CYSHCN with a combination of public and private health insurance, by race/ethnicity

Hispanic 11.6% 11.1%

White non­Hispanic 4.1% 6.9%

Black non­Hispanic 6.1%* 9.7%

Other non­Hispanic 10.4%* 3.7%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1810&a=3049&g=88

Percentage of CYSHCN with a combination of public and private health insurance, by age groups

0­5 years 9.7%* 9.7%

6­11 years 11.7% 8.4%

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12­17 years 4.7% 7.2%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1810&g=86&a=3049

Percentage of CYSHCN with a combination of public and private health insurance, by household income

0­99% FPL 14.7%* 11.1%

100­199% FPL 14.6% 11.1%

200­399% FPL 4.2%* 7.1%

400% or more FPL 6.0%* 4.6%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1810&a=3049&g=3725

Percentage of CYSHCN with a combination of public and private health insurance, by number of functionaldifficulties

No difficulties 2.7% 4.3%

1 difficulty 1.5% 4.7%

2 difficulties 4.8% 5.9%

3 difficulties 7.2% 7.3%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 5, 2013from http://www.childhealthdata.org/browse/allstates?q=1810&a=3049&g=440

Percentage of CYSHCN with a combination of public and private health insurance, by primary householdlanguage

Hispanic child/English language household 7.1% 8.1%

Non­Hispanic child 5.7% 7.6%

Hispanic child/Spanish language household 17.8% 16.7%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1810&a=3049&g=365

Percentage of CYSHCN with a combination of public and private healthinsurance 8.3% 8.2%

Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 5, 2013from http://childhealthdata.org/browse/survey/results?q=1810&r=1

Tip: Dual coverage is an option in states which permit privately insured families to enroll their children in Medicaid in order toreceive supplemental coverage, sometimes known as "wrap­around" coverage. This type of secondary Medicaid enrollment may beoffered free or through the payment of premiums based on a sliding scale. Dual coverage helps address underinsurance, which isa significant problem for many privately insured CYSHCN whose coverage is too limited to meet their health needs.

*Estimates based on sample sizes too small to meet standards for reliability or precision.

Health Care Reform California US

Exchange overview

Exchange decision State based

Statebased=13;Fed/State­based=4;Statepartnership=7;FFM=27

Type of exchange Activepurchaser N/A

Source: The Kaiser Family Foundation, State Decisions For Creating Health Insurance Marketplaces, 2016. Data compiled throughreview of state legislation and other Marketplace documents by the Kaiser Family Foundation. For more detailed descriptions ofstates’ health insurance Marketplace planning and implementation efforts, please visit State Exchange Profiles. For declarationletters on state­based exchanges from the Governors to HHS click here. Retrieved May 19, 2016 from http://kff.org/health­reform/state­indicator/health­insurance­exchanges/Tip: The term Health Insurance “Exchange” is also used interchangeably with Health Insurance “Marketplace.”

Recommended benchmark plan

KaiserFoundationHealth PlanSmall GroupHMO

N/A

Source: Kaiser Family Foundation, Essential Health Benefit (EHB) Benchmark Plans, 2017. Retrieved on July 27, 2016 fromhttp://kff.org/health­reform/state­indicator/essential­health­benefit­ehb­benchmark­plans­2017/

Plan type Small group

47 Smallgroup plans,3 Stateemployeeplans, 1State non­

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MedicaidHMO

Source: Kaiser Family Foundation Essential Health Benefit (EHB) Benchmark Plans, 2017 from 2017 Final List of Benchmark plans,The Center for Consumer Information & Insurance Oversight (CCIIO), The Centers for Medicare & Medicaid Services (CMS),accessed April 15, 2016. Retrieved Jun 2, 2016 from http://kff.org/health­reform/state­indicator/essential­health­benefit­ehb­benchmark­plans­2017/

Approved Section 2703 Health Home State Plan Amendments (SPAs)

Approved SPA No Yes= 22

Target population N/A N/A

Geographic area N/A N/ASource: The Kaiser Family Foundation, Health Home State Plan Option as of December 2015. Data sources: Medicaid.gov,Approved Health Home State Plan Amendments; Medicaid.gov, Health Home State Plan Amendments, December 2015; Vernon K.Smith, Kathleen Gifford, and Eileen Ellis, Health Management Associates; and Robin Rudowitz, Laura Snyder, and ElizabethHinton, Kaiser Commission on Medicaid and the Uninsured. Medicaid Reforms to Expand Coverage, Control Costs and ImproveCare: Results from a 50­State Medicaid Budget Survey for State Fiscal Years 2015 and 2016, The Henry J. Kaiser FamilyFoundation, October 15, 2015. Retrieved from http://kff.org/medicaid/state­indicator/health­home­state­plan­option/ onDecember 10, 2015.

State Mandated Insurance Benefits (for private ins California US

Autism Yes Yes=35Source: Autism Speaks, State Initiatives (2014, February). Retrieved on March 10, 2014 fromhttp://www.autismspeaks.org/advocacy/states andhttp://www.autismspeaks.org/sites/default/files/images/government_affairs/states_feb.2014.pdf

Bone Marrow Transplants No Yes=9

Cleft Palate Yes Yes=17

Congenital Bleeding Disorders No Yes=3

Dental Anesthesia Yes Yes=31

Diabetes Self­Management Yes Yes=38

Diabetic Supplies Yes Yes=47Source: Council for Affordable Health Insurance (CAHI), Health Insurance Mandates in the States 2010. Retrieved March 15, 2011from http://www.cahi.org/cahi_contents/resources/pdf/MandatesintheStates2010.pdf (link is currently inactive).

Early Intervention No Yes=9Source: Catalyst Center communications with state agency contacts and review of state statutes (2011)

Emergency Services Yes Yes=45

Hearing Aids No Yes=17

Home Health Care Yes Yes=20

Hospice Care No Yes=12

Kidney Disease Treatment No Yes=2

Mental Health, General Yes Yes=42Source: Council for Affordable Health Insurance (CAHI), Health Insurance Mandates in the States 2010. Retrieved March 15, 2011from http://www.cahi.org/cahi_contents/resources/pdf/MandatesintheStates2010.pdf (link is currently inactive).

Mental Health Parity No Yes=23Source: National Conference of State Legislatures, State Laws Mandating or Regulating Mental Health Benefits (2014, January).Retrieved March 10, 2014 from http://www.ncsl.org/issues­research/health/mental­health­benefits­state­mandates.aspx

Neurodevelopment Therapy No Yes=1

Newborn Hearing Screening No Yes=18

Newborn Sickle­Cell Testing No Yes=4

PKU/Formula Yes Yes=33

Prescription Drugs No Yes=4

Rehabilitation Services No Yes=6

Telemedicine Yes Yes=9Source: Council for Affordable Health Insurance (CAHI), Health Insurance Mandates in the States 2010. Retrieved March 15, 2011from http://www.cahi.org/cahi_contents/resources/pdf/MandatesintheStates2010.pdf (link is currently inactive).

Tip: For updated information on each state's specific mandated benefits, go to http://www.cms.gov/cciio/resources/data­resources/ehb.html

Catastrophic Coverage California US

High­Risk Pool Programs Yes Yes=34Source: The Kaiser Family Foundation, State High Risk Pool Programs and Enrollment, 2011. Data Source: Comprehensive HealthInsurance for High­Risk Individuals: A State­by­State Analysis. National Association of State Comprehensive Health InsurancePlans, 26th Ed., 2012/2013. Available for order at www.naschip.org. Retrieved April 08, 2013 fromhttp://statehealthfacts.org/comparetable.jsp?ind=602&cat=7

EXPERIENCE WITH THE SYSTEM OF CARE FOR CSHCN

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Federal MCHB Core Outcomes for CSHCN California US

Percentage of CSHCN whose families are partners in shared decision­making for child's optimal health, byprimary household language

Hispanic child/English language household 61.2% 65.6%

Non­Hispanic child 64.4% 71.6%

Hispanic child/Spanish language household 54.8% 59.5%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1617&g=365Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families partner indecision­making at all levels and are satisfied with the services they receive (outcome successfully achieved).

Percentage of CSHCN whose families are partners in shared decision­making for child's optimal health, byhousehold income

0­99% FPL 54.3% 61.8%

100­199% FPL 54.1% 67.3%

200­399% FPL 61.3% 72.6%

400% or more FPL 69.0% 77.2%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1617&g=372Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families partner indecision­making at all levels and are satisfied with the services they receive (outcome successfully achieved).

Percentage of CSHCN whose families are partners in shared decision­making for child's optimal health, bynumber of functional difficulties

No difficulties 78.6% 84.8%

1 difficulty 68.8% 79.6%

2 difficulties 75.0% 76.4%

3 difficulties 64.1% 73.2%

4 or more difficulties 51.4% 60.8%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1617&g=440Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families partner indecision­making at all levels and are satisfied with the services they receive (outcome successfully achieved).

Percentage of CSHCN whose families are partners in shared decision­making for child's optimal health, bysex

Male 56.9% 69.5%

Female 69.8% 71.5%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1617&g=89Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families partner indecision­making at all levels and are satisfied with the services they receive (outcome successfully achieved).

Percentage of CSHCN whose families are partners in shared decision­making for child's optimal health, byrace/ethnicity

Hispanic 58.5% 63.5%

White non­Hispanic 66.7% 74.2%

Black non­Hispanic 62.3% 64.7%

Other non­Hispanic 59.3% 66.8%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1617&g=88Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families partner indecision­making at all levels and are satisfied with the services they receive (outcome successfully achieved).

Percentage of CSHCN whose families are partners in shared decision­makingfor child's optimal health 61.8% 70.3%

Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 8, 2013from http://childhealthdata.org/browse/survey/results?q=1617&r=1Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families partner indecision­making at all levels and are satisfied with the services they receive.

Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, byage groups

0­5 years 38.9% 44.2%

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6­11 years 37.0% 42.1%

12­17 years 39.1% 43.1%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1618&g=86Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated,ongoing, comprehensive care within a medical home (outcome successfully achieved).

Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, bysex

Male 38.4% 42.6%

Female 38.0% 43.6%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1618&g=89Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated,ongoing, comprehensive care within a medical home (outcome successfully achieved).

Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, byrace/ethnicity

Hispanic 34.9% 33.2%

White non­Hispanic 45.3% 48.8%

Black non­Hispanic 35.8% 33.5%

Other non­Hispanic 31.6% 39.1%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1618&g=88 http://www.childhealthdata.org/browse/allstates?q=1618&g=88Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated,ongoing, comprehensive care within a medical home (outcome successfully achieved).

Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, byprimary household language

Hispanic child/English language household 40.6% 37.4%

Non­Hispanic child 40.9% 44.9%

Hispanic child/Spanish language household 27.2% 24.9%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1618&g=365Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated,ongoing, comprehensive care within a medical home (outcome successfully achieved).

Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, byhousehold income

0­99% FPL 21.0% 30.9%

100­199% FPL 29.6% 37.5%

200­399% FPL 45.1% 47.4%

400% or more FPL 44.3% 52.2%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1618&g=372Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated,ongoing, comprehensive care within a medical home (outcome successfully achieved).

Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home, bynumber of functional difficulties

No difficulties 69.0% 64.1%

1 difficulty 49.2% 58.3%

2 difficulties 56.3% 53.3%

3 difficulties 46.0% 43.2%

4 or more difficulties 20.3% 28.9%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1618&g=440Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated,ongoing, comprehensive care within a medical home (outcome successfully achieved).

Percentage of CSHCN who receive coordinated, ongoing, comprehensive carewithin a medical home 38.3% 43.0%

Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 8, 2013

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from http://childhealthdata.org/browse/survey/results?q=1618&r=1Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 who receive coordinated,ongoing, comprehensive care within a medical home.

Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to payfor the services they need, by age groups

0­5 years 36.2% 63.2%

6­11 years 42.2% 60.3%

12­17 years 42.2% 59.4%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1619&g=86Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families haveadequate private and/or public insurance to pay for the services they need (outcome successfully achieved).

Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to payfor the services they need, by sex

Male 42.4% 60.2%

Female 38.4% 61.0%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1619&g=89Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families haveadequate private and/or public insurance to pay for the services they need (outcome successfully achieved).

Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to payfor the services they need, by race/ethnicity

Hispanic 42.9% 53.6%

White non­Hispanic 38.0% 62.8%

Black non­Hispanic 50.3% 58.9%

Other non­Hispanic 36.6% 61.5%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1619&g=88Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families haveadequate private and/or public insurance to pay for the services they need (outcome successfully achieved).

Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to payfor the services they need, by primary household language

Hispanic child/Spanish language household 51.5% 48.8%

Hispanic child/English language household 36.8% 56.1%

Non­Hispanic child 39.3% 61.9%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1619&g=365Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families haveadequate private and/or public insurance to pay for the services they need (outcome successfully achieved).

Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to payfor the services they need, by household income

0­99% FPL 51.2% 57.8%

100­199% FPL 45.3% 58.0%

200­399% FPL 40.3% 58.5%

400% or more FPL 35.0% 67.0%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1619&g=372Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families haveadequate private and/or public insurance to pay for the services they need (outcome successfully achieved).

Percentage of CSHCN whose families have consistent and adequate private and/or public insurance to payfor the services they need, by number of functional difficulties

No difficulties 23.5% 74.1%

1 difficulty 35.1% 69.8%

2 difficulties 36.2% 63.9%

3 difficulties 39.8% 62.0%

4 or more difficulties 48.2% 52.6%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1619&g=440

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Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families haveadequate private and/or public insurance to pay for the services they need (outcome successfully achieved).

Percentage of CSHCN whose families have consistent and adequate privateand/or public insurance to pay for the services they need 59.1% 60.6%

Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 8, 2013from http://childhealthdata.org/browse/survey/results?q=1619&r=1Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of CSHCN age 0 to 18 whose families haveadequate private and/or public insurance to pay for the services they need.

Percentage of CSHCN who are screened early and continuously for special health care needs, by agegroups

0­5 years 67.3% 64.8%

6­11 years 82.5% 83.8%

12­17 years 78.3% 80.6%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1614Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timelyfollow up to definitive diagnosis and clinical management for condition(s) mandated by their State­sponsored newborn screeningprograms (outcome successfully achieved).

Percentage of CSHCN who are screened early and continuously for special health care needs, by sex

Male 77.3% 78.5%

Female 77.7% 78.8%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1614&g=89Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timelyfollow up to definitive diagnosis and clinical management for condition(s) mandated by their State­sponsored newborn screeningprograms (outcome successfully achieved).

Percentage of CSHCN who are screened early and continuously for special health care needs, byrace/ethnicity

Hispanic 72.7% 74.9%

White non­Hispanic 81.4% 79.6%

Black non­Hispanic 88.4% 78.8%

Other non­Hispanic 76.3% 78.7%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1614&g=88Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timelyfollow up to definitive diagnosis and clinical management for condition(s) mandated by their State­sponsored newborn screeningprograms (outcome successfully achieved).

Percentage of CSHCN who are screened early and continuously for special health care needs, by primaryhousehold language

Hispanic child/English language household 82.6% 80.3%

Non­Hispanic child 81.2% 79.3%

Hispanic child/Spanish language household 59.3% 64.3%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1614&g=365Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timelyfollow up to definitive diagnosis and clinical management for condition(s) mandated by their State­sponsored newborn screeningprograms (outcome successfully achieved).

Percentage of CSHCN who are screened early and continuously for special health care needs, by householdincome

0­99% FPL 65.6% 73.2%

100­199% FPL 65.3% 75.0%

200­399% FPL 79.5% 78.6%

400% or more FPL 86.4% 85.8%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1614&g=372Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timelyfollow up to definitive diagnosis and clinical management for condition(s) mandated by their State­sponsored newborn screeningprograms (outcome successfully achieved).

Percentage of CSHCN who are screened early and continuously for special health care needs, by number offunctional difficulties

No difficulties 75.1% 79.5%

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1 difficulty 79.5% 81.5%

2 difficulties 81.2% 79.8%

3 difficulties 73.7% 76.7%

4 or more difficulties 76.9% 77.3%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1614&g=440Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timelyfollow up to definitive diagnosis and clinical management for condition(s) mandated by their State­sponsored newborn screeningprograms (outcome successfully achieved).

Percentage of CSHCN who are screened early and continuously for specialhealth care needs 77.5% 78.6%

Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 8, 2013from http://childhealthdata.org/browse/survey/results?q=1989Tip: Corresponds with the MCHB Block Grant Performance Measure: The percent of screen positive newborns who received timelyfollow up to definitive diagnosis and clinical management for condition(s) mandated by their State­sponsored newborn screeningprograms.

Percentage of CSHCN who can easily access community­based services, by age groups

0­5 years 66.1% 65.9%

6­11 years 62.4% 64.8%

12­17 years 66.3% 65.0%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1615&g=86Tip: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report thatcommunity­based service systems are organized so they can use them easily (outcome successfully achieved).

Percentage of CSHCN who can easily access community­based services, by sex

Male 65.1% 65.4%

Female 64.4% 64.7%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1615&g=89Tip: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report thatcommunity­based service systems are organized so they can use them easily (outcome successfully achieved).

Percentage of CSHCN who can easily access community­based services, by race/ethnicity

Hispanic 65.0% 59.2%

White non­Hispanic 65.6% 67.6%

Black non­Hispanic 62.8% 64.1%

Other non­Hispanic 63.2% 60.8%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1615&g=88Tip: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report thatcommunity­based service systems are organized so they can use them easily (outcome successfully achieved).

Percentage of CSHCN who can easily access community­based services, by primary household language

Hispanic child/English language household 64.2% 60.2%

Non­Hispanic child 64.7% 66.3%

Hispanic child/Spanish language household 66.1% 57.3%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1615&g=365Tip: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report thatcommunity­based service systems are organized so they can use them easily (outcome successfully achieved).

Percentage of CSHCN who can easily access community­based services, by household income

0­99% FPL 61.8% 59.4%

100­199% FPL 56.1% 59.2%

200­399% FPL 63.1% 65.6%

400% or more FPL 71.5% 74.0%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1615&g=372Tip: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report thatcommunity­based service systems are organized so they can use them easily (outcome successfully achieved).

Percentage of CSHCN who can easily access community­based services, by number of functional difficulties

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No difficulties 86.9% 86.5%

1 difficulty 79.1% 81.9%

2 difficulties 81.4% 74.6%

3 difficulties 58.4% 66.9%

4 or more difficulties 51.2% 50.4%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1615&g=440Tip: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report thatcommunity­based service systems are organized so they can use them easily (outcome successfully achieved).

Percentage of CSHCN who can easily access community­based services 64.8% 65.1%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 8, 2013from http://childhealthdata.org/browse/survey/results?q=1615&r=1Tip: Corresponds with the MCHB Block Grant Performance Measure: Percent of CSHCN age 0 to 18 whose families report thatcommunity­based service systems are organized so they can use them easily.

Percentage of youth with special health care needs who receive the services necessary to make appropriatetransitions to adult health care, work, and independence ­­ CSHCN ages 12­17 only, by age groups

12­14 years 37.3% 40.7%

15­17 years 37.4% 39.4%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1616&g=375Tip: Corresponds with the MCHB Block Grant Performance Measure: The percentage of youth with special health care needs whoreceived the services necessary to make transitions to all aspects of adult life, including adult health care, work, andindependence (outcome successfully achieved).

Percentage of youth with special health care needs who receive the services necessary to make appropriatetransitions to adult health care, work, and independence ­­ CSHCN ages 12­17 only, by sex

Male 29.5% 37.1%

Female 47.5% 43.8%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1616&g=89Tip: Corresponds with the MCHB Block Grant Performance Measure: The percentage of youth with special health care needs whoreceived the services necessary to make transitions to all aspects of adult life, including adult health care, work, andindependence (outcome successfully achieved).

Percentage of youth with special health care needs who receive the services necessary to make appropriatetransitions to adult health care, work, and independence ­­ CSHCN ages 12­17 only, by race/ethnicity

Hispanic 22.1% 25.3%

White non­Hispanic 50.4% 45.7%

Black non­Hispanic 15.9%* 28.1%

Other non­Hispanic 52.8% 40.2%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1616&g=88Tip: Corresponds with the MCHB Block Grant Performance Measure: The percentage of youth with special health care needs whoreceived the services necessary to make transitions to all aspects of adult life, including adult health care, work, andindependence (outcome successfully achieved).

Percentage of youth with special health care needs who receive the services necessary to make appropriatetransitions to adult health care, work, and independence ­­ CSHCN ages 12­17 only, by primary householdlanguage

Hispanic child/English language household 33.9% 31.6%

Non­Hispanic child 47.7% 42.4%

Hispanic child/Spanish language household 3.5%* 12.4%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1616&g=365 http://www.childhealthdata.org/browse/allstates?q=1616&g=365Tip: Corresponds with the MCHB Block Grant Performance Measure: The percentage of youth with special health care needs whoreceived the services necessary to make transitions to all aspects of adult life, including adult health care, work, andindependence (outcome successfully achieved).

Percentage of youth with special health care needs who receive the services necessary to make appropriatetransitions to adult health care, work, and independence ­­ CSHCN ages 12­17 only, by household income

0­99% FPL 29.3%* 25.4%

100­199% FPL 23.9%* 31.0%

200­399% FPL 35.5% 43.3%

400% or more FPL 47.0% 52.2%

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Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1616&g=372 http://www.childhealthdata.org/browse/allstates?q=1616&g=372Tip: Corresponds with the MCHB Block Grant Performance Measure: The percentage of youth with special health care needs whoreceived the services necessary to make transitions to all aspects of adult life, including adult health care, work, andindependence (outcome successfully achieved).

Percentage of youth with special health care needs who receive the services necessary to make appropriatetransitions to adult health care, work, and independence ­­ CSHCN ages 12­17 only, by number of functionaldifficulties

No difficulties 51.3% 57.4%

1 difficulty 46.0% 55.7%

2 difficulties 47.0% 48.3%

3 difficulties 36.8% 42.0%

4 or more difficulties 28.6% 28.3%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2014from http://www.childhealthdata.org/browse/allstates?q=1616&g=440Tip: Corresponds with the MCHB Block Grant Performance Measure: The percentage of youth with special health care needs whoreceived the services necessary to make transitions to all aspects of adult life, including adult health care, work, andindependence (outcome successfully achieved).

Percentage of families who report their child's doctors or other health care providers are sensitive to thefamily's values and customs

Always 65.8% 69.6%

Usually 21.4% 19.3%

Sometimes or Never 12.8% 11.1%Source: National Survey of Children with Special Health Care Needs. NS­CSHCN 2009/10. Data query from the Child andAdolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 8, 2013from http://childhealthdata.org/browse/survey/results?q=1969&r=1

Tip: *Estimates based on sample sizes too small to meet standards for reliability or precision.

TITLE V PROGRAM

Financing California US

Percentage of Title V Block Grant Partnership Budget from State Funds 49.2% 45.3%Source: U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child HealthBureau (2014). Federal­State Title V Block Grant Partnership Budget FY 2014. Retrieved May 27, 2015 fromhttps://mchdata.hrsa.gov/tvisreports/FinancialData/FinancialSearch.aspx?FinSearch=A.

Family Involvement California US

Family Participation in Title V CYSHCN Program Score (Maximum Possible =18) 6 13.9

Source: U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child HealthBureau (2014). Characteristics Documenting Family Participation in Children with Special Health Care Needs Programs, AnnualReport Year 2013. Retrieved May 27, 2015 fromhttps://mchdata.hrsa.gov/tvisreports/ProgramData/CshcnFamParticCharac.aspx.

* Estimates based on sample sizes too small to meet standards for reliability or precision.

This work was developed with support from the Maternal and Child Health Bureau, Health Services and Resources Administration, U.S. Department of Health and Human Services, under grants#U41MC4494 and #U41MC13618