SOCIO ECONOMIC AND LEGAL ASPECTS OF LEPROSY/PEOPLE AFFECTED BY LEPROSY IN NEPAL R. Shah, G. Pokhrel...
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![Page 1: SOCIO ECONOMIC AND LEGAL ASPECTS OF LEPROSY/PEOPLE AFFECTED BY LEPROSY IN NEPAL R. Shah, G. Pokhrel and I. Tamang Raj Kumar Shah READ Nepal Email: read.leprosy333@](https://reader030.fdocuments.in/reader030/viewer/2022032804/56649e4d5503460f94b42d07/html5/thumbnails/1.jpg)
SOCIO ECONOMIC AND LEGAL ASPECTS OF LEPROSY/PEOPLE
AFFECTED BY LEPROSY IN NEPAL
R. Shah, G. Pokhrel and I. Tamang
Raj Kumar ShahREAD NepalEmail: read.leprosy333@ gmail.com
G.Pokhrel & I. TamangLeprosy Mission NepalEmail: [email protected]
Nepal
Mountain Fishtail
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Nepal
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Introduction• Landlocked country with 147,181
sq.km• Altitude ranging 300 ft to 29,028 ft
(Mountain Everest)• Total population of Nepal
26,494,504 • No of Government Hospital 91• No of Primary Health Care Centre
(DR. Service) 210• No. of Health post & Sub Health Post
(Service from Paramedics) 3,785
0.94
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Introduction Cont..• Leprosy was officially integrated to general
health services in 1987• No of Endemic districts in Nepal (more than
1 PR) 17 District• No of Major Leprosy Hospital 3• Leprosy is a still Socially stigmatized problem • No of Leprosy Cases under MDT 2,430• No of Leprosy affected person cure from
MDT More than 170,000 till now• Having Disability grade II Approximately
40,000 existing
1.67
1.99
1.15 1.12 1.22
1.41
1.090.77 0.79 0.85
0
0.5
1
1.5
2
2.5
2007/08 2008/09 2009/10 2010/11 2011/12
Rates
Year
NCDRPR
Trend of PR and NCDR
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ObjectiveExamining the existing misconceptions, legal aspect, disfigurement and stigma is the major causes in deteriorating the socio economic conditions of leprosy affected people in society of Nepal
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Method and Materials• Literature review published in different journals• Discussion with Nursing staff and paramedical worker working in
Anandaban Hospital with key questions• Discussion with admitted leprosy affected people in Anandaban
Hospital with key questions• Consultation with book VASTU SHASTRA • Legal books of Nepal• Review the history of KHOKANA Leprosarium• Discussion about the religious, cultural and social codes with all
groups of people
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Common causes of stigma still in leprosy are..
• Physical outward appearances• Progressive characteristics over time • Communicability and Disabling• Religious links• Discriminative legal aspects• Poverty related and food habit• Tradition of Isolation and Segregation
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Cont…• Tradition (Unknown)• Priority level of leprosy programme in health• Frequency of coverage in media • Advocacy strategy and peoples involved• Corporate/social obligation being a service
provider, activist…
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• Individual effects (physical problems)• Intra-family relations
• Within family and relatives• Within organization• Within community
• Emotional effects• Physiological effects• Social relationship and support
Common Problems in
Nepal
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• Economically marginalized (poor) • Female and old age people• People with disability due to leprosy• Difficult to access in health facilities due
to geographical conditions• People from marginalize and ethnic
groups
Vulnerable People to Social
Difficulties
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Results:• Misguide for conception:
(Misconceptions)• Believe in traditional causes &
methods of treatment• Prejudice opinion• Social/religious/Traditional
Dictum & Codes • Construction house site • Regular food habit
Emerging the Misconceptions
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Results Con… • Legal aspects:• Bankruptcy (KANGAL)• Marriage and divorce
• Social Aspects:• Exclusion and discrimination in
different organization• Isolation and segregation
• Physical aspects:• Physical outward appearance
Emerging the Misconceptions
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Key Questions:• Fact about leprosy
– Cause of leprosy– Transmission methods– Causes of Disability and Deformity– Consequences of deformity
• Traditional believes and treatment of leprosy
• Religious concepts about leprosy• Concepts about Leprosy Hospital• Legal concepts about leprosy and
rights
Area of questions
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Discussions:• Awareness about leprosy facts• Strategy for the advocacy and
prejudices• Amendment of laws, bylaws and acts• Priority in health programme and
media• Human rights and social obligation • Community Based Rehabilitation and
socio economic development
Leprosy Related Circumstances
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Mount Everest