So What Do The Consumers Think?Developing a Model of Paediatric

Asthma Education

Mr Craig MoorePaediatric Asthma Educator

Dr Claire HarrisProject Manager

Ms Fiona WilkinsonSenior Project Officer

Partnership for clinical effectiveness

Academic and hospital Community and local

government General Practitioners State government Advocacy groups Research

Health for Kids in the South East

To improve health outcomes for children and young people in the Southern Health catchment through

Best practice

Partnerships

Strategies

HFKSE

GP IntegrationInnovative Hospital

ServicesCommunity Health

Strategy

Community Asthma Education Service

Clinical PracticeGuidelines and

Pathways

Cuture of Clinical Effectiveness

Strategy Strategy Strategy Strategy

Consumer Representation

Community Asthma Education Service

To provide health education to children with asthma and their families

To link with and enhance existing health promotion activities in the community, school and early childhood settings in partnership with the Asthma Foundation of Victoria

To provide education to GPs, MCHNs, pharmacists and other community health providers so that patients receive consistent information

A History Lesson

1982: Victorian Mental Illness Awareness Council 1991: Mental Health Statement of Rights and

Responsibilities 2001: Southern Health Consumer Advisory Committee

established 2006: DHS launched ‘Doing it with us not for us’

How We Did It

Plan

Recruit

Educate

Support

Involve

Value

Review

Plan

Recruit

Educate

Support

Involve

Value

Review

Plan

Existing structures– Asthma Foundation of Victoria– Australian Association for the Wellbeing of Children in

Healtcare (AWCH) Literature review of resources

– ‘Improving Health Services through Consumer Participation: a resource guide for organisations’ (Dept of Health and Ageing)

Health for Kids Consumer Participation Plan– Key practical strategies in rolling out a Consumer

Participation program across the program

Plan

Plan

Inclusion Criteria– Must have asthma– Or care for a child with asthma– Live in Melbourne’s SE suburbs

Exclusion Criteria– Requires an interpreter– Had other agenda

Plan

Recruit

Educate

Support

Involve

Value

Review

Recruit

Advertise with posters– Maternal and Child Health Centres– Outpatients– Wards– Emergency Department– Community Health Centres– Libraries

Media release Targeted recruitment

Recruit

Recruitment Source

Posters

Newspaper

Targeted Approach

Plan

Recruit

Educate

Support

Involve

Value

Review

Educate

Introductory meeting Facilitator Explain role Manage expectations Set ground rules around feedback

Plan

Recruit

Educate

Support

Involve

Value

Review

Support

Reimburse expenses– Childcare– Carparking– Travel costs– Meals

Debrief Champion role to others Refusal to participate – is ok!

Plan

Recruit

Educate

Support

Involve

Value

Review

Involve

Format:– Steering Committees– Project Management Group– Casey Asthma Working Group– Forums– Service reviews– Survey design– Consultation sessions

Information overload? Fax, email, post, face-face, etc Hands-on tours

Plan

Recruit

Educate

Support

Involve

Value

Review

Value

Feedback forums– Tell Consumer Representatives what they have done– Demonstrate how they assisted the project

Overtly value the consumer perspective as being equal to others

Plan

Recruit

Educate

Support

Involve

Value

Review

Review

Outcome of involvement Feedback on the role Evaluation of process Mainstream into wider healthcare program

– “core business”

The Future

Include the consumer perspective in everything we do Advocate for the inclusion of participation around public

policy in the tertiary education of health professionals Mandate consumer participation activities in PDs Include a consumer on job interview panels View complaints by consumers as a gift