Winter 2015 l Issue 10

Your views l Your news

ShoutThis issue: Side effects

of treatment

Tell us yours and you

could WIN a £10

Amazon voucher!

Win

Ask the expert

Make it!A cool cupcake card to send to a friend

Our nurse answers your

questions about how treatment

makes you feel

PlusPuzzles, jokes, funny facts and

much, much more

‘It’s funny having different hair!’

Emilia talks about her chemotherapy

£10 Amazon voucher

Tell us your silly stories

Out!

Welcome to the winter issue of Shout Out!, the

magazine for 7 to 13-year-olds who have, or have had,

cancer.

Even though your cancer treatment is really important,

sometimes it’s not very nice. Treatment can make you feel sick and

tired, or you might have lost your hair or put on weight. Changes like these

can be hard to cope with, but your doctors and nurses will do everything they

can to help you feel better. On p6 CLIC Sargent Nurse, Jeanette, answers

some common questions on the side effects of treatment.

We want to say a huge THANK YOU to everyone who filled in the Have your

say survey in the last issue. Loads of you told us what you like about Shout

Out! and what would make it even more awesome. You’ve given us lots of

great ideas for making your magazine better than ever, and we’ll tell you

about our plans in the next issue. Congratulations to the five lucky readers

(Kieran, Lewis, Jessie, Maizy Mae and Mustafa) who sent us their feedback

and won a signed copy of David Walliams’ latest book, Awful Auntie.

As always, we’ve got lots of fun stuff for you to do in this issue of Shout Out!

If you’re planning a cinema trip, don’t miss our film reviews on p4, and why

not enter our silly story competition on p9 – you could win a £10 Amazon

voucher!

See you next time!

Bex

Thank you!We loved looking at all the fantastic work that the children at Bristol Children’s Hospital School sent in. It was so good that we thought we would share it with you, too! Turn to p16 to check out their pictures, puzzles and stories.

Our Children and Young People’s Advisory Group ‘Hi, I’m Emily. I’ve been a member of CLIC Sargent’s Children and Young People’s Advisory Group (CYPAG) for nearly two years. The group is for 7 to 13-year-olds who have, or have had, cancer. We meet three times a year and it’s really fun! Recently we’ve been talking about fundraising ideas for CLIC Sargent, looking back at what CYPAG has achieved so far, and what we’d like to achieve in the future.’

If you’d like to find out more about joining the group you

can email participation@clicsargent.org.uk. Spaces are

limited but we’d love to hear from you!

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know?Did you

Crocodiles can’t stick

their tongues out The average pencil can

draw a line almost 35

miles long before running

out of lead – that’s nearly

10 miles longer than the

London Marathon!

If you could drive a car straight up, you’d get to outer space in

only one hour!

It’s impossible to fold a normal piece of paper in

half more than seven times (try it and see…)A group of tigers is

called an AMBUSH

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You blink about four million times a year

Walt Disney, the creator

of Mickey Mouse, was

actually scared of mice

Into the Woods (PG)If you like fairytales you’ll love this musical adventure. Cinderella, Little Red Riding Hood, Rapunzel and Jack and the Beanstalk all come together in one brand new fantasy story about a baker and his wife who are put under an evil witch’s spell.

Shaun the Sheep Movie (U)Shaun’s a sheep with a heart of gold, but his mischievous streak sometimes gets him into trouble! In his first ever movie, Shaun proves himself to be a great friend and a true hero, with plenty of excitement and scrapes along the way.

Big Hero 6 (PG)Hiro is no ordinary boy – he’s a child genius whose best friend is Baymax, a giant inflatable robot. When a devastating event hits the city of San Fransokyo, Hiro transforms Baymax and his friends into a band of high-tech heroes. Can the Big Hero 6 uncover the mystery?

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What’s on?Check out these epic films,

showing at a cinema near you!

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Tell us about your favourite book, film, game or show and why you liked it. Make sure you write down your full name, date of birth and postcode too, then send your review to us in the Freepost envelope provided. Or you can email it to us at shoutout@clicsargent.org.uk (oh, and don’t forget to tell us how many stars out of five you give it!).

Send us your reviews

5

Shout!

Game review I played… Tomodachi Life Yusuf, 9, BirminghamIn Tomodachi Life you keep ‘miis’ in a flat where they have their own apartments. It’s really fun! You can give them new hats and clothes and you can even teach them songs. It’s really weird and the next thing you know is that your friend is proposing to you. What I like about it is the ‘mii’ news, it’s really funny because the stories are silly and they are so fake. It’s AWESOME!

Book review I read… Scream Street: Blood of the Witch by Tommy DonbavandIsabella, 9, Manchester

This story is great because it’s half horror

and half comedy. The characters are Luke

Watson, Cleo Farr, Resus Negative, Doug,

Alston and Bella Negative, Mr and Mrs

Watson, Sir Otto Sneer and Dixon.

Joshua, 8, Middlewich

It’s cool to play with video games. It’s like being yourself, but you’re controlling you on a controller. It’s good because you can be people that you’ve always dreamed of being like Doctor Who. Video games are

cool and awesome.

Your reviews

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Ask theexpertIn this issue, CLIC Sargent

Nurse, Jeanette, answers some questions about how your

cancer treatment might make you look and feel

Q. Chemotherapy makes me feel really sick. Is there anything I can do to feel better?A: It’s very common for people to feel sick when they have chemotherapy. It’s important to tell your doctor or nurse if you’re feeling or being sick. There are lots of anti-sickness medicines which you may be able to try to stop you being or feeling sick, but it may take a bit of trial and error to find the one that works best for you. You can use the smiley faces opposite to help your nurses understand how bad you’re feeling and which medicines are helping. Don’t worry if you don’t feel like eating much. Make the most of the times when you do feel hungry, and have small snacks and drinks throughout the day if you can’t manage big meals.

Q. My chemotherapy treatment makes me feel so tired. What can I do? A: Cancer treatment often makes people very tired, and this can make it hard to do the things you usually enjoy. Rest and sleep whenever you can until the feeling passes, and remember to have some quiet time away from computer games to help your mind settle so you can sleep. After a rest, doing a bit of exercise, like going for a walk or bike ride might help you feel more energetic – your doctor or nurse can suggest safe things to do. And think of things to do with friends and family that won’t make you feel too tired, like watching a DVD or doing some crafts.

0 2 4 6 8 10

Barf nausea scale

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Ask theexpert Q. I’m a bit embarrassed about the scar I have from surgery. Can I talk to anybody about this?

A: It can be tough to get used to having a scar,

especially if other people notice it. Although

your scar might look very red and obvious now,

remember that it should fade over time. If you

need some help getting used to your scar, talk

to your nurse or play specialist.

Q. I am starting to lose my hair because of my chemotherapy treatment. Will it grow back?A: Losing your hair is really hard, and it’s okay to feel sad or angry about it. Hair does usually grow back after chemotherapy, although it might not look the same as it did before: sometimes it’s curlier, thicker or finer! Talk to a nurse or play specialist about what you can do while you’re waiting for your hair to grow back. You might want to wear a wig or a funky hat or scarf to make you feel more confident.

Q. My skin is really sore and itchy where I had my radiotherapy treatment. Can I do anything about this?

A: Radiotherapy is like a really strong X-ray and often makes your skin sore, red and itchy. It might even peel, like when you have

sunburn. Avoid using perfumed soap and putting sticky dressings or tape on the area, unless your radiotherapy team has told you to, and protect your skin from sun and cold wind, for example by wearing clothes that cover the area. Your radiotherapy team can also give you advice about how to look after

your skin. It’s important to phone them or show them if your skin gets very sore.

Q. I’ve put on loads of weight since I started taking steroids for my treatment. What might make me feel better about this?A: Steroids often make you feel really hungry, so try to eat a healthy, balanced diet with lots of fruit and veg. For

example, you could snack on fruit or crackers rather than biscuits and crisps. Doing some exercise

could help, too. Your doctor or nurse can suggest safe sports and activities. They can also arrange for you to see a dietitian: an expert who can give you advice on eating

healthily. And remember you can always talk to your

nurse, play specialist, CLIC Sargent social worker or doctor if

you’re feeling low.Emilia’s storyTurn to p13 to find out how chemotherapy makes Emilia feel and how she copes with the side effects.

Find out more about cancer

treatments on the next page

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Cancer Read on to find out more about the three main types of cancer treatment that you might need

treatments explainedSurgerySurgery is an operation in hospital. If you have a lump, or tumour, you might need surgery to take it out. If you have an operation to

take the lump or tumour out of your body, an anaesthetist will give you a medicine called an anaesthetic so you’re asleep during the operation.

After surgery, the nurses can give you painkilling medicine to help you feel more comfortable.

ChemotherapyChemotherapy is a medicine treatment that kills cancer cells. You might have it as a tablet, a liquid medicine, an injection or through a drip.

If you’re having chemotherapy, you might have a ‘portacath’ or ‘central line.’ This is a little tube that goes into your chest. You can be given your medicine straight through this tube so you don’t need so many injections. It’s not painful, but you’ll need to take care of it and avoid sports like swimming, football and rugby.

Chemotherapy medicines can have side effects like sickness, tiredness and hair loss. Your doctors and nurses will help you cope with these.

RadiotherapyRadiotherapy is a sort of powerful X-ray. It kills the cancer cells in the part of the body where your cancer is.

Radiotherapy only takes a few minutes, but you’ll have to keep very still while it’s done. The radiotherapy team will have equipment to help you stay still – like comfy bean bag mattresses that mould to your shape and keep you in position.

You might have side effects like tiredness, sickness and sore skin when you’re having radiotherapy. If you do, the radiotherapy team can help.

Quick crosswordGot five minutes free? Our crossword will keep you busy. Clue: all the answers are to do with cancer.

Fun

Tell us a silly story!We’ve started off a story for you, but how will you finish it? Fill in the gaps with your own words – the crazier the better!

It was a and night. Underneath the

, I was with my friend .

Suddenly, there was a and out jumped a .

It had and sounded like a .

‘I know what to do,’ said . ‘Let’s put a

on our and make a .’ The

took one look at us and .

We had saved the !

Across2. This person is in charge of your treatment4. Another type of central line. (See p8 for a clue!) 6. One of the people who help to look after you in hospital7. A sort of treatment that’s like

a really strong X-ray

Down1. Where people go for treatment3. A treatment that uses very strong

medicine to kill cancer cells5. If you need to have a lump

removed, you’ll have an ________8. People often lose this when

they’re having chemotherapy

stuff!

Your Shout! Do you think your silly story would give us a giggle? We’ve got a £10 Amazon voucher to give away to the writer of the story that makes us laugh our socks off. Turn to p15 to find out how to send in your entry.

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2

4

5

6

7 8

3

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Crossword answers on p19

Make a card to send to a friendSay ‘happy birthday’ or ‘thank you’ to a friend or relative, or just send them a smile with this cool cupcake card.

You will needA sheet of A4 or A5 cardOne cupcake caseA sheet of light brown or yellow paperScissorsGlueFelt tip pens or crayonsDecorations: stickers, buttons, glitter or a party candle

Instructions1. Fold the card in half.2. Cut the cupcake case into two halves, then

cut off the bottom part of the case.3. Stick one half of the cupcake case to your

folded card.4. Cut a semi-circle from your light brown or

yellow paper. Make it the same length as your strip of cupcake case. Stick it above the cupcake case so it looks like a cake.

5. Now you can decorate your cake. You could use some glitter to look like sprinkles, stick a red button on the top to be a cherry, or glue a candle on to make it into a birthday cake!

6. Use your felt tips or crayons to write a special message to your friend and pop it in the post – they’ll be so impressed!

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Would you like to have your very own artwork on the walls of our brand new CLIC Sargent Bristol office?

If the answer is ‘yes,’ you’re in the right place! We’re giving five creative Shout Out! readers the chance to have their

pictures included in an art display in our new office.

Are you an amazing artist?Get creative

What you could win...We’ll be choosing our five favourite pictures to be part of our art display in our new office reception. If you’re one of our lucky winners, your artwork will be seen by everyone who works there, and all our visitors too. How cool is that?

How to enter...Use the blank space on the next page to create your masterpiece. We want your pictures to show us something that you’ve experienced because of having cancer. For example:

� The hospital or ward you visited

� The doctors, nurses or social workers who looked after you

� The CLIC Sargent Home from Home you stayed in

� The CLIC Sargent holiday home, Malcolm Sargent House

� Family who help take care of you

� New friends you have made.

You can choose what sort of picture you send us – you could do a drawing with crayons or felt tip pens, paint a picture or even make a collage!

Once you’ve finished your picture, write your name, date of birth and postcode in the spaces, then pop it in the Freepost envelope provided and send it to us by 1 March 2015. We can’t wait to see what you come up with!

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Your pictureDraw, paint or stick your design in this space. Be as creative and colourful as you like!

My full name:

My date of birth: My postcode:

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Emilia’s Emilia, 7, from Devon is having chemotherapy for acute lymphoblastic leukaemia (ALL). We asked her how her treatment makes her feel, and what makes her feel better.

I found out I had cancer when I was five. I had been feeling tired and poorly for three or four weeks. I couldn’t go to school and didn’t have enough energy to go to gymnastics or swimming.

The doctor didn’t think there was anything wrong but my mum was still worried so she took me to the hospital where I found out I had leukaemia. I was quite scared because I didn’t know what it meant or what they were going to do.

I had to have a port (portacath) put in and then I started having chemotherapy. It made me feel a bit funny. I had a nasty taste in my mouth and sometimes I felt sick and tired. The doctors gave me anti-sickness medicine. If I was sick at home Mum and Dad had to phone the hospital so they could decide if I should go in.

The worst thing was when my hair fell out. Mum and Dad had told me that it might happen but I was still quite upset. Sometimes I wore a wig and Mum and Dad took me to choose some hats. It wasn’t too bad in summer, but in winter my head got really cold!

When it was my sixth birthday all the children in my school made a big card for me, and my class sent me a candle so I could

put it with the others on my cake. I felt a bit nervous about going back to school without any hair but my friends didn’t mind. They were just really pleased to see me because they had missed me while I was in hospital. I missed them too.

Now I’ve changed my treatment and I have chemo tablets instead. I have to take them every evening. I can’t eat anything for an hour before, and I’m not allowed too many dairy products. I really miss hot chocolate! But the tablets are easier because I can have them at home and I don’t have to go into hospital as much. I don’t feel as sick or tired as I used to, but if I do feel sick I have a drink of water, which usually helps.

I’m feeling a lot better now. I’ve started going to drama club instead of gymnastics and I can go swimming again. My hair has grown back too. It used to be blonde and straight, and now it’s darker and curly. It’s funny seeing myself with different hair, and it tickles my face in bed at night. I finish my chemo in May and I will be glad when it stops. I can’t wait to drink hot chocolate again!

Don’t miss Emilia’s fantastic fireworks

poem on p18

story

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Your gallery

We love seeing all your awesome pictures, so keep them coming! Here are some of our favourite works of art from this issue’s postbag.

PikachuJoshua, 13, Torquay

I beat cancer’s buttAlexsandra, 12, London

UnicornAlex, 12, Cheadle

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PrincessSadia, 12, Birmingham

The TardisAlbert, 8, Cheltenham

Your Shout! Win a £10 voucherWe know you lot are a talented

bunch, so why not show us what

you’ve been doing lately? Send us your

pictures, stories, poems and photos and you

could win a £10 Amazon voucher! Just use

the Freepost envelope provided or email us

at shoutout@clicsargent.org.uk - remember

to include your full name, date of birth and

postcode. We’ll print the winning entry in the

next issue of Shout Out!

In our autumn issue, we showed you how to draw a beastly bat for Halloween in just six steps. We liked these three so much that we had to share them with everyone. Well done, guys!

Going bonkers for bats!

Lena MaySadia

Billy-Jean 15

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The children at Bristol Children’s Hospital School have been working hard lately. Here are some of the wonderful things

they have sent into us at Shout Out! magazine – thanks for sharing, guys!

Alisha’s science lessonI had a fun science lesson with optical illusions. We used thermo-colour paper and I drew through the black lines.

Scrummy Swiss rolls, by AlishaI have been making chocolate Swiss rolls.

Would you like to know how?

I used the following ingredients.

You need milk, butter, plain flour, yeast, salt and sugar.I enjoyed the mixing of the dough and then stretching and pulling it until it was smooth and like elastic.

I then rolled out the dough and spread on cinnamon butter which I made from butter, cinnamon and sugar.

I rolled it up and cut out my swirls and then placed them in the oven.

When they were cooked I let them cool and they were delicious.

It’s your page!

Optical illusionCan you see the happy couple? Now turn the page upside down. What can you see?

Brian’s science lessonOxygen is a gas all around us. We breathe it in. It’s needed to make things burn. It can make other compounds such as carbon dioxide (CO2) and water (H2O). Plants put oxygen into the air around us by photosynthesis.

Brian’s joke about atoms:

Don’t trust atoms – they make up everything!

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Sally, my Build a Bear, by EllieI like Sally because you can dress her and take her anywhere with you. I took her to a party and the swimming pool and also she has been to Japan to see my grandparents! We have had lots and lots of adventures together. She is my best Build a Bear.

Tim’s maths challenge!Hi, it’s Tim here. Why don’t you try some of my maths questions?If x = 3, y = 4 and m = 5, what is:

1. x + y – m = ?

2. 2x +2y – 2m = ?

3. xym = ?

4. 5x – 5m = ?

5. 6xym = ?

Horse-riding, by VincentI do horse-riding every Tuesday. I like the horses. My favourite horse was called Polo but he got a bad hoof and had to retire. Polo is a big white gelding. I took part in a gymkhana. I won two first place rosettes. The second place rosette was for an obstacle course. I rode Felix at the gymkhana.

Liverpool FC, by JamieI love supporting Liverpool FC. My dad is a Liverpool fan and we have been to watch matches together. Fernando Torres is my favourite ever player and in this year’s team it’s Daniel Sturridge. My favourite Liverpool moment ever was when Luis Suarez scored from the halfway line against Norwich because it was so good. I ran up and downstairs going crazy! I get all of the kits and I think this year’s kit is the best.

Monkeys, by TimMy name is Tim and I love monkeys. I got my first monkey on my eighth birthday and a year later was collecting them. I am not sure how many monkeys I’ve got but it’s about 20.

My monkey facts� Gorillas don’t get up to have breakfast� Monkeys are very loud� Monkeys are social� Monkeys are generally great swimmers� The tiniest monkey is less than six

inches� Monkeys live in families.

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and poems

We have a winner!In our last issue, we asked you to write a

screamtastic acrostic poem for Halloween. Your

entries really got our knees knocking, and it was

hard to pick a winner. But in the end, we agreed

that 11-year-old Jasmine’s was the creepiest – we’re sure you’ll think it’s spooktacular!

Well done Jasmine!

It’s your page!

Hooray! It’s that time of year againAll the children collect their sweetsLizards lurking in the witches cauldronsLooks like we’re in for a scare tonightOpening sweets, trick or treatWitches and wizards wander the streetsEat all your sweets but don’t forget to brush your teeth!Eerie night come to an endNow it’s time to say night night.

By Jasmine

My driving experience, by Jack, Shipton-under-WychwoodIn half term I went to a driving experience and I drove a Nissan GTR. I got a certificate for driving a car. I got 36 out of 40 for the driving and the cornering. The instructor thought I did very well. I went 100 miles per hour!

Rollo, by Jack,

Shipton-under-WychwoodI have a cat called Rollo. He is brown. He plays fetch and begs for food. He stands on his hind legs and puts his paws up. Rollo is one year old. He brings mice into the house who are

still alive. We have to catch them in boxes. One time my sister screamed and dropped a box.

Fireworks, by Emilia

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Your jokes...We can always count on you guys to give us a laugh. Here are some of our favourite jokes from this issue’s postbag.

Your Shout!Go on, give us a giggle… Send your

funniest jokes to us in the Freepost

envelope provided, or email them

to shoutout@clicsargent.org.uk.

Remember to tell us your full name,

date of birth and postcode. Look out

for our favourites in the next issue!

Q: What do you call a flying pig?A: UnbelievableAlex, 12, Cheadle

Crossword answers from p9Across: 2. Doctor,

4. Portacath, 6. Nurse, 7. Radiotherapy

Down: 1. Hospital, 3. Chemotherapy,

5. Operation, 8. Hair

Q: Who did Frankenstein

take on a dance?

A: His ghoul-friend!Sadia, 12, Birmingham

Q: A man went to London on Friday, stayed there for three days and came home on Friday. How did he do it?A: The donkey was called Friday!Aasia, 11, Bradford

Q: What do you get if you cross

a cow with an earthquake?

A: A milkshake

Alice, 13, Calne

Q: What do you call

a monkey with

a bomb?

A: A ba-boom

Connah, 11, Willenhall

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Need to know more

ChildLine – www.childline.org.ukYou can call ChildLine on 0800 11 11 or contact them online at www.childline.org.uk if you would like to chat to somebody privately about anything that may be worrying you.

Children’s Cancer and Leukaemia Group – www.cclg.org.ukYou can download lots of useful publications about cancer and treatment from their website, including many that have been written especially for children. Otherwise, you could order them through the CLIC Sargent website, or ask your care team for copies.

Bullying UK – www.bullying.co.ukBullying UK can be contacted by anybody needing information or advice about bullying in school. Call their helpline free on 0808 800 2222 or visit their website for more information.

Make sure you ask an adult before using the telephone or computer!

Shout Out! is CLIC Sargent’s magazine for 7 to 13-year-olds.If you have any questions about the magazine check with your parent or carer if they are happy for you to contact us. You can then call us on 0300 330 0803 and ask to speak to the Information Manager.

www.clicsargent.org.ukRegistered charity number 1107328 and registered in Scotland (SC039857)

Please note that everyone’s experience will be different and may not follow the order outlined in this publication, and that services will differ across the UK. CLIC Sargent cannot accept any responsibility for information and services provided by third parties, including those referred to or signposted to in this publication.

While we take every care to ensure that the information provided is accurate and up-to-date at time of printing, CLIC Sargent cannot accept liability for any loss or damage resulting from any inaccuracy or omission in this publication. Information should not be relied on in place of appropriate professional or other advice specific to your circumstances.

REF: SO01_14JB249, Issue 10, Winter 2015. Next issue: Spring 2015

CLIC Sargent – www.clicsargent.org.ukSpeak to your CLIC Sargent care team, call us on 0300 330 0803 or email info@clicsargent.org.uk

Check out our storybooks to understand more about cancer and its treatment.

� Mary has a brain tumour

� Joe has leukaemia

� Lucy has a tumour

� Tom has lymphoma

� Chemotherapy, cakes and cancer

You can get a copy from your CLIC Sargent care team, or ask an adult to download or order a copy from our website www.clicsargent.org.uk