September - Rady Children's Hospital...Page 4 Volume 8, Issue 1 2014 Hospital Stamp Tips Rubber...
4
Area Service Center 99 Newborn Screening Program Rady Children’s Hospital San Diego Serving San Diego, Orange, Riverside & Imperial 2014 Volume 8 Issue 1 September NEWBORN SCREENING AWARENESS MONTH Last year was the 50 th anniversary of newborn screening in the United States, an event presented by the Centers for Disease Control and Prevention (CDC) as “Newborn Screening: Saving Lives for 50 Years”. CDC states: “Newborn screening identifies conditions that can affect a child’s long-term health or survival. Early detection, diagnosis, and intervention can prevent death or disability and enable children to reach their full potential. Each year, millions of babies in the U.S. are routinely screened, using a few drops of blood from the newborn’s heel, for certain genetic, endocrine, and metabolic disorders . . . prior to discharge from a hospital or birthing center.” The CDC website also reports “All babies are screened, even if they look healthy, because some medical conditions are not easily identified. Finding these conditions soon after birth can help prevent some serious problems, such as brain damage, organ damage, and even death.” An informative video called “One Foot at a Time”, produced by the Save Babies Through Screening Foundation, is a great resource . This video can be accessed through www.savebabies.org (Save Babies Through Screening Foundation), http://cdph.ca.gov/nbs (CA NBS website), and [email protected] (our Area Service Center website). Additional links for information about newborn screening: Genetic Alliance: www.geneticalliance.org NewSTEPs: https://www.newsteps.org/news-and-education March of Dimes: www.marchofdimes.com
Transcript of September - Rady Children's Hospital...Page 4 Volume 8, Issue 1 2014 Hospital Stamp Tips Rubber...
Area Service Center 99 Newborn Screening Program
Rady Children’s Hospital San Diego
Serving San Diego, Orange, Riverside & Imperial
2 0 14
Volume 8 Issue 1
September
NEWBORN SCREENING AWARENESS MONTH
Last year was the 50th anniversary of newborn screening in the United States, an event presented by the Centers for Disease Control and Prevention (CDC) as “Newborn Screening: Saving Lives for 50 Years”. CDC states: “Newborn screening identifies conditions that can affect a child’s long-term health or survival. Early detection, diagnosis, and intervention can prevent death or disability and enable children to reach their full potential. Each year, millions of babies in the U.S. are routinely screened, using a few drops of blood from the newborn’s heel, for certain genetic, endocrine, and metabolic disorders . . . prior to discharge from a hospital or birthing center.” The CDC website also reports “All babies are screened, even if they look healthy, because some medical conditions are not easily identified. Finding these conditions soon after birth can help prevent
some serious problems, such as brain damage, organ damage, and even death.”
An informative video called “One Foot at a Time”, produced by the Save Babies Through Screening Foundation, is a great resource . This video can be accessed through www.savebabies.org (Save Babies Through Screening Foundation), http://cdph.ca.gov/nbs (CA NBS website), and [email protected] (our Area
Service Center website).
Additional links for information about newborn screening:
Genetic Alliance: www.geneticalliance.org
NewSTEPs: https://www.newsteps.org/news-and-education March of Dimes: www.marchofdimes.com
P a g e 2 V o l u me 8 , I s su e 1 2 01 4
September
SICKLE CELL AWARENESS MONTH
F ACES for the Future (a special healthcare curriculum)10th grade students who are studying cells and blood disorders attended a unique classroom presentation on April 17th. Staff from the California
Newborn Screening Program at Rady Children’s Hospital were joined by Sickle Cell Disease Association-San Diego Chapter President Tanya Gentry and Vice-President Mesha Shelton to discuss sickle cell disease. Tanya shared the journey of a Sickle Cell Warrior (those battling sickle cell disease daily), as did a 14 year old young man and his eight year old sister. Mesha Shelton, a sickle cell trait carrier, spoke of the challenges of caring for herself and her children with sickle cell disease. Information presented included sickle cell trait and disease, inheritance patterns, complex care and treatment, and the available support services for children and
adults.
The state of California began requiring newborns to be tested for hemoglobinopathies in 1990. The students learned that sickle cell disease is inherited from parents, is not contagious and has no cure. It affects millions of people throughout the world, and is particularly common among those whose ancestors come from sub-Saharan Africa; South America, the Caribbean, Central America; Saudi Arabia; India; and Mediterranean
countries such as Turkey, Greece and Italy.
Students were encouraged to check their trait carrier status, and informed that their pediatrician and/or the California Newborn Screening Program can provide this information if their parents do not know. Trait carrier status is especially important to know when planning to have children.
Additional links for sickle cell: http://cdph.ca.gov/nbs
http://www.sicklecelldisease.org
http://www.cdc.gov/ncbddd/sicklecell/facts.html
V o l u me 8 , I s su e 1 2 01 4 P a g e 3
Hospital Evaluation Performance Profile (HEPP)
The California Department of Public Health, Genetic Disease Screening Program HEPP Report provides facilities with data on their Test Request Form (TRF) demographic completion and documentation accuracy. Hospitals receive a Regular Nursery report and, if applicable, a NICU report. Midwives also receive this report. HEPP’s also include important newborn screening performance indicators: age at collection (less than 4 days) and early collections (less than 12 hours), transit times (less than 6 days), and inadequate specimens. Achieving zero deficiencies in all the HEPP report areas help to ensure timely diagnosis and treatment of screened disorders.
Improve Patient Outcomes with your HEPP Reports: Share HEPP report data with staff and encourage a double check process for TRF documentation
Educate all staff on how to properly collect newborn screening specimens
V o l u me 8 , I s su e 1 2 01 4 P a g e 4
Hospital Stamp Tips Rubber stamps with hospital name and code for Newborn Screening Test Request Forms were
distributed to all hospitals.
Useful tips to reduce smearing and produce good imprints:
Use quick dry ink, black (preferably roll-on)
Do not over ink the stamp pad
Use Foam Carter’s Stamp Pad if available
Do not press too hard on the ink pad
After making the impression, give it a moment to dry
Quick dry ink dries instantly
Rubber stamps were designed with your hospital name and hospital code spaced to fit on
the TRF form
For questions or answers, please contact Revelyn Cayabyab (GDSP Newborn Screening) at
510-412-1496 or [email protected].
TRF Tips
RED BLOOD CELL (RBC) TRANSFUSION BEFORE COLLECTION:
If a baby has had intrauterine transfusions, please mark “YES” on RBC transfusions.
Do not mark “transfused” if given platelets, FFP, albumin, or cryoprecipitate.
VERIFICATIONS:
Use 2359 or 0001 — For time of birth or time of collection, the computer cannot distinguish between 2400 and 0000. -Verify directly from clinical chart notes and verify date/time of birth
and date/time of initial newborn screening test.
FAXING Verifications -— Please fax back as soon as possible to 858-634-4910 or
858-966-8709. If unable to fax or fax not received: please call 858-966-8708.
TRANSIT TIME:
Definition of transit time: From time of collection to time accessioned by
NAPS Lab. (Goal — No later than 5 days)
After specimen is dry (3-4 hrs.), place specimen in envelope and record on transport log.
Hospital and Courier MUST SIGN Transport Log.
Do NOT hold specimens – send out at earliest next courier pickup.
Keri LeBlanc RN, NNP, MSN, CNS ASC Director [email protected]
Barbara Galvin RN, MSN Nurse Coordinator [email protected]
Gail E. Maher RN, BSN, PHN Nurse Coordinator [email protected]
Alison Oliver RNC, BSN Nurse Coordinator [email protected]
Charlotte Pannell-Taylor BA Program Specialist [email protected]
Michelle Carlson BASW Community Liaison [email protected]
Cynthia Will BA Administrative Associate [email protected]
A C S 9 9 S t a f f
