THE RELATIONSHIP BETWEEN SELF-CARE KNOWLEDGE AND SELF-CARE …
Self-care & Retention
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Self-care & Retention June, 2012
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Self-care & Retention. June, 2012. Self-care and Retention. Pop-up Question. What do we mean by Self Care?. Visit www.incarecampaign.org. Potent ARTs have transformed HIV into a chronic manageable disease - PowerPoint PPT Presentation
Transcript of Self-care & Retention
Self-care & Retention
June, 2012
Visit www.incarecampaign.org
Pop-up Question
What do we mean bySelf Care?
Self-care and Retention
Potent ARTs have transformed HIV into a chronic manageable disease
Many similarities to other chronic diseases but also important differences (stigma, drug resistance)
HIV therapy is life long Treatment strategies must be sustainable HIV patients have day-to day responsibilities for
their care Providers must support motivation, tools, and skills
Aberg J. The Changing Face of HIV Care: Common Things Really Are Common. Ann Intern Med. 2006;145(6):463-65
HIV as a Chronic Condition
Self-care and Retention
YOU
“The ability of patients with chronic illnesses, in a complementary partnership with their health care providers, to manage the symptoms, treatment, lifestyle behavior changes, and the many physical and psycho-social challenges that they face each day.”
A composite of definitions in the literature
What is self-care?
Self-care and Retention
Learn about their HIV disease Develop effective communication skills Actively partner with providers in decision-making Practice action-planning and problem solving Self-monitor symptoms and follow treatment directions Seek expert medical care and advice Use family, peer, and community support resources Maintain emotional and psychological balance Practice health-enhancing behaviors
What is self-care for people with HIV/AIDS?
Self-care and Retention
Visit www.incarecampaign.org
Pop-up Question
Do you practice self care? How?
Self-care and Retention
Personal. [e.g. disease knowledge, perceived illness, acceptance]
Structural [help remembering appointments, transportation] Financial
[insurance, public support – housing, food, etc.]
For more information about self-care, visit the NQC web site: http://nationalqualitycenter.org/index.cfm/5943
Self-care and Retention in HIV Care
Self-care and Retention
Improve knowledge about HIV; dispel negative beliefs
Improve your health literacy – your understanding of HIV care
Connect with others who can share information, answer questions and provide support
Visit www.incarecampaign.org – “Resources Tab” to learn about effective retention initiatives.
Things You Can Do to Improve Self-Care – Personal Changes
Self-care and Retention
Visit www.incarecampaign.org – “Resources Tab” to learn about effective retention initiatives.
Reminder calls or texts
Transportation or other supports
Insurance that enables routine access to health care; know how to use care
Things Others Can Do to Support Your Self-care
Self-care and Retention
Visit www.incarecampaign.org
Pop-up Question
What do you do to improve your ability to take care of
yourself?
How do you engage others to support your self-care
efforts?
Self-care and Retention
Download “Making Sure” at http://nationalqualitycenter.org/index.cfm/6176/13886 Order Copies: [email protected]
It’s freeAvilable through the National Quality CenterUse if for your group of HIV+ peers
Check Out the “Making Sure” Curriculum
Self-care and Retention
Learn how to define “quality.” Learn about “clinical indicators” to measure quality care. Learn problem-solving and communication skills. Learn to be your own self-care advocate.
Download “Making Sure” at http://nationalqualitycenter.org/index.cfm/6176/13886 Order Copies: [email protected]
A Tool to Help Improve Self-Care
Self-care and Retention
www.incarecampaign.org
Click the Partner Tab
Connect with Partners in+care
Learn about retention in HIV care Learn about self-care Link to and learn from others living with HIV/AIDS
Self-care and Retention
Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkit
Join the Partners in+care Network
Email notices and updates about Pi+c and in+care Campaign
Provide advice [Pi+c surveys]
+Sign up to Be a Partner in Care
Self-care and Retention
Self-care and Retention
Directly Connect through Partners in+care on
Share tips, stories, experiences & resources
Community of people living with HIV/AIDS and allies
Secure and confidential Join. Send email to
[email protected] – Facebook in subject line
Campaign Headquarters:National Quality Center (NQC)90 Church Street, 13th floorNew York, NY 10007Phone 212-417-4730
Visit Web www.incarecampaign.org -
“Partners” tab
Sign up for Pi+c Network www.incarecampaign.org –
“Partners” tab
Join FacebookSend email to
[email protected] – “Facebook” in subject line
