NEWSLETTER for • Duopa • Pacific Beach • Pt. Loma • Speakers’ Series • Veterans’ Chapters • Edition 15

SD CENTRAL COUNTY PARKINSON’S SUPPORT GROUP

March 2020

Rock Steady Boxing – Bonita South Bay is Here!

Thanks to grants from both the Parkinson’s Association and San Diego Central County Parkinson’s Support Group, Rock Steady Boxing–Bonita South Bay is up and running. Rock Steady Boxing is a multi-faceted exercise program designed specifically for people with Parkinson’s. It is non-contact, and thus differs from what you see in the ring. Exercises combine physical activity and the learning of new

skills, requiring the brain to adapt to new challenges and routines. Coach Lisbeth Garces is ready and waiting to welcome you to the world of exercise…rock steady boxing style! San Diego’s first bilingual Rock Steady Boxing classes start March 10th, and will be held Tuesdays and Saturdays, from 1:00–2:30pm at Azteca San Diego Boxing Club, 4088 Bonita Rd., Bonita 91902. For more information or to schedule an initial assessment, please contact Lisbeth at: 619.917.3904. To learn more about Lisbeth, please see this month’s In-Focus article on page 2.

Tremble Clefs San Diego Offers Live Classical Music Concert Tremble Clefs San Diego welcomes back QUARTETTO LUMINOSO for a live classical music concert to benefit people living with Parkinson's. QUARTETTO LUMINOSO is a virtuoso classical ensemble comprised of clarinetist Robert Zelickman, violinist Päivikki Nykter, violist Francesca Savage and cellist Cecilia Kim. The music program will also feature invited guest vocalist Matthew Ignacio performing music specially arranged for this performance with the quartet. This special spring fundraiser event of beautiful music and fine refreshments will be held on Friday, March 13th at 7:00pm, Palisades Presbyterian Church, 6301 Birchwood St., San Diego 92120. Suggested donation $10 – $50. For tickets and information please visit https://www.trembleclefs.com/quartetto-luminoso-2020.html. To learn more about therapeutic singing for people living with Parkinson's go to trembleclefs.com. See attached flyer.

UCSD to Present Parkinson’s Community Update Join UCSD’s Movement Disorders Team for their annual Parkinson’s symposium, entitled: Living with Parkinson’s: A Community Update, to be held Saturday, March 14th, from 9:30am-4:00pm at Irwin M. Jacobs Qualcomm Hall, 5775 Morehouse Dr., San Diego 92121. Learn from the experts about all aspects of Parkinson’s – from diagnosis to the latest treatments, lifestyle issues, and speech and exercise therapies. Light refreshments and lunch will be served. The event is Free. For more information, please email Movementdisorders@health.ucsd.edu or call 858.822.5871. To register, go to: www.health.ucsd.edu/parkinsonsevent. See attached flyer.

CaregiverSD Community Expo Returns The third annual CaregiverSD Community Expo will be held Saturday, March 21st from 9:00am –3:00pm at Paradise Point Resort & Spa, 1404 Vacation Rd., San Diego 92109. Experts share insights on topics including hiring care providers, dealing with dementia and legal issues. The event is Free and includes food sampling and a pavilion for caregivers to relax. For questions, email events@sduniontribune.com. To register, go to: https://www.eventbrite.com/e/caregiversd-community-expo-tickets-90209377677. See attached flyer.

Additional Events this Month Strong Caregiver, Stronger Families Conf: Friday, March 6th, 9:30am-2:30pm. Spousal Caregiver’s Symposium: Saturday, March 7th, 7am-5:30pm. Parkinson’s Good Start Program: Thursday, March 12th, from 12:30-3:30pm.

(see attached March Event Calendar for more information)

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Inside This Issue

• Monthly Schedule of Events Page 2

• In Focus: Lisbeth Garces Page 3

• Parkinson’s Life Hacks • Good Reads • PD Community Contact Info • Board Member Contact Info

Page 4

• Tremble Clefs Flyer Page 5

• UCSD Symposium Flyer

Page 6

• March Event Calendar Page 7

SUPPORT GROUP MEETINGS (SDCCPSG Sponsored)

Contact: Nancy Floodberg 619.857.6638

SPEAKERS’ SERIES Wednesday, March 11th 6 – 8:30pm Second Wednesday of each month County of SD Health & Human Services Agency 3851 Rosecrans St, San Diego 92110 San Diego Room Speaker: Nelson Hywnn, DO, FAAN Topic: Impulse Behavioral Disorders & Parkinson’s: Moving Beyond What is Seen. Come join us and listen to Scripps’ Neurologist & Osteopath, Dr. Nelson Hywnn, discuss impulse behavioral disorders in Parkinson’s, how to identify them, potential causes, as well as treatment options. A panel discussion will follow involving people with Parkinson’s and care partners who have experienced impulse behavioral disorders. PACIFIC BEACH – LUNCH & LEARN Wednesday, March 18th 1 – 3pm Third Wednesday of each month Oakmont of Pacific Beach 955 Grand Ave, San Diego 92109 3rd Floor Private Dining Room Join us for a complimentary lunch, hosted by Oakmont, and Parkinson’s discussion led by Nancy Floodberg. RSVP required: 858.373.9300 by March 16th. PT. LOMA Monday, March 23rd 10am – noon Fourth Monday of each month County of SD Health & Human Services Agency 3851 Rosecrans St, San Diego 92110 San Diego Room People with Parkinson’s and care partners meet to share challenges, strategies and successes. DO YOU DUOPA? Saturday, March 28th 2 – 4pm Fourth Saturday of odd months Bayside,1325 Pacific Hwy, San Diego, 92101 3rd floor Lounge Nurse Practitioner and Duopa programmer, Sherrie Gould, NP, will join us to discuss the role of Duopa therapy in the treatment of people with Parkinson’s. For People with Parkinson’s (PwP), receiving or considering Duopa Therapy, and their care partners. RSVP required: 619.857.6638 by March 27th or president@sdccpsg.org

VETERANS’ This support group is on break while a new meeting location is being identified.

PHYSICAL EXERCISE PARKINSON’S EXERCISE CLASS Mondays 12:05pm – 1:00pm Wednesdays 11:40am – 12:35pm YMCA Mission Valley, 5505 Friars Rd, San Diego 92110 Contact Instructor: Jeff 619.298.3576 www.ymca.org Fee charged

PARKINSON’S NETWORK Fridays noon – 1pm 1371 Sunset Cliffs Blvd, San Diego 92107 Thursdays 1:45 – 3pm 494 E St., Chula Vista 91910 Contact Instructor: Lisbeth Garces 619.971.3904 www.jcorg.org. Suggested $5 donation

ROCK STEADY BOXING – DOWNTOWN (for PwP) Monday – Friday 10:30am – noon, 12:30 – 2pm BoxFit, 4101 30th St, San Diego 92104 Contact Coach: Mike Reeder 310.923.5535 info@boxfitsd.com Fee charged

ROCK STEADY BOXING – BONITA SOUTH BAY (for PwP) Tuesday and Saturday 1 –12:30pm Azteca San Diego Boxing Club, 4088 Bonita Rd., Bonita 91902 Contact Coach: Lisbeth Garces 310.923.5535 Fee charged

SDSU ADAPTIVE FITNESS CLINIC Monday – Friday (several sessions/day) SDSU – Peterson Gym, 5400 55th St, San Diego 92115 Contact Director: Matt Soto 619.594.2017 www.ens.sdsu.edu Fee charged

VOCAL EXERCISE AUDABILITY – Music Therapy Numerous weekly classes for People with Parkinson’s, including singing/drumming, piano and harmonica. 10455 Sorrento Valley Rd #202, San Diego 92121 Contact Music Therapist: Lindsay Zehren 858.457.2201 www.musicworxinc.com Fee charged

LOUD MAINTENANCE – Vocal Maintenance Program 2nd & 4th Thursdays of each month 11am – noon Scripps Center for Voice & Swallowing 9800 Genessee Ave, La Jolla 92037 Contact Speech Therapist: Cedar Raymond 858.626.7456 Free

LOUD CROWD – Vocal Maintenance Program UCSD Rehabilitation Department 9400 Campus Point Drive, La Jolla 92037 Contact: UCSD Rehabilitation Department 855.543.0333 Free

TREMBLE CLEFS – Therapeutic Singing Thursdays 1 – 3pm Palisades Presbyterian Church 6301 Birchwood St, San Diego Contact: Melodi Denton 619.363.0814 trembleclefsinfo@gmail.com www.trembleclefs.com/san-diego Free

The County of San Diego Health and Human Services Agency and Oakmont of Pacific Beach provide their facilities for our meetings at no charge. We thank you!

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IN-FOCUS: Lisbeth Garces

By Dolores Cohenour

San Diego’s newest Rock Steady Boxing coach, Lisbeth Garces, has had extensive personal experience living with disability. Originally from a small town in Venezuela, Lisbeth’s sister was born with cerebral palsy, her mother was diagnosed with Parkinson’s disease at the age of 60 and, more recently, her brother, as well. Lisbeth’s sister received no medical support or education and had no social interaction outside of the immediate family, and Lisbeth witnessed the slow decline in her mother, who has had little support, as well.

In 1989, Lisbeth learned that her 4-year old son, Juan Carlos, had Muscular Dystrophy. Unable to offer help, doctors in Venezuela advised Lisbeth to go to the United States. Having seen firsthand how people with disabilities live in Venezuela, Lisbeth vowed to provide her son with physical and social activities that would give him better quality of life. With neither of them speaking a word of English,

they immigrated to the U.S. later that year, arriving in San Diego where her brother lived. Lisbeth worked for her brother’s business, cleaning homes, and cared for Juan Carlos for the next 10 years. Knowing that his life could be cut short at any time, she sought out experiences that would enrich his physical and emotional life. Juan told her how empowered and joyful he felt when he took part in physical activity. In 1999, Juan Carlos passed away at age 15. Grief stricken, Lisbeth could not eat or sleep and turned to exercise in an effort to exhaust herself so sleep would come. Experiencing the many benefits exercise offers, Lisbeth became certified as a Zumba instructor and, in 2008, began teaching at the YMCA.

Remembering how happy her son was when engaged in physical activities, Lisbeth decided to turn her grief into something positive by giving back to those living with disability. One day a lady came to the YMCA with her son who had Downs Syndrome, and he started dancing. “It was just incredible!”, exclaimed Lisbeth. So, she began teaching dance to low-income, disabled children, and started her non-profit, The Juan Carlos Foundation (in memory of her son) to help underwrite the program. Soon after, Lisbeth’s teaching expanded to people with Autism, Muscular Dystrophy, seniors, and people in wheelchairs.

While at the Y, Lisbeth met Donne Willett who wanted Lisbeth to become certified to teach dance to people with Parkinson’s. Both Donne and Lisbeth dreamt of a place where people with Parkinson’s could come for physical therapy and exercise. Lisbeth learned about the Parkinson’s Network, which certified her to teach dance and physical exercise to people with Parkinson’s. Not ready to stop there, Lisbeth sought and received a grant from the Mohammed Ali Foundation to learn how to reach out to the non-English speaking Latino community so they could receive help. Then, with grants from the Parkinson’s Association and SDCCPSG, Lisbeth completed training last month to become a Rock Steady Boxing coach, and will start teaching bi-lingual boxing classes this month, in Bonita, for people with Parkinson’s.

Remembering her mother and how she couldn’t help her, Lisbeth says, “Now, I feel like I can help people with disabilities who feel they cannot exercise. I can show them how to do the exercises in a safe way and this can make a difference in people’s lives. The only way to fight Parkinson’s is to move, to exercise, to find and push it back from taking away your mobility. And, I have made a difference in people’s lives and this is why I am doing this. I feel blessed that this has happened, and I feel that my son, Juan Carlos, is with me helping others.”

“Now I feel I can help people with disabilities who feel

they cannot exercise.

“I can show them how to do the exercises in a safe way

and this can make a difference in people’s lives.

“The only way to fight Parkinson’s

is to move, to exercise, to find and push it back from taking away your mobility.

“And I have made a

difference in people’s lives, and this is why I am doing this.

“I feel blessed that this happened,

and I feel my son, Juan Carlos, is with me helping others.”

Please visit our website: www.SDCCPSG.org. There you will find an overview of our Board and support groups, as well as both local and national resources. In addition, the site features video and PowerPoint archives from our Speakers’ Series,

as well as previous Newsletters. We update it often and welcome your feedback (webmaster@sdccpsg.org).

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SDCCPSG BOARD OF DIRECTORS

PARKINSON’S LIFE HACKS Life Hacks: /’lif,haks/ • Tools or techniques that make some aspect of one’s life easier or more efficient.

The Power of Neutral Thinking: “Neutral Thinking” is the practice of accepting the idea that when something good or bad happens, it happens. Instead of getting caught up in the negativity of a bad past or a mental or physical mistake, you just accept that it happened and move on. The 5 steps include: Go neutral, Stop giving credence to feelings, Use what you have, Focus on reducing negativity, not increasing positivity, Watch your language. To learn more, read the book below or go to: https://thriveglobal.com/stories/the-power-of-neutral-thinking-nfl-guru-trevor-moawads-5-secrets-of-high-performance-and-they-arent-what-you-think/

To submit a Parkinson’s Life Hack, please send an email to: president@sdccpsg.org

GOOD READS

It Takes What It Takes: How to Think Neutrally and Gain Control of Your Life – by Trevor Moawad and Andy Staples.

PARKINSON’S COMMUNITY RESOURCES Parkinson’s Association of San Diego Executive Director: Chris Buscher info@parkinsonsassociation.org https://parkinsonsassociation.org

FACT Transportation: 888.924.3228 Monday – Friday 7:30 AM to 8:00 PM (8:30 PM pick up for SDCCPSG Speakers’ Series). Call 72 hrs ahead to schedule transportation to/from 1 of 3 approved PD-related activities (Neurology appt, Support Group or Parkinson’s Assoc.-sponsored event). Mobility chairs, service animals and care partners accommodated. Donations welcome and most appreciated. Cost: Free

East County Parkinson’s Support Group Support Group Convener: Lorenzo Higley EastCountyPSG@cox.net

North County Parkinson’s Support Group Board Pres., Support Group Leader: Paul Dawson paul@video-fire.com www.ncpsg.org UCSD Parkinson’s Network Support Group Coordinator: David Higgins info@Support4PD.org www.Support4PD.org

President – Support Group Leader Nancy Floodberg president@sdccpsg.org

619.857.6638 Vice-President – Support Group Leader Jim Paterniti vicepresident@sdccpsg.org 858.203.3232Member-at-Large Susan Howard member-at-large@sdccpsg.org

Corresponding Secretary Debbie Jordan asst-social-director@sdccpsg.org

Librarian Debbie Jordan asst-social-director@sdccpsg.org

Recording Secretary Dolores Cohenour secretary@sdccpsg.org

Social Committee Debbie Stubbe social-director@sdccpsg.org Debbie Jordan asst-social-director@sdccpsg.org

Treasurer Tony Jeske treasurer@sdccpsg.org

Video Documentation – Support Group Leader Ron Phillips veterans@sdccpsg.org Webmaster Bruce Lowe webmaster@sdccpsg.org

Newsletter (to subscribe please email Publisher)

Editor Jodi Harrison editor@sdccpsg.org Publisher Nancy Floodberg president@sdccpsg.org Reporters Jane Granby reporter1@sdccpsg.org Dolores Cohenour secretary@sdccpsg.org Distribution Nancy Floodberg president@sdccpsg.org

BOARD MEETING Monday, March 9th 9:45am – noon Second Monday of each month County of SD Health & Human Services Agency 3851 Rosecrans St, San Diego, CA 92110 San Diego Room Contact President – Nancy Floodberg 619.857.6638 president@sdccpsg.org

County of San Diego Access & Crisis Line Available 24/7 – 888.724.7240

SDCCPSG provides information to keep you informed of the latest findings in research, new treatments and living well with Parkinson’s. Although we have speakers on a variety of topics, we do not officially endorse any of them. Our motto is “maintain close communication with your neurologist/movement disorder specialist, and exercise, exercise, exercise!“

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"Good Start Program" Slated for Thursday, March 12, 2020

Educational seminar for newly diagnosed Parkinson’s patients & caregivers/care partners

The Parkinson's Association of San Diego is hosting its next "Good Start Program" seminar on

Thursday, March 12, 2020 at the Tri- City Wellness Center located at 6250 El Camino Real,

Carlsbad, CA 92009.

Designed for newly diagnosed Parkinson's patients and their care givers/care partners, the

seminar is a 3 hour session including Q&A. It will feature Dr. Abigail Lawler, Movement

Disorders Neurologist, Neurology Center of Southern California, as well as PASD Board

members who will also address Parkinson's patient and care giver/care partner perspectives.

Specific topics will include maintaining a positive attitude; understanding Parkinson's; choosing

a physician; common medications, care givers/care partners; importance of exercise &

nutrition; benefits of physical; occupational, speech and music therapy; legal issues; research,

Support Groups and other support services.

Individuals who would like to update their knowledge base of PD are also more than welcome

to attend. There is no cost to the participants.

Seminar Details Date: Thursday, March 12, 2020

Time: Check-In 12:00 p.m. / Program 12:30 – 3:30 p.m.

(Refreshments provided) Location: Tri-City Wellness Center

6250 El Camino Real, Carlsbad, CA 92009

Directions & Parking Information: Will be provided to attendees

Registration is required by March 9, 2020. Space is limited.

Register Online at: parkinsonsassociation.org Or by phone at 858 999 5671

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Quartetto Luminoso

Tremble Clefs® San Diego PresentsA Benefit Concert for People Living with Parkinson’sFeaturing Classical Music by

and Special Guest VocalistMATTHEW IGNACIO

This program is supporte a communit grant from the Parkinson’ oun a on an Parkinson’s Associa on of an iego an North Count Parkinson’s upport GroupTremble Clefs San Diego is a 501(c)(3) non-profit organization EIN: 81-1192837 www.trembleclefs.com ©2020, Tremble Clefs San Diego.

The Tremble Clefs name and symbol are registered trademarks of Tremble Clefs San Diego. ©2020 Tremble Clefs San Diego. (TC20-QLFL1)

I A MA CH pm oors open

Palisades Presbyterian Church 6301 Birchwood St. San Diego, CA 92120Tickets Informa onT EMBLECLE COM

JOIN US FOR A SPECIAL EVENING OF LIVE CLASSICAL MUSIC AND FINE REFRESHMENTS.

Learn more a out us an igh ng Parkinson’s One ong at a Time at www trem leclefs com Find us on Facebook and Instagram.

Trem le Clefs an iego announces their spring fundraising concert featuring Q A TETTO L MINO O, a virtuoso classical ensemble comprised of clarinetist Robert elickman, violinist P ivikki N kter, violist Francesca avage and cellist Cecilia im

Musical works include composers Stamitz, Sibelius, Piazzolla, Crussell and others. The program also features vocalist MATTHEW IGNACIO, performing music specially arranged for this performance with the quartet.

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Living with Parkinson’s: A Community Update

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SATURDAYMARCH 21, 2020

9 A.M. - 3 P.M.

PARADISE POINT RESORT & SPA

For more information, contact: Brought to you by

Caring for a lovedone is challenging.We understand.That’s why we are bringing the community together for the third annualCaregiverSD Community Expo,a fun and informative gathering for caregivers, their family members and friends.

51817

Powered bySan Diego’s trusted source of information, resources and support for family caregivers

Source:2018 CaregiverSD Marketing Data Sample; 2017 Release 1 Nielsen Scarborough Report. Copyright 2017 Scarborough Research. All rights reserved. AARP 2015, San Diego County, U.S. Centers for Disease Control and Prevention, 2016

caregiverSD.com/expo

■ Seminars ■ Exhibitors

■ Resources ■ Services

■ Products ■ And more

■ STANDARD SINGLE EXHIBIT $699■ STANDARD DOUBLE EXHIBIT $1,099��Kh][aYd�K][lagf�daklaf_��Daklaf_�gf�]phg�o]Zkal]��Dan]�dafc�lg�]p`aZalgj�o]Zkal]��=p`aZal�khY[]2��kaf_d]�)(�^l�p�)(�^l� \gmZd]�)(�^l�p�*(�^l��Daklaf_�gf�]phg�eYh

■ PREMIUM SINGLE EXHIBIT $1,299■ PREMIUM DOUBLE EXHIBIT $1,699��Kh][aYd�K][lagf�Y\�)'0�hY_]��Daklaf_�gf�]phg�o]Zkal]��Dan]�dafc�lg�]p`aZalgj�o]Zkal]��KGN�\akhdYq�Y\�gf�]phg�o]Zkal]��=p`aZal�khY[]2���kaf_d]�)(�^l�p�)(�^l� \gmZd]�)(�^l�p�*(�^l��Daklaf_�gf�]phg�eYh

ADDITIONAL OPTIONS:Electricity: $200Resource Row table or Pampering Pavilion table: $199

Caregiver Special Section$86 net PCI includes color

Special Section Pub Date: Sunday, March 15, 2020Space Reservation deadline: Tuesday, Feb. 18, 2020 | Art Finalizing deadline: Monday, March 2, 2020

San Diego Caregiver Demographics■ Half a million caregivers live in San Diego County

■ Nearly 50% have a household income of $70k

■ 75% of event attendees are female; a typical family caregiver is a 49 year old woman

■ Millennials make up a quarter of caregivers and continues to increase

■ 62% of caregivers learn about the event through the San Diego Union-Tribune

San Diego Central County Parkinson's Support Group

March 2020

1 2 3 4

1:00pm UCSD

FLYING SOLO:

CANCELLED FOR

MARCH Click here

for website

5 6

9:30am STRONGER

CAREGIVER,

STRONGER

FAMILIES-A

Conference for

Military and Veteran

Families: North Inland

Live Well Center, 649

W. Mission Ave.,

Escondido 92025

Click here to register

7

7:00am SPOUSAL

CAREGIVER'S

SYMPOSIUM:

Holiday Inn

Express-Rancho

Bernardo, 17065 W.

Bernardo Dr., San

Diego 92127 Click

here for flyer and to

register

8 9

9:45am SDCCPSG

BOARD MEETING:

Health & Human

Services Agency,

3851 Rosecrans St,

San Diego 92110 San

Diego Room Click

here for flyer Click

here for Zoom

10 11

6:00pm SDCCPSG

SPEAKERS' SERIES:

Health & Human

Services Agency,

3851 Rosecrans St,

San Diego 92110 San

Diego Room Click

here for website

12

12:30pm

PARKINSON'S

ASSOCIATION

GOOD START

PROGRAM, Tri-City

Wellness, 6250

Camino del Rio,

Carlsbad 92009. Call

858.999.5671 or

Click here to register

13

7:00pm TREMBLE

CLEFS PRESENTS A

BENEFIT CONCERT

FOR PEOPLE

LIVING WITH

PARKINSON'S:

QUARTETTO

LUMINOSO,

Palisades

Presbyterian Church,

6301 Birchwood St.,

San Diego 92120.

Click here for

tickets/information

14

9:30am UCSD

SYMPOSIUM:

LIVING WITH

PARKINSON'S: A

COMMUNITY

UPDATE: Irwin M.

Jacobs Qualcomm

Hall, 5775 Morehouse

Dr., San Diego 92121.

Call 858.822.5871,

email

Movementdisorders@

health.ucsd.edu or

Click here to register

15 16 17 18

1:00pm SDCCPSG

PACIFIC BEACH

SUPPORT GROUP:

Oakmont, 955 Grand

Ave, San Diego

92109 Activity Room

Click here for flyer

19

FIRST DAY OF

SPRING

 

20 21

9:00am

CAREGIVERSD

COMMUNITY EXPO:

Paradise Point Resort

& Spa, 1404 Vacation

Rd., San Diego

92109, for questions

email

events@sduniontribu

ne.com Click here to

register

Sunday Monday Tuesday Wednesday Thursday Friday Saturday

San Diego Central County Parkinson's Support Group

March 2020 (Page 2)

22 23

10:00am SDCCPSG

PT. LOMA SUPPORT

GROUP: Health &

Human Services

Agency, 3851

Rosecrans St., San

Diego 92110 San

Diego Room Click

here for flyer

24 25 26 27 28

2:00pm SDCCPSG

DUOPA THERAPY

SUPPORT GROUP:

Bayside at the

Embarcadero, 1325

Pacific Highway, San

Diego 92101 3rd

Floor Lounge RSVP

Required:

619.857.6638 Click

here for flyer

29 30 31

Sunday Monday Tuesday Wednesday Thursday Friday Saturday