Leonard Cheshire Disability and Inclusive Development Centre

Professor Nora GroceDepartment of Epidemiology & Public Health

University College London

nora.groce@ucl.ac.uk

Collaboration

Major NGO: Leonard Cheshire Disability > International Department > LCD Global Alliance

Major University > University College London (UCL)

Leonard Cheshire Disability and Inclusive Development Centre

The Centre is dedicated to generating a body of knowledge about disability that helps to improve the lives of people with disabilities, their families and their communities, around the world.

Concentrates on applied research in low and middle income countries that can be used by groups, organisations and advocates worldwide

Leonard Cheshire Disability and Inclusive Development Centre

All work is Open Access/ FreeShared with entire sectorWe do

* Theoretical & Applied Research* Teaching – MSc, PhD* Advising – UN Agencies/Bilaterals/

Governments/NGOs, DPOs* Consultant – UN Agencies/ Bilaterials/

Governments/ NGOs

Mission is to share findings with disability and more widely with disability and development community

Leonard Cheshire Disability and Inclusive Development Centre

Our key research priorities are:

Disability & Poverty Livelihoods Health Inclusive Education Policy and governance Post-conflict and emergency situations

For example

Our recent research projects – and partners include

Disability and Well-Being - (Liberia) –U of Liberia Disabled Street Beggars – (Ethiopia)- ILO Inclusive Education: (Zambia, Zimbabwe, Sierra

Leone, New Guinea) – DFAT/GEC & etc. Access to water and sanitation (Uganda and Zambia)

- WaterAid UK Social Protection Programmes (Vietnam) - MOLISA

ESRC/DFID Poverty Alleviation Research

Bridging the Gap

Examining Disability and Development in four African

Countries (Kenya, Sierra Leone, Uganda, and Zambia)

Kenya: University of Nairobi, School of Public Health, African Centre for Science and Technology; United Disabled Persons KenyaUganda: Makerere University, Department of Social Work and Social Administration; National Union of Disabled Persons of Uganda Zambia: Institute of Economic and Social Research, University of Zambia; Zambia Agency for Persons with DisabilitiesSierra Leone: University of Sierra Leone, Department of Sociology and Social Work; Sierra Leone Union of People with DisabilitiesSouth Africa: Stellenbosch University

International Experts: Dr D, Mont; Professors T. Shakespeare, S. Mitria, M. Schneider, L. Swartz

BACKGROUND RESEARCH CONSORTIUM:

> LCD > 4 AFRICAN DPOS, > 5 AFRICAN UNIVERSITIES

THE DISABILITY AND DEVELOPMENT GAP

The Disability and Development GapThe Disability and Development Gap. Groce N, Kett M.Working Paper 21. London: Leonard Cheshire Disability and Inclusive Development Centre. 2013.

Unless persons with disabilities are included equally and routinely in all development efforts, the lives of persons with disabilities will remain stationary while the lives of those around them will continue to advance. They will be increasingly poorer and more marginalized in comparison to their non-disabled peers.

ESRC/DFID BRIDGING THE GAP

The grant specified four domains of focus: Health Education Labour Market/Livelihoods Social Protection

Year 1: Review of Policy/Secondary Data analaysisYear 2: Household SurveyYear 3: Qualitative research

The UN Washington Group on Disability Statistics: A Resource for Research and Practice

• Professor Nora Groce, Director and Chair, Leonard Cheshire Disability and Inclusive Development Centre, Epidemiology and Public Health

- University College London

• Dr. Daniel Mont, Senior Research Fellow, Leonard Cheshire Disability and Inclusive Development Centre, Epidemiology and Public Health,

– University College London

• Dr Jennifer Madans, Associate Director - National Centre for Health Statistics, US

• Mitchel Loeb, MA. Health Scientist, US - National Centre for Health Statistics, US

<www.washingtongroup-disability.com>

Providing an academic home base for the Washington Group on Disability Statistics

Funding from Australian Department of Trade and Finance (DFAT) 2015-2019 (£1.3 million 2015-2019) –

Work in collaboration with other projects (UN Statistics/ UNICEF’s MICs/ & etc.), to improve and advance collection, theory and practice of disability related statistics through collection and analysis of Washington Group methodology/ integration of this methodology in census, survey and research.

WG launching new and expanded training, website and outreach efforts to provide support for WG data collection for census, survey, advocacy and research efforts

Already have/ will shortly be organising/ helping to run

> Regional/international training in: • New York 2016• Fiji 2016• Mexico 2016• Latin America 2016• Middle East 2017• London 2017• Caribbean 2017• Bangkok 2017

> Annual meetings• Copenhagen 2015 • Pretoria 2016

Over coming four years, the WG will

Continue to work on developing question sets for sub-populations (children) and specific areas (mental health, environment, participation) and application (registry data)

WG will focus on Capacity building Training & technical assistance Analysis of data once collected Implementation and dissemination of findings

Because unless findings are disseminated to policy makers, governments, advocates and general public, nothing gets fixed

Disabled Street Beggar Project: Ethiopia with Barbara Murray, International Labor Organisation – Geneva

Thy city lifts its hand like a cripple ‘O my lord Shun-Sin’ – Sumerian clay tablet2400 BC

166 individuals – (24 in-depth interviews/42 focus group/ 100 surveyed

* Urban – rural based * Life course

– what brings people to streets - what keeps them on streets- what are their lives life- what do they see as their

future

FINDINGS: Unanticipated complexity - Disabled early in life – sent to beg - Disabled early in life – sent to school - Disabled once in urban area

Significant points of intervention different

Examples of Desk Research • Inheritance Groce N, London J, Stein M. 2014. Inheritance, Poverty and Disability. Disability and Society. 29:10:1554-1568.

• Poverty and disability Groce N, Kett M, Lang R, Trani JF. 2011. Disability and

Poverty: The Need for a More Nuanced Understanding of Implications for Development

Policy and Practice. Third World Quarterly. 32(8):1493-1513

• Illiteracy Groce N. Bakshi P. 2013. Illiteracy among Adults with

Disabilities in the Developing World. Nidhi Singal (ed). Disability, Poverty and Education

London. Routledge.• Polio • Groce N, Morgon L, Stein M. 2014. Surviving Polio in a Post-

Polio World. Social Science and Medicine. 107-171-178.

NEW: Global Disability Innovation Hub

Leonard Cheshire Disability in collaboration with > London Legacy Development Corporation > Partners, including Loughborough University, Helen

Hamlyn Centre for Design -Royal College of Art, London College of Fashion, Victoria and Albert (V&A), Sadlers Wells

> UCL – full Resources of a major : collaboration across campus – disability, engineering, architecture, medicine and public health, transportation, computer > WHO – In discussion with The GATE Initiative

Creating a hub for technological innovation to improve the lives of disabled people worldwide.

To be based at: OLYMPIC PARK - London

https://www.disabilityinnovation.com

Leonard Cheshire Disability and Inclusive Development Centre

In summary, Leonard Cheshire Disability has an active research centre that is anxious to:

- Partner with colleagues, fellow organisations and individuals - Share findings

That allows us continue to generate applied research that can contribute to immediate and long term improvements in the lives of persons with disabilities.

http://www.ucl.ac.uk/leonard-cheshire-research