Reusable data for biomedicine: A data licensing odyssey
Transcript of Reusable data for biomedicine: A data licensing odyssey
![Page 1: Reusable data for biomedicine: A data licensing odyssey](https://reader033.fdocuments.in/reader033/viewer/2022051318/5a673e1a7f8b9a453d8b5549/html5/thumbnails/1.jpg)
Reusable data for biomedicine: A data licensing odyssey
Melissa HaendelSeth Carbon, Julie McMurry, Robin Champieux,
Letisha Wyatt, Lilly Winfree
RDA September 20tH, 2017
@ontowonka #reusabledata
Image: i.pinimg.com
![Page 2: Reusable data for biomedicine: A data licensing odyssey](https://reader033.fdocuments.in/reader033/viewer/2022051318/5a673e1a7f8b9a453d8b5549/html5/thumbnails/2.jpg)
THERE >1500 PUBLIC BIOMEDICAL DATABASES IN NUCLEIC ACIDS RESEARCH DATABASE COLLECTION
https://doi.org/10.1093/nar/gkw1188 @ontowonka
![Page 3: Reusable data for biomedicine: A data licensing odyssey](https://reader033.fdocuments.in/reader033/viewer/2022051318/5a673e1a7f8b9a453d8b5549/html5/thumbnails/3.jpg)
HOW MANY OF THESE DATA ARE TRULY REUSABLE?
OPENNESS IS AN NARREQUIREMENT, BUT …
@ontowonka
![Page 4: Reusable data for biomedicine: A data licensing odyssey](https://reader033.fdocuments.in/reader033/viewer/2022051318/5a673e1a7f8b9a453d8b5549/html5/thumbnails/4.jpg)
MONARCH & THE NCATS BIOMEDICAL DATA TRANSL ATOR
www.ncats.nih.gov/translator
www.monarchinitative.org@monarchinit
![Page 5: Reusable data for biomedicine: A data licensing odyssey](https://reader033.fdocuments.in/reader033/viewer/2022051318/5a673e1a7f8b9a453d8b5549/html5/thumbnails/5.jpg)
MONARCH’S LICENSING BURDEN
@monarchinit
![Page 6: Reusable data for biomedicine: A data licensing odyssey](https://reader033.fdocuments.in/reader033/viewer/2022051318/5a673e1a7f8b9a453d8b5549/html5/thumbnails/6.jpg)
bit.ly/open-letter-licensing
Additional signatories welcome
@ontowonka
![Page 7: Reusable data for biomedicine: A data licensing odyssey](https://reader033.fdocuments.in/reader033/viewer/2022051318/5a673e1a7f8b9a453d8b5549/html5/thumbnails/7.jpg)
REUSABLEDATA.ORG
Curate, evaluate, and provide guidance on
legal and effective data reuse and
redistributionWanna help? Join us
bit.ly/reusabledata-forum
github.com/reusabledata @ontowonka
![Page 8: Reusable data for biomedicine: A data licensing odyssey](https://reader033.fdocuments.in/reader033/viewer/2022051318/5a673e1a7f8b9a453d8b5549/html5/thumbnails/8.jpg)
COMPREHENSIVE&
FRICTIONLESS
CLEAR DATAIS
ACCESSIBLE
FEWRESTRICTIONS
ON TYPES OFREUSE
FEWRESTRICTIONS
ON WHOMAY REUSE
reusabledata.org/criteria
0
10
20
A B C D EPartial or complete fail Pass
DB
s
@ontowonka
![Page 9: Reusable data for biomedicine: A data licensing odyssey](https://reader033.fdocuments.in/reader033/viewer/2022051318/5a673e1a7f8b9a453d8b5549/html5/thumbnails/9.jpg)
CRITERION A:
CLARITY38% RECEIVE FULL STAR
9/24Non Standard license
(10/24)
Multiple licenses (3/24)
Missing license (2/24)@ontowonka
![Page 10: Reusable data for biomedicine: A data licensing odyssey](https://reader033.fdocuments.in/reader033/viewer/2022051318/5a673e1a7f8b9a453d8b5549/html5/thumbnails/10.jpg)
CRITERION B:
COMPREHENSIVE & FRICTIONLESS58% RECEIVE FULL STAR
14/24
Reuse terms not clear 5/24
Doesn't apply to all data 4/24
Can’t obtain singly licensed slice 2/24
Auto-fail due to missing/multiple license 3/24
@ontowonka
![Page 11: Reusable data for biomedicine: A data licensing odyssey](https://reader033.fdocuments.in/reader033/viewer/2022051318/5a673e1a7f8b9a453d8b5549/html5/thumbnails/11.jpg)
CRITERION C:
DATA IS ACCESSIBLE92% RECEIVE FULL STAR
22/24 No “reasonable good-faith
location” or single action 2/24
@ontowonka
![Page 12: Reusable data for biomedicine: A data licensing odyssey](https://reader033.fdocuments.in/reader033/viewer/2022051318/5a673e1a7f8b9a453d8b5549/html5/thumbnails/12.jpg)
CRITERION D:
FEW RESTRICTIONS ON TYPES OF REUSE: 29% RECEIVE FULL STAR
7/24Restrictive but allows academic use
2/24
Restrictive, no academic provisions
12/24
Auto-fail due to missing/multiple
![Page 13: Reusable data for biomedicine: A data licensing odyssey](https://reader033.fdocuments.in/reader033/viewer/2022051318/5a673e1a7f8b9a453d8b5549/html5/thumbnails/13.jpg)
CRITERION E:
FEW RESTRICTIONS ON TYPES OF USER: 32% RECEIVE FULL STAR
7/24
Restrictive but allows academic use 2/24
Restrictive, no academic provisions 10/24
Auto-fail due to missing/multiple license
3/24
@ontowonka
![Page 14: Reusable data for biomedicine: A data licensing odyssey](https://reader033.fdocuments.in/reader033/viewer/2022051318/5a673e1a7f8b9a453d8b5549/html5/thumbnails/14.jpg)
BALANCE OF, QUALITY, SUSTAINABILITY, AND(LEGAL) REUSABILITY
@ontowonka
![Page 15: Reusable data for biomedicine: A data licensing odyssey](https://reader033.fdocuments.in/reader033/viewer/2022051318/5a673e1a7f8b9a453d8b5549/html5/thumbnails/15.jpg)
Findable Accessible Interoperable Reusable
OPEN DATA IS FAIR-TLC
Traceable Licensed Connected
bit.ly/fair-tlc
@ontowonka
![Page 16: Reusable data for biomedicine: A data licensing odyssey](https://reader033.fdocuments.in/reader033/viewer/2022051318/5a673e1a7f8b9a453d8b5549/html5/thumbnails/16.jpg)
A RUBRIC FOR EVALUATION
bit.ly/fair-tlc @ontowonka
![Page 17: Reusable data for biomedicine: A data licensing odyssey](https://reader033.fdocuments.in/reader033/viewer/2022051318/5a673e1a7f8b9a453d8b5549/html5/thumbnails/17.jpg)
Nominations due September 30, 2017
Researchparasite.org
![Page 18: Reusable data for biomedicine: A data licensing odyssey](https://reader033.fdocuments.in/reader033/viewer/2022051318/5a673e1a7f8b9a453d8b5549/html5/thumbnails/18.jpg)
T H A N KS T O :SETH CARBONJULIE MCMURRYROBIN CHAMPIEUXLETISHA WYATTLILLY WINFREEANDREW SUCASEY GREENEJOHN WILBANKSSEAN MCDONALDCHRIS AUSTINNOEL SOUTHALLCHRISTINE COLVIS
![Page 19: Reusable data for biomedicine: A data licensing odyssey](https://reader033.fdocuments.in/reader033/viewer/2022051318/5a673e1a7f8b9a453d8b5549/html5/thumbnails/19.jpg)
FAIR-TLC: LICENSURE
http://peterdesmet.com/posts/analyzing-gbif-data-licenses.html
Standard
license171
Non-standar
d license1069
No license10734
Not all data resources are free to use, derive, and
redistribute, even if publicly funded and publicly
available
@ontowonka
![Page 20: Reusable data for biomedicine: A data licensing odyssey](https://reader033.fdocuments.in/reader033/viewer/2022051318/5a673e1a7f8b9a453d8b5549/html5/thumbnails/20.jpg)
FAIR-TLC EVALUATION OF THE OPEN SCIENCE CANDIDATES
Room for
improvement
bit.ly/open-science-prize
Open imaging
![Page 21: Reusable data for biomedicine: A data licensing odyssey](https://reader033.fdocuments.in/reader033/viewer/2022051318/5a673e1a7f8b9a453d8b5549/html5/thumbnails/21.jpg)
OVERVIEW OF 22 DATABASES
@ontowonka