Research Routes: Gail Eva
Transcript of Research Routes: Gail Eva
1.07%104disability
340cachexia
532breathlessness
1451fatigue
3615nausea
37.69%3655pain
“advanced cancer” and
HitsSearch terms
Medline 1966 – present (carried out 02/07/08)
Receiving adequate symptom managementReceiving adequate symptom management
Co-ordination and continuity of care Co-ordination and continuity of care
Avoiding inappropriate prolongation of dying Avoiding inappropriate prolongation of dying
A sense of controlA sense of control
Relieving one’s burden upon othersRelieving one’s burden upon others
Strengthening relationships with loved onesStrengthening relationships with loved ones
Having an opportunity to say goodbye and bring closure Having an opportunity to say goodbye and bring closure
Singer Singer et al. et al. (1999) Quality End-of-Life Care. Patients' Perspectives. (1999) Quality End-of-Life Care. Patients' Perspectives. JAMAJAMA 281:163-168. 281:163-168.
Heyland Heyland et al. et al. (2006) What matters most in end-of-life care: perceptions of seriously ill patients and their (2006) What matters most in end-of-life care: perceptions of seriously ill patients and their family members. family members. CMAJCMAJ 174 (5): 627-633. 174 (5): 627-633.
Aspinal Aspinal et al. et al. (2006) What is important to measure in the last months and weeks of life? A modified nominal (2006) What is important to measure in the last months and weeks of life? A modified nominal group study. group study. Int J Nurs StudInt J Nurs Stud 43(4): 393-403 43(4): 393-403
What are the consequences of disability for cancer and palliative care patients (and their carers)?
What interventions can support patients’ ability to make the most of life? (What interventions can help patients to manage disability?)
How do we define and specify these interventions so that we can deliver them?
What’s the best way of delivering the interventions?
What outcomes are meaningful to measure – reduction in symptoms (eg fatigue)? Improvement in quality of life? Independence? Social participation? And how do we measure them?
What is the feasibility of doing this kind of research with this population of patients?