Renal PatientView Progress and plans. Evaluation Patients – 95% very or quite valuable (65/30) –...
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Renal PatientView Progress and plans
Transcript of Renal PatientView Progress and plans. Evaluation Patients – 95% very or quite valuable (65/30) –...
Renal PatientView
Progress and plans
Evaluation
Patients– 95% very or quite valuable (65/30)– Main reason for not using – not knowing
Staff– Equally positive– Raises the level of consultation– Better patient confidence, involvement
Figure 5: Dotogram showing creatinine tests and logins for a random selection of RPV users (provided by Dr Richard Phelps)12
KPG forum comments
RPV is amazing … I can instantly access my data and show it to my GP if I want to, it's really reassuring
I am ever so jealous that my renal centre is not on RPV
Excellent system ... although there is obviously the argument that providing nearly all the information from blood test results can be improved upon by actually providing all the information … 9/10!
Fbk comments: transplant
Thanks to the amazing NHS, RPV .... Bloods done 10.15 this morning. All results posted on RPV by 3.30 - we are so lucky in the UK
In my early weeks, I lived for my results on RPV. Its an excellent system.
Fbk: lost login
Map
Registrations
• 17,000 Aug 2011
• In 50 renal units
• +8 scheduled
• and several working on it …
www.renalpatientview.org
Wide variation in uptake between units
• Up to 60% of RRT
• Over 40% in 9 units
Recruitment
•Many patients still don’t know about it
•Personal recommendation is powerful
•It may not matter so much who does that
•A practical demo/intro has lasting benefits
Recruitment toolkit
•www.rixg.org/rpv for hints and suggestions
•and links to YouTube videos
What next?
• Data back to units
• Clinician enters
• Timeline of drugs, treatment (from RR?)
• Web entry
• Primary care prescribing list (SCR/ECR)
New data items in 2012
• FBC – add differential wbc
• Lipids – LDL, HDL?
• HepB, C, HIV, MRSA
• PCR for CMV, BKV, HBV, HCV, EBV, HIV
• T, P, RR, O2 sat (Apache score items)
• ANCA, Complement, ANA/aDNA
• (Units of measurement; deceased patients remove)
• … new items for Radar
What next?
• Rare diseases
• ‘RPV for all’
• Two-way communication
www.edren.org
Background, admin renal.org/rpv
Recruitment rixg.org/rpv
Technical rixg.org/developer
News
renalpatientview.blogspot.com
renalpatientview.org
