Renal PatientView Birmingham 2nd Sep 2008 Neil Turner Renal PatientView.
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Renal PatientView Birmingham 2nd Sep 2008 Neil Turner Renal PatientView
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Transcript of Renal PatientView Birmingham 2nd Sep 2008 Neil Turner Renal PatientView.
Renal PatientView
Birmingham2nd Sep 2008
Neil Turner
Renal PatientView
www.renalpatientview.org
Renal PatientView meeting
Edinburgh 24th September 2008
•Joining
•Running
•Effects – on patients, staff, your work, your records
•What it might do in the future
www.renal.org/rixg/users.html
Renal PatientView meeting
Edinburgh 24th September 2008
•Joining – uptake, use, analysis
•Running – masterclass
•Effects – on patients, staff, your work, your records
•National and international perspectives
•What it might do in the future
www.renal.org/rixg/users.html
Renal PatientView
RIXG
Sample Proton screens
The worldNHSnet
Renal server(e.g. Proton)
Webserver
Satellite unit
Other hospitals
Aug 2008
8000 patients
33 units
Renal PatientView
Design principles
Internet: view anywhere Open source engineering Specification by patients, renal IT staff and
clinicians All would share same view Implementation to require minimal extra work
in units Simple to use for patients Opt in
Renal PatientView
Design principles
NHS number is primary identifier Results with same NHS # amalgamated EDTA code Treatment code
… SNOMED, READ etc -ready
Treatment choices
Renal PatientView
Patient evaluation
Content– 95% very or quite valuable (65/30)– Results were the most valued part – Letters were the most wanted
Security– 7% very concerned prior, 1% after– 2% of non-participants said this why– 40% shared their login
Renal PatientView
Formal evaluation
Barriers to use– 64% non-users didn’t know of RPV – Gender profile same– 45% of non-users over 66yrs cf 10.5%– Lack of computer/internet access
Renal PatientView
Staff evaluation
Renal PatientView
Impact on unit
Not leading to extra consultation time Or patient anxiety Anecdotes of info availability helping Some improved compliance? Effect on data quality IT people speak to patients more
Renal PatientView
Hidden cost?
RPV admin’s extra time 6 mins per enrolment Lost passwords More corrections
Versus savings Fewer phone calls about results Data quality Better compliance with treatment?
Renal PatientView
Concerns
• Security
• Exclusion
• Cost/ opportunity cost
Renal PatientView
What next?
• More units
• More items
• Graphics
• Availability through other portals
Renal PatientView
What next?
• Patients discuss
• Patients enter data
• Patients send feedback to unit, clinician
• Primary care integration
• Your ideas
