Recruiting within AMSs AMSWS can recruit patients for studies like SCIPPS but note: Must have ethics...
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Transcript of Recruiting within AMSs AMSWS can recruit patients for studies like SCIPPS but note: Must have ethics...
Recruiting within AMSsRecruiting within AMSs
• AMSWS can recruit patients for studies like SCIPPS but note:• Must have ethics approval from Aboriginal
ethics committee – I.e. Aboriginal Health & Medical Research
Council Ethics Committee for NSW
• involve AMS early• needs to be approved by Board• partnership approach
Cultural issuesCultural issues• Just because its 200
years + since invasion don’t think we have lost our culture
• Modern urban Aboriginal culture is strong and alive
• Every community is different
Ownership of research by Ownership of research by Aboriginal peopleAboriginal people
• What is being collected?
• The right researcher
• Ownership of health information
• Writing it up and publishing– also need approval of research findings &
report by ethics committee and AMS before publication
guiding principles regarding the use of Aboriginal health information, including research data.
•Access through “research and ethics” at http://www.ahmrc.org.au
NSW Aboriginal Health Information Guidelines 1998
Other resourcesOther resources
Coalition for Research to Improve Aboriginal Health (CRIAH)
- a partnership between Aboriginal communities and researchers to encourage and facilitate research that will improve Aboriginal health
• “CRIAH Tools for Collaboration”,
also available at http://www.ahmrc.org.au
Research linked to actionResearch linked to action
“Don’t go into communities and promise things you can’t deliver”