RareConnect was created by EURORDIS (European Rare Disease Organisation) and NORD (National Organization for Rare Disorders) to provide a safe space where individu-als and families affected by rare diseases can connect with each other, share vital experiences, andfind helpful information and resources.

Lipoprotein Lipase Deficiency, is also known as Type I hyperlipoproteinemia or Familial chylomicronemia. People hyperlipoproteinemia or Familial chylomicronemia. People with LPLD have very high triglyceride levels because they lack lipase, the enzyme that clears fat from the blood. Symptoms include recurrent abdominal pain, fat-filled spots known as ‘eruptive xanthomata’, and attacks of acute pancreatitis.

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Lipoprotein Lipase Deficiency (LPLD)

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Connecting Rare Disease Patients With LPLD Globally

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