Primary data sources

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GOVERNMENT OFFICE FOR THE SOUTH WEST South West Public Health Observatory Primary data sources John Langley Adapted from work by Helen Cooke (SWPHO) 2008

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Primary data sources. John Langley Adapted from work by Helen Cooke (SWPHO) 2008. Primary data sources. Differences between record-level and aggregate data Some examples of primary data (births, deaths, HES) Simple sources of pre-calculated data (VS, Compendium, LHO basket, NeSS) - PowerPoint PPT Presentation

Transcript of Primary data sources

Page 1: Primary data sources

GOVERNMENT OFFICEFOR THE SOUTH WEST

South West Public Health Observatory

Primary data sources

John Langley

Adapted from work by Helen Cooke (SWPHO) 2008

Page 2: Primary data sources

GOVERNMENT OFFICEFOR THE SOUTH WEST

South West Public Health Observatory

Primary data sources

Differences between record-level and aggregate data

Some examples of primary data (births, deaths, HES)

Simple sources of pre-calculated data (VS, Compendium, LHO basket, NeSS)

confidentiality Codes and lookups Specialist data sources (reference and links) Geodemographics (segmentation)

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GOVERNMENT OFFICEFOR THE SOUTH WEST

South West Public Health Observatory

Some data sources for public health

Data types 1. person-based 2. Aggregate3. More complex tools

Health Profiles, HPI, etc,

4. Codes and lookups

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GOVERNMENT OFFICEFOR THE SOUTH WEST

South West Public Health Observatory

1 Person-based only available under confidentiality

agreements to appropriate organisations

Individual records eg Births Mortality HES A&E attendances

May be anonymised Record linkage increasingly difficult

• May or may not have NHS number Confidentiality issues

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GOVERNMENT OFFICEFOR THE SOUTH WEST

South West Public Health Observatory

Common characteristics

Each line is one patient/episode of care Dates eg birth, death, admission Geographical data eg postcode, LA Appropriate details of COD, Underlying

cause of death, place of death, diagnosis, procedure

Some socioeconomic data may be inferred Essential for non-standard analyses

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GOVERNMENT OFFICEFOR THE SOUTH WEST

South West Public Health Observatory

Extract from ONS mortality file

AgeYears

UnitsOfAge Postcode

CommunalEstablish-ment Code Sex COD1 COD2 COD3 COD4 COD5 COD6 COD7 COD8

UnderlyingCOD PCT

0 4 TR9 00976 1 T818 Y839 Q243 Q210 Q211 Q253 Q251 Q234 5KT 0 2 PL5 19289 2 S061 W650 W650 5F1 0 2 BA1 00976 1 S099 Y339 Y339 5FL

30 1 BH8 E 1 T07 X815 X815 5CE 0 3 BH12 04500 1 P363 P239 O469 O60 5KV

76 1 BA1 34979 1 I219 I219 5FL 0 3 BS10 00976 1 P543 P780 E841 P073 5JF

90 1 BS21 H 2 R54 C509 C509 5M8 74 1 TQ6 H 2 C80 C80 C80 5CV 80 1 TQ6 05868 2 J189 N19 J189 5CV 71 1 SN10 H 1 C160 C160 5K4 75 1 BS48 00982 1 T814 J852 N151 T821 Y831 I259 Y442 I259 5M8 74 1 BS23 25188 1 N179 N189 N139 I749 D469 D469 5M8 98 1 BH19 06319 2 J180 J449 S720 Y839 X599 J440 5FN

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South West Public Health Observatory

Extract from HES

hesid age sexcat admidate disdate epidur admimeth dismeth admisorc disdest mainspef diag_1 diag_213256319 87 2 01-Apr-05 17-Jun-05 77 13 1 51 86 430 S7210 R13X

863234 88 2 01-Apr-05 08-Apr-05 7 21 1 19 19 110 S7200 W1998369811 77 2 01-Apr-05 12-Apr-05 11 21 1 19 51 110 S7200 W199

22041799 80 2 01-Apr-05 11-Apr-05 10 21 1 19 51 110 S720 R63422078557 75 2 01-Apr-05 07-Apr-05 6 21 1 19 19 110 S7200 W01023713513 87 2 01-Apr-05 04-May-05 33 21 1 19 51 110 S7200 W19932466323 96 2 01-Apr-05 13-Apr-05 12 21 1 19 19 110 S7210 W19043693194 78 2 01-Apr-05 12-Apr-05 11 21 8 19 98 110 S7200 W19046821454 90 2 01-Apr-05 04-Apr-05 3 21 1 19 51 110 S7200 W01050118762 83 2 01-Apr-05 04-Apr-05 3 21 8 19 98 100 S7200 W199

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South West Public Health Observatory

2 Aggregate data Vital Statistics

CD or ONS website Compendium LHO Basket of Indicators NeSS

No individual data Rates already calculated Quick for standard queries

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South West Public Health Observatory

Vital Statistics Accessible to all A convenient summary of major

statistics resident population, births, maternities,

deaths, mortality and migration local administrative areas and health

areas throughout the United Kingdom explanatory material and illustrative

maps http://www.statistics.gov.uk/StatBase/Product.asp?vlnk=539

&Pos=2&ColRank=1&Rank=272

Available at ward level on CD-ROM

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South West Public Health Observatory

Compendiumof clinical and health indicators National Centre for Health Outcomes Development

primitive – hundreds of Excel spreadsheets

You can now download all the indicators for your authority via the workbench on front page

Best collection of data on health and disease – less comprehensive on determinants

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GOVERNMENT OFFICEFOR THE SOUTH WEST

South West Public Health Observatory

Compendiumof clinical and health indicators

Mortality, but increasingly lifestyle and outcomes

Risk factors from Health Survey for England (trend data at SHA level)

CD or NCHOD website nww.nchod.nhs.uk complete and

historic data sets www.nchod.nhs.uk public website with

small numbers suppressed

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GOVERNMENT OFFICEFOR THE SOUTH WEST

South West Public Health Observatory

Basket of indicators produced by London Health Observatory

A wide variety of indicators of the wider determinants of health

http://www.lho.org.uk/Health_Inequalities/BasketOfIndicators/BasketData.htm

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South West Public Health Observatory

Browsing sources (1) Have a look at the NCHOD website:

nww.nchod.nhs.uk (or www version if nww

access not available)• Browse the tables, maps, graphs section to • see what data is available.• 2. Look at data relating to teenage pregnancy

– • what could you use it for, what are its

• limitations?

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South West Public Health Observatory

Browsing sources (2)Look at the ONS website www.statistics.gov.uk1. Select theme – ‘health and care’ and see what is available2. To find census data by ward or PCT select

‘Neighbourhood’ at top of screen, then ‘Topics’ part way down screen, then ‘2001 Census’, then ‘Key statistics’

3. Look to see what data are available in the census4. Look at the data for socio-economic classifications,

economic activity, educational attainment. 5. Choose a ward in your local area by selecting (1) the data

you want to look at, then (2) administrative area, and then (3) geographical area - England, East Midlands, your local authority and then a ward. See how the ward compares with the local authority as a whole for manual (semi-routine and routine) classifications, unemployment, no qualifications. (These are factors associated with higher smoking uptake.)

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South West Public Health Observatory

Confidentiality

No statistics may be published which will reveal personal information

In practice this means no numbers under 5

Avoid indirect disclosure (disclosure by differencing) eg subtracting males from a total will reveal that the count for females us under 5

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GOVERNMENT OFFICEFOR THE SOUTH WEST

South West Public Health Observatory

Screengrab of NeSS site

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South West Public Health Observatory

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South West Public Health Observatory

Codes and lookups

Gridlink (NHS Postcode Directory) IMD ICD-10 OPCS 4 Ward History Database SNAC (Standard Names and Codes)

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South West Public Health Observatory

Extract from gridlink postcode file

PC8 PC7 START END EASTING NORTHING SHA PCT 2001 COA 2001 WARD 2001 SOAEX1 1AA EX1 1AA 199002 2922 926 Q21 5FR 18UCGG0006 18UCGG E01020016EX1 1AB EX1 1AB 199912 2922 924 Q21 5FR 18UCGG0006 18UCGG E01020016EX1 1AD EX1 1AD 198001 199112 2922 926 Q21 5FR 18UCGG0006 18UCGG E01020016EX1 1AG EX1 1AG 199002 199112 2922 926 Q21 5FR 18UCGG0006 18UCGG E01020016EX1 1AH EX1 1AH 199002 2922 926 Q21 5FR 18UCGG0006 18UCGG E01020016EX1 1AQ EX1 1AQ 199002 199501 2922 926 Q21 5FR 18UCGG0006 18UCGG E01020016EX1 1AT EX1 1AT 200310 2917 923 Q21 5FR 18UCGG0010 18UCGG E01020016EX1 1AY EX1 1AY 199706 199707 2922 926 Q21 5FR 18UCGG0006 18UCGG E01020016EX1 1BA EX1 1BA 198001 2917 922 Q21 5FR 18UCGG0010 18UCGG E01020016EX1 1BB EX1 1BB 198001 2917 922 Q21 5FR 18UCGG0010 18UCGG E01020016EX1 1BD EX1 1BD 198001 2917 922 Q21 5FR 18UCGG0013 18UCGG E01020016EX1 1BE EX1 1BE 198001 2918 923 Q21 5FR 18UCGG0013 18UCGG E01020016EX1 1BG EX1 1BG 198001 2917 923 Q21 5FR 18UCGG0010 18UCGG E01020016EX1 1BH EX1 1BH 200301 2918 923 Q21 5FR 18UCGG0013 18UCGG E01020016EX1 1BJ EX1 1BJ 198001 2918 923 Q21 5FR 18UCGG0013 18UCGG E01020016EX1 1BL EX1 1BL 198001 2918 923 Q21 5FR 18UCGG0010 18UCGG E01020016EX1 1BN EX1 1BN 198106 2918 924 Q21 5FR 18UCGG0013 18UCGG E01020016EX1 1BP EX1 1BP 198001 2919 923 Q21 5FR 18UCGG0011 18UCGG E01020016EX1 1BQ EX1 1BQ 198001 2918 923 Q21 5FR 18UCGG0013 18UCGG E01020016EX1 1BR EX1 1BR 198303 2916 922 Q21 5FR 18UCGG0010 18UCGG E01020016EX1 1BS EX1 1BS 198001 2919 924 Q21 5FR 18UCGG0013 18UCGG E01020016EX1 1BT EX1 1BT 200112 200402 2922 926 Q21 5FR 18UCGG0006 18UCGG E01020016EX1 1BU EX1 1BU 198001 2918 924 Q21 5FR 18UCGG0013 18UCGG E01020016EX1 1BW EX1 1BW 198001 2918 924 Q21 5FR 18UCGG0013 18UCGG E01020016EX1 1BX EX1 1BX 200106 2922 926 Q21 5FR 18UCGG0006 18UCGG E01020016EX1 1BY EX1 1BY 198001 199501 2919 924 Q21 5FR 18UCGG0013 18UCGG E01020016

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South West Public Health Observatory

Index of Multiple Deprivation 2007

Distinct dimensions of deprivation which can be recognised and measured separately.

These are experienced by individuals living in an area.

People may be counted in one or more of the domains, depending on the number of types of deprivation that they experience.

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GOVERNMENT OFFICEFOR THE SOUTH WEST

South West Public Health Observatory

Domains of Index of Multiple Deprivation 2007

Income Deprivation22%

Employment Deprivation

23%

Health Deprivation and Disability

14%

Education, Skills and Training Deprivation

14%

Barriers to Housing and Services

9%

Crime9%

Living Environment Deprivation

9%

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GOVERNMENT OFFICEFOR THE SOUTH WEST

South West Public Health Observatory

Extract from IMD

http://www.communities.gov.uk/communities/neighbourhoodrenewal/deprivation/deprivation07/

LSOALA

CODEIMD

SCORE

RANK OF IMD (where 1 is

most deprived)

NATIONAL INCOME SCORE

Income Rank

National

EMPLOYMENT

SCORE

Employment Rank

NationalE01014484 00HA 7.74 26711 0.04 28868 0.02 32042E01014485 00HB 28.88 8701 0.17 11049 0.10 12039E01014486 00HB 53.72 1659 0.38 2264 0.22 2088E01014487 00HB 16.57 16738 0.07 23583 0.07 20631E01014488 00HB 29.61 8357 0.19 9335 0.14 7434E01014489 00HB 41.87 4159 0.28 5284 0.18 4276E01014490 00HB 60.98 815 0.50 532 0.24 1474E01014491 00HB 15.62 17596 0.08 21680 0.08 16416

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GOVERNMENT OFFICEFOR THE SOUTH WEST

South West Public Health Observatory

IMD 2007

For every indicator: Rank 1 is the most deprived SOA in

England Rank 32,482 the least Ward scores and ranks are

calculated (unofficially) Local Authority summaries

calculated (officially)

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GOVERNMENT OFFICEFOR THE SOUTH WEST

South West Public Health Observatory

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GOVERNMENT OFFICEFOR THE SOUTH WEST

South West Public Health Observatory

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South West Public Health Observatory

International Classification of DiseasesICD-10 chaptersA00 - B99 : Infectious and Parasitic DiseasesC00 - D48 : NeoplasmsD50 - D89 : Blood and blood forming organsE00 - E90 : Endocrine Nutritional and MetabolicF00 - F99 : Mental and Behavioural DisordersG00 - G99 : Nervous SystemH00 - H59 : Eye and AdnexaH60 - H95 : Ear and Mastoid ProcessI00 - I99 : Circulatory SystemJ00 - J99 : Respiratory SystemK00 - K93 : Digestive SystemL00 - L99 : Skin and Subcutaneous TissueM00 - M99 : Muskuloskeletal System and Connective TissueN00 - N99 : Genitourinary SystemO00 - O99 : Pregnancy Childbirth and PeurperiumP00 - P96 : Conditions Originating in the Perinatal PeriodQ00 - Q99 : Congenital Malformations Deformations and Chromosomal AbnormalitiesR00 - R99 : Symptoms Signs and Abnormal Findings NECS00 - T98 : Injury Poisoning and Consequences of External CausesV01 - Y98 : External Causes of Morbidity and MortalityZ00 - Z99 : Factors Influencing Health Status and Contact with Health Services

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A Nervous SystemB Endocrine System and BreastC EyeD EarE Respiratory TractF MouthG Upper Digestive TractH Lower Digestive TractJ Other Abdominal Organs - principally DigestiveK HeartL Arteries and VeinsM UrinaryN Male Genital OrgansP Lower Female Genital TractQ Upper Female Genital TractRFemale Genital Tract associated with Pregnancy Childbirth and PuerperiumS SkinT Soft TissueU Bones and Joints of Skull and SpineW Other Bones and JointsX Miscellaneous OperationsY Subsidiary Classification of Methods of OperationZ Subsidiary Classification of Sites of Operation

OPCS 4 – CLASSIFICATION OF SURGICAL OPERATIONS AND PROCEDURES

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GOVERNMENT OFFICEFOR THE SOUTH WEST

South West Public Health Observatory

EXTRACT FROM OPCS 4

code chapter organ operation procedure

A012 NERVOUS SYSTEM BRAIN Major excision of tissue of brain Total lobectomy of brainA013 NERVOUS SYSTEM BRAIN Major excision of tissue of brain Partial lobectomy of brain

E031 RESPIRATORY TRACT NOSE Operations on septum of nose Submucous excision of septum of noseE292 RESPIRATORY TRACT LARYNX Excision of larynx Partial horizontal laryngectomy

J 019 OTHER ABDOMINAL ORGANS - PRINCIPALLY DIGESTIVELIVER Transplantation of liver UnspecifiedJ 021 OTHER ABDOMINAL ORGANS - PRINCIPALLY DIGESTIVELIVER Partial excision of liver Right hemihepatectomy

T291 SOFT TISSUE ABDOMINAL WALL Operations on umbilicus Excision of umbilicusT292 SOFT TISSUE ABDOMINAL WALL Operations on umbilicus Excision of urachusT851 SOFT TISSUE LYMPHATIC TISSUE Block dissection of lymph nodes Block dissection of cervical lymph nodesT852 SOFT TISSUE LYMPHATIC TISSUE Block dissection of lymph nodes Block dissection of axillary lymph nodes

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GOVERNMENT OFFICEFOR THE SOUTH WEST

South West Public Health Observatory

Other disease classifications Read (primary care) SNOMED (Systematic Nomenclature of

Medicine) ICF (International Classification of

Functioning, Disability and Health)

http://www.healthknowledge.org.uk/Health%20Information/HK%203b3.htm

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GOVERNMENT OFFICEFOR THE SOUTH WEST

South West Public Health Observatory

Elementary record linkage

If you have a common field in two sets of records you can link records

eg NHS number (link HES and mortality records)

Postcode (link mortality to Gridlink to IMD for SuperOutput Area (LSOA))

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GOVERNMENT OFFICEFOR THE SOUTH WEST

South West Public Health Observatory

Specialist data sources Many sources of special data (which we

can’t cover here) including:

Infectious diseases (hpa.org.uk) Cancer Prescribing

http://www.healthknowledge.org.uk/Health%20Information/HK%203b6&7.htm

Sexual health (hpa.org.uk and http://www.everychildmatters.gov.uk/teenagepregnancy/)

Lifestyle

Page 32: Primary data sources

GOVERNMENT OFFICEFOR THE SOUTH WEST

South West Public Health Observatory

Geodemographics

Segmentation

Page 33: Primary data sources

GOVERNMENT OFFICEFOR THE SOUTH WEST

South West Public Health Observatory

What you have learned Differences between record-level and

aggregate data Some examples of primary data (births,

deaths, HES) Simple sources of pre-calculated data (VS,

Compendium, LHO basket, NeSS) confidentiality Codes and lookups Specialist data sources (reference and

links) What geodemographics and segmentation

are