PRESENTATION OF THE RESULTS - Onkologija · Diagnose of cancer and cancer treatment- first...
Transcript of PRESENTATION OF THE RESULTS - Onkologija · Diagnose of cancer and cancer treatment- first...
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PRESENTATION OF THE RESULTS
3rd JACPO June 18th – June 19th 2019
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Ivica Belina, president of Coalition of Associations in Healthcare
3rd JACPO June 18th – June 19th 2019
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How the JACPO meeting came to be?
No country can fight cancer by it self!
High cancer incidence and cancer mortality throughout the countries of the CEE region
Disparities in health literacy, engagement of cancer patient organizations, advocacy
Disparities in cancer care
We wanted to share best practices, knowledge, and start common activities
3rd JACPO June 18th – June 19th 2019
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How the survey came to be?
3rd JACPO June 18th – June 19th 2019
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How the survey came to be?
3rd JACPO June 18th – June 19th 2019
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What we wanted to achieve with the survey?
3rd JACPO June 18th – June 19th 2019
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Number of participants per capita
3rd JACPO June 18th – June 19th 2019
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assist. prof. Slavica Sović MD, PhD, School of Medicine, University of Zagreb
3rd JACPO June 18th – June 19th 2019
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Personal Information
For myself; 12984; 79%
On behalf of somebody else;
3474; 21%
9
Are you filling in this questionnaire for yourself, or on behalf of somebody else? (N = 16458)
3rd JACPO June 18th – June 19th 2019
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Personal Information- gender
Female;12764; 78%
Male; 3694; 22%
10
What is your/person on whose behalf you are filling the questionnaire gender? (N = 16458)
3rd JACPO June 18th – June 19th 2019
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Personal Information- gender
81 81 85 84 78 78
6174 73 78
83 81
19 19 15 16 22 22
3926 27 22
17 19
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
pe
rce
nta
ge
Female Male
11
What is your/person on whose behalf you are filling the questionnaire gender? (N = 16458)
3rd JACPO June 18th – June 19th 2019
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Personal Information- Participants by Country
12
Participants by Residence Country (N = 16458)
3rd JACPO June 18th – June 19th 2019
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Personal Information- type of cancer
Head and neck; 586; 4%
Gynecological; 1372; 8%
Breast; 7378; 45%
Urological; 490; 3%
Colorectal / bowel; 1735; 10%
Skin; 430; 3%
Lung; 2034; 12%
Gastrointestinal; 624; 4%
Prostata; 254; 2%
Haemathological; 1056; 6%
Brain/ CNS; 427; 3%
Sarcoma; 72; 0%
13
What type of cancer were you first diagnosed with? (N = 16458)
3rd JACPO June 18th – June 19th 2019
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Personal Information- type of cancer
2 2 1 1 4 27 5 4 1 0
1012 5 5 89 10 4
126
4 4
6
5661
5758
39 4230
36 4953
65 41
52
32
2 2
6
35 3
2
2
69
1112
914
10
137
7
413
4 40
0
42
4
2 3 42 2
6 1014 9
19 14
13
12 10 810 12
4 4 2 63 5
5
5 22
2 2
0 0 0 0 2 1
3
3 21
2 1
3 2 6 2 7 514
6 7 15 3 40 2 1 2 1 4 4 2 4 2 6 51 0 0 0 0 1 0 0 0 0 1 0
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
Sarkoma
Brain/ CNS
Haemathological
Prostata
Gastrointestinal
Lung
Skin
Colorectal / bowel
Urological
Breast
Gynecological
Head and neck
14
What type of cancer were you first diagnosed with? (N = 16458)
3rd JACPO June 18th – June 19th 2019
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Diagnose of cancer and cancer treatment
7786
9479
72 7378
63
82 84 85 85
1511
6
3 2111
13
24
10 813
6
8 317
717
9 147 8
29
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Per
cen
tage
Screening program
Screening programfor an unrelatedhealth problem
I visited doctorbecause I felt thatsomething is wrongwith me
15
How was your cancer diagnosed? (N = 16458)
3rd JACPO June 18th – June 19th 2019
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7984
92,56
74 7265
7062
78 8287,8 87
7
11
7,44
214
4
7
7
7 3
9,59
0
13,724,78
0
23,9413,75
30,7822,27
30,97
14,67 14,53
2,6113,1
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Screening program
Screening program foran unrelated healthproblem
I went to the doctorbecause I felt thatsomething is wrongwith me
163rd JACPO June 18th – June 19th 2019
Diagnose of cancer and cancer treatment- breast cancer
Figure 7. How was your breast cancer diagnosed? (N = 7378)
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Diagnose of cancer and cancer treatment-colon cancer
8796 98 93
8071 76
64 63
85 86
60
131 2
015
13 8 2937
514
13
0 3 0 7 515 15
60
100
27
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
Screening program
Screening program for anunrelated health problem
I visited doctor because I feltthat something is wrongwith me
17
How was your colon cancer diagnosed? (N = 1735)
3rd JACPO June 18th – June 19th 2019
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Diagnose of cancer and cancer treatment-time for diagnosis
75
56
7266 61
5365
54 59 5036
48
14
25
1721 26
31
24
3031
3146 26
5
80 5 7 9 6 7
511 13
9
26 4
4 2 3 2 4 0 33
8
4 6 3 1 2 3 2 4 2 22
70 1 3 2 2 1 2 1 2 2 0 2
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
Not applicable
More than one year
Six month to one year
Three to six month
One to three month
Less than a month
18
After first seeing a doctor about the health problem caused by your cancer, how long did it
take to be diagnosed with cancer? (N = 16458)3rd JACPO June 18th – June 19th 2019
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Diagnose of cancer and cancer treatment- first treatment
63 6657
47
71
47
79
49
69 70
5547
29 2434 51
25
45
18
40
26 25
42
40
6 8 32 3
63
83 3 4
8
2 0 40 1 1 0 2 2 0 0
20 2 2 0 0 0 0 1 0 1 0 10 0 0 0 0 0 0 0 0 1 0 2
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
More than five years
One to five years
Less than one year
Less than six month
Less than three month
Less than a month
19
After you were diagnosed with cancer, how long did you wait for the first treatment?
(N = 16458)3rd JACPO June 18th – June 19th 2019
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What was your first treatment?
68,2963,89
81,72
56,7764,59
70,42
60,48 58,0251,98 53,85
70,7866,37
27,3128,57
10,61
29,04
26,6723,67
29,2826,33 40,53
39,02
24,2927,41
2,784,95
06,9
3,173,22
4,17,55
2,94 3,083,61 2,71
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100% Not applicable
Don't know/ don't remember
Supportive therapy
New medicines through clinicaltrials
Hormones therapy
Biological therapy
Immunotherapy
Radiotherapy
Chemotherapy
Surgery
203rd JACPO June 18th – June 19th 2019
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Diagnose of cancer and cancer treatment- advanced disease
22 20 2133 31 28
2132
1119 21
29
75 73 7162 61 67
6760
77 6670
65
3 5 6 3 6 4 8 6 10 1210 4
0 2 2 2 2 1 4 3 3 3 0 1
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
Not applicable
Do not know
No
Yes
21
Had your cancer spread to other organs or parts of your body at the time you were first told you had cancer?
(N = 16458)
3rd JACPO June 18th – June 19th 2019
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Diagnose of cancer and cancer treatment-support
52
70 7160
66 62
30
6069
6170
49
32
23 1927 20
28
63
2923
32 11
29
3
76 10 9 5
22
8 4
1311
121 5 4 5 4 5 9
0 3 6 11
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
Do not know
I was told by phone or letter
Yes
No
22
When you were first told that you had cancer, had you been told you could bring a family
member or friend with you? (N = 16458)
3rd JACPO June 18th – June 19th 2019
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Diagnose of cancer and cancer treatment-diagnosis communication
6252
59 58 5362
73
48 4657 51
60
22
2620 19 24
21
15
27 27
28
20
24
16 22 21 23 2317 12
25 2716
2915
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
It should have been done a lot more sensitively
It should have been done a bit more sensitively
It was done sensitively
23
How do you feel about the way you were told you had cancer? (N = 16458)
3rd JACPO June 18th – June 19th 2019
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Diagnose of cancer and cancer treatment- treatment options
11 1318 15 19
229 14
1528
156
50 4142 43 35 35
24
3741
37
3339
3237
3229 34 27
5834 27
27
36 41
6 7 8 11 11 147 14 15
716 8
0 2 0 2 1 1 2 1 2 1 0 5
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
Do not know
There was only one type of treatment
Yes, completly
Yes, to some extend
No
24
Before your cancer treatment started, were your treatment options explained to you? (N =
16458)
3rd JACPO June 18th – June 19th 2019
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Diagnose of cancer and cancer treatment-doctor communication
10 11 9 5 10 7 3 6 0 66 7
21
35 4143
4437 40 37 49
48 50 49
39
2935 39 29 42
3442
40 33 29 34
3024
15 14 17 1423
14 10 13 14 11
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
More than three
Two-three
One
None
25
Before your cancer treatment started, how many conversations did you have with the doctor
who runs your treatment? (N = 16458)
3rd JACPO June 18th – June 19th 2019
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Diagnose of cancer and cancer treatment-tretment plan
2637
2330 33
46
21
39 3441
2612
55
52
62
33
53 30
65
44 52 4157
78
1510 15
31
1220
11 13 11 14 143
4 2 0 5 2 4 3 4 3 4 2 6
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
Do not know
I do not know what a cancer treatment plan is
Yes
No
26
Figure 18. Have you been given a cancer treatment plan? (N = 16458)
3rd JACPO June 18th – June 19th 2019
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Diagnose of cancer and cancer treatment- side efects
2617
3824 24 29
17
32 26 30 2815
34
34
17
23 27 1848 21
21 18 20 38
3844 41 50 45 47
2741 53
45 4641
2 2 3 1 3 4 5 40
7 4 30 2 2 1 1 2 4 2 0 1 2 3
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
Do not know
I did not need an explanation
Yes, to some extent
Yes, definitely
No
27
Were the possible side effects of treatment(s) (short term and long term) explained in a way
you could understand? (N = 16458)
3rd JACPO June 18th – June 19th 2019
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Diagnose of cancer and cancer treatment-side efects management
31 31
53
36 39 3118
46
2436
2817
27 25
14
23 1819 46
14
21
1422
30
42 4133
38 4248
29 36
53 4746 49
0 3 0 3 2 2 7 4 3 3 3 4
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
-
Diagnose of cancer and cancer treatment-decisionmaking
17
3240 39
31 3118 22
34
5850
17
38
31 20 17 3123 49
3119
1823
37
4335
38 3935
4430
41 44
23 28
42
2 1 3 5 2 2 4 5 2 1 0 4
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
Do not know
Yes, to some extent
Yes, definitely
No
29
Were you involved as much as you wanted to be in decisions about your care and treatment?
3rd JACPO June 18th – June 19th 2019
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Support to patients and caregivers- day to day activities
57 5562
55 5347
31
5260 61
71
50
28 3433
28 3130
5624
29 25 12
38
97
3
10 12 187
208 10 15 8
6 4 2 6 3 5 6 4 3 4 3 5
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge Do not know
It was not necessary
Yes
No, but I would have liked a discussion orinformation
30
Did hospital staff discuss with you or give you information about the impact cancer could have on your day to day
activities (for example, your work life or education)?
3rd JACPO June 18th – June 19th 2019
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Support to patients and caregivers- financial benefits
7581 77
7083
72
32
77 79 74 7969
1611 18
10
8
6
35
711
5
11
8
48 4
15
8
16
13
1310
189
16
6 10 5 1 6
20
4 0 2 1 7
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Axi
s Ti
tle
Do not know
It was not necessary
Yes
No, but I would have liked information
31
Did hospital staff give you information about how to get financial help or any benefits you might be entitled to?
(N = 16458)
3rd JACPO June 18th – June 19th 2019
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Support to patients and caregivers- worries
38 3950 51 46
3830
51 48 4958
37
38 33
3624 35
36
26
3130
3827
36
19 24
12
2016
23
32
15 218 9
20
4 3 2 5 3 313
3 2 5 5 6
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
I had no worries or fears
Yes, definitely
Yes, to some extent
No
32
. During your hospital visit, did you find someone on the hospital staff to talk to about your worries and fears?
(N = 16458)
3rd JACPO June 18th – June 19th 2019
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Support to patients and caregivers- social services
46
67 67
51 5543
31
56
74
54 56
37
27
12 11
1315
19
13
17
7
16 11
28
11 3 6
56
12
25
82
4 7 13
11 16 1226
22 2120
14 1321 24 19
6 2 5 4 2 37
3 5 3 2 20 0 0 0 0 1 2 2 0 1 0 1
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
Do not know
Not applicable
I did not need help
Yes, definitely
Yes, to some extent
No
33
During your cancer treatment, and once your cancer treatment finished, were you given enough care and support from
health or social services (for example, district nurses, home helps, psychological support)? (N = 16458)
3rd JACPO June 18th – June 19th 2019
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Support to patients and caregivers- written information
58 5669
5262 61
31
5239
5851
32
36 36
26
35
34 34
60
41
51
31
3156
7 8 4 134 6 8 7 10 11
1812
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
Do not know
Yes
No
34
Were you given clear written information about what you should or should not do after leaving hospital?
(N = 16458)
3rd JACPO June 18th – June 19th 2019
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Support to patients and caregivers-who to call?
45
6553
34
5750
2639 44
57 62
31
51
2846
52
3844
64
54 48
41 33
59
4 7 214
4 6 10 7 93 5 10
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
Do not know
Yes
No
35
Did hospital staff tell you who to contact if you were worried about your condition or treatment after you left hospital? (N =
16458)
3rd JACPO June 18th – June 19th 2019
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Support to patients and caregivers-HCP communication
38
55 57 56 57 58 60 59 5947 43
64
31
27 18 2231 27 19 25
28
25 34
25207 17 13
8 1012
8 5
13 6
311 11 8 8
3 5 10 8 8 15 187
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
Do not know
Yes, often
Yes, sometimes
No
36
Did groups of doctors and nurses talk in front of you as if you weren’t there? (N = 16458)
3rd JACPO June 18th – June 19th 2019
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Support to patients and caregivers-trust
6571
4558 61 60 59 61
74
57 58 56
42
212
513
28
5
914
7
710
310
12
11
1410
11
117
14
18 7
918
1710
19 18
10
9 216
3 10
1811
5 3 4 30
13 1973
0 3 1 1 2 2 1 0 1 0 1
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
People from patient organization
Counselor in support group
GP
Oncology nurse
Peer in support group
Oncologist
37
Who gave you most confidence and most trust?
(N = 16458)
3rd JACPO June 18th – June 19th 2019
-
Support to patients and caregivers-out of pocket costs
37 3319
7
38 35 32 29 2532
3
18
2726
24
9
168 17
1214
16
6
19
17
6
6
1
4
4
14
417 4
1
4
19
35
50
84
4353
37
5544 48
89
60
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
Not applicable
I already had private health insurance
The care or treatment I wanted wasn’t available
I wanted to avoid delays
38
If you paid for any of your cancer care and treatment yourself, why was this? (N = 16458)
3rd JACPO June 18th – June 19th 2019
-
Support to patients and caregivers alternative treatments
5164
5140
5244 48
24
39 35
50 48
43
3346
49
4653 42
6751
53
47 48
6 3 3 112 3
10 8 9 113 4
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
I prefer not to say
No
Yes
39
Did you buy any alternative preparations or pay for any alternative treatments? (N = 16458)
3rd JACPO June 18th – June 19th 2019
-
Support to patients and caregivers- alternative treatments
73 73 71 67 67 65 67 62 61 63 5770
18 23 2320
30 2919 32 28
34
31
28
8 4 6 133 6
146 11
412
1
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
I prefer not to say
No
Yes
40
If you bought some alternative treatments, or pay for some alternative treatments, did you inform your doctor about it?
(N = 16458)
3rd JACPO June 18th – June 19th 2019
-
Support to patients and caregivers- financial burden
79
6153
61 5772
5359 59
5057
64
16
1924
21 23
14
14
20 2025
1717
4
17 21 16 1613
29
19 21 23 2116
1 4 2 2 3 1 5 2 0 2 4 3
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
Do not know
No
I don’t think about that
Yes
41
Do you feel that your cancer care is a financial burden for your family? (N = 16458)
3rd JACPO June 18th – June 19th 2019
-
Quality of life-working status
35 31
46
19
3642
28 3141
2639
26
22
3
2
15
2
9
16
0
3
16
14
11
22
8
0
16
4
146
13
19
4
11
4
3 6
2
1 2
1 3
01
1
1
5
1214
19
15 823 14
17
11
1420
21
3
4
37 3
8
7
1
0 4
2228
21
41
26 27 30 3221
3925 24
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge Retirement
Not able/ not interested in work
Sick leave
I have to change my profession
Unemployed
Part time employed
Fully employed
42
What is your working status since you were diagnosed or treated? (N = 16458)
3rd JACPO June 18th – June 19th 2019
-
Quality of life-support of your working environment
46
61
42 4251
60
38 38 38
63
3750
13
30
3930
33 20
39
25 28
28
24
25
38
7
1222
910 16
31 30
5
3719
0 0 5 6 5 65 2 5 4
2 43 2 20 2 4 1 3 0 0 0 1
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
I'm not interested
Not applicable
No
Sometimes
Yes
43
Do you have the support of your working environment since you were diagnosed or treated?
3rd JACPO June 18th – June 19th 2019
-
Quality of life-communication with friends and family
4 18
0 4 3 5 5 5 4 3 4
68 7151 65 59
68 61 58
7467 63
67
19 2031
29 2723
26 30
1922 29 22
2 5 52 6 4 5 4
23
4 57 3 3 3 2 2 1 30
10 10 0 2 1 1 0 3 0 0 3 0 1
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
I'm not interested
Just with my children
Just with my partner
Yes, sometimes
Yes, always
No
44
Can you talk openly about your disease with your friends and family members? (N = 16458)
3rd JACPO June 18th – June 19th 2019
-
Quality of life- daily routine
31 2942 41 37
27 3237 37
2633 37
57 6441
5451
59 4949 49
6562 51
12 7 175
11 14 19 1414 9
512
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
Not at all
To some extend
Absolutely
45
Has your daily routine changed a lot since you were diagnosed with cancer? (N = 16458)
3rd JACPO June 18th – June 19th 2019
-
Quality of life- management of treatment side-effects
17 14 9 516
915
5 06 2
8
23
49 61
41
53 64 55
42 5655
37
64
34
1511
20
1516
13
18
1619
26
11
225
10
15
5
812
30 1512
12
11
418
919
112 4 5
13 8
24
6
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
None
Poor
Unsatisfactory
Satisfactory
Excellent
46
How would you describe your management of treatment side-effects (nausea, fatigue, skin changes, loss of hair, pain,
loss of appetite …)? (N = 16458)
3rd JACPO June 18th – June 19th 2019
-
Quality of life- influence of treatment side-effects
8 8
24 2114 18
317 13 10
2111
38
20
26 29
28 25
10
2923 30
49
29
2750
32 37
3524
23
3040 33
21
34
14 53
7
5
12
20
915
7
7
7
8 13 7
4
9 15
22
96
13
2
12
6 4 8 2 7 6
21
5 3 70
6
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
None
Very rarely
Rarely
Sometimes
Very often
All the time
47
Have you experience the influence of treatment side-effects on your every-day life? (N = 16458)
3rd JACPO June 18th – June 19th 2019
-
Palliative care in advanced disease
6551 51 50
58 54 51
68
44 42 42
58
2444 41 45
35 42
31
30
2635
5536
115 8 5 6 4
18
2
3123
2 6
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge
Disagree
Somewhat agree
Strongly agree
18/06/201948
To what extent would you agree or disagree with the following statement about death? (N=11 628)
We don’t talk about death and dying enough in this country.
-
Overall experience with cancer care
34
53 5363
50
6356
6454
59
37
60
33
3329
20
34
29
24
24
2825
42
299
5 9 5 4
4
6
45
77
517
6 6 6 72
3
48 3 5
263 3 5 5 2
114 5 5 9
4
0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Pe
rce
nta
ge Do not know
Three or more times
Once or twice, with no clear explanations
Once or twice, with clear explanations
Not at all
49
During the whole of your care and treatment for cancer, how often were appointments cancelled
by the hospital or clinic you were due to attend? (N = 16458)
3rd JACPO June 18th – June 19th 2019
-
Overall experience with cancer care (3)
COUNTRIES*
ALBANIA BiH BULGARIA
BiH ALBANIA CROATIA
BULGARIA ALBANIA
CZECHIACROATIA
POLAND
SLOVAKIA
SLOVENIA
CROATIA BiH CZECHIA
HUNGARY MACEDONIASERBIA
SLOVAKIA
MACEDONIAHUNGARY
ROMANIA
SERBIA
SLOVAKIA
POLAND CZECHIASLOVAKIA
SLOVENIA
ROMANIA MACEDONIA
SERBIAHUNGARY
MACEDONIA
SLOVAKIA
SLOVENIA
SLOVAKIA
CZECHIA
HUNGARY
MACEDONIA
POLAND
SERBIA
SLOVENIA
SLOVENIACZECHIA
POLAND
SERBIA
SLOVAKIA
50
Figure 83. Distribution of overall score (How would you
rate your cancer care?) by Country! (N = 16458)
Kruskal-Wallis ANOVA test:
H(11,N=16458) = 662,62; P < 0,001
*Counries in each row do not differ one from
eachother in distribution of overall score
(How would you rate your cancer care?)
Table 1. Results of the multiple
comparisons of the distribution of overall
score (How would you rate your cancer
care?), Kruskal-Wallis ANOVA TEST
3rd JACPO June 18th – June 19th 2019
-
Conclusions
Health care professionals give confidence and trust to participants and caregivers
Processes of health care to be improved: • Delivering bad news• Waiting time • Providing information about treatment • Providing information about health care and social care support• Health service and social service support (for example, district
nurses, home helps, psychological support)
513rd JACPO June 18th – June 19th 2019
-
Conclusions (2)
Diagnose influence daily routine
It is financial burden for participant and family
Social networks support is welcome
523rd JACPO June 18th – June 19th 2019